SOCW 6311 WK 2 ASSIGNMENT: Assignment: Evidence-Based Practice Implementation—Anticipating Results

  

SOCW 6311 WK 2 ASSIGNMENT: Assignment: Evidence-Based Practice Implementation—Anticipating Results

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Many social workers attempt to implement an evidence-based practice that seems to be strongly supported by research, only to become frustrated or confused when their efforts do not yield the same positive results as the research. This discrepancy can occur because they failed to recognize the differences between conditions in their practice environment and the conditions of the study. Moreover, they may have failed to consider and adequately plan for issues that arise during implementation.

To prepare for this Assignment, using the resources for evidence-based practices, identify an evidence-based practice that may be applicable to your field of practice. Review two research articles demonstrating the effectiveness of the evidence-based practice. Note any similarities or differences between the conditions in which the evidence-based practice was implemented in the study and the conditions in which you plan to implement it.

Submit a 4- to 5-page paper that analyzes the implementation of the evidence-based practice in your field of practice to determine if you can expect similar results to the research. The paper should include the following Must Start with introduction and end with conclusion And hits all these bullet points

MY SOCIAL WORK FIELD OF PRACTICE IS ADVANCED Clinical Practice

A description of the evidence-based practice that you selected including:

The population for which the evidence-based practice is intended

The problems for which the evidence-based practice is intended to address

A summary of the evidence from the research articles that demonstrate the evidence-based practice’s effectiveness

An explanation of any differences between the conditions of the study and the conditions on your practice. Explain the potential impact these differences could have on successful implementation.

A description of the steps that would be required to implement the evidence-based practice including:

Any factors that would support each step and how you would leverage them

Any factors that would limit or hinder each step and how you would mitigate them

A conclusion that includes:

Anticipated results of the implementation in your practice setting

An explanation of whether they will be similar or different from the research results from the articles

Resources 

Promising Practice Network.(N.D.).Programs that work. Retrieved from

http://www.promisingpractices.net/programs_indicator_list.asp?indicatorid=7

 

Promising Practice Network.(N.D.) Research in brief. Retrieved from

http://www.promisingpractices.net/issuebriefs.asp

 

Child Welfare Information Gateway. (N.D.) Evidence-based practice for child abuse prevention. Retrieved from

https://www.childwelfare.gov/topics/preventing/evidence/

 

Substance Abuse and Mental Health Services Administration. (2018) Evidence-based practice resource center. Retrieved from

https://www.samhsa.gov/ebp-resource-center

 

The Campbell Collaboration. (N.D.) Retrieved from

http://www.campbellcollaboration.org/

 

Getting Started

with Evidence-Based
Practices

Family

Psychoeducation

U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES
Substance Abuse and Mental Health Services Administration

Center for Mental Health Services

www.samhsa.gov

http://www.samhsa.go

Family
Psychoeducation
Getting Started
with Evidence-Based
Practices

U.S. Department of Health and Human Services

Substance Abuse and Mental Health Services Administration

Center for Mental Health Services

  • Acknowledgments
  • This document was prepared for the Substance Abuse and Mental Health Services Administration
    (SAMHSA) by the New Hampshire-Dartmouth Psychiatric Research Center under contract number
    280-00-8049 and Westat under contract number 270-03-6005, with SAMHSA, U.S. Department
    of Health and Human Services (HHS). Neal Brown, M.P.A., and Crystal Blyler, Ph.D., served as
    the Government Project Officers.

    Disclaimer

    The views, opinions, and content of this publication are those of the authors and contributors and
    do not necessarily reflect the views, opinions, or policies of the Center for Mental Health Services
    (CMHS), SAMHSA, or HHS.

    Public Domain Notice

    All material appearing in this document is in the public domain and may be reproduced or
    copied without permission from SAMHSA. Citation of the source is appreciated. However,
    this publication may not be reproduced or distributed for a fee without the specific, written
    authorization from the Office of Communications, SAMHSA, HHS.

    Electronic Access and Copies of Publication

    This publication may be downloaded or ordered at http://www.samhsa.gov/shin. Or, please
    call SAMHSA’s Health Information Network at 1-877-SAMHSA-7 (1-877-726-4727) (English
    and Español).

    Recommended Citation

    Substance Abuse and Mental Health Services Administration. Family Psychoeducation: Getting
    Started with Evidence-Based Practicess. HHS Pub. No. SMA-09-4422, Rockville, MD: Center for
    Mental Health Services, Substance Abuse and Mental Health Services Administration,
    U.S. Department of Health and Human Services, 2009.

    Originating Office

    Center for Mental Health Services
    Substance Abuse and Mental Health Services Administration
    1 Choke Cherry Road
    Rockville, MD 20857

    HHS Publication No. SMA-09-4422
    Printed 2009

    http://www.samhsa.gov/shin

    Getting Started with
    Evidence-Based Practices

  • Getting Started with EBPs
  • gives you an overview of the activities
    that are generally involved in implementing EBPs and tells you
    how to make EBPs culturally competent. This booklet is particularly
    relevant to the following:

    n  Mental health authorities; and

    n  Agency staff who develop and manage EBP programs.

    Family
    Psychoeducation

    For references, see the booklet The Evidence.

    This KIT is part of a series of Evidence-Based Practices KITs created
    by the Center for Mental Health Services, Substance Abuse and
    Mental Health Services Administration, U.S. Department of Health
    and Human Services.

    This booklet is part of the Family Psychoeducation KIT that includes
    a DVD, CD-ROM, and seven booklets:

    How to Use the Evidence-Based Practices KITs

    Getting Started with Evidence-Based Practices

    Building Your Program

    Training Frontline Staff

    Evaluating Your Program

    The Evidence

    Using Multimedia to Introduce Your EBP

    Family
    Psychoeducation

    What’s in Getting Started with
    Evidence-Based Practices

    Consensus Building: Build Support for Change . . . . . . . . 3

    Integrate the EBP into Policies and Procedures . . . . . . . . 5

  • Assess Training Needs
  • . . . . . . . . . . . . . . . . . . . . . . . . . 7

  • Monitor and Evaluate Regularly
  • . . . . . . . . . . . . . . . . . . 9

    Maximize Effectiveness by Making Services
    Culturally Competent . . . . . . . . . . . . . . . . . . . . . . . . . 11

    Getting Started with EBPs 3

    Getting Started
    with Evidence-Based Practices

    Consensus Building:
    Build Support for Change

    Within a system, change affects
    stakeholders differently. Consequently,
    when making changes in the mental
    health system, mental health agencies
    should expect varied reactions from
    staff, community members, consumers,
    and families. Since misunderstandings
    can stymie your efforts to implement
    evidence-based practices (EBPs),
    it is important to build consensus
    to implement EBPs in the community.

    Practitioner training alone is not
    effective. The experience of mental
    health authorities and agencies that have
    successfully implemented EBPs reinforces
    that fact. Instead, practitioner training

    must be complemented by a broad range
    of implementation activities, including the
    following:

    n Building support for the EBP;

    n Integrating the EBP into agency
    policies and procedures;

    n Training staff agency-wide on basic EBP
    principles; and

    n Allowing for ongoing monitoring and
    evaluation of the program.

    This overview introduces the general
    range of activities involved in successfully
    implementing EBPs. For guidelines and
    suggestions for EBP-specific activities, see
    the remaining sections of each KIT.

    4 Getting Started with EBPs

    How to build support for your EBP

    Consensus-building activities are designed to build
    support for implementing EBPs. Here are some
    ways to develop them:

    Step 1 Identify key stakeholders or people who
    will be affected by the EBP. Stakeholders
    may include agency personnel at all
    levels, mental health authority staff, and
    consumer and family representatives.
    Depending on the EBP, you may also
    wish to build relationships with other
    community organizations, such as the
    Department of Vocational Rehabilitation,
    homeless shelters, food banks, police,
    hospitals, peer-support programs, and
    consumer and family groups.

    Step 2 Invite one potential EBP champion from
    each stakeholder group to participate in
    an EBP advisory committee. According
    to agencies that have successfully
    implemented EBPs, identifying ongoing
    champions and forming an advisory
    committee are critical activities. While at
    first you may feel that creating an advisory
    committee slows the process, any amount
    of time used to build stakeholder support is
    worth the effort.

    EBPs have little hope for success if the
    community doesn’t recognize that they are
    needed, affordable, worth the effort, and
    congruent with community values and the
    agency’s practice philosophy. Mental health
    authorities and agency administrators must
    convey to key stakeholders a clear vision
    and a commitment to implementing the
    EBP. By forming an advisory committee
    of potential champions from each
    stakeholder group, you will be able to

    broadly disseminate information in the
    community. After training committee
    members in the basic principles of the EBP,
    ask them to hold informational meetings
    or to regularly disseminate information to
    their stakeholder groups.

    Step 3 Ask for advice. Developing the advisory
    committee and educating its members
    in the EBP early in the planning process
    will allow you to ask committee members
    for their advice during all phases of the
    implementation process. Community
    members may help assess how ready
    the community and the agency are to
    implement the EBP and its activities.
    Once the EBP is in place, committee
    members can keep EBP staff informed of
    relevant community trends that may have
    an impact on providing the EBP services.

    EBP advisory committees are crucial
    for sustaining the EBP over time. When
    EBP staff turn over, or other well-trained
    staff leave and must be replaced, or when
    funding streams or program requirements
    change, community and political alliances
    are essential. A well-established committee
    can champion the EBP through changes.

    Step 4 Build an action plan. Once key
    stakeholders basically understand the EBP,
    have your advisory committee develop an
    action plan for implementation. Action
    plans outline activities and strategies
    involved in developing the EBP program,
    including the following:

    n    Integrating the EBP principles into
    mental health authority and agency
    policies and procedures;

    n  Outlining initial and ongoing training
    plans for internal and external
    stakeholders; and

    Getting Started with EBPs 5

    n    Designing procedures to regularly
    monitor and evaluate the EBP.

    Base the activities in your action plan on
    the needs of the population you serve, your
    community, and your organization.

    Step 5 Involve the advisory committee in an
    ongoing evaluation of the EBP. Committee
    members can help you decide which
    outcomes you should target. They can
    help you integrate continuous quality
    improvements.

    Integrate the EBP into Policies
    and Procedures

    Examine policies and procedures

    Mental health authorities and agencies that have
    successfully implemented EBPs highlight the
    importance of integrating the EBP into policies and
    procedures. For example, you will immediately face
    decisions about staffing the EBP program. Mental
    health authorities can support the implementation

    To start implementing your EBP

    n   Pinpoint key stakeholder groups that will be
    affected by implementing the EBP.

    n   Identify potential champions from each group
    and invite them to participate in an EBP
    advisory committee.

    n  Ask the committee to advise you during
    the process.

    n Build an action plan.

    n Outline responsibilities for committee members,
    such as:

      o Participating in EBP basic training;

      o   Providing basic information about the EBP to
    their stakeholder groups;

      o   Advising you during all phases of the
    implementation process; and

      o   Participating in an ongoing evaluation
    of the EBP.

    6 Getting Started with EBPs

    process by integrating staffing criteria into
    regulations. Agency administrators should select
    an EBP program leader and practitioners based
    on mental health authority regulations and
    qualifications that the EBP requires. New EBP
    position descriptions should be integrated into
    the agency’s human resource policies. EBP-
    specific suggestions in Building Your Program
    will help mental health authorities and agency
    staff determine the appropriate mix and number
    of staff, define staff roles, and develop a
    supervision structure.

    Agency administrators and mental health
    authorities should also review administrative
    policies and procedures to ensure that they are
    compatible with EBP principles. For example,
    you may need to modify admission and discharge
    assessment, treatment planning, and service-
    delivery procedures. Make sure policies and
    procedures include information about how to
    identify consumers who are most likely to benefit
    from the EBP and how to integrate inclusion
    and exclusion criteria into referral mechanisms.
    Integrating EBP principles into policies and
    procedures will build the foundation of the
    EBP program and will ensure that the program
    is sustainable. Examine policies and procedures
    early in the process. While most changes will occur
    in the planning stages, regularly monitoring and
    evaluating the program (see discussion below)
    will allow you to periodically assess the need for
    more changes.

    Identify funding issues

    Identifying and addressing financial barriers is
    critical since specific costs are associated with
    starting new EBP programs and sustaining them.
    Identify short- and long-term funding mechanisms
    for EBP services, including federal, state, local
    government, and private foundation funds. You can
    work with your EBP advisory committee to project
    start up costs by identifying the following:

    n  Time for meeting with stakeholders that is not
    reimbursed;

    n Time for staff while in training;

    n Staff time for strategic planning;

    n Travel to visit other model EBP programs; and

    n  Costs for needed technology (cell phones and
    computers) or other one-time expenses accrued
    during the initial implementation effort.

    You should also identify funding mechanisms for
    ongoing EBP services and to support continuous
    quality improvement efforts, such as ongoing
    training, supervision, technical assistance, fidelity,
    and outcomes monitoring. In addition, you may
    need to revise rules for reimbursement that are
    driven by service definitions and criteria; this may
    require interagency meetings on the federal, state,
    and local levels.

    Getting Started with EBPs 7

    Get these valuable resources to help implement your EBP

    Numerous materials are available through the U.S. Department of Health and Human Services
    (http://www.hhs.gov) about using Medicaid and Medicare to fund necessary services. If you are
    implementing EBPs, one useful resource is Using Medicaid to Support Working Age Adults with Serious
    Mental Illnesses in the Community: A Handbook, published by the Assistant Secretary of Planning and
    Evaluation, January 2005.

    http://aspe.hhs.gov/daltcp/reports/handbook

    This handbook gives you an excellent introduction to the Medicaid program, including essential features,
    eligibility, and coverage of mental health services, community services, and waivers. It also provides helpful
    information for states seeking Medicaid funding to implement the following:

    n Family Psychoeducation;

    n Assertive Community Treatment;

    n Illness Management and Recovery;

    n Integrated Treatment for Co-Occurring Disorders;

    n Medication Management;

    n Supported Employment;

    n Supportive Housing;

    n Consumer-Directed Services; and

    n Peer Support.

    Assess Training Needs

    One of the next steps in implementing your
    EBP is to develop a training plan. You may gauge
    the amount of training needed by assessing the
    readiness of your community. If a community
    doesn’t know about the EBP and doesn’t recognize
    the existing need, you may have to conduct a wide
    range of educational activities. If a community
    already understands the EBP and knows how it may
    address problems that community members want
    to solve, you may need fewer educational activities.

    You can help train key stakeholder groups if
    you first train members of your EBP advisory
    committee and then ask them to disseminate
    information about the purpose and benefits
    of the EBP.

    In addition to assessing training needs in the
    community, agency administrators should gauge
    how well staff across the agency understand the
    EBP. Agency administrators who have successfully
    implemented EBPs highlight the importance of
    providing basic training on the EBP to all levels
    of staff throughout the agency. Educating and
    engaging staff will ensure support for the EBP.
    In the long run, if they are well trained, EBP
    staff will have an easier time obtaining referrals,
    collaborating with staff from other service
    programs, and facilitating a continuum of care.

    Ongoing in-service training is an efficient way to
    provide background information, the EBP practice
    philosophy and values, and the basic rationale
    for EBP service components in a comfortable
    environment. Consider including members of
    your advisory committee in decisions about the
    frequency and content of basic EBP training.

    http://www.hhs.gov

    http://aspe.hhs.gov/daltcp/reports/handbook

    8 Getting Started with EBPs

    Offer more intensive training to program
    leaders and practitioners

    While staff at all levels in the agency should
    receive basic EBP training, the program leader and
    practitioners will require more intensive training.
    To help practitioners integrate EBP principles
    into their daily practice, offer comprehensive
    skills training to those who provide EBP services.
    Each KIT contains a variety of EBP-specific
    training tools to help you provide both basic and
    intensive training.

    Although most skills that practitioners need may
    be introduced through these training tools, research
    and experience show that the most effective way to
    teach EBP skills is through on-the-job consultation.
    Consultants may provide comprehensive training
    and case consultation to EBP practitioners.

    Consultants may also help mental health authorities
    and agency administrators to do the following:

    n Provide basic information to key stakeholders;

    n Assess the community’s readiness for change;

    n   Assist in integrating EBP principles into policies
    and procedures; and

    n Design ongoing training plans.

    In many mental health agencies, turnover of
    staff is high. This means that the EBP will not
    be sustained unless ongoing training is offered to
    all employees.

    Many agencies have also found it useful for
    program leaders and practitioners to become
    familiar with the structure and processes of the
    practice by visiting agencies that have successfully
    implemented the EBP.

    Early in the process, mental health authorities
    and agency administrators must decide how to
    accomplish the following:

    n    Identify internal and external stakeholders who
    will receive basic training;

    n   Determine how often basic training will be
    offered;

    n   Identify who will provide the training;

    n   Identify EBP staff and advisory group members
    who will receive comprehensive skills training;

    n   Determine the training format for ongoing
    training to EBP staff; and

    n   Determine whether EBP staff may visit a model
    EBP program.

    EBP-specific suggestions in Building Your Program
    will help mental health authorities and agency staff
    develop an EBP training plan.

    Getting Started with EBPs 9

    Monitor and Evaluate Regularly

    Key stakeholders who implement EBPs may find
    themselves asking two questions:

    n Has the EBP been implemented as planned?

    n Has the EBP resulted in the expected
    outcomes?

    Asking these two questions and using the answers
    to improve your program is a critical component
    for ensuring the success of your EBP.

    n   To answer the first question, collect process
    measures (by using the EBP Fidelity Scale and
    General Organizational Index). Process measures
    capture how services are provided.

    n   To answer the second question, collect outcome
    measures. Outcome measures capture the results
    or achievements of your program.

    As you prepare to implement an EBP, we strongly
    recommend that you develop a quality assurance
    system using both process and outcome measures
    to monitor and improve the program’s quality from
    the startup phase and continuing through the life
    of the program. Evaluating Your Program in the
    KIT contains an EBP-specific Fidelity Scale, the
    General Organizational Index, and sample outcome
    measures. These measures may be integrated
    into existing quality assurance programs or help
    agencies develop new ones.

    Why you should collect process measures

    Process measures, such as the EBP Fidelity Scale
    and General Organizational Index, help you assess
    whether the core elements of the EBP were put
    into place in your agency. Research tells us that
    the higher an agency scores on a fidelity scale, the
    greater the likelihood that the agency will achieve
    favorable outcomes (Becker et al., 2001; Bond &
    Salyers, 2004). For this reason, it is important to
    monitor both fidelity and outcomes.

    Process measures give agency staff an objective,
    structured way to determine if you are delivering
    services in the way that research has shown will
    result in desired outcomes. Collecting process
    measures is an excellent method to diagnose
    program weaknesses, while helping to clarify
    program strengths. Process measures also give
    mental health authorities a comparative framework
    to evaluate the quality of EBPs across the state.
    They allow mental health authorities to identify
    statewide trends and exceptions to those trends.

    Why you should collect outcome measures

    While process measures capture how services
    are provided, outcome measures capture the
    program’s results. Every service intervention has
    both immediate and long-term consumer goals.
    In addition, consumers have goals for themselves,
    which they hope to attain by receiving mental
    health services. These goals translate into outcomes
    and the outcomes translate into specific measures.

    10 Getting Started with EBPs

    Some outcomes directly result from an
    intervention, such as getting a job by participating
    in a supported employment program. Others are
    indirect, such as improving consumers’ quality of
    life as a result of having a job. Some outcomes are
    concrete and observable, such as the number of
    days worked in a month. Others are subjective,
    such as being satisfied with EBP services.

    Therefore, you should collect outcome
    measures, such as homelessness, hospitalization,
    incarceration, and recovery, that show the effect
    that services have had on consumers, in addition
    to the EBP fidelity measures. Monitoring fidelity
    and outcomes on an ongoing basis is a good
    way to ensure that your EBP is effective.

    Developing a quality assurance
    system will help you

    n   Diagnose your program’s strengths
    and weaknesses;

    n   Formulate action plans to improve the
    program;

    n   Help consumers achieve their goals for
    recovery; and

    n   Deliver mental health services both efficiently
    and effectively.

    How process and outcome data improve EBPs

    Collecting and using process and outcome
    data can improve consumer participation and
    staff performance.

    Consider the following story:

    Participants in a partial hospitalization program
    sponsored by a community mental health center
    consistently showed very little vocational interest or
    activity. Program staff began gathering data monthly
    about consumers’ vocational status and reporting the
    data to their program consultant. Every 3 months, the
    consultant returned the data to them using a simple
    bar graph.

    The positive result of gathering and using information
    about consumers’ vocational activity was evident
    almost immediately. Three months after starting this
    monitoring system, the percentage of the program’s
    consumers who showed an interest or activity in
    vocational areas increased from 36% to 66%. Three
    months later, 72% of program participants were
    involved in some form of vocational activity.

    This example shows that sharing process and
    outcomes data with consumers can stimulate
    participation in your EBP program.

    Similarly, disseminating assessment data can
    enhance the performance of EBP staff and increase
    motivation, professional learning, and a sense
    of accomplishment. In their study of successful
    companies, Peters and Waterman (1982) observed:

    We are struck by the importance of available
    information as the basis for peer comparison.
    Surprisingly, this is the basic control mechanism
    in the excellent companies. It is not the military
    model at all. It is not a chain of command wherein
    nothing happens until the boss tells somebody to
    do something. General objectives and values are set
    forward and information is shared so widely that
    people know quickly whether or not the job is getting
    done — and who’s doing it well or poorly (p. 266).

    Information in Evaluating Your Program will teach
    quality assurance team members how to collect,
    analyze, and use process and outcomes data to
    improve their EBP program.

    Getting Started with EBPs 11

    Maximize Effectiveness
    by Making Services
    Culturally Competent

    Cultural competence is an approach to delivering
    services that assumes that services are more
    effective when they are provided within the most
    relevant and meaningful cultural, gender-sensitive,
    and age-appropriate context for the people
    being served.

    You can improve the quality of your EBP program
    by ensuring that it is culturally competent — that
    it adapts to meet the needs of consumers from
    diverse cultures. First, it is important to understand
    what culture and cultural competence are and how
    they affect care.

    What culture is and how it affects care

    Broadly defined, culture is a common heritage or
    set of beliefs, norms, and values that a group of
    people shares. People who are placed — either by
    census categories or by identifying themselves —
    into the same racial or ethnic group are often
    assumed to share the same culture; however, not all
    members who are grouped together will share the
    same culture.

    A great diversity exists within each broad category.
    Some individuals may identify with a given racial
    or ethnic culture to varying degrees, while others
    may identify with multiple cultures, including those
    associated with their religion, profession, sexual
    orientation, region, or disability status.

    Culture is dynamic. It changes continually and
    is influenced both by people’s beliefs and by the
    demands of their environment. Immigrants from
    different parts of the world arrive in the United
    States with their own culture but gradually begin
    to adapt and develop new, hybrid cultures that
    allow them to function in the dominant culture.
    This process is called acculturation. Even groups
    that have been in the U.S. for many generations
    may share beliefs and practices that maintain

    influences from multiple cultures. This complexity
    necessitates an individualized approach to
    understanding culture and cultural identity in
    the context of mental health services.

    Culture influences many aspects of care,
    starting with whether people think care is
    even needed. Culture influences the concerns
    that people bring to the clinical setting, the
    language they use to express those concerns,
    and the coping styles they adopt.

    Culture affects family structure, living
    arrangements, and the degree of support that
    people receive in time of difficulties. Culture
    also influences patterns of help-seeking, whether
    people start with a primary care doctor, a mental
    health program, or a minister, spiritual advisor, or
    community elder. Finally, culture affects whether
    people attach a stigma to mental health problems
    and how much trust they place in the hands
    of providers.

    Culture isn’t just a consumer issue

    It’s easy to think that culture belongs only to
    consumers without realizing how it also applies to
    providers and administrators. Professional culture
    influences how providers and administrators
    organize and deliver care. Some cultural influences
    are more obvious than others — such as the manner
    in which practitioners ask questions or how they
    interact with consumers. Less obvious but equally
    important are issues such as the following:

    n The operating hours of an agency;

    n   The importance that staff attaches to reaching out
    to family members and community leaders; and

    n   The respect that staff gives to the culture of
    consumers who enter their doors.

    Knowing how culture influences so many aspects
    of mental health care underscores the importance
    of adapting agency practices to respond to,
    and be respectful of, the diversity of the
    surrounding community.

    12 Getting Started with EBPs

    The need for cultural competence

    For decades, many mental health agencies
    neglected to recognize the growing diversity
    around them. Often, people from non-majority
    cultures found programs off-putting and hard to
    access. They avoided getting care, stopped looking
    for care, or — if they managed to find care — they
    dropped out.

    Troubling disparities resulted. Many minority
    groups faced lower access to care, lower use of care,
    and poorer quality of care. Disparities were most
    apparent for racial and ethnic minority groups,
    such as the following:

    n African Americans;

    n American Indians and Alaska Natives;

    n Asian Americans;

    n Hispanic Americans; and

    n     Native Hawaiians and other Pacific Islanders.

    But disparities also affect many other groups,
    such as the following:

    n Women and men;

    n Children and older adults;

    n People from rural areas;

    n People of different religions;

    n People with different sexual orientations; and

    n People with physical or developmental
    disabilities.

    Altogether, those disparities meant that millions
    of people suffered needless disability from
    mental illnesses.

    Starting in the late 1980s, the mental health
    profession responded to the issue of disparity with
    a new approach to care called cultural competence.
    Originally cultural competence was defined as a
    set of congruent behaviors, attitudes, and policies
    that come together in a system, agency, or among
    professionals to enable people to work effectively

    in cross-cultural situations. Cultural competence is
    intended to do the following:

    n 

    n 

    n   

    Improve consumers’ access to care;

    Build trust; and

    Promote consumers’ engagement and retention
    in care.

    What is cultural competence?

    In the Surgeon General’s report on the topic
    cultural competence, it is defined in the most
    general terms as

    “… the delivery of services responsive to the cultural
    concerns of racial and ethnic minority groups,
    including their languages, histories, traditions,
    beliefs, and values” (U.S. Department of Health and
    Human Services, 2001).

    In most cases, cultural competence refers to sets of
    guiding principles developed to increase the ability
    of mental health providers, agencies, or systems to
    meet the needs of diverse communities, including
    racial and ethnic minorities.

    While consumers, families, providers, policymakers,
    and administrators have long acknowledged the
    intrinsic value of cultural competence, insufficient
    research has been dedicated to identifying its key
    ingredients. Therefore, the field still struggles to
    define cultural competence, put it into operation,
    and measure it.

    The word competence is somewhat misleading.
    It usually implies a set of criteria on which to
    evaluate a program. But this is not yet true;
    cultural competence is still underresearched.
    In this context, competence means that the
    responsibility to tailor care to different cultural
    groups belongs to the system, not to the consumer.
    Every provider or administrator who is involved
    in delivering care — from mental health
    authorities down to clinical supervisors and
    practitioners — bears responsibility for trying to
    make programs accessible, appropriate, appealing,
    and effective for the diverse communities
    that they serve. Many do it naturally.

    Getting Started with EBPs 13

    How cultural competence
    relates to EBPs

    According to the Surgeon General, evidence-based
    practices are intended for every consumer who
    enters care, regardless of his or her culture. But
    programs often need to adjust EBPs to make them
    accessible and effective for cultural groups that
    differ in language or behavior from the original
    study populations. The adjustments should help,
    rather than interfere with, a program’s ability to
    implement EBPs using the KITs.

    In a nutshell, to deliver culturally competent
    EBPs, you must tailor to the unique communities
    you serve either the practice itself or the context
    in which the practice is delivered. In time, specific
    fidelity measures may be available to assess a
    program’s cultural competence, but not yet. The
    evidence base is too small.

    While the evidence is being collected, programs
    can and should tailor EBPs to each cultural
    group they serve, for instance, by translating
    their informational brochures into the languages
    often used in their communities. For more
    suggestions, see How to put cultural competence
    into practice.

    Many providers ask,

    How can we know if EBPs apply to a particular
    ethnic, racial, or cultural group if the research
    supporting those practices was done on a very
    different population?

    The answer is that we will not know for sure
    until we try; but the limited research that
    does exist suggests that EBPs, perhaps with
    minor modifications, work well across cultures.
    Furthermore, because EBPs represent the highest
    quality of care currently available, it is a matter of
    fairness and prudence to provide them to all people
    who may need them. Yet the question remains,
    How can we do this effectively?

    How to put cultural competence
    into practice

    Since the goal is for all programs to be culturally
    competent, we offer a variety of straightforward
    steps to help agency administrators respond
    more effectively to the people they serve. These
    steps apply to all facets of a program; they are
    not restricted to the EBP program alone. Please
    note that the following guidelines are meant to be
    illustrative, not prescriptive:

    n   Understand the racial, ethnic, and cultural
    demographics of the population served.

    n   Become most familiar with one or two of the
    groups you most commonly encounter.

    n   Create a cultural competence advisory committee
    consisting of consumers, family, and community
    organizations.

    n Translate your forms and brochures.

    n   Offer to match a consumer with a practitioner
    who has a similar background.

    n   Use bilingual staff, including those trained in
    American Sign Language, when needed. If
    this is not possible, then have ready access to
    qualified interpreters.

    n   Ask consumers about their cultural backgrounds
    and identities.

    n   Incorporate cultural awareness into consumers’
    assessment and treatment.

    n   Tap into natural networks of support, such as
    the extended family and community groups that
    represent the consumer’s culture.

    n   Reach out to religious and spiritual organizations
    to encourage referrals or as another network
    of support.

    n   Offer training to staff in culturally responsive
    communication or interviewing skills.

    n   Understand that some behaviors that one culture
    may consider to be signs of psychopathology are
    acceptable in a different culture.

    n   Be aware that consumers from other cultures
    may hold different beliefs about causes and
    treatment of illness.

    14 Getting Started with EBPs

    How mental health authorities
    can help

    We offer you a few examples of how public
    mental health authorities can help develop a more
    culturally competent mental health system:

    n   Designate someone with part-time or full-time
    responsibility for improving and monitoring
    cultural competence.

    n   Create a strategic plan to incorporate cultural
    competence into the mental health system.

    n   Establish an advisory committee that includes
    representatives from all the major racial, ethnic,
    and cultural groups you serve.

    n   Address barriers to care (including cultural,
    linguistic, geographic, or economic barriers).

    n   Promote staffing that reflects the composition of
    the community you serve.

    n   Promote regular organizational self-assessments
    of cultural competence.

    n   Collect and analyze data to examine disparities in
    services.

    n   Designate specific resources for cultural
    competence training.

    n   Include cultural competence in quality-assurance
    and quality-improvement activities.

    For more suggestions about adapting EBPs to
    diverse groups, see the remaining booklets in
    the KIT.

    A look at cultural competence
    through five vignettes

    Vignette — Integrated Treatment for
    Co-Occurring Disorders

    Kevin is a 40-year-old African American homeless
    man in Chicago who, for a decade, cycled between
    jail, street, and shelter. At the shelter, he refused
    help for what the staff believed was a longstanding
    combination of untreated schizophrenia and
    alcoholism.

    He became so drunk one night that he walked in
    front of a car and was seriously injured. While in the
    hospital, he was treated for his injuries, as well as
    placed on anti-psychotic medications after psychiatrists
    diagnosed him with schizophrenia.

    When he was discharged from the hospital, Kevin
    was referred to an integrated treatment program
    for co-occurring disorders. Realizing that Kevin
    needed aggressive treatment to avoid spiraling into
    homelessness again, the head of the treatment team
    recommended concurrently treating the alcoholism
    and schizophrenia. The integrated treatment
    specialist was an African American psychiatrist who
    appreciated the years of alienation, discrimination,
    and victimization that Kevin described as having
    contributed to his co-occurring disorders.

    The integrated treatment specialist worked hard to
    develop a trusting relationship. He worked with the
    treatment team to ensure that, in addition to mental
    health and substance abuse treatment, Kevin received
    social skills training and a safe place to live. When
    Kevin was well enough, and while he continued
    receiving group counseling for his co-occurring
    disorders, one of his first steps toward recovery was to
    reconnect with his elderly mother who had not heard
    from him in 10 years.

    Getting Started with EBPs 15

    Vignette — Assertive Community Treatment

    A minister in Baltimore contacted the city’s Assertive
    Community Treatment (ACT) program with an unusual
    concern: one of his congregants disclosed to him
    that another member of the congregation — an
    older woman from Jamaica — was beating her adult
    daughter for “acting crazy all the time.” The Jamaican
    mother might even be locking her adult daughter in
    the basement, according to the congregant.

    One year before, an ACT team member had reached
    out to local ministers to tell them about the program.
    The ACT team had realized that better communication
    and referrals were needed. Stronger connections
    across organizations would improve chances for
    recovery by enhancing social support and adherence
    to treatment. Some consumers, however, believed that
    treatment was against their religion.

    The ACT team member obtained a court order to
    allow authorities to enter the Jamaican mother’s
    home. They discovered the traumatized 25-year-old
    daughter locked in the basement, actively psychotic,
    and bearing marks of physical abuse. The team
    diagnosed the daughter with schizophrenia and
    arranged housing for her.

    The team arranged for an intense combination
    of medications and individual and group therapy,
    including trauma care and social skills training.
    Through links to the church and the community,
    the team helped the daughter get clothing and
    spiritual support.

    The team discovered that the mother’s ethnic
    group from Jamaica believed that her daughter’s
    mental illness was a sign of possession by the devil.
    The team reached out to the mother to educate her
    about schizophrenia and to set the stage for the
    daughter’s eventual return to her mother’s household.

    Vignette — Illness Management and Recovery

    Lupita, a 17-year-old high school senior, arrived in
    an emergency room after a suicide attempt. The
    psychiatrist on call happened to be the same one who
    had diagnosed Lupita’s bipolar disorder a year before.
    He thought that she had been taking her medications
    properly, but blood tests now revealed no trace of
    psychiatric medication.

    The psychiatrist tried to communicate with Lupita’s
    anxious parents who were waiting in the visitor
    area, only to learn that they spoke only Spanish,
    not English. The psychiatrist had mistakenly assumed
    that because Lupita, a second-generation Mexican
    American, was highly acculturated, so were her
    parents. She contacted the hospital’s bilingual Illness
    Management and Recovery (IMR) practitioner who
    learned that the parents felt powerless for months
    as they watched their daughter sink into a severe
    depression.

    The IMR practitioner, whose family had similarly
    emigrated from a rural region of Mexico, knew
    to gently ask the parents if they could read and
    understand the dosage directions for Lupita’s
    medication. Finding that the parents had limited
    literacy in both English and Spanish, they tailored the
    treatment program so that it would not depend on
    the written word. They also introduced Lupita and
    her family to the IMR program. The hospital had
    organized programs for Spanish-speaking families
    because of the large number of Latinos in the area.

    During the weekly sessions, the IMR practitioner
    translated for the family and helped them schedule
    Lupita’s psychiatric visits. Together they apportioned
    the correct combination of pills in a daily pill
    container. Understanding that the family had no
    phone, the IMR practitioner worked with them to find
    a close neighbor who might allow them to use the
    phone to relay messages from her and to contact her
    if Lupita stopped taking her medications.

    16 Getting Started with EBPs

    Vignette — Family Psychoeducation

    In times of difficulties, many Native Hawaiians rely on
    their elders, traditional healers, families, or teachers
    to provide them with wisdom and cultural practices to
    resolve problems. One such practice is ho`oponopono,
    which is a traditional cultural process for maintaining
    harmonious relationships among families through
    a structured discussion of conflicts. Ho`oponopono
    is also used by people for personal healing and
    guidance in troubled times.

    When Kawelo lost his job as an electrician, his mental
    health practitioner asked him if he had a family elder
    who knew of community elders who were familiar
    with traditional Hawaiian healing practices. Kawelo’s
    practitioner recognized the importance of tapping into
    this community support and suggested that his family
    seek out ho`oponopono.

    Kawelo and his practitioner contacted the family and
    elders to arrange a meeting. At the meeting, the
    practitioner provided information about Kawelo’s
    illness. They discussed symptoms and warning signs of
    relapse.

    The therapist asked the elders how the group could
    support Kawelo’s recovery. After lengthy deliberations,
    the family decided that one way to help Kawelo was to
    participate in ho’oponopono to understand the types
    of problems that he was experiencing and identify
    how the family could help him heal himself. Some
    members of the family also agreed to participate in
    a Family Psychoeducation (FPE) program to learn
    more about his mental illness and ways to support his
    recovery.

    Through the FPE program, the family participated in
    structured multi-family group sessions. Because an
    important level of healing in Native Hawaiian culture
    involves sharing positive and negative emotions in an
    open, safe, and controlled environment, the family’s
    participation in a combination of ho’oponopono
    and FPE was successful in helping Kawelo.

    Vignette — Supported Employment

    Jing is a bilingual employment specialist. By
    informally surveying her caseload, she estimates
    that about 30% of the consumers with whom she
    works are Asian, but they come from vastly different
    backgrounds, ranging from Taiwan to Cambodia, with
    different educational levels.

    One of the consumers with bipolar disorder with
    whom she works recently immigrated from China.
    He has a high school education, but speaks Mandarin
    and very little English. Fluent in Mandarin, Jing is able
    to conduct a careful assessment of the consumer’s job
    skills and a rapid, individualized job search.

    Jing identifies several import-export businesses in
    the area that have monolingual Mandarin-speaking
    employees. She and the consumer secure a position,
    but it pays less than one the consumer would qualify
    for if he spoke English. Jing and the consumer
    decide to take the position while, at the same time,
    participating in a quick-immersion night program in
    English as a Second Language.

    Jing provides follow-along job support during the next
    few months. When the consumer’s English is better,
    Jing and the consumer search for and find a higher
    paying job. Jing continues follow-along services to
    support the consumer in his adjustment to the greater
    demands of the new position.

    Getting Started with EBPs 17

    Selected resources on cultural competence

    The following resources on cultural competences
    apply to all EBPs. These resources are for
    consumers and families, mental health authorities,
    administrators, program leaders, and practitioners.
    For resources related to each EBP, see The
    Evidence in each KIT.

    National resources for consumers
    and families

    Center for Mental Health Services
    Substance Abuse and Mental Health Services
    Administration
    SAMHSA’s Health Information Network
    Rockville, MD
    Phone: 1-877-SAMHSA-7 (1-877-726-4727)
    (English and Español)
    http://www.samhsa.gov/shin

    First Nations Behavioral Health Confederacy
    Phone: (406) 732-4240 Montana
    Phone: (505) 275-3801 Albuquerque, NM
    pauletterunningwolf@hotmail.com

    National Alliance on Mental Illness (NAMI)
    Colonial Place Three
    2107 Wilson Boulevard, Suite 300
    Arlington, VA 22201-3042
    Phone: (800) 950-NAMI (6264)
    Fax: (703) 524-9094
    TTY: (703) 516-7227

    Homepage

    National Asian American Pacific Islander
    Mental Health Association
    1215 19th Street, Suite A
    Denver, CO 80202
    Phone: (303) 298-7910
    Fax: (303) 298-8081
    http://www.naapimha.org

    National Institute of Mental Health (NIMH)
    Office of Communications
    6001 Executive Boulevard
    Room 8184, MSC 9663
    Bethesda, MD 20892-9663
    Phone: (866) 615-NIMH (6464)
    Fax: (301) 443-4279
    TTY: (301) 443-8431
    http://www.nimh.nih.gov

    National Latino Behavioral Health Association
    P.O. Box 387
    506 Welch, Unit B
    Berthoud, CO 80513
    Phone: (970) 532-7210
    Fax: (970) 532-7209

    Home Page

    National Leadership Council on African American
    Behavioral Health
    6904 Tulane Drive
    Austin, TX 78723-2823
    Phone: (512) 929-0142
    Fax: (512) 471-9600

    Home

    Mental Health America
    2001 North Beauregard Street, 6th Floor
    Alexandria, VA 22311
    Phone: (800) 969-6642
    Phone: (703) 684-7722
    Fax: (703) 684-5968
    TDD: (800) 433-5959
    http://www.nmha.org

    Resources for mental health authorities

    Aponte, C., & Mason, J. (1996). A demonstration
    project of cultural competence self-assessment
    of 26 agencies. In M. Roizner, A practical
    guide for the assessment of cultural competence
    in children’s mental health organizations
    (pp. 72-73). Boston: Judge Baker Children’s
    Center.

    http://www.samhsa.gov/shin

    mailto:pauletterunningwolf@hotmail.com

    Homepage

    http://www.naapimha.org

    http://www.nimh.nih.gov

    Home Page

    Home

    http://www.nmha.org

    18 Getting Started with EBPs

    California Mental Health Ethnic Services
    Managers with the Managed Care Committee.
    (1995). Cultural competency goals, strategies
    and standards for minority health care to
    ethnic clients. Sacramento: CA: Mental Health
    Directors’ Association.

    Carpinello, S. E., Rosenberg, L., Stone, J.,
    Schwager, M., and Felton, C. J. (2002). Best
    practices: New York State’s campaign to
    implement evidence-based practices for people
    with serious mental disorders. Psychiatric
    Services, 53(2), 153-5.

    Chorpita, B. F., & Nakamura, B. J. (2004). Four
    considerations for dissemination of intervention
    innovations. Clinical Psychology: Science and
    Practice, 11, 364-367.

    Dillenberg, J., & Carbone, C. P. (1995). Cultural
    competency in the administration and delivery of
    behavioral health services. Phoenix, AZ: Arizona
    Department of Health Services.

    Knisley, M. B. (1990). Culturally sensitive language:
    community certification standards. Columbus,
    OH: Ohio Department of Mental Health.

    National Implementation Research Network.
    (2003). Consensus statement on evidence-based
    programs and cultural competence. Tampa, FL:
    Louis de la Parte Florida Mental Health Institute.

    New York State Office of Mental Health. (1998).
    Cultural competence performance measures for
    managed behavioral healthcare programs. Albany,
    NY: New York State Office of Mental Health.

    New York State Office of Mental Health.
    (1998). Final Report: Cultural and Linguistic
    Competency Standards. Albany, NY: New York
    State Office of Mental Health.

    Pettigrew, G. M. (1997). Plan for culturally
    competent specialty mental health services.
    Sacramento, CA: California Mental Health
    Planning Council.

    Phillips, D., Leff, H. S., Kaniasty, E., Carter,
    M., Paret, M., Conley, T., & Sharma, M.
    (1999). Culture, race and ethnicity (C/R/E)
    in performance measurement: A compendium
    of resources; Version 1. Cambridge, MA: The
    Human Services Research Institute (Evaluation
    Center@HSRI).

    Siegel, C., Davis-Chambers, E., Haugland, G.,
    Bank, R., Aponte, C., & McCombs, H. (2000).
    Performance measures of cultural competency in
    mental health organizations. Administration and
    Policy in Mental Health, 28, 91–106.

    U.S. Department of Health and Human Services.
    (1996). Consumer mental health report card.
    Final report: task force on a consumer-oriented
    mental health report card. Rockville, MD:
    Substance Abuse and Mental Health Services
    Administration.

    U.S. Department of Health and Human Services.
    (2000). Cultural competence standards in
    managed mental health care services: Four
    underserved/underrepresented racial/ethnic
    groups. HHS Pub. No. SMA 00-3457. Rockville,
    MD: Center for Mental Health Services,
    Substance Abuse and Mental Health Services
    Administration.

    U.S. Department of Health and Human Services.
    (1999). Mental health: A report of the Surgeon
    General. Rockville, MD: U.S. Department of
    Health and Human Services, Substance Abuse
    and Mental Services Administration, Center for
    Mental Health Services, National Institutes of
    Health, National Institute of Mental Health.

    Western Interstate Commission for Higher
    Education (WICHE) and Human Services
    Research Institute (The Evaluation Center@
    HSRI). (1999). Notes from a roundtable
    on conceptualizing and measuring cultural
    competence. Boulder, CO: WICHE Publications.

    Getting Started with EBPs 19

    Western Interstate Commission for Higher
    Education (WICHE). (1997). Cultural
    competence standards in managed mental health
    care for four underserved/ under represented
    racial/ethnic groups. Boulder, CO: WICHE
    Publications.

    Center for Mental Health Services
    Substance Abuse and Mental Health Services
    Administration
    SAMHSA’s Health Information Network
    Rockville, MD
    Phone: 1-877-SAMHSA-7 (1-877-726-4727)
    (English and Español)
    http://www.samhsa.gov/shin

    Hogg Foundation for Mental Health
    The University of Texas at Austin
    P.O. Box 7998
    Austin, TX 78713-7998
    Phone: (800) 404-4336
    Fax: (512) 471-5041

    Hogg Foundation for Mental Health

    Resources for mental health administrators

    Lopez, L., Jackson, V. H. (1999). Cultural
    competency in managed behavioral healthcare:
    An overview. In V. H. Jackson, L. Lopez
    (Eds.). Cultural competency in managed
    behavioral healthcare. Providence, RI: Manisses
    Communications Group, Inc.

    Center for Mental Health Services
    Substance Abuse and Mental Health Services
    Administration
    SAMHSA’s Health Information Network
    Rockville, MD
    Phone: 1-877-SAMHSA-7 (1-877-726-4727)
    (English and Español)
    http://www.samhsa.gov/shin

    Human Services Research Institute
    2336 Massachusetts Avenue
    Cambridge, MA 02140
    Phone: (617) 876-0426
    http://www.hsri.org

    National Alliance of Multi-Ethnic Behavioral
    Health Associations
    1875 I Street, NW
    Suite 5009
    Washington, DC 20006
    Phone: (202) 429-5520
    http://www.nambha.org

    National Center for Cultural Competence
    Georgetown University Center for Child and
    Human Development
    3300 Whitehaven Street, NW
    Suite 3300
    Washington, DC 20057
    Phone: (202) 687-5387
    TTY: (202) 687-5503

    Western Interstate Commission for
    Higher Education (WICHE)
    Mental Health Program
    P.O. Box 9752
    Boulder, CO 80301-9752

    Home

    Resources for program leaders

    Barrio, C. (2000). The cultural relevance of
    community support programs. Psychiatric
    Services, 51, 879–874.

    Issacs, M. R., & Benjamin, M. P. (1991). Toward
    a culturally competent system of care: programs
    which utilize culturally competent principles.
    Washington, DC: Georgetown University Child
    Development Center.

    http://www.samhsa.gov/shin

    Hogg Foundation for Mental Health

    http://www.samhsa.gov/shin

    http://www.hsri.org

    http://www.nambha.org

    Home

    20 Getting Started with EBPs

    Leong, F. (1998). Delivering and evaluating mental
    health services for Asian Americans. In Report of
    the roundtable on multicultural issues in mental
    health services evaluation. Tucson, AZ: Human
    Services Research Institute (The Evaluation
    Center,@HSRI).

    Musser-Granski, J., & Carrillo, D. F. (1997). The
    use of bilingual, bicultural paraprofessionals in
    mental health services: issues for hiring, training,
    and supervision. Community Mental Health
    Journal 33, 51–60.

    Phillips, D., Leff, H. S., Kaniasty, E., Carter,
    M., Paret, M., Conley, T., & Sharma, M.
    (1999). Culture, race and ethnicity (C/R/E) in
    performance measurement: A compendium
    of resources; Version 1. Cambridge, MA: Human
    Services Research Institute (The Evaluation
    Center@HSRI).

    Ponterotto, J. G., & Alexander, C. M. (1996).
    Assessing the multicultural competence of
    counselors and clinicians. In L. A. Suzuki,
    P. J. Meller, and J. G. Ponterotto (Eds.),
    Handbook of multicultural assessment: clinical,
    psychological, and educational applications (pp.
    651–672). San Francisco: Jossey-Bass.

    Tirado, M. D. (1996). Tools for monitoring cultural
    competence in health care. San Francisco: Latino
    Coalition for a Healthy California.

    U.S. Department of Health and Human Services.
    (1999). Mental health: A Report of the Surgeon
    General. Rockville, MD: U.S. Department of
    Health and Human Services, Substance Abuse
    and Mental Health Services Administration,
    Center for Mental Health Services, National
    Institutes of Health, National Institute of
    Mental Health.

    U.S. Department of Health and Human Services.
    (2001). Mental health: Culture, race, and
    ethnicity. A supplement to mental health: A
    report of the Surgeon General. Rockville, MD:
    U.S. Department of Health and Human Services,
    Substance Abuse and Mental Health Services
    Administration, Center for Mental Health
    Services.

    Instruments to assess cultural competence

    Consolidated Culturalogical Assessment
    Toolkit (C-CAT)
    Ohio Department of Mental Health, 2003.

    n Measures cultural competence in mental health
    systems and organizations

    n Includes comprehensive training and
    promotional materials

    For more information:

    http://www.ccattoolkit.org/C-CAT.shtml
    Multiethnic Advocates for Cultural Competence
    Columbus, OH 43215
    Phone: (614) 221-7841
    http://www.maccinc.net

    Cross-Cultural Counseling Inventory (CCCI)

    n Measures knowledge, attitudes, and beliefs
    about cultural diversity

    n Measures cross-cultural counseling skills

    For more information:

    LaFromboise, T., Coleman, H., Hernandez, A.
    (1991). Development and factor structure of
    the cross-cultural counseling inventory-revised.
    Professional Psychology, Research and Practice
    22 (5), 380–388.

    http://www.maccinc.net

    http://www.ccattoolkit.org/C-CAT.shtml

    Getting Started with EBPs 21

    Cultural Acceptability of Treatment Survey (CATS)
    Human Services Research Institute (HSRI), 1998.

    n Measures the cultural competency of services

    n Measures organizational accommodations
    and practices

    n Measures consumer preferences and satisfaction

    For more information:

    Human Services Research Institute
    2336 Massachusetts Avenue
    Cambridge, MA 02140
    Phone: (617) 876-0426
    Fax: (617) 492-7401
    http://www.hsri.org

    Cultural Competency Assessment Scale (CCAS)
    Nathan S. Kline Institute for Psychiatric

    Research, 2000.

    n Assesses organization’s level of cultural
    competence

    n Consistent with EBP fidelity instruments

    For more information:

    Nathan S. Kline Institute for Psychiatric Research
    140 Old Orangeburg Road
    Orangeburg, NY 10962
    Phone: (845) 398-5500
    Fax: (845) 398-5510
    http://www.rfmh.org/nki/

    Multicultural Counseling Awareness Scale (MCAS)

    n Assesses cultural awareness, knowledge,
    and skills

    n Self-report of 45 items

    For more information:

    Ponterotto, J. G., Alexander, C. M. (1996)
    Assessing the multicultural competence of
    counselors and clinicians in L. A. Suzuki,
    P. J. Meller, J. G. Ponterotto (Eds.) Handbook of
    multicultural assessment: Clinical, psychological,
    and educational applications (pp. 651–672) San
    Francisco: Jossey-Bass.

    Multicultural Counseling Inventory (MCI)

    n Assesses awareness, knowledge, skills,
    and relations

    n Self-report of 43 items

    For more information:

    Sodowsky, G. R., Taffe, R. C., Gutkin, T. B.,
    Wise, S. L. (1994). Development of the
    multicultural counseling inventory: a self-
    report measure of multicultural competencies.
    Journal of Counseling Psychology 41, 137–148.

    Resources for practitioners

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    http://www.hsri.org

    http://www.rfmh.org/nki/

    22 Getting Started with EBPs

    Baldwin, J. A., & Bell, Y. (1985). The African Self-
    Consciousness Scale: An Afrocentric personality
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    Bauer, H., Rodriguez, M. A., Quiroga, S.,
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    99–115.

    Gallimore, R. (1998). Accommodating cultural
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    Getting Started with EBPs 23

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    Marin, G., Sabogal, F., Van Oss Marin, B.,
    Otero-Sabogl, R., & Perez-Stable, E. (1987).
    Development of a short acculturation scale
    for Hispanics. Hispanic Journal of Behavioral
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    Melzzich, J., Kleinman, A., Fabrega, H., & Parron,
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    24 Getting Started with EBPs

    Opaku, S. A. (Ed.) (2001). Clinical methods in
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    Literacy: Report of the Council on Scientific
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    for phobic and anxiety disorders: Treatment
    effects and maintenance for Hispanic/Latino
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    cognitive-behavioral and interpersonal treatments
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    minority status and distress. Hispanic Journal of
    Behavioral Sciences, 16, 116–128.

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    to Mexican American women. Hispanic Journal
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    ethnicity and poverty on the mental health of
    children. Journal of Health Care for the Poor and
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    WICHE Publications.

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    Counseling and Development, 24, 15–25.

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    AltaMira Press.

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    Sodowsky, G. R., Taffe, R. C., Gutkin, T. B.,
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    multicultural counseling inventory: a self-report
    measure of multicultural competencies. Journal
    of Counseling Psychology, 41, 137–148.

    Straussner. (Ed.) (2001). Ethnocultural factors in
    substance abuse treatment. New York, NY: The
    Guilford Press.

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    of Asian-American psychologists. Journal of
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    Getting Started with EBPs 25

    Sue, S. (1998). In search of cultural competence
    in psychotherapy and counseling. American
    Psychologist, 53, 440–448.

    Sue, D. W., Carter, R. T., Casas, J. M., Fouad,
    N. A., Ivey, A. E., Jensen, M., et al. (1998).
    Multicultural counseling competencies: Individual
    and organizational development. Thousand Oaks,
    CA: Sage Publications, Inc.

    Suinn, R. M., Richard-Figueroa, K., Lew, S., &
    Vigil, P. (1987). The Suinn-Lew Asian Self-
    Identity Acculturation Scale: An initial report.
    Educational and Psychological Assessment, 47,
    401–407.

    Thompson, V. L. (1995). The multidimensional
    structure of racial identification. Journal of
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    Trevino, F. M. (1986). Standardized terminology for
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    Sociology, 17, 351–383.

    Yeh, M., Eastman, K., & Cheung, M. K. (1994).
    Children and adolescents in community health
    centers: Does the ethnicity or the language of
    the therapist matter? Journal of Community
    Psychology, 22, 153–163.

    Scales for practitioners to recognize
    cultural identity

    Acculturation Rating Scale for Mexican-Americans
    (ARSMA)

    Cuellar, I., Harris, C., & Jasso, R. (1980). An
    acculturation scale for Mexican-American normal
    and clinical populations. Hispanic Journal of
    Behavioral Sciences, 2, 199–217.

    African Self-Consciousness Scale

    Baldwin, J. A., & Bell, Y. (1985). The African Self-
    Consciousness Scale: An Afrocentric Personality
    Questionnaire. The Western Journal of Black
    Studies, 9, 61–68.

    Black Racial Identity Attitude Scale-Form B (BRIAS-
    Form B)

    Helms, J. E. (Ed.). (1990). Black and White racial
    identity: Theory, research, and practice. New
    York: Greenwood Press.

    Chinese Values Survey

    The Chinese Culture Connection. (1987). Chinese
    values and the search for culture-free dimensions
    of culture. Journal of Cross-Cultural Psychology,
    18, 143–164.

    26 Getting Started with EBPs

    Cultural Adaptation Pain Scale (CAPS)

    Sandhu, D. S., Portes, P. R., & McPhee, S.
    A. (1996). Assessing cultural adaptation:
    psychometric properties of the cultural
    adaptation pain scale. Journal of Multicultural
    Counseling and Development, 24, 15–25.

    Cultural Information Scale (CIS)

    Saldana, D. H. (1994). Acculturative stress:
    minority status and distress. Hispanic Journal of
    Behavioral Sciences, 16, 116–128.

    Multidimensional Measure of Cultural Identity for
    Latino and Latina Adolescents

    Feliz-Ortiz, M., Newcomb, M. D., & Meyers, H.
    (1994). A multidimensional measure of cultural
    identity for Latino and Latina adolescents.
    Hispanic Journal of Behavioral Sciences, 16,
    99–115.

    Multidimensional Racial Identity Scale
    (MRIS)-Revised

    Thompson, V. L. (1995). The multidimensional
    structure of racial identification. Journal of
    Research in Personality 29 (1995): 208–222.

    Multigroup Ethnic Identity Measure (MEIM)

    Phinney, J. (1992). The Multigroup Ethnic Identity
    Measure: A new scale for use with adolescents
    and young adults from diverse groups. Journal of
    Adolescent Research, 7, 156–176.

    Suinn-Lew Asian Self-Identity Acculturation Scale
    (SL-ASIA)

    Suinn, R. M., Richard-Figueroa, K., Lew, S., &
    Vigil, P. (1987). The Suinn-Lew Asian Self-
    Identity Acculturation Scale: An Initial Report.
    Educational and Psychological Assessment, 47,
    401–407.

    Short Acculturation Scale for Hispanics (SASH)

    Marin, G., Sabogal, F., Van Oss Marin, B.,
    Otero-Sabogl, R., & Perez-Stable, E. (1987).
    Development of a short acculturation scale
    for Hispanics. Hispanic Journal of Behavioral
    Sciences, 9, 183–205.

    White Racial Identity Attitude Scale (WRIAS)

    Helms, J. E. & Carter, R. T. (1990). Development
    of the White Racial Identity Inventory. In J. E.
    Helms (Ed.) Black and White racial identity:
    Theory, research, and practice (pp. 67–80).
    New York: Greenwood Press.

    HHS Publication No. SMA-09-4422
    Printed 2009

    25268.0709.7765020404

    • Cover
    • Title Page
    • Acknowledgments
      Getting Started with EBPs

    • Consensus Building: Build Support for Change
    • How to build support for your EBP

    • Integrate the EBP into Policies and Procedures
    • Examine policies and procedures
      Identify funding issues
      Assess Training Needs
      Offer more intensive training to program leaders and practitioners
      Monitor and Evaluate Regularly
      Why you should collect process measures
      Why you should collect outcome measures
      How process and outcome data improve EBPs

    • Maximize Effectiveness by Making Services Culturally Competent
    • What culture is and how it affects care
      Culture isn’t just a consumer issue
      The need for cultural competence
      What is cultural competence?
      How cultural competence relates to EBPs
      How to put cultural competence into practice
      How mental health authorities can help
      A look at cultural competence through five vignettes
      Vignette – Integrated Treatment for CoOccurring Disorders
      Vignette – Assertive Community Treatment
      Vignette – Illness Management and Recovery
      Vignette – Family Psychoeducation
      Vignette – Supported Employment
      Selected resources on cultural competence
      National resources for consumersand families
      Resources for mental health authorities
      Resources for mental health administrators
      Resources for program leaders
      Instruments to assess cultural competence
      Resources for practitioners
      Scales for practitioners to recognize cultural identity

    Family
    Psychoeducation

    U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES
    Substance Abuse and Mental Health Services Administration

    Center for Mental Health Services

    www.samhsa.gov

    Building
    Your Program

    http://www.samhsa.gov

    Family
    Psychoeducation

    U.S. Department of Health and Human Services

    Substance Abuse and Mental Health Services Administration

    Center for Mental Health Services
    Building
    Your Program

  • Acknowledgments
  • This document was prepared for the Substance Abuse and Mental Health Services Administration
    (SAMHSA) by the New Hampshire-Dartmouth Psychiatric Research Center under contract number
    280-00-8049 and Westat under contract number 270-03-6005, with SAMHSA, U.S. Department
    of Health and Human Services (HHS). Neal Brown, M.P.A., and Crystal Blyler, Ph.D., served as
    the Government Project Officers.

    Disclaimer

    The views, opinions, and content of this publication are those of the authors and contributors and
    do not necessarily reflect the views, opinions, or policies of the Center for Mental Health Services
    (CMHS), SAMHSA, or HHS.

    Public Domain Notice

    All material appearing in this document is in the public domain and may be reproduced
    or copied without permission from SAMHSA. Citation of the source is appreciated. However,
    this publication may not be reproduced or distributed for a fee without the specific, written
    authorization from the Office of Communications, SAMHSA, HHS.

    Electronic Access and Copies of Publication

    This publication may be downloaded or ordered at http://www.samhsa.gov/shin. Or, please
    call SAMHSA’s Health Information Network at 1-877-SAMHSA-7 (1-877-726-4727) (English
    and Español).

    Recommended Citation

    Substance Abuse and Mental Health Services Administration. Family Psychoeducation: Building
    Your Program. HHS Pub. No. SMA-09-4422, Rockville, MD: Center for Mental Health Services,
    Substance Abuse and Mental Health Services Administration, U.S. Department of Health and
    Human Services, 2009.

    Originating Office

    Center for Mental Health Services
    Substance Abuse and Mental Health Services Administration
    1 Choke Cherry Road
    Rockville, MD 20857

    HHS Publication No. SMA-09-4422
    Printed 2009

    http://www.samhsa.gov/shin

    For references, see the booklet The Evidence.

  • Building Your Program
  • Building Your Program is intended to help mental health
    authorities, agency administrators, and family intervention
    coordinators think through and develop the structure of
    Family Psychoeducation programs. The first part of this
    booklet gives you background information about the
    evidence-based model. This section is followed by specific
    information about your role in implementing and sustaining
    your program. Although you will work closely together
    to build your program, for ease, we separated tips into
    two sections:

    n Tips for Mental Health Authorities; and

    n  Tips for Agency Administrators and Family
    Intervention Coordinators.

    In preparing this information, we could think of no one better
    to advise you than people who have worked successfully
    with Family Psychoeducation programs. Therefore, we based
    the information in this booklet on the experience of veteran
    family intervention coordinators and administrators.

    Family
    Psychoeducation

    This KIT is part of a series of Evidence-Based Practices KITs created
    by the Center for Mental Health Services, Substance Abuse and
    Mental Health Services Administration, U.S. Department of Health
    and Human Services.

    This booklet is part of the Family Psychoeducation KIT that includes
    a DVD, CD-ROM, and seven booklets:

    How to Use the Evidence-Based Practices KITs

    Getting Started with Evidence-Based Practices

    Building Your Program

    Training Frontline Staff

    Evaluating Your Program

    The Evidence

    Using Multimedia to Introduce Your EBP

  • What’s in Building Your Program
  • What Is Family Psychoeducation?
  • . . . . . . . . . . . . . . . . . 1

  • Tips for Mental Health Authorities
  • . . . . . . . . . . . . . . . . 9

    Tips for Agency Administrators
    and Family Intervention Coordinators . . . . . . . . . . . . . 19

    Family
    Psychoeducation

    Building Your Program 1 What Is Family Psychoeducation?

    Family Psychoeducation (FPE) is an
    approach for partnering with consumers
    and families to treat serious mental
    illnesses. FPE practitioners develop
    a working alliance with consumers
    and families.

    The term psychoeducation can be
    misleading. While FPE includes many
    working elements, it is not family therapy.
    Instead, it is nearly the opposite. In family
    therapy, the family itself is the object of
    treatment. But in the FPE approach,
    the illness is the object of treatment, not
    the family. The goal is that practitioners,
    consumers, and families work together
    to support recovery.

    Serious mental illnesses such as
    schizophrenia, bipolar disorder, and
    major depression are widely accepted
    in the medical field as illnesses with well-
    established symptoms and treatment.
    As with other disorders such as diabetes
    or hypertension, it is both honest and
    useful to give people practical information
    about their mental illnesses, how common
    they are, and how they can manage them.

    Building Your Program
    What Is Family Psychoeducation?

    What Is Family Psychoeducation? 2 Building Your Program

    Many consumers and families report that this
    information is helpful because it lets them know
    that they are not alone and it empowers them to
    participate fully in the recovery process. Similarly,
    research shows that consumer outcomes improve
    if families receive information and support (Dixon
    et al., 2001). For this reason, a number of family
    psychoeducation programs have been developed
    over the past two decades.

    Models differ in their format (whether they
    use a multifamily or single-family format);
    duration of treatment; consumer participation;
    and location. Research shows that the critical
    ingredients of effective FPE include the following
    (Dixon et al., 2001):

    n Education about serious mental illnesses;

    n Information resources, especially during periods
    of crises;

    n Skills training and ongoing guidance about
    managing mental illnesses;

    n Problem solving; and

    n Social and emotional support.

    The phases of Family
    Psychoeducation

    FPE services are provided in three phases:

    n Joining sessions;

    n An educational workshop; and

    n Ongoing FPE sessions.

    Joining sessions

    Initially, FPE practitioners meet with consumers
    and their respective family members in introductory
    meetings called joining sessions. The purpose of
    these sessions is to learn about their experiences
    with mental illnesses, their strengths and resources,
    and their goals for treatment.

    FPE practitioners engage consumers and families
    in a working alliance by showing respect, building
    trust, and offering concrete help. This working
    alliance is the foundation of FPE services. Joining
    sessions are considered the first phase of the
    FPE program.

    Building Your Program 3 What Is Family Psychoeducation?

    Educational workshop

    In the second phase of the FPE program, FPE
    practitioners offer a 1-day educational workshop.
    The workshop is based on a standardized
    educational curriculum to meet the distinct
    educational needs of family members.

    FPE practitioners also respond to the individual
    needs of consumers and families throughout
    the FPE program by providing information and
    resources. To keep consumers and families engaged
    in the FPE program, it is important to tailor
    education to meet consumer and family needs,
    especially in times of crisis.

    Ongoing Family Psychoeducation sessions

    After completing the joining sessions and 1-day
    workshop, FPE practitioners ask consumers and
    families to attend ongoing FPE sessions. When
    possible, practitioners offer ongoing FPE sessions
    in a multifamily group format. Consumers and
    families who attend multifamily groups benefit
    by connecting with others who have similar
    experiences. The peer support and mutual aid
    provided in the group builds social support
    networks for consumers and families who are often
    socially isolated.

    Ongoing FPE sessions focus on current issues that
    consumers and families face and address them
    through a structured problem-solving approach.
    This approach helps consumers and families make
    gains in working toward consumers’ personal
    recovery goals.

    FPE is not a short-term intervention. Studies
    show that offering fewer than 10 sessions does not
    produce the same positive outcomes (Cuijpers,
    1999). We currently recommend providing FPE
    for 9 months or more.

    In summary, FPE practitioners provide information
    about mental illnesses and help consumers
    and families enhance their problem-solving,
    communication, and coping skills. When provided
    in the multifamily group format, ongoing FPE
    sessions also help consumers and families develop
    social supports.

    Practice principles

    FPE is based on a core set of practice principles.
    These principles form the foundation of the
    evidence-based practice and guide practitioners
    in delivering effective FPE services.

    What Is Family Psychoeducation? 4 Building Your Program

    Practice Principles

    Principle 1:

    Consumers define
    who family is.

    In FPE, the term family includes anyone consumers identify as being
    supportive in the recovery process. For FPE to work, consumers must
    identify supportive people they would like to involve in the FPE program.
    Some consumers may choose a relative. Others may identify a friend,
    employer, colleague, counselor, or other supportive person.

    Principle 2:

    The practitioner-consumer-family
    alliance is essential.

    Consumers and families have often responded to serious mental illnesses
    with great resolve and resilience. FPE recognizes consumer and family
    strengths, experience, and expertise in living with serious mental illnesses.

    FPE is based on a consumer-family-practitioner alliance. When forming
    alliances with consumers and families, FPE practitioners emphasize that
    consumers and families are not to blame for serious mental illnesses. FPE
    practitioners partner with consumers and families to better understand
    consumers and support their personal recovery goals.

    Principle 3:

    Education and resources help
    families support consumers’
    personal recovery goals.

    Consumers benefit when family members are educated about mental
    illnesses. Educated families are better able to identify symptoms, recognize
    warning signs of relapse, support treatment goals, and promote recovery.
    Provide information resources to consumers and families, especially during
    times of acute psychiatric episodes or crisis.

    Principle 4:

    Consumers and families who
    receive ongoing guidance and
    skills training are better able to
    manage mental illnesses.

    Consumers and families experience stress in many forms in response to
    mental illnesses. Practical issues such as obtaining services and managing
    symptoms daily are stressors. Learning techniques to reduce stress
    and improve communication and coping skills can strengthen family
    relationships and promote recovery. Learning how to recognize precipitating
    factors and prodromal symptoms can help prevent relapses. For more
    information, see Training Frontline Staff in this KIT.

    Principle 5:

    Problem solving helps consumers
    and families define and address
    current issues.

    Using a structured problem-solving approach helps consumers and families
    break complicated issues into small, manageable steps that they may more
    easily address. This approach helps consumers take steps toward achieving
    their personal recovery goals.

    Principle 6:

    Social and emotional support
    validates experiences and
    facilitates problem solving.

    FPE allows consumers and families to share their experiences and feelings.
    Social and emotional support lets consumers and families know that they
    are not alone. Participants in FPE often find relief when they openly discuss
    and problem-solve the issues that they face.

    Building Your Program 5 What Is Family Psychoeducation?

    How we know that Family
    Psychoeducation is effective

    FPE is based on research that shows that
    consumers and families who participated in the
    components of the evidence-based model had 20
    to 50 percent fewer relapses and rehospitalizations
    than those who received standard individual
    services over 2 years (Penn & Mueser, 1996; Dixon
    & Lehman, 1995; Lam, Knipers, & Leff, 1993;
    Falloon et al., 1999). Those at the higher end of this
    range participated for more than 3 months.

    Studies also show that FPE improved family well-
    being (Dixon et al., 2001). Families reported a
    greater knowledge of serious mental illnesses;
    a decrease in feeling confused, stressed, and
    isolated; and reduced medical illnesses and use
    of medical care (Dyck, Hendryx, Short, Voss, &
    McFarlane, 2002).

    FPE has been found to increase consumers’
    participation in vocational rehabilitation programs
    (Falloon & Pederson, 1985). Studies have shown
    employment rate gains of two to four times baseline
    levels, when combined with evidence-based
    practice Supported Employment (McFarlane,
    Dushay, Stastny, Deakins, & Link, 1996; McFarlane
    et al., 1995; McFarlane et al., 2000).

    Based on this significant evidence, treatment
    guidelines recommend involving families in
    the treatment process by offering the critical
    ingredients outlined in this evidence-based model
    (Lehman & Steinwachs, 1998; American Psychiatric
    Association, 1997; Weiden, Scheifler, McEvoy,
    Allen, & Ross., 1999).

    Who benefits most from Family
    Psychoeducation?

    The greatest amount of research has shown benefits
    for consumers with schizophrenic disorders and
    their families (Dixon et al., 2001). Studies also show
    promising results for the following illnesses:

    n Bipolar disorder—(Clarkin, Carpenter, Hull,
    Wilner, & Glick, 1998; Miklowitz & Goldstein,
    1997; Moltz, 1993; Parikh et al., 1997; Miklowitz
    et al., 2000; Simoneau, Miklowitz, Richards,
    Saleem, & George, 1999);

    n Major depression—(Simoneau et al., 1999;
    Emanuels-Zuurveen & Emmelkamp, 1997; Leff
    et al., 2000);

    n Obsessive-compulsive disorder—(Van Noppen,
    1999); and

    n Borderline personality disorder—(Gunderson,
    Berkowitz, & Ruizsancho,, 1997).

    Studies show that the effectiveness of FPE does
    not differ depending on consumers’ age, gender,
    education-level, or severity of illness.

    This model has also been adapted and used
    effectively with a number of ethnic groups in a
    variety of settings in the United States. Studies have
    also been conducted in the following countries:

    n England—(Leff, Kuipers, Berkowitz, & Sturgeon,
    1985; Leff et al., 1990; Tarrier et al., 1989);

    n Spain—(Muela Martinez & Godoy Garcia, 2001;
    Montero, Gomez-Beneyto, Ruiz, Puche, &
    Adam, 1992; Tomaras et al., 2000);

    n Germany—(Wiedemann et al., 2001); and

    n China—(Xiong et al., 1994; Zhang, Wan, Li, &
    Phillips, 1994).

    What Is Family Psychoeducation? 6 Building Your Program

    Although more replications are desirable, all the
    evidence to date suggests that the positive effects
    of FPE generalize to nearly all major cultural
    populations: British, American, Australian, African
    American, Spanish or Latino, Scandinavian
    or Northern European, Chinese, and Japanese.
    However, anecdotally we know that culture and
    language pose significant barriers to providing
    FPE in some populations and, in any case, require
    culturally sensitive adaptations that must be further
    explored empirically.

    Is Family Psychoeducation for the family’s
    benefit or for the consumer’s?

    FPE is for both consumers and families. The
    goal is to support recovery from serious mental
    illnesses. The evidence-based model asks family
    members to help in that effort. Though it is
    designed to achieve clinical outcomes and recovery
    goals for consumers, beneficial effects have been
    found for families as well.

    What if consumers do not have family
    or do not want their families involved?

    In FPE, the term family includes anyone
    consumers identify as being supportive in the
    recovery process. The broad definition emphasizes
    that consumers choose whether to involve family
    and whom to involve. FPE helps consumers
    develop or enhance their support networks.

    The evidence-based model has been found to work
    well with consumers who are disengaged from
    their families and have difficult treatment histories.
    Joining sessions give practitioners the opportunity
    to help consumers engage family members again
    in a constructive and supportive manner.

    Research shows that practitioners often ask
    consumers for permission to involve their family
    members during a crisis (Marshall & Solomon,
    2003). Asking for family involvement at this
    time may raise suspicions for some consumers.
    Consequently, they may be more reluctant
    to identify supportive people. For this reason,
    modify your intake and assessment procedures
    so that consumers are routinely told about the FPE
    program and are periodically asked if they would like
    to involve someone supportive in their treatment.
    For more detail, see Set up referral procedures
    under Tips for Agency Administrators and Family
    Intervention Coordinators in this booklet.

    If consumers do not wish to involve family
    members in their treatment, FPE practitioners
    should respect their decision. If consumers do not
    give permission to share confidential information
    with their families, FPE practitioners may still
    respond to families’ questions and concerns.
    Even the strictest interpretation of confidentiality
    policies does not prohibit receiving information
    from families or giving them general information
    about serious mental illnesses and agency services
    (Bogart & Solomon, 1999; Zipple, Langle, Spaniol,
    & Fisher, 1997).

    If families want to learn more about serious mental
    illnesses, FPE practitioners should direct them
    to local family organizations such as the National
    Alliance on Mental Illness (NAMI). Consumers
    who are not interested in FPE may benefit from
    other education and skills training programs that
    are targeted specifically to consumers such as
    Illness Management and Recovery. For more
    information, see the Illness Management and
    Recovery KIT.

    Building Your Program 7 What Is Family Psychoeducation?

    Where should Family
    Psychoeducation be provided?

    The FPE multifamily group model was first
    developed in a partial hospital setting. Nearly
    all of the controlled research on effectiveness
    has been conducted in outpatient clinics and
    community mental health centers. The extent to
    which FPE can be successfully adapted to other
    types of agencies is unknown.

    FPE has been successfully implemented in both
    urban and rural settings, as well as in mid-sized
    cities and suburbs. For more information, see
    The Evidence in this KIT.

    Is it cost effective?

    Implementing an FPE program has initial costs
    related to training and program development.
    However, studies show a low cost-benefit ratio
    related to savings from reduced hospital admissions,
    hospital days, and crisis intervention contacts
    (McFarlane, Dixon, Lukens, & Lucksted, 2003).

    Cost-benefit ratios vary by state. For example, in
    New York, for every $1 in costs for FPE provided
    in a multifamily group format, a $34 savings in
    hospital costs occurred during the second year of
    treatment (McFarlane, 2002). In a hospital setting
    in Maine, an average net savings occurred of $4,300
    per consumer each year over 2 years. Ratios of $1
    spent for this service to $10 in saved hospitalization
    costs were routinely achieved.

    Non-fiscal savings are achieved as complaints from
    families about services decrease and family support
    for the agency and the mental health authority
    grows. In many communities, this has translated
    into political support for funding for expanded
    and improved services.

    Building Your Program 9

    Tips for Mental Health Authorities

    The Family Psychoeducation (FPE) KIT
    gives public mental health authorities a
    unique opportunity to improve clinical
    services for adults with serious mental
    illnesses. Research has shown that FPE
    has a consistent, positive impact on the

    lives of consumers and their families.
    The FPE KIT gives you information and
    guidance for implementing this evidence-
    based practice in a comprehensive and
    easy-to-use format.

    Building Your Program
    Tips for Mental Health Authorities

    Successfully implementing evidence-based practices requires the leadership
    and involvement of mental health authorities. This section discusses why
    mental health authorities should be involved in implementing Family
    Psychoeducation and the types of activities that mental health authorities
    typically undertake.

    Why should you be interested in Family Psychoeducation?

    Tips for Mental Health Authorities 10 Building Your Program

    How can mental health
    authorities support Family
    Psychoeducation?

    As you read about FPE, you may think that
    it sounds great but unaffordable. We want to
    challenge that notion because mental health
    systems with limited resources are in the process
    of implementing FPE programs system-wide.
    These systems have visionaries who recognized
    the benefits of providing this evidence-based
    practice and who persisted in overcoming
    challenges. We hope you are that visionary
    for your system.

    Implementing this evidence-based model takes a
    consolidated effort by agency staff, mental health
    authorities, consumers, and families. However,
    for this initiative to be successful, mental health
    authorities must lead and be involved in developing
    FPE programs in local communities.

    Be Involved in Family Psychoeducation

    Step 1 Create a vision by clearly articulating
    evidence-based practice principles
    and goals. Designate a staff person to
    oversee your FPE initiative.

    Step 2 Form advisory groups to build
    support, plan, and provide feedback for
    your FPE initiative.

    Step 3 Establish program standards
    that support implementation. Make
    adherence to those standards part of
    licensing criteria.

    Step 4 Address financial issues and align
    incentives to support implementation.

    Step 5 Develop a training structure tailored
    to the needs of different stakeholders.

    Step 6 Monitor fidelity and outcomes
    to maintain and sustain program
    effectiveness.

    Building Your Program 11 Tips for Mental Health Authorities

    Create a vision

    Agencies commonly set out to implement
    one program, but end up with something
    entirely different. Sometimes these variations
    are intentional, but often they occur for the
    following reasons:

    n One administration starts an initiative and
    another with a different vision and priorities
    subsequently assumes leadership.

    n The model wasn’t clearly understood from
    its inception.

    n The staff drifted back to doing things in a way
    that was more familiar and comfortable.

    Articulating the vision that providing FPE helps
    families and consumers recover from mental
    illnesses is essential for successfully implementing
    an FPE program. Place the FPE initiative in
    the context of the larger recovery paradigm.
    Talk about how FPE programs help agencies
    fulfill their mission—assisting consumers in their
    recovery process.

    To ensure that your vision is clearly communicated,
    designate a staff person who has experience with
    the evidence-based model to oversee your FPE
    initiative. Some mental health authorities designate
    an office or staff with whom agencies may consult
    throughout the process of building and sustaining
    their FPE programs. Designated staff may also
    have oversight responsibility for FPE programs
    across the state.

    Form advisory groups

    You can ensure that the FPE model is implemented
    appropriately if you contractually mandate
    that stakeholder advisory groups guide the
    implementation initiative. Your FPE initiative
    can benefit in many ways from an advisory group.
    Among other things, an advisory group can help
    you do the following:

    n Build internal and external support;

    n Increase program visibility; and

    n Seek advice about ongoing planning efforts.

    Consider forming both local and state-level advisory
    groups. State-level advisory groups may include the
    following members:

    n Representatives of state agencies that would be
    invested in the initiative;

    n Leadership from implementing agencies; and

    n Representatives from consumer and family
    advocacy organizations.

    Local advisory groups can serve as liaisons between
    the community and agencies that are implementing
    FPE programs. Community stakeholders who have
    an interest in the success of FPE programs include
    the following:

    n Local consumer organizations;

    n Local family organizations;

    n Agency administrators; and

    n FPE practitioners.

    Tips for Mental Health Authorities 12 Building Your Program

    Facilitating your advisory group

    From the beginning, lead your advisory groups
    in understanding and articulating what FPE
    is and how it is going to be developed in your
    mental health system. For training materials that
    you can use to help stakeholders develop a basic
    understanding of FPE, see Using Multimedia to
    Introduce Your EBP in this KIT.

    Advisory groups should continue to meet well
    after you have established your FPE program.
    We suggest that they meet about once a month for
    the first year, once every 2 months for the second
    year, and quarterly for the third year. In the second
    and third years, advisory groups may help FPE
    programs sustain high fidelity by assisting with
    fidelity evaluations and outcomes monitoring or
    translating evaluation data into steps for continuous
    quality improvement. For more information about
    the role of advisory groups, see Getting Started
    with EBPs in this KIT.

    Planning your Family
    Psychoeducation initiative

    With a vision firmly in place, the process of
    unfolding FPE programs across the service system
    can begin. Carefully planning this process will
    help ensure a successful outcome. Implementing
    FPE programs first in pilot or demonstration
    sites may be useful. Working with pilot sites can
    help you manage problems as they arise and
    also give constituents the opportunity to see that
    the evidence-based model works. Multiple pilot
    sites are preferable to just one. When only one
    site is used, idiosyncratic things can happen that
    misrepresent the model. In contrast, when mental
    health authorities do a system-wide rollout, it is
    difficult to adequately train all FPE program staff.
    In that case, system problems that may have been
    resolved easily on a smaller scale with a few FPE
    programs can cause havoc.

    Establish program standards

    Studies of agencies that have tried to replicate
    evidence-based practices have found that agencies
    that did not achieve positive outcomes failed to
    implement all of the components of the evidence-
    based model (Becker et al., 2001; Bond & Salyers,
    2004). As a mental health authority, you can ensure
    that the system has incentives to implement the
    evidence-based model as outlined in the FPE
    Fidelity Scale (see Monitor fidelity and outcomes
    below). Attention to aligning these incentives in a
    positive way (such as attaching financial incentives
    to achieving improved outcomes) is vital to
    successfully implementing FPE programs.

    States have the authority to adopt regulations that
    govern services to consumers. These regulations set
    standards for the quality and adequacy of programs,
    including criteria that govern these areas:

    n Admission and discharge;

    n Staffing;

    n Service components;

    n Program organization and communication;

    n Consumer medical records;

    n Consumer rights; and

    n Supervision and program evaluation.

    Support FPE implementation by explicitly referring
    to the evidence-based model in licensing standards
    and other program review documents (for example,
    grant applications, contracts, and requests for
    proposals). Review current administrative rules and
    regulations to identify any barriers to implementing
    programs. Work closely with agency administrators
    to ensure that state-level policies support high-
    fidelity practice.

    Building Your Program 13 Tips for Mental Health Authorities

    Definition of FPE Services

    The following language has been used to reimburse FPE services in Maine.

  • Cover
  • ed services include Family
    Psychoeducation provided in multifamily
    groups and in single-family sessions.
    Covered services include Family
    Psychoeducation as defined under
    program elements, provided to related
    and non-related care-takers, as well as to
    the eligible person. Covered services may
    be provided to the participating people
    with or without the eligible person being
    present, if all other program requirements
    and elements are being provided.

    Program elements of the covered services
    include joining sessions, usually involving
    eligible Medicaid recipients and their
    family member, who may meet separately
    or together, depending on clinical
    condition and other considerations to be
    determined by the eligible provider. These
    sessions focus on exploring the following:

    n  Precipitants of current and/or past
    acute episodes of illness;

    n  Prodromal signs and symptoms;

    n  Coping strategies and strengths;

    n  Family and social supports;

    n  Grief and mourning in relation to the
    illness; and

    n  Treatment goals and planning.

    There may be three or more joining
    sessions, as early in the course of an
    episode or illness as possible.

    Educational workshops involve
    identified family members and, at
    the determination of the practitioners
    leading the workshop, eligible
    Medicaid recipients. These workshops
    offer extensive information about
    the biological, psychological, and
    social aspects of mental illnesses; the
    nature, effects, and side effects of
    psychiatric treatments; what families
    can do to help recovery and prevent
    relapse; and guidelines for managing
    mental illnesses.

    Ongoing Family Psychoeducation
    sessions occur biweekly in a multifamily
    or single-family format, usually with
    the eligible Medicaid recipient present.
    These sessions follow an empirically
    tested format and focus on solving
    problems that interfere with treatment,
    illness and symptom management, and
    coping skills. Case management may
    also be provided during these sessions.

    Tips for Mental Health Authorities 14 Building Your Program

    Address financial issues

    Each state is different. Typically, FPE programs
    are funded by a combination of state mental
    health dollars, Medicaid, and private insurance.
    Funding approaches that have been used in some
    states include the following:

    n Reallocating some psychosocial or psychotherapy
    services for FPE services;

    n Adopting a case-rate approach where the agency
    is reimbursed monthly for each consumer to
    cover bundled direct and indirect costs; or

    n Seeking Medicaid reimbursement.

    In some states, Medicaid authorities support
    funding for FPE because emergency room visits
    and hospital admission costs are greatly reduced.
    The following chart is an example of how FPE
    has been defined for the purpose of Medicaid
    reimbursement.

    Develop a training structure

    Agencies who implement evidence-based practices
    are often challenged in their efforts because people
    misunderstand the model or because they lack
    information. It is important that key stakeholders
    (consumers, families, and other essential
    community members) and agency-wide staff
    develop a basic understanding of FPE.

    We encourage you to support agency administrators
    in their efforts to develop a training structure
    for implementing FPE. The training plan
    should include basic training for key community
    stakeholders including the following:

    n Consumers;

    n Families;

    n Mental health authority representatives; and

    n Staff from key community organizations.

    The training plan should also include basic training
    for staff at all levels within participating agencies
    and intensive training for FPE practitioners (staff
    who are designated to provide FPE services).

    Some mental health authorities develop a few FPE
    programs at a time so that staff from the first FPE
    program can help train those in newly developed
    programs. Generally, it takes about a year for staff
    to feel confident providing the evidence-based
    model, but this can vary depending on how much
    structural change is needed. FPE practitioners who
    are reluctant to accept new models can take longer
    to change.

    It may take 2 to 3 years for an agency to become
    sufficiently proficient in the evidence-based model
    before it can assume the added responsibility
    of training other agencies’ FPE practitioners.
    Agencies that have become training sites indicate
    that involving their staff in training staff from new
    FPE programs reinforces the practice principles
    and their knowledge of the evidence-based model.

    Building Your Program 15 Tips for Mental Health Authorities

    Choose your trainer

    Intensive training plans for FPE practitioners
    may be designed in several different ways. The
    first decision is related to who will conduct the
    training. The family intervention coordinator (a
    staff member who is designated to oversee FPE
    programs) may facilitate the initial training for FPE
    practitioners by using the training tools in Training
    Frontline Staff in this KIT.

    Some mental health authorities choose to hire
    external trainers to train practitioners across
    the state. Other mental health authorities have
    established training centers or enhanced existing
    education and training centers that offer education,
    training, and ongoing consultation or supervision.

    One successful strategy for training FPE
    practitioners entails having new FPE practitioners
    visit an existing, well-functioning, high-fidelity FPE
    program to observe how the program works. New
    FPE practitioners will benefit most from this visit if
    they have a basic understanding of the FPE model.

    Once trained, family intervention coordinators and
    practitioners will be able to use the tools in Using
    Multimedia to Introduce Your EBP in this KIT to
    provide basic training to key stakeholders.

    Offer ongoing training and consultation

    Throughout the first year of your FPE program,
    participating agencies should offer intermittent
    booster training sessions to FPE practitioners.
    After the first year, consider establishing an annual
    statewide conference on the evidence-based model.

    Routine onsite and telephone consultation is also
    important, particularly for family intervention
    coordinators, since leading an FPE program
    requires a complex set of administrative and
    clinical skills. For example, family intervention
    coordinators provide clinical supervision, which
    may require a shift in thinking from how services
    were traditionally provided. Family intervention
    coordinators have administrative responsibilities
    such as preparing administrative reports,
    developing policies and procedures, and hiring.

    Perhaps more important, family intervention
    coordinators are responsible for ensuring that the
    FPE program operates with fidelity to the evidence-
    based model, including ensuring the quality and
    content of practitioner-consumer-family interactions
    (See Monitor fidelity and outcomes on the next
    page). It is very difficult for any family intervention
    coordinator to grasp everything that has to be
    learned in a brief time. Also, understanding what
    must be done and translating that understanding
    into action are different and equally difficult. Strong
    daily leadership is essential to ensure that the FPE
    model is faithfully carried out.

    Tips for Mental Health Authorities 16 Building Your Program

    For at least the first year after a new program has
    started, family intervention coordinators need
    someone who is experienced in the evidence-
    based model to give ongoing consultation on
    organizational and clinical issues. Consultation
    ranges from advice on how to integrate evidence-
    based practice principles into the agency’s policies
    and procedures to consulting on cases. A state- or
    county-wide coordinator who is experienced with
    the evidence-based model can also help new FPE
    programs through ongoing contact, assessment, and
    troubleshooting.

    Monitor fidelity and outcomes

    Providing FPE involves incorporating a new
    program into the service delivery system. The
    best way to protect your investment is to make
    certain that agencies actually provide services
    that positively affect the lives of consumers on an
    ongoing basis.

    Programs that adhere more closely to the evidence-

    based model are more effective than those that do

    not follow the model. Adhering to the model is
    called fidelity.

    The FPE Fidelity Scale measures how well
    programs follow key elements of the evidence-
    based model. Research tells us that the higher an
    agency scores on a fidelity scale, the greater the
    likelihood that the agency will achieve the favorable
    outcomes (Becker et al., 2001; Bond & Salyers,
    2004). For this reason, it is important to monitor
    both fidelity and outcomes.

    As a central part of the initial planning process, you
    must address how you will monitor the fidelity and
    outcomes of FPE programs. Too many excellent
    initiatives began with enthusiastic support but
    floundered at the end of a year because they did
    not plan how they would maintain the program.
    Monitoring fidelity and outcomes on an ongoing
    basis is a good way to ensure that your FPE
    programs will continue to grow and develop. For
    more information about monitoring fidelity and
    outcomes, see Evaluating Your Program in this KIT.

    Consider developing routine supervision and
    evaluations of FPE programs. If state or county-
    level monitoring is not possible, use strategies (for
    example, rules, contracts, financial incentives) to
    support fidelity and outcomes monitoring on the
    local level or within individual agencies.

    For the characteristics of an FPE program that
    would have a perfect score on the FPE Fidelity
    Scale, see the next page. For the entire FPE Fidelity
    Scale, see Evaluating Your Program in this KIT.

    Building Your Program 17 Tips for Mental Health Authorities

    Characteristics of a Family Psychoeducation Program That Would Have a Perfect Score
    on the FPE Fidelity Scale

    Family intervention
    coordinator

    A designated clinical administrator oversees the FPE program and performs
    specific tasks.

    Session frequency Consumers and families participate every 2 weeks in FPE sessions.

    Long-term FPE Consumers and families are provided with long-term FPE. At least one family member
    for each consumer participates in FPE sessions for at least 9 months.

    Quality of practitioner-
    consumer-family alliance

    FPE practitioners engage consumers and family members with warmth, empathy,
    acceptance, and attention to individual needs and desires.

    Detailed family reaction FPE practitioners identify and specify families’ reaction to their relative’s mental illness.

    Precipitating factors FPE practitioners, consumers, and families identify and specify precipitating factors for
    consumers’ mental illnesses.

    Prodromal signs
    and symptoms

    FPE practitioners, consumers, and families identify and specify prodromal signs and
    symptoms of consumers’ mental illnesses.

    Coping strategies FPE practitioners identify, describe, clarify, and teach coping strategies.

    Educational curriculum FPE practitioners use a standardized curriculum to teach families about
    mental illnesses.

    Multimedia education Consumers and family members receive educational materials about mental illnesses in
    several formats (for example, paper, video, and Web sites).

    Structured group sessions FPE practitioners follow a structured procedure in conducting multifamily
    group sessions.

    Structured problem solving FPE practitioners use a standardized approach to help consumers and families with
    problem solving.

    Stage-wise provision
    of services

    FPE services are provided in the following order:

    n  Engagement;

    n  Three or more joining sessions;

    n  The educational workshop; and

    n  Multifamily group sessions.

    Assertive engagement
    and outreach

    FPE practitioners assertively engage all potential consumers and family members by
    phone, by mail, or in person (in the agency or in the community) on an ongoing basis.

    Building Your Program 19 Tips for Mental Health Authorities

    Building Your Program

    Tips for Agency Administrators
    and Family Intervention Coordinators

    Whether your agency is interested in enhancing an existing program or
    developing a new program, you will need a broad range of activities to
    successfully implement Family Psychoeducation. This section outlines the
    range of implementation activities in which agency administrators and
    family intervention coordinators are often involved.

    Recruit your staff

    Family Psychoeducation (FPE)
    programs typically consist of two or more
    practitioners and a family intervention
    coordinator. Broadly speaking, you can
    consider agency staff who are involved
    in providing FPE as a team, including
    the family intervention coordinator, FPE
    practitioners, and the agency director.

    Choose a family
    intervention coordinator

    It is important to hire or designate
    a leader for your FPE program. We
    suggest that FPE leaders (called family
    intervention coordinators) are full-time
    employees whose time is completely
    dedicated to the FPE program.

    Family intervention coordinators are often mid-
    level managers who have the authority to make or
    suggest administrative changes within the agency.
    Successful family intervention coordinators have
    authority and both administrative and clinical skills.

    As part of their administrative responsibilities, they
    undertake the following tasks:

    n Develop and monitor FPE policies and
    procedures such as the intake and engagement
    process;

    n Assign potential FPE consumers to FPE
    practitioners;

    n Monitor and adjust FPE practitioner caseloads;
    and

    n Arrange for training new FPE practitioners and
    continuing education of existing FPE staff.

    Along with the agency director, family intervention
    coordinators are often responsible for hiring FPE
    practitioners, monitoring the program’s fidelity
    to the FPE model, and overseeing other quality
    control and financial mechanisms.

    As part of their clinical responsibilities, family
    intervention coordinators provide weekly group
    supervision and individual supervision as needed.
    During supervisory sessions, family intervention
    coordinators give FPE practitioners program
    feedback. They also act as a liaison with other
    agency coordinators and key stakeholders to
    maintain support for the FPE program.

    Because family intervention coordinators must
    have an active role in setting up the structures and
    processes needed to support the FPE program, you
    should make the KIT available to candidates during
    the hiring process so they understand what they
    must do.

    Select the best Family
    Psychoeducation practitioners

    FPE practitioners can come from a wide range of
    clinical backgrounds, including the following:

    n Social work;

    n Occupational therapy;

    n Counseling;

    n Case management;

    n Nursing;

    n Psychology; and

    n Psychiatry.

    In some carefully supervised situations,
    paraprofessionals working closely with a masters-
    level clinician have effectively conducted FPE
    sessions. However, some agencies have experienced
    difficulty being reimbursed for services provided
    by non-licensed staff. For this reason, review the
    regulations of FPE funding mechanisms when you
    make staffing decisions.

    Success as an FPE practitioner appears to have
    less to do with academic credentials and more
    to do with personal style and philosophy. Positive,
    high-energy, and enthusiastic people who have a
    “can do” attitude tend to do well. We recommend
    recruiting FPE practitioners who understand
    serious mental illnesses, believe that consumers
    can live full and productive lives in the community,
    and believe that families can support the
    recovery process.

    Effective FPE practitioners are warm, kind, and
    empathic. Good listening skills are important,
    including the ability to reflect back what consumers
    and families say and seek clarification when
    necessary. Good eye contact, a ready smile, and
    a good sense of humor are other helpful attributes
    that put people at ease.

    Building Your Program 21 Tips for Administrators and Coordinators

    Specific teaching and facilitation skills are also
    helpful. FPE practitioners must be able to structure
    sessions that follow a predictable pattern. They
    must also be able to establish clear objectives and
    expectations, set goals, and follow through on
    those goals.

    Another important attribute for practitioners is
    the ability to take a shaping approach to increasing
    consumers’ knowledge and skills. Shaping means
    that practitioners recognize that people often
    need a significant period of time to learn new
    information and skills. You must give consumers
    positive feedback for their efforts and acknowledge
    small successes along the way. Having a shaping
    attitude means that you acknowledge and value
    even very small steps and encourage consumers to
    achieve their personal goals.

    In addition, FPE practitioners must be able to
    work both independently and as team members—
    providing cross-coverage for consumers and
    participating in group supervision.

    Reflect your community’s cultural diversity

    FPE teams should reflect the cultural diversity
    of the communities in which they operate. More
    important, FPE practitioners must be aware of
    and sensitive to cultural differences and consumer
    preferences. FPE teams should include bilingual
    practitioners as needed to reflect the cultural
    diversity of the communities in which they provide
    services. If bilingual staff are not available, you
    should provide translators as needed.

    Having a balance of male and female FPE
    practitioners may also be helpful. In addition, your
    FPE program must have resources available to
    allow practitioners to work with consumers who
    have hearing and visual impairments.

    Consider these hiring tips

    Thoroughly check references for job candidates.
    The best predictor of work performance is likely
    to be candidates’ performance in previous jobs,
    particularly jobs that required some of the same
    skills and personal qualities that are desirable
    for FPE practitioners. The family intervention
    coordinator should talk to previous supervisors,
    ask in detail about candidates’ previous work
    responsibilities and performance, and seek opinions
    about their capabilities.

    Invite all candidates who are being seriously
    considered for employment to spend a half-day or
    more in your FPE program so that they can see
    practitioners at work firsthand. Candidates can then
    better evaluate how well they might fit in and will
    be able to make a more informed decision about
    taking the job.

    This visit will also give FPE practitioners a chance
    to talk with and observe candidates. Ask them to
    offer their feedback during the hiring process. This
    type of screening may help you weed out people
    who may not be appropriate for your FPE program.

    Requirements for FPE Practitioners

    n Have specific knowledge of mental
    illnesses

    n Be willing and able to actively involve
    consumers and families in making
    decisions about their own treatment and
    services

    n Have strong clinical and rehabilitative
    skills

    n Be warm, kind, positive, empathic people
    with good listening and teaching skills

    n Be willing to work both independently
    and collaboratively as a team

    Tips for Administrators and Coordinators 22 Building Your Program

    Build support for your program

    Developing a successful FPE program depends
    on the support and collaboration of a number of
    stakeholders. Internally, it is important that the
    director and staff across the agency understand and
    support implementing FPE. Your program is more
    likely to achieve high fidelity if the agency director
    is informed and involved in the implementation
    process from the start.

    It is important that the agency director take the
    lead in promoting the FPE program and addressing
    any misconceptions. Articulate internal and
    public support for the FPE program by telling
    key stakeholders that consumers can recover
    from mental illnesses and families can support
    the recovery process. Inform key stakeholders
    that the core components of FPE are linked to
    positive consumer outcomes and emphasize the
    importance of your FPE program by demonstrating
    how practitioners help consumers get on with
    life beyond illness to achieve their personal
    recovery goals.

    Once the agency director has articulated a clear
    vision for implementing the evidence-based model,
    continue to bolster internal support for your
    program by giving all agency staff basic information.
    For more information, see Develop a training plan
    later in this booklet.

    Form advisory committees

    Forming a local advisory committee for your
    FPE program is an effective way to gain key
    stakeholders’ support. Identify community
    stakeholders who have an interest in the success
    of your FPE program to serve on your committee.
    Committees often include the following people:

    n Representatives from local consumer
    organizations;

    n Members of local family organizations such as
    the National Alliance on Mental Illness (NAMI);

    n Representatives from local mental health
    authority;

    n Representatives from local mental health
    agencies;

    n Key agency staff; and

    n FPE practitioners.

    To start, your mental health authority
    representatives or agency director should voice
    support for the FPE initiative. Next, provide basic
    training to help advisory group members understand
    the evidence-based model. Once established,
    advisory groups may help implement your program
    in a variety of ways. For more information, see
    Getting Started with EBPs in this KIT.

    Sustain support for your program

    Building support for your FPE program should
    be an ongoing effort. Once your program is
    operational, find ways to recognize and reward
    the achievements of FPE practitioners and
    consumers. For example, organize meetings with
    key stakeholders during which consumers share
    their success stories and administrators highlight
    staff achievements.

    Another option is to sponsor a banquet to celebrate
    your program’s accomplishments with consumers,
    family members, policymakers, and agency staff
    members. Banquets are particularly helpful if a
    wide array of stakeholders (such as physicians,
    administrators, and key public officials) attend.

    Your agency director and family intervention
    coordinator should meet regularly to review
    program evaluation data, discuss roadblocks, and
    plan ways to improve your FPE program. Building
    support from internal staff and key community
    stakeholders is essential to implementing an
    effective FPE program.

    Building Your Program 23 Tips for Administrators and Coordinators

    Develop effective policies
    and procedures

    Starting a new FPE program means developing
    policies and procedures that support the activities
    of the FPE model.

    Develop admission and discharge criteria

    Set up a process to identify consumers who are
    appropriate for your FPE program and acquaint
    referral sources with your procedures. Initially
    many agencies choose to offer FPE to consumers
    with schizophrenic disorders since the evidence
    for this model is strongest with this group. Once
    practitioners have provided FPE services to
    consumers with schizophrenic disorders and their
    families, it relatively easy to modify your FPE
    program to provide services to consumers who
    have other diagnoses and their families. For more
    information on adapting FPE for specific diagnoses,
    see The Evidence in this KIT.

    FPE is effective for a wide variety of consumers.
    No evidence suggests that consumers’ race, gender,
    or age is related to consumer and families’ ability
    to benefit from FPE. In addition, consumers may
    benefit from FPE regardless of how long they have
    experienced symptoms of their mental illnesses.

    Some evidence shows that FPE is particularly
    beneficial for consumers and families with the
    following characteristics (McFarlane, 2002):

    n Consumers who have recently experienced their
    first episode of mental illness or are early in the
    course of illness;

    n Consumers who are experiencing acute
    psychiatric crisis;

    n Consumers who experience frequent
    hospitalizations or prolonged unemployment;

    n Consumers or families who have asked to learn
    more about serious mental illnesses;

    n Families who have previously benefited from a
    family education program and want to learn how
    to better support their relative; or

    n Families who are especially exasperated or
    confused about the illness.

    Agency Directors Can Lead
    This Effort

    n Articulate clear support for the FPE
    program to internal staff and key
    community stakeholders.

    n Attend some FPE trainings, supervision,
    and advisory group meetings.

    n Meet monthly with the family
    intervention coordinator to address
    roadblocks to providing FPE.

    n Facilitate ongoing planning and program
    improvement efforts.

    n Engage local and state mental health
    authority representatives.

    What Policies and Procedures
    Should Cover

    n Admission and discharge criteria

    n Staffing criteria

    n Service components

    n Program organization and
    communication

    n Consumer records requirements

    n Consumers’ rights

    n Program and team member performance
    evaluation

    Tips for Administrators and Coordinators 24 Building Your Program

    FPE is particularly effective in working with
    families and consumers who are early in the course
    of illness since most consumers and families report
    the most extreme distress during this time. Often
    in this early period, major rifts develop between
    consumers and families that may exacerbate
    symptoms and disability. FPE has prevented
    and often healed those rifts, as participants stop
    blaming themselves or one another and cooperate
    to help in the overall treatment and rehabilitation
    process. Consider targeting your FPE program to
    consumers based on these criteria.

    Defining family

    Participating in FPE is the consumers’ choice. In
    FPE, the term family includes anyone consumers
    believe is supportive and would like to participate
    in FPE. For FPE to work, consumers must identify
    supportive people they would like to involve in
    the FPE program. Some consumers may choose
    a relative. Others may identify a friend, employer,
    colleague, counselor, or other supportive person.

    Set up referral procedures

    Agency administrators and family intervention
    coordinators must also develop referral procedures.
    Modify intake forms to prompt agency staff to
    tell consumers who are new to the agency about
    the FPE program and elicit their interest in
    participating. Also include a section on your
    assessment or treatment planning forms that
    prompts similar questions so that practitioners
    routinely provide information about the
    FPE program.

    Some agencies also encourage referrals through
    the following sources:

    n Treatment team meetings;

    n Internal or external service providers;

    n Community presentations; or

    n Consumer self-referrals.

    Put your procedures into operation by identifying
    and educating referral sources about the FPE
    program. Procedures for advertising your FPE
    program will depend on your referral approach. For
    example, if your FPE program primarily depends
    on referrals from treatment team members and
    other internal service providers, routinely conduct
    agency-wide presentations to develop a basic
    understanding of your FPE program.

    Consumers do not have to accept that they
    have a mental illness to be referred to the FPE
    program. FPE practitioners can effectively work
    with consumers even if they do not believe that
    they have a given diagnosis. Develop a process for
    explaining your FPE program to consumers in a
    way that helps them make an informed decision
    about accepting services.

    Review confidentiality policies

    Confidentiality policies vary from state to state.
    In many states, policies do not specifically discuss
    releasing confidential information to family
    members of consumers with mental illnesses. As a
    result, practitioners may be reluctant to speak with
    family members or they may be confused about the
    types of information that they may share (Marshall
    & Solomon, 2003).

    Review your agency’s confidentiality policies.
    Find out if consumers must complete a Release
    of Information Form to give permission to share
    confidential information with their family members.
    If so, review your agency’s current forms to see if
    they are appropriate for this purpose. For example,
    Release of Information Forms created solely for
    sharing information between agencies may be
    limited to 30, 60, or 90 days. Using these forms for
    your FPE program may cause undue burden on FPE
    practitioners who would be required to complete
    multiple forms for each consumer over the course
    of the program. In such cases, consider revising
    your forms to meet the needs of the FPE program.
    For resources to help you modify your Release of
    Information Forms, see The Evidence in this KIT.

    Building Your Program 25 Tips for Administrators and Coordinators

    Establish staffing criteria

    Your policies and procedures should also specify
    the staffing criteria for your program. Include clear
    and useful job descriptions in your staffing criteria.
    For job applicants, a good position description
    clarifies whether a particular position matches their
    skills and expectations.

    Include the following in your job descriptions:

    n Task-specific position descriptions;

    n Main task categories; and

    n Specific duties.

    Clear job descriptions allow family intervention
    coordinators to effectively supervise new employees
    and also allow employees to focus on the basic
    elements of their jobs.

    When offering FPE in the multifamily group
    format, designate two FPE practitioners to facilitate
    each group. The recommended size of a FPE
    multifamily group is five to eight consumers.

    More information is provided above under
    Recruiting your staff.

    Discuss program organization
    and communication

    Policies and procedures for your FPE program
    should include criteria for how the FPE program
    is organized and how practitioners communicate.
    To be effective, FPE practitioners must be able to
    work both independently and as team members,
    especially if they are providing FPE in the
    multifamily group format.

    As team members, FPE practitioners should
    communicate regularly and provide cross-coverage
    for consumers. They should also attend weekly
    group supervisory meetings that the family
    intervention coordinator facilitates. These meetings
    give FPE practitioners the opportunity to discuss
    and problem-solve consumers’ cases.

    FPE practitioners should be part of a
    multidisciplinary treatment team. When working
    with treatment team members, FPE practitioners
    should model evidence-based practice treatment
    skills. Your policies should outline clear procedures
    for how FPE practitioners will communicate
    with multidisciplinary treatment team members.
    They should also coordinate services with other
    team members to ensure that treatment supports
    recovery goals.

    Offer Family Psychoeducation in both
    individual or group formats

    Your policies should specify that ongoing FPE
    sessions may be provided either in the single-
    family or multifamily group format. The format
    that you choose depends on consumer and family
    preferences and needs.

    In general, single-family formats tend to be used
    for the following:

    n Consumers and families with strong social
    support networks;

    n Consumers and families who exhibit unusual
    resilience or strong coping skills; or

    n Consumers who respond positively to
    medications.

    Multifamily groups tend to be used for the
    following:

    n Consumers who are experiencing their first
    episode with mental illness;

    n Consumers who are not responding well to
    medication and treatment;

    n Consumers who are experiencing complicating
    issues such as other medical illnesses;

    n Families experiencing high stress;

    n Families who have separated from their relative
    with mental illness; and

    n Families who have been through divorce.

    Tips for Administrators and Coordinators 26 Building Your Program

    Participating in the multifamily group format
    has other benefits for both consumers and their
    families. For example, the social stigma related
    to mental illnesses causes many consumers
    and families to feel socially isolated. FPE in a
    multifamily group format connects consumers and
    families to others who have had similar experiences.
    It gives them a forum for peer support and mutual
    aid by allowing participants to share solutions that
    have worked for them. For this reason, whenever
    possible, we recommend offering ongoing FPE
    services in a multifamily group format.

    FPE practitioners commonly work in both
    multifamily or single-family group formats. For
    example, when multifamily group members are
    unable to attend specific group sessions, FPE
    practitioners may offer single-family sessions to
    accommodate scheduling difficulties.

    For information for practitioners about providing
    FPE in both individual and group formats, see
    Training Frontline Staff in this KIT.

    Determine the length of your sessions
    and program

    In your FPE policies and procedures, outline the
    length of FPE sessions and the program. FPE
    services are provided in three phases:

    n Joining sessions;
    n An educational workshop; and
    n Ongoing FPE sessions.

    During the joining sessions in the first phase, FPE
    practitioners meet with each FPE consumer and
    their respective family members at least three times
    for about 1 hour. You may hold joining sessions with
    consumers and their respective family members
    together or meet separately with them. (That
    means you would conduct six or more sessions
    instead of three or more.)

    FPE practitioners base their decisions about
    offering joining sessions to consumers and family
    members jointly or separately on consumer
    and family preferences, diagnosis, and illness
    characteristics. For information to help FPE
    practitioners make these decisions, see Training
    Frontline Staff in this KIT.

    During the second phase of the FPE program, a
    1-day educational workshop is offered. Typically,
    the workshop is conducted solely with families—
    not with consumers—to give families a chance to
    speak freely about their experiences and to interact
    with others who are in similar situations.

    Some agencies involve consumers in part of the
    workshop to ensure that they receive the same
    educational information as their families. Others
    offer this information to consumers individually
    or in a separate consumer forum. Typically, this
    workshop is offered only once to participants in
    the FPE program. You should offer it within 1 or 2
    weeks after joining sessions are completed.

    You may offer the last phase of the FPE program—
    ongoing FPE sessions—in either the single-family
    or multifamily group format. FPE multifamily
    groups consist of five to eight consumers and their
    respective family members. They meet every 2
    weeks for 1½ hours. Two FPE practitioners co-
    facilitate the group.

    In the single-family format, one FPE practitioner
    meets individually with consumers and their
    respective family members. Meetings are usually
    every 2 weeks for 1 hour. Offer both single-family
    and multifamily sessions for 9 months or more.

    Building Your Program 27 Tips for Administrators and Coordinators

    Ensure stage-wise provision of services

    In your policies and procedures specify that
    all three phases of the FPE program should be
    provided in order. Also, FPE practitioners should
    complete the first phases of the FPE program in
    full before offering the next.

    Coordinating the timing of the phases requires
    some planning and organizing. If FPE occurs
    in the multifamily group format, the two FPE
    practitioners who will facilitate the group divide
    the responsibility for conducting joining sessions.
    For example, out of eight consumers and their
    respective family members, each practitioner
    would join with four. Offer the 1-day educational
    workshop within 1 to 2 weeks after joining sessions
    have been completed.

    To achieve the stage-wise provision of services,
    set aside time for planning meetings during the
    first phase of the program. Begin the planning
    process by developing a list of potential consumer
    participants. When both FPE practitioners begin
    joining sessions simultaneously, it will be easier
    to coordinate the timing of the second and third
    phases. Include in your policies and procedures
    that FPE practitioners should meet weekly during
    this time period to ensure that you provide services
    in stages.

    Adjust practitioners’ caseloads

    In the first 3 months of implementing your FPE
    program, practitioners are involved in a number of
    activities including training activities and planning
    meetings. Consequently, initially they will have an
    increased workload.

    To effectively implement FPE, reduce
    practitioners’ caseload until the first two phases
    of the FPE program are completed. Once
    practitioners have completed their first joining
    sessions and 1-day educational workshop and your
    family intervention coordinator has developed
    procedures to routinely identify and refer
    consumers to the FPE program, workload demands
    will be substantially decreased. You can restore
    caseload size.

    Structure your Family
    Psychoeducation sessions

    Policies and procedures for your FPE program
    should also outline the structure of FPE sessions.
    Following a prescribed structure helps FPE
    practitioners provide effective FPE services.
    Specifically, FPE practitioners complete a
    prescribed set of tasks for each joining session.
    The tasks are outlined in the sample Progress
    Notes on the next few pages.

    In the second phase of the FPE program, FPE
    practitioners offer a 1-day educational workshop
    that follows a standardized educational curriculum.
    The structure of the workshop is also outlined in
    a sample Progress Note on the next few pages.

    Ongoing FPE sessions follow a structured approach
    shown below:

    Multifamily Group Session Agenda

    Socialize 15 minutes

    Identify current issues—go-around 20 minutes

    Select a single problem 5 minutes

    Use structured problem solving 45 minutes

    Socialize 5 minutes

    Total 90 minutes

    Tips for Administrators and Coordinators 28 Building Your Program

    The structured problem-solving approach is also
    outlined in a sample Progress Note on the next
    few pages.

    In your FPE policies and procedures, encourage
    practitioners to follow the suggested structure
    during each phase of the FPE program.

    Offer other core service components

    Your FPE policies should also discuss how to
    assertively engage consumers and families.
    Engaging consumers and families in FPE starts the
    moment that they are referred to the program and
    continues throughout the program.

    FPE practitioners assertively engage consumers
    and family members by phone, by mail, or in
    person (in the agency or in the community). To
    keep consumers and families engaged in services,
    encourage FPE practitioners to routinely reassess
    the issues that consumers and families are facing
    and offer services to meet their needs.

    FPE practitioners also keep consumers and family
    engaged in FPE services by routinely offering
    educational materials tailored to their own needs.
    Policies and procedures should encourage FPE
    practitioners to provide educational materials
    in several formats (for example, paper, video,
    and Web sites).

    Document Family Psychoeducation services

    Outline the policies and procedures for
    documenting FPE services. Instruct FPE
    practitioners to complete Progress Notes to
    document the following:

    n Meeting the goals of each joining session;

    n Providing a standardized educational curriculum
    to each FPE family participant; and

    n Following the structured problem-solving
    approach during ongoing FPE services.

    For sample Progress Notes tailored to each phase
    of the FPE program, see the next pages. For
    printable copies, see the CD-ROM for this KIT. We
    strongly encourage you to adapt these forms and
    incorporate them into your routine paperwork.

    Building Your Program 29 Tips for Administrators and Coordinators

    / /

    Progress Note Joining Session 1

    Consumer’s name: Consumer’s
    I.D. number:

    Family or other supporter’s name: Relationship
    to consumer:

    Family or other supporter’s name: Relationship
    to consumer:

    Date __________________________________
    Start time:

    Stop time:

    Completed by:

    Past or present crisis:

    Precipitating events:

    Early warning signs:

    Tips for Administrators and Coordinators 30 Building Your Program

    Progress Note Joining Session 1

    Family or other

    supporter’s experience:

    Strengths and helpful

    coping skills:

    Past unsuccessful strategies

    or interventions:

    Action steps:

    Building Your Program 31 Tips for Administrators and Coordinators

    Progress Note Joining Session 2

    Consumer’s name: Consumer’s
    I.D. number:
    Family or other supporter’s name: Relationship
    to consumer:
    Family or other supporter’s name: Relationship
    to consumer:
    Date __________________________________
    Start time:
    Stop time:
    Completed by:

    Feelings or reactions to illness:

    Social support system:

    Genogram:

    / /

    Tips for Administrators and Coordinators 32 Building Your Program

    Progress Note Joining Session 2

    Past experiences with the

    mental health system:

    Educational information shared:

    Action steps:

    Building Your Program 33 Tips for Administrators and Coordinators

    Progress Note Joining Session 3

    Consumer’s name: Consumer’s
    I.D. number:
    Family or other supporter’s name: Relationship
    to consumer:
    Family or other supporter’s name: Relationship
    to consumer:
    Date __________________________________
    Start time:
    Stop time:
    Completed by:

    Personal strengths (hobbies,

    interests, work, school, etc.):

    Short-term goals

    Long-term goals:

    Concerns about participating in

    the educational workshop or

    multifamily group:

    / /

    Building Your Program 35 Tips for Administrators and Coordinators

    Progress Note 1-day Educational Workshop

    Consumer’s name: Consumer’s
    I.D. number:
    Family or other supporter’s name: Relationship
    to consumer:
    Family or other supporter’s name: Relationship
    to consumer:
    Date __________________________________
    Start time:
    Stop time:
    Completed by:

    Was the consumer present for

    the workshop?
     Yes

    No
    In part
    Attended a separate consumer forum
    Received individual education

    Was the family member present for

    the workshop?
     Yes

    No
    In part
    Provided individual education

    Which of the following topics

    were presented?
     Psychobiology of the specific mental illness including basics of brain

    function and dysfunction and the potential causes of the mental illness

    Diagnosis including symptoms and prognosis

    Treatment and rehabilitation including an overview of the treatment options
    and how they promote effective coping and illness management strategies

    Impact of mental illness on the family including how mental illnesses affect
    families as a whole

    Relapse prevention including prodromal signs and symptoms and the role of
    stress in the precipitating episodes

    Family guidelines or recommended responses to help families maintain a
    home environment that promotes relapse prevention

    In which of the following

    formats were educational

    materials presented?

     Handouts
    Slides
    Video
    Web Sites
    Other _____________________________________

    / /

    Building Your Program 37 Tips for Administrators and Coordinators

    Multifamily Group Problem Solving Worksheet

    Consumer’s name: Consumer’s
    I.D. number:
    Family or other supporter’s name: Relationship
    to consumer:
    Family or other supporter’s name: Relationship
    to consumer:
    Date __________________________________
    Start time:
    Stop time:
    Completed by:

    Step 1: Define the problem

    Step 2: Generate solutions

    / /

    Tips for Administrators and Coordinators 38 Building Your Program

    Multifamily Group Problem Solving Worksheet

    Step 3: Discuss advantages

    and disadvantages

    Possible solution Advantages Disadvantages

    Step 4: Choose the best solution

    Step 5: Form an action plan

    Step 6: Review the action plan

    Building Your Program 39 Tips for Administrators and Coordinators

    How Administrators and Family
    Intervention Coordinators Can Help
    Provide Recovery-Oriented Services

    n Clearly explain consumer rights in FPE
    policies and procedures.

    n Offer training on recovery principles and
    consumer rights to practitioners, consumers,
    and families.

    n Hold community forums using the
    multimedia tools in this KIT.

    n Involve consumers in local advisory groups.

    Describe how to maintain
    consumer records

    In the policies and procedures for your FPE
    program, describe how you will maintain
    consumers’ records. You must keep records for
    each consumer and safeguard them against loss,
    tampering, and unauthorized use. The records
    should be consistent with requirements of
    organizations to whom you bill (e.g., the Centers
    for Medicaid and Medicare Services) or that
    accredit your agency (e.g., the Joint Commission
    on Accreditation of Rehabilitation Facilities, etc.).

    If you are setting up a new recordkeeping
    system, you will need materials to create records
    (for example, binders and forms) and to store
    them appropriately. You also need written
    policies and procedures for documenting and
    maintaining records.

    Make sure that FPE practitioners are familiar with
    your policies and procedures for documenting and
    maintaining records. Supervise them in completing
    the required documentation and monitor that
    records are properly stored and protected.

    Discuss how to ensure
    consumers’ rights

    In the policies and procedures for your FPE
    program, discuss how you will ensure that
    consumers’ rights are upheld. FPE practitioners
    should do the following:

    n Be aware of the state and federal consumer
    rights requirements;

    n Inform consumers of their rights in a meaningful
    way; and

    n Help consumers exercise their rights.

    Also, your policies and procedures should reflect
    the model’s recovery orientation. Traditional
    services were developed with a biomedical
    approach to mental health treatment; they focus
    on reducing symptoms and preventing relapse. In
    contrast, the evidence-based model is based on the
    concept of recovery. In the recovery framework,
    the expectation is that consumers can have lives in
    which mental illnesses are not the driving factors.
    Recovery means more than maintaining people
    with mental illnesses in the community. Recovery-
    oriented services encourage consumers to define
    and fulfill their personal goals.

    FPE practitioners must believe in and be true
    to the recovery principles in the evidence-based
    model. Be careful not to replicate those elements
    of traditional services that simply emphasize
    containing symptoms and complying with
    medication.

    The value of consumer choice in service delivery
    and the importance of consumer perceptions
    must be infused in how you provide FPE. Most
    practitioners have never examined their own
    attitudes and behaviors about consumer recovery
    and uncritically accept many clinical traditions
    without paying attention to how disempowering
    these practices are for consumers.

    Tips for Administrators and Coordinators 40 Building Your Program

    In recovery-based services, establishing a
    trusting relationship is critical. Interactions with
    consumers should be based on mutuality and
    respect. Challenge FPE practitioners to listen to,
    understand, and respect consumers’ perspectives
    and take into account consumers’ reasons
    for noncompliance.

    FPE practitioners should also focus on consumer-
    defined needs and preferences and accept
    consumer choice in service delivery. Providing
    services with a recovery orientation means that you
    support and empower consumers to achieve their
    individual goals.

    Develop procedures to evaluate
    program and staff performance

    When it is properly implemented, FPE is
    associated with a variety of positive consumer
    and family outcomes. Evaluating the performance
    of your FPE program will help you provide
    high-quality services and assure stakeholders of
    your program’s effective performance. Develop
    procedures to evaluate your program early using
    the guidelines in Evaluating Your Program in
    this KIT. Also, develop procedures for how you
    will supervise and evaluate your FPE team. To
    a large extent, clinical supervision is the process
    that will determine whether FPE staff understand
    and are consistently applying the evidence-based
    practices for family psychoeducation or whether
    further leadership, training, and accountablility
    are required to meet this goal.

    Family intervention coordinators should provide
    weekly group supervision to FPE practitioners.
    Group supervision should review all consumers
    involved in the FPE program and problem-
    solve ways to help them better meet their
    individual goals.

    Family intervention coordinators also should
    provide individual, side-by-side supervision
    to achieve the following goals:

    n Assess performance;

    n Give feedback; and

    n Model interventions.

    Family intervention coordinators may schedule
    regular meetings with FPE practitioners to review
    specific cases. They should be regularly available
    to consult with FPE practitioners, as needed.

    Some aspects of the FPE practitioner’s job are
    hard to understand without seeing them done
    by an experienced FPE practitioner. Once family
    intervention coordinators thoroughly understand
    the evidence-based model, they should model
    aspects of the job—such as engagement or
    educational techniques—and directly coach
    them in their work. For training tools and
    recommendations, see Training Frontline Staff
    in this KIT.

    If the FPE program is working with a consultant,
    the family intervention coordinator should involve
    the consultant in group supervision, treatment team
    meetings, and FPE multifamily group sessions.
    If the attendance of an outsider disrupts the
    group process, consider periodically videotaping
    sessions for purposes of supervision. Many new
    FPE programs have found that feedback from
    an external consultant is a crucial component
    for improving staff performance and the quality
    of their program as a whole.

    Tips for Administrators and Coordinators 42 Building Your Program

    Hire an external consultant and trainer

    Establishing the initial processes that must be
    in place to provide quality services requires great
    attention to detail. Consequently, during the first 1
    to 2 years after forming a new FPE program, many
    agencies have found it helpful to work with an
    experienced external consultant and trainer.

    Consultants and family intervention coordinators
    often work together to ensure that the FPE
    program is structured appropriately. They integrate
    evidence-based practice principles into the agency’s
    policies and tailor procedures to meet local needs.

    Once the FPE program has been launched, it
    is important that you not allow FPE practitioners
    to revert to older and more familiar ways of doing
    things. External consultants and trainers who
    are experienced in running FPE programs can
    provide ongoing technical assistance, side-by-
    side supervision, and periodic booster training
    sessions. This type of assistance, along with ongoing
    evaluation of fidelity and outcomes, has been found
    to be critical in maintaining adherence to the
    evidence-based practices.

    Select a location for your Family
    Psychoeducation program

    You can conduct FPE sessions in almost any
    location that is convenient for practitioners,
    consumers, and families. For example, you could
    conduct joining sessions in the following locations:

    n Your mental health agency;

    n Consumers’ homes; or

    n Consumers’ family members’ home.

    When selecting a location for the 1-day educational
    workshop and multifamily groups, consider
    the following:

    n The number of participants;

    n Type of multimedia you plan to use;

    n Comfort and convenience of the location; and

    n The ability to serve refreshments.

    Regardless of the location, FPE practitioners
    should strive to create an environment that is quiet,
    free of unnecessary distractions, and conducive to
    sharing and learning from one another.

    Building Your Program 43 Tips for Administrators and Coordinators

    Review your program budget
    and revenue sources

    It is important that you understand the budget
    for your FPE program and revenue sources so
    that you can actively participate in the budgeting
    process, make informed management decisions,
    and understand where collateral revenue sources
    are most needed.

    What are the costs?

    The initial implementation costs are about $250
    per practitioner for recruitment, preparation, and
    associated costs for training. Other agency costs
    include agency administration time, planning
    meetings, supervision, consultation, and costs
    associated with reducing practitioner caseloads
    during the first two phases of the FPE program.

    Ongoing FPE sessions in the multifamily group
    format require about 1 hour of staff effort per
    month for each consumer in addition to the time
    spent in group. Based on East Coast salary levels,
    when using a master’s-level practitioner, the costs
    of providing ongoing FPE session in a multifamily
    group format is about $350 per year, per consumer
    in staff time. Single-family format is roughly twice
    the cost per consumer.

    The FPE budget should also include funds to cover
    the costs of refreshments for the 1-day educational
    workshop and multifamily groups, as well as
    multimedia educational materials.

    What are the revenue sources?

    Financing mechanisms for FPE programs vary
    from state to state. Typically, FPE programs are
    funded by a combination of state mental health
    dollars, Medicaid, and other insurers.

    In some mental health systems, programs receive a
    fixed rate for each consumer who receives services.
    In other systems, programs are only reimbursed
    based on the specific services provided. In that
    case, you should be familiar with how services must
    be tracked to capture billing from various funding
    streams. You will also need to know the billing
    process and billing codes.

    Financial barriers can slow implementation.
    Be aware that over time the mission and activities
    of programs can become defined by the funding
    that supports them. Know the principles of the
    evidence-based model and be vigilant that funding
    opportunities support the model rather than shape
    and corrupt it. For useful ideas and strategies,
    consult with agencies and system administrators
    who have been successful in this area.

    In summary, building an effective, well-functioning
    FPE program is a developmental process.
    We encourage you to periodically revisit the
    information in this KIT throughout the first year
    after you start your new program. We believe that
    these materials will take on a new meaning as the
    process of implementing an FPE program evolves.

    26172.0709.7765020404

    HHS Publication No. SMA-09-4422
    Printed 2009

      Cover

    • Title Page
    • Acknowledgments
      Building Your Program
      What’s in Building Your Program
      What Is Family Psychoeducation?
      The phases of Family Psychoeducation
      Practice principles
      How we know that Family Psychoeducation is effective
      Who benefits most from Family Psychoeducation?
      Where should Family Psychoeducation be provided?
      Is it cost effective?
      Tips for Mental Health Authorities
      Why should you be interested in Family Psychoeducation?
      How can mental health authorities support Family Psychoeducation?

    • Tips for Agency Administrators and Family Intervention Coordinators
    • Recruit your staff
      Build support for your program
      Develop effective policies and procedures
      Develop a training plan
      Select a location for your Family Psychoeducation program
      Review your program budget and revenue sources

    Training
    Frontline

    Staff

    Family

    Psychoeducation

    U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES
    Substance Abuse and Mental Health Services Administration

    Center for Mental Health Services

    www.samhsa.gov

    http://www.samhsa.gov

    Family
    Psychoeducation

    Training
    Frontline Staff

    U.S. Department of Health and Huma

    n

    Services

    Substance Abuse and Mental Health Services Administratio

    n

    Center for Mental Health Services

  • Acknowledgments
  • This document was prepared for the Substance Abuse and Mental Health Services Administration
    (SAMHSA) by the New Hampshire-Dartmouth Psychiatric Research Center under contract number
    280-00-8049 and Westat under contract number 270-03-6005, with SAMHSA, U.S. Department
    of Health and Human Services (HHS). Neal Brown, M.P.A., and Crystal Blyler, Ph.D., served as
    SAMHSA Government Project Officers.

    Disclaimer

    The views, opinions, and content of this publication are those of the authors and contributors and
    do not necessarily reflect the views, opinions, or policies of the Center for Mental Health Services
    (CMHS), SAMHSA, or HHS.

    Public Domain Notice

    All material appearing in this document is in the public domain and may be reproduced or
    copied without permission from SAMHSA. Citation of the source is appreciated. However,
    this publication may not be reproduced or distributed for a fee without the specific, written
    authorization from the Office of Communications, SAMHSA, HHS.

    Electronic Access and Copies of Publication

    This publication may be downloaded or ordered at http://www.samhsa.gov/shin. Or, please
    call SAMHSA’s Health Information Network at 1-877-SAMHSA-7 (1-877-726-4727) (English
    and Español).

    Recommended Citation

    Substance Abuse and Mental Health Services Administration. Family Psychoeducation: Training
    Frontline Staff. HHS Pub. No. SMA-09-4422, Rockville, MD: Center for Mental Health Services,
    Substance Abuse and Mental Health Services Administration, U.S. Department of Health and
    Human Services, 2009.

    Originating Office

    Center for Mental Health Services
    Substance Abuse and Mental Health Services Administration
    1 Choke Cherry Road
    Rockville, MD 20857

    HHS Publication No. SMA-09-4422
    Printed 2009

    http://www.samhsa.gov/shin

    Family
    Psychoeducation

    Training Frontline Staff

    This five-module workbook will help family intervention coordinators
    teach practitioners about the principles, processes, and skills necessary
    to deliver effective Family Psychoeducation services. The workbook
    includes the following topics:

    n  Basic elements and practice principles;

    n  The core processes of Family Psychoeducation;

    n  Joining sessions and educational workshops;

    n  Ongoing Family Psychoeducation sessions; and

    n  Problem solutions from actual practice.

    For references see the booklet, The Evidence.

    This KIT is part of a series of Evidence-Based Practices KITs created
    by the Center for Mental Health Services, Substance Abuse and
    Mental Health Services Administration, U.S. Department of Health
    and Human Services.

    This booklet is part of the Family Psychoeducation KIT that includes
    a DVD, CD-ROM, and seven booklets:

    How to Use the Evidence-Based Practices KITs

    Getting Started with Evidence-Based Practices

    Building Your Program

    Training Frontline Staff

    Evaluating Your Program

    The Evidence

    Using Multimedia to Introduce Your EBP

    What’s in Training Frontline Staff

    How Family Intervention Coordinators
    Should Use This Workbook . . . . . . . . . . . . . . . . . . . .A
    Prepare program-specific information . . . . . . . . . . . . . . . . . B
    Prepare agency-specific information . . . . . . . . . . . . . . . . . . C
    Visit an existing team . . . . . . . . . . . . . . . . . . . . . . . . . . . . C
    Arrange for didactic training . . . . . . . . . . . . . . . . . . . . . . . D
    Recruit a consultant . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . D
    Cross-train . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . D

    Module 1: Basic Elements and Practice Principles . . . . . 1
    What is Family Psychoeducation? . . . . . . . . . . . . . . . . . . . . 1
    The phases of Family Psychoeducation . . . . . . . . . . . . . . . . 2
    Practice principles . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 3
    The family experience . . . . . . . . . . . . . . . . . . . . . . . . . . . . 4
    Core values in Family Psychoeducation . . . . . . . . . . . . . . . . 4
    Program standards . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6
    How we know that Family Psychoeducation is effective. . . . . 6
    Adapting the evidence-based model . . . . . . . . . . . . . . . . . . 7
    Summary . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7
    Exercise: Explore the Benefits of Family Psychoeducation . . . 9
    Exercise: Examine Program Standards . . . . . . . . . . . . . . . . 11

    Family
    Psychoeducation

    Module 2: The Core Processes
    of Family Psychoeducation . . . . . . . . . . . . . . . . . . . . 1
    Identify consumers . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2
    Introduce the program . . . . . . . . . . . . . . . . . . . . . . . . . . . 2
    Conduct joining sessions . . . . . . . . . . . . . . . . . . . . . . . . . . 3
    Conduct the educational workshop . . . . . . . . . . . . . . . . . . . 4
    Offer ongoing Family Psychoeducation services . . . . . . . . . . 4
    Engage consumers and families continuously . . . . . . . . . . . 6
    Complete Progress Notes . . . . . . . . . . . . . . . . . . . . . . . . . . 7
    Participate in supervision . . . . . . . . . . . . . . . . . . . . . . . . . . 7
    Summary . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 7
    Exercise: Identify Consumers and Families . . . . . . . . . . . . . . 9
    Exercise: Introduce Your Program . . . . . . . . . . . . . . . . . . . 11

    Module 3: Joining Sessions
    and Educational Workshops . . . . . . . . . . . . . . . . . . . 1
    Joining sessions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 1
    Educational workshops . . . . . . . . . . . . . . . . . . . . . . . . . . . 6
    Exercise: Review Progress Notes for Joining Sessions
    and Educational Workshops . . . . . . . . . . . . . . . . . . . . . . . 13
    Exercise: Practice What You’ve Learned About
    Joining Sessions . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 15

  • Module 4: Ongoing Family Psychoeducation Sessions
  • . . 1
    Conduct ongoing Family Psychoeducation sessions . . . . . . . 1
    Structure of multifamily groups . . . . . . . . . . . . . . . . . . . . . 2
    Overview of the first session . . . . . . . . . . . . . . . . . . . . . . . . 2
    Overview of the second session . . . . . . . . . . . . . . . . . . . . . 5
    Ongoing multigroup sessions . . . . . . . . . . . . . . . . . . . . . . . 6
    Exercise: Practice What You’ve Learned
    About Multifamily Groups . . . . . . . . . . . . . . . . . . . . . . . . 13
    Exercise: Review the Progress Note for Ongoing Family
    Psychoeducation Sessions . . . . . . . . . . . . . . . . . . . . . . . . . 15

  • Module 5: Problem Solutions from Actual Practice
  • . . . . 1
    Overview of the module . . . . . . . . . . . . . . . . . . . . . . . . . . 1
    Employment issues . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 2
    Medication issues . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 6
    Exercise: Practice What You’ve Learned About
    Problem Solving . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 9

  • Training Frontline Staff
  • A

    Training Frontline Staff

    How Family Intervention Coordinators
    Should Use This Workbook

    Training Frontline Staff introduces
    practitioners to the basic principles and
    skills they need to deliver effective Family
    Psychoeducation (FPE) services. Use this
    workbook with the Practice Demonstration
    Video and the English or Spanish
    Introductory Video on the DVD in
    this KIT.

    Because being part of a team and learning
    how to process information together are
    essential parts of FPE, we recommend that
    you conduct group training sessions rather
    than simply give FPE practitioners the
    workbook to read on their own.

    To make the content easy to manage, we
    divided the training into five modules.

    The Five Family
    Psychoeducation Modules
    in Training Frontline Staff

    1 Basics Elements and Practice
    Principles.

    2 The Core Processes of Family
    Psychoeducation

    3 Joining Sessions and Educational
    Workshops

    4 Ongoing Family Psychoeducation
    Sessions

    5 Problem Solutions from Actual
    Practice

    B Training Frontline Staff

    How to Complete this Five-Session Training

    n  Arrange for FPE practitioners to meet at least once a week for 5 weeks. You will cover up to one module
    each week.

    n  In this workbook, on the page before each module, you’ll find Notes to the family intervention
    coordinator. Review the notes to prepare for the training.

    n  Copy and distribute the module’s reading materials so that practitioners can read them before
    the training session. You’ll find this booklet on the KIT’s CD-ROM.

    n  Copy the exercises for each module so that you can complete them during each training
    session. You’ll find the exercises in this booklet on the KIT’s CD-ROM.

    n  For each session, ask a different group member to facilitate.

    n  Begin each training session by showing the corresponding segments
    of the Practice Demonstration Video.

    n  Discuss the information on the video and in the workbook.

    n  Complete the suggested exercises for that module.

    The ultimate purpose of this workbook is to have
    practitioners understand the principles behind the
    FPE model, how FPE is delivered, and the skills
    necessary to provide effective services. We have
    found that practitioners prefer to read one module
    at a time and then discuss that module with
    colleagues as a group. Working through these
    modules as a group creates an opportunity to
    discuss and master the core values and teaching
    principles that are essential to effective FPE
    practice.

    Prepare program-specific
    information

    In addition to providing the materials in this
    workbook, you should prepare to give FPE
    practitioners information about FPE policies
    and procedures. These include the following:

    n Procedures for identifying consumers
    for the program;

    n  Conditions under which consumers will
    be discharged from the program;

    n Procedures for completing FPE Progress Notes;

    n Criteria for assessing the program’s fidelity
    to the FPE model; and

    n Outcomes that will be monitored.

    For sample forms, see Building Your Program
    and Evaluating Your Program in this KIT.

    Training Frontline Staff C

    Prepare agency-specific
    information

    You should also develop a plan to train practitioners
    about other policies and procedures that may be
    relevant to the agency in which the FPE program
    operates. These might include the following:

    n Consumers’ rights: Practitioners should be
    aware of the state and federal consumer rights
    requirements.

    n Billing procedures: Practitioners must know
    how to document and bill for FPE services.

    n Safety: Many agencies with existing community-
    based programs have materials about safety.
    If training in this area is not already available,
    plan for training in de-escalation techniques.

    n Mandated reporting: Practitioners must know
    how to report suspected abuse and neglect. They
    also must know what to do if they find out about
    other illegal activity and threats of harm to self
    or others.

    n Other policies and procedures: Consult your
    agency’s human resources office to learn of other
    program, agency, or state policies that the staff
    should know.

    Visit an existing team

    After your FPE team completes this workbook,
    we suggest that new practitioners observe an
    experienced, high-fidelity FPE program. If you
    are familiar with these materials before your visit,
    your visit will be more productive. Rather than
    using time to explain the basics, the host program
    will be able to show the new FPE practitioners
    how to apply the basics in a real-world setting.

    Arrange for didactic training

    After using this workbook and visiting an
    experienced FPE program, FPE practitioners will
    be ready for a trainer who will help them practice
    what they have seen and read. Some family
    intervention coordinators choose to hire an
    external trainer to help their team practice FPE
    principles, processes, and skills. The initial training
    should take 2 to 3 days.

    Recruit a consultant

    Once FPE practitioners begin working with
    consumers, you—along with the agency director—
    are responsible for ensuring that they follow the
    evidence-based model. This task can be challenging.

    You must facilitate a staff development process,
    apply what you have just learned about FPE in your
    own clinical work with consumers, and, at the same
    time, ensure through clinical supervision that FPE
    practitioners follow the model.

    It is easy to stray from the evidence-based model
    and do something similar to but not quite the
    same as FPE. Sometimes this happens because
    practitioners believe they are diligently following
    the FPE model, but they miss some of the more
    subtle aspects of it. In other cases, FPE services
    start well, but, as more consumers are admitted
    to the program and pressure mounts, practitioners
    revert to older, more familiar ways of working.

    To ensure that your team follows the FPE model,
    work with an experienced consultant throughout
    the first year of operation. A consultant can provide
    ongoing telephone and in-person support to help
    you with your challenging leadership role.

    D Training Frontline Staff

    Cross-train

    It is important that staff throughout your agency
    develop a basic understanding of FPE. Cross-
    training will ensure that other staff members
    support the work that the FPE team undertakes.

    As discussed in Building Your Program, we also
    recommend that you train members of your FPE
    advisory group. The more information that advisory
    group members have about FPE, the better they
    will be able to support the program and its mission.

    Training is also an opportunity for FPE
    practitioners and advisory group members to
    become familiar with one another. Make sure that
    the advisory group members and FPE practitioners
    introduce themselves and that they are familiar
    with each other’s roles.

    To help you conduct your training, we include these
    multimedia materials in the FPE KIT:

    n Introductory PowerPoint presentation;

    n Sample brochure; and

    n Introductory Video.

    Once trained, you or your staff will be able to
    use these materials to present routine, inservice
    seminars to ensure that all staff members within
    the agency and advisory group members are
    familiar with the FPE program.

    For more information

    The information in this workbook provides a
    detailed overview of the FPE model. For more
    information, see the following resources:

    Anderson, C., Hogarty, G., & Reiss, D. (1986).
    Schizophrenia and the family. New York:
    Guilford Press.

    McFarlane, W. R., (Ed.). (2002). Multifamily
    groups in the treatment of severe psychiatric
    disorders. New York: Guilford.

    We consistently found that agencies used these
    additional resources with this KIT to develop
    and manage their FPE programs. For this reason,
    we recommend the first resource to those
    implementing FPE in a single-family format and
    the second resource to those implementing FPE
    in the multifamily group format. For additional
    resources, see The Evidence in this KIT.

    Basic Elements and Practice Principles E

    Module 1

    Module 1

    Basics Elements and

    Practice Principles

    Notes to the family intervention coordinator

    Prepare for Module 1:

    n Make copies of Module 1. Your copy
    is in this workbook; print additional
    copies from the KIT’s CD-ROM.

    n Distribute the material to the FPE practitioners
    who will participate in your group session. Ask
    them to read it before meeting as a group.

    n  Make copies of these exercises:

    o Explore the Benefits of Family
    Psychoeducation

    o Examine Program Standards

    n Make copies of these documents
    found in Evaluating Your Program
    in this KIT:

    o The Family Psychoeducation Fidelity Scale

    o General Organizational Index

    o Outcome measures that your agency
    will monitor (if available)

    Do not distribute them until your group training .

    Conduct your first session:

    n When you convene your group, view
    the Introductory Video. Discuss the
    video and the content of Module 1.

    n Distribute the following:

    o The Family Psychoeducation Fidelity Scale
    o General Organizational Index

    o Outcome measures that your agency will
    monitor (if available)

    o The exercises for this module

    n Review the distributed materials and complete
    the exercises as a group.

    Facilitating the dialogue: One of the
    roles of a family intervention coordinator
    is to facilitate the dialogue during group
    training sessions. Some people have difficulty
    speaking in a group, perhaps because they
    are timid or soft-spoken. Others may feel
    professionally intimidated by those with more
    experience or higher degrees. Conversely,
    some practitioners will be self-confident and
    outspoken and will need to learn to listen
    openly to what others have to say.

    As you work together on each module,
    encourage those who are more withdrawn
    to express their views and make sure that
    the more vocal people give others a chance
    to speak. Group training also gives you the
    opportunity to assess the anxiety that FPE
    practitioners may feel about providing FPE
    services. Use your group training time to
    explore and address issues openly.

    Basic Elements and Practice Principles 1 Module 1

    Training Frontline Staff

    Module 1: Basic Elements and Practice Principals

    Module 1 explains the basic elements of Family Psychoeducation, including the
    practice principles of the model. This module orients practitioners to how consumers
    and families may benefit from the evidence-based practice.

    What is Family
    Psychoeducation?

    Family Psychoeducation (FPE) is an
    approach for partnering with consumers
    and families to treat serious mental
    illnesses. FPE practitioners develop
    a working alliance with consumers
    and families.

    The term psychoeducation can be
    misleading. While FPE includes many
    working elements, it is not family therapy.
    Instead, it is nearly the opposite. In family
    therapy, the family itself is the object of
    treatment. But in the FPE approach, the
    illness is the object of treatment, not the

    family. The goal is that practitioners,
    consumers, and families work together
    to support recovery.

    Serious mental illnesses such as
    schizophrenia, bipolar disorder, and major
    depression are widely accepted in the
    medical field as illnesses with well-
    established symptoms and treatment.
    As with other disorders such as diabetes
    or hypertension, it is both honest and useful
    to give people practical information about
    their mental illnesses, how common they
    are, and how they can manage them.

    Many consumers and families report that
    this information is helpful because it lets
    them know that they are not alone and it

    Module 1 2 Basic Elements and Practice Principles

    empowers them to participate fully in the recovery
    process. Similarly, research shows that consumer
    outcomes improve if families receive information
    and support (Dixon et al., 2001). For this reason,
    a number of family psychoeducation programs have
    been developed over the past two decades.

    Models differ in their format (whether they use
    multifamily or single-family format); duration of
    treatment; consumer participation; and location.
    Research shows that the critical ingredients of
    effective FPE include the following (Dixon et
    al., 2001):

    n Education about serious mental illnesses;

    n Information resources, especially during periods
    of crises;

    n Skills training and ongoing guidance about
    managing mental illnesses;

    n Problem-solving; and

    n Social and emotional support.

    The phases of Family
    Psychoeducation

    FPE services are provided in three phases:

    n Joining sessions;

    n An educational workshop; and

    n Ongoing FPE sessions.

    Joining sessions

    Initially, FPE practitioners meet with consumers
    and their respective family members in introductory
    meetings called joining sessions. The purpose of
    these sessions is to learn about their experiences
    with mental illnesses, their strengths and resources,
    and their goals for treatment.

    FPE practitioners engage consumers and families
    in a working alliance by showing respect, building
    trust, and offering concrete help. This working

    alliance is the foundation of FPE services.
    Joining sessions are considered the first phase
    of the FPE program.

    Educational workshop

    In the second phase of the FPE program, FPE
    practitioners offer a 1-day educational workshop.
    The workshop is based on a standardized
    educational curriculum to meet the distinct
    educational needs of family members.

    FPE practitioners also respond to the individual
    needs of consumers and families throughout the
    FPE program by providing information and
    resources. To keep consumers and families engaged
    in the FPE program, it is important to tailor
    education to meet consumer and family needs,
    especially in times of crisis.

    Ongoing Family Psychoeducation sessions

    After completing the joining sessions and 1-day
    workshop, FPE practitioners ask consumers
    and families to attend ongoing FPE sessions.
    When possible, they offer ongoing FPE sessions
    in a multifamily group format. Consumers and
    families who attend multifamily groups benefit
    by connecting with others who have similar
    experiences. The peer support and mutual
    aid provided in the group builds social support
    networks for consumers and families who are
    often socially isolated.

    Ongoing FPE sessions focus on current issues that
    consumers and families face, and address them
    through a structured problem-solving approach.
    This approach helps consumers and families make
    gains in working toward consumers’ personal
    recovery goals.

    FPE is not a short-term intervention. Studies show
    that offering fewer than 10 sessions does not
    produce the same positive outcomes (Cuijpers,
    1999). We currently recommend providing FPE
    for 9 months or more.

    Basic Elements and Practice Principles 3 Module 1

    In summary, FPE practitioners provide information
    about mental illnesses, and help consumers
    and families enhance their problem-solving,
    communication, and coping skills. When provided
    in the multifamily group format, ongoing FPE
    sessions also help consumers and families develop
    social supports.

    Practice principles

    FPE is based on a core set of practice principles.
    These principles form the foundation of the
    evidence-based practice and guide practitioners
    in delivering effective FPE services.

    Practice Principles

    Principle 1:
    Consumers define
    who family is.

    In FPE, the term family includes anyone consumers identify as being supportive in the
    recovery process. For FPE to work, consumers must identify supportive people they would
    like to involve in the FPE program. Some consumers may choose a relative. Others may
    identify a friend, employer, colleague, counselor, or other supportive person.

    Principle 2:
    The practitioner-
    consumer-family
    alliance is essential.

    Consumers and families have often responded to serious mental illnesses with great resolve
    and resilience. FPE recognizes consumer and family strengths, experience, and expertise in
    living with serious mental illnesses.

    FPE is based on a consumer-family-practitioner alliance. When forming alliances with
    consumers and families, FPE practitioners emphasize that consumers and families are
    not to blame for serious mental illnesses. Blaming consumers or families is not constructive
    or helpful and should be avoided. FPE practitioners partner with consumers and families
    to better understand consumers and support their personal recovery goals.

    Principle 3:
    Education and
    resources help families
    support consumers’
    personal recovery goals.

    Consumers benefit when family members are educated about mental illnesses. Educated
    families are better able to identify symptoms, recognize warning signs of relapse, support
    treatment goals, and promote recovery. Provide information resources to consumers and
    families, especially during times of acute psychiatric episodes or crisis.

    Principle 4:
    Consumers and families
    who receive ongoing
    guidance and skills
    training are better able
    to manage mental
    illnesses.

    Consumers and families experience stress in many forms in response to mental illnesses.
    Practical issues such as obtaining services and managing symptoms daily are stressors.
    Learning techniques to reduce stress and improve communication and coping skills
    can strengthen family relationships and promote recovery. Learning how to recognize
    precipitating factors and prodromal symptoms can help prevent relapses. For more
    information, see Training Frontline Staff in this KIT.

    Principle 5:
    Problem-solving helps
    consumers and families
    define and address
    current issues.

    Using a structured problem-solving approach helps consumers and families break
    complicated issues into small, manageable steps that they may more easily address.
    This approach helps consumers take steps toward achieving their personal recovery goals.

    Principle 6:
    Social and emotional
    support validates
    experiences and
    facilitates problem-
    solving.

    FPE allows consumers and families to share their experiences and feelings. Social and
    emotional support lets consumers and families know that they are not alone. Participants in
    FPE often find relief when they openly discuss and problem-solve the issues that they face.

    Module 1 4 Basic Elements and Practice Principles

    The family experience

    Mental illnesses bring about such significant
    changes in people’s lives that many families think
    in terms of how life was before and after the onset
    of the illness. Families often provide emotional and
    instrumental support, case management functions,
    financial assistance, advocacy, and housing to
    relatives with mental illnesses. Doing so can be
    rewarding, but also imposes considerable stress.

    Family members often find that they lack access to
    needed resources and information. Stressors range
    from practical problems such as paying medical
    bills and obtaining services to issues related to the
    symptoms of mental illnesses.

    Family members also must cope with their own
    emotional responses to having a relative with
    mental illnesses. Emotional responses vary from
    optimism and hope to denial, guilt, and grief
    (Tessler & Gamache, 2000; Hatfield & Lefley,
    1987). These feelings may interfere with their
    capacity to support and help their relative in
    the recovery process.

    In addition, consumers and families may face
    stigma while coping with serious mental illnesses.
    They may find that friends and relatives begin
    to avoid them. They may isolate themselves from
    natural support networks if they perceive that
    others cannot relate to their experiences.
    Stigmatization and isolation can lead people to
    feel exasperated, abandoned, and demoralized.

    Stress, isolation, and stigma can cause tension and
    disagreements between consumers and families.
    Disagreements can be destabilizing or, at least, can
    prevent rehabilitation if they are left unresolved.
    Therefore, addressing these issues not only helps
    to improve the overall functioning of the family but
    also promotes recovery.

    FPE addresses these issues by focusing on
    consumer and family strengths. Consumers and
    families often show great resolve and resilience

    when faced with crises related to mental illnesses.
    They demonstrate more adaptive coping when
    they feel affirmed, respected, and valued for the
    information and skills that they possess. For this
    reason, FPE sees families as partners and asks
    them to share their resources and expertise to
    help consumers achieve their recovery goals.

    Core values in Family
    Psychoeducation

    FPE is based on several core values that permeate
    the relationship among consumers, families, and
    practitioners. These values include the following:

    n Building hope;

    n Recognizing consumers and families as experts
    in their own experience of mental illnesses;

    n Emphasizing personal choice;

    n Establishing a collaborative partnership; and

    n Demonstrating respect.

    Build hope

    The long-term course of mental illnesses cannot
    be predicted, and no one can predict anyone’s
    future. However, studies suggest that consumers
    and families who actively participate in their
    treatment and who develop effective coping skills
    have the most favorable course and outcome,
    including a better quality of life (Mueser et al.,
    2002). The ability to influence your own destiny is
    the basis for hope and optimism about the future.

    FPE practitioners convey hope and optimism to
    consumers and their families. In providing FPE,
    practitioners present information and skills as being
    potentially useful tools that consumers can use
    in pursuing their goals. Informed and involved
    families will feel more empowered to support
    their relatives’ recovery goals. FPE practitioners
    keep an attitude of hope and optimism, even
    when consumers and families may be pessimistic.

    Basic Elements and Practice Principles 5 Module 1

    Recognize consumers and families
    as experts

    While FPE practitioners have professional expertise
    about information and skills for managing and
    recovering from mental illnesses, consumers
    and families have experience in living with mental
    illnesses. Consumers and families know which
    strategies have worked in the past for them and
    which have not.

    FPE practitioners encourage consumers and
    families to share their unique experiences with
    mental illnesses and response to treatment. By
    paying close attention to consumers’ and families’
    expertise, you can more effectively help consumers
    progress toward their personal goals.

    Emphasize personal choice

    The overriding goal of FPE is to support consumers
    in their personal recovery process. The ability and
    right of consumers to make their own decisions is
    paramount, even when consumers’ decisions differ
    from the recommendations of their family and
    practitioners. Certain rare exceptions to this
    principle do exist, for example, when legal
    constraints such as an involuntary hospitalization
    protect consumers from themselves or others.

    In general, avoid pressuring consumers to make
    certain treatment decisions and encourage families
    to do the same. Instead, accept consumers’
    decisions and work with them to evaluate the
    consequences in terms of their personal goals.

    Keeping the emphasis on consumers’ personal
    choice is key to establishing and maintaining a
    strong alliance with both consumers and families.
    FPE practitioners model how respecting consumer
    choices, despite disagreements, builds a trusting
    relationship that promotes positive change.

    Establish a collaborative partnership

    While FPE practitioners serve a variety of roles,
    they are primarily collaborators. The collaborative
    spirit of FPE reflects the fact that consumers,
    families, and practitioners work side by side in
    a nonhierarchical relationship.

    FPE practitioners establish a working alliance with
    consumers and families. Together, they learn how
    to cope with the unique characteristics of
    consumers’ mental illnesses and make progress
    toward their personal recovery goals.

    Demonstrate respect

    Respect is a key ingredient for successfully
    collaborating in FPE. FPE practitioners respect
    consumers and families as human beings, capable
    decisionmakers, and partners in the treatment
    process. FPE practitioners accept that consumers
    and families may differ in their personal values
    and opinions. They respect consumers’ and
    families’ right to their own values and opinions.
    For example, consumers may disagree that they
    have a particular mental illness or that they have
    any mental illness at all.

    Rather than actively trying to persuade consumers
    that they have a specific disorder, FPE practitioners
    respect their beliefs while searching for common
    ground as a basis for collaboration. Such common
    ground could include the following:

    n Symptoms and distress that consumers
    experience (perhaps even conceptualized
    generally as stress, anxiety, or nerve problems);

    n Desire to avoid hospitalization;

    n Difficulties with independent living; or

    n Specific goals they would like to accomplish.

    By seeking common ground, FPE practitioners
    demonstrate respect for consumers’ beliefs and
    their right to make informed decisions based on
    their values and beliefs.

    Module 1 6 Basic Elements and Practice Principles

    Program standards

    One of the unique features of FPE is that the
    important characteristics of this evidence-based
    model have been translated into program standards
    to help programs replicate effective services.
    An instrument called the FPE Fidelity Scale
    summarizes these characteristics and is available
    to help quality assurance teams assess how closely
    their program follows the evidence-based model
    (See Evaluating Your Program in this KIT). Your
    family intervention coordinator will give this scale
    to you to review and discuss during training.

    Basic Characteristics of Family
    Psychoeducation

    n Family intervention coordinator

    n Session frequency

    n Long-term FPE

    n Quality of consumer-family-practitioner
    alliance

    n Detailed family reaction

    n Precipitating factors

    n Prodromal signs and symptoms

    n Coping strategies

    n

    Educational curriculum

    n

    Multimedia education

    n Structured group sessions

    n Structured problem-solving

    n Stage-wise provision of services

    n Assertive engagement and outreach

    How we know that Family
    Psychoeducation is effective

    FPE is based on research that shows that families
    and consumers who participated in the components
    of the evidence-based model experienced 20 to 50
    percent fewer relapses and rehospitalizations than
    those who received standard individual services
    over 2 years (Penn & Mueser, 1996; Dixon &
    Lehman, 1995; Lam, Kneipers, & Leff, 1993;
    Falloon et al., 1999). Those at the higher end of
    this range participated for more than 3 months.

    Studies also show that FPE improved family well-
    being (Dixon et al., 2001; McFarlane et al., 2003).
    Families reported greater knowledge of serious
    mental illnesses; a decrease in feeling confused,
    stressed, and isolated; and reduced medical illness
    and medical care utilization (Dyck, Hendryx, Short,
    Voss, & McFarlane,,2002).

    FPE has been found to increase consumers’
    participation in vocational rehabilitation programs
    (Falloon et al., 1985). Studies have shown
    employment rate gains of two to four times baseline
    levels, when combined with the evidence-based
    practice, Supported Employment (McFarlane et
    al., 1996; McFarlane et al., 1995; McFarlane et
    al., 2000).

    Based on this significant evidence, treatment
    guidelines recommend involving families in the
    treatment process by offering the critical
    ingredients outlined in this evidence-based model
    (Lehman & Steinwachs, 1998; American Psychiatric
    Association, 1997; Weiden, Scheifler, McEvoy,
    Allen, & Ross, 1999).

    Basic Elements and Practice Principles 7 Module 1

    Adapting the evidence-based
    model

    Research has shown the greatest amount of
    benefits rom FPE for families and consumers
    with schizophrenic disorders (Dixon et al., 2001).
    For this reason, we recommend that new
    practitioners first provide FPE services to
    consumers with these disorders.

    Once practitioners have learned this approach by
    working with people with schizophrenia, they find
    it relatively easy to modify it for other disorders.
    Studies show that FPE may be effectively adapted
    and used for the following disorders:

    n Bipolar disorder (Clarkin, Carpenter, Hull,
    Wilner, & Glick, 1998; Miklowitz & Goldstein,
    1997; Moltz, 1993; Parikh et al., 1997; Miklowitz
    et al., 2000; Simoneau, Miklowitz, Richards,
    Saleem, & George, 1999);

    n Major depression (Simoneau et al., 1999;
    Emanuels-Zuurveen & Emmelkamp, 1997;
    Leff et al., 2000);

    n Obsessive-compulsive disorder (Van Noppen,
    1999); and

    n Borderline personality disorder (Gunderson,
    Berkowitz, & Ruizsancho, 1997).

    This model also has been adapted and used
    effectively in a variety of countries and cultures.
    For more information about diagnosis-specific
    or cultural adaptations of this model, see The
    Evidence in this KIT.

    Summary

    This module reviewed the basic elements and core
    values of FPE. This evidence-based practice is
    based on a core set of practice principles, which
    have been translated into program standards that
    agencies may replicate. Substantial research has
    demonstrated its effectiveness.

    The next modules give practitioners information
    about the core processes for providing FPE services.

    Basic Elements and Practice Principles 9 Module 1

    Exercise: Explore the Benefits of Family Psychoeducation

    Studies that have explored what makes a difference in whether practitioners adopt a new approach to
    treatment have found that practitioners are more likely to adopt a practice if it addresses an area in which
    they feel they must improve. Share your experiences about where the traditional service delivery system
    has been inadequate and identify aspects of FPE that address those inadequacies.

    Some experiences where the traditional service delivery system has been inadequate:

    n
    n
    n
    n
    n
    n

    How Family Psychoeducation may address those inadequacies:

    n
    n
    n
    n
    n
    n

    Basic Elements and Practice Principles 11 Module 1

    Exercise: Examine Program Standards

    n Distribute these documents:

    o Family Psychoeducation Fidelity Scale;

    o General Organizational Index; and

    o Outcome measures that your agency will monitor (if available).

    n Discuss how your Family Psychoeducation program will be evaluated based on these program standards.

    The Core Processes of Family Psychoeducation 13

    Module 2

    Module 2

    The Core Processes of Family Psychoeducation
    Notes to the family intervention coordinator

    Prepare for Module 2:

    n Make copies of Module 2. Your copy
    is in this workbook; print additional
    copies from the CD-ROM in the KIT.

    n Distribute the material to those who are
    participating in your group training. Ask them
    to read it before meeting as a group.

    n  Make copies of these exercises:

    o Identify Consumers and Families

    o Introduce Your Program

    Do not distribute the exercises until the group
    training. Your copies are in this workbook;
    print additional copies from the KIT’s CD-ROM.

    n Make copies of your agency’s policies and
    procedures for identifying consumers for
    FPE and discharging them from the program
    (if available). Guidelines for developing these
    policies are provided in Building Your Program
    in this KIT.

    Conduct your second session:

    n When you convene your group, discuss the
    content of Module 2.

    n Distribute the following:

    o Your agency’s policies and procedures for
    identifying consumers for FPE and discharging
    them from the program

    o Exercises for this module

    Note: This module has no corresponding Practice
    Demonstration Video component.

    The Core Processes of Family Psychoeducation 1 Module 2


    Training Frontline Staff

    Module 2: The Core Processes
    of Family Psychoeducation

    Module 2 introduces you to the core processes of Family Psychoeducation, including
    joining with consumers and families, offering education, and understanding the
    nature of ongoing Family Psychoeducation (FPE) sessions. This module also discusses
    the goals and objectives of each phase of the program.

    Core processes of Family Psychoeducation

    n Consumers are identified as potential
    participants.

    n Practitioners introduce Family
    Psychoeducation to consumers.
    Consumers who are willing to
    participate identify potential family
    members.

    n Practitioners meet individually three
    or more times with consumers and
    families. The purpose of these joining
    sessions is to engage consumers and
    families in a working alliance.

    n Once practitioners have finished
    joining sessions with five to eight
    consumers and their respective
    families, they offer a 1-day
    educational workshop.

    n After completing the 1-day
    educational workshop, practitioners
    ask consumers and families to attend
    ongoing Family Psychoeducation
    sessions offered in either single-family
    or multifamily group format.

    n Ongoing Family Psychoeducation
    sessions continue for 9 months or
    more. Practitioners, consumers, and
    families use a structured problem-
    solving approach to define and
    address current issues.

    n Practitioners document consumers’
    progress using Progress Notes tailored
    to each phase of the program.

    n Practitioners meet weekly with the
    family intervention coordinator for
    group supervision.

    Module 1 2 Basic Elements and Practice PrinciplesModule 2 2 The Core Processes of Family Psychoeducation

    Although you might think that integrating Family
    Psychoeducation (FPE) core processes and
    paperwork into your daily routine is too time
    consuming and burdensome, these processes
    ensure that FPE services are effective and efficient.

    Identify consumers

    FPE is effective for a wide variety of consumers.
    However, some evidence shows that FPE is
    particularly beneficial for consumers and families
    with the following characteristics:

    n Consumers who have recently experienced their
    first episode of mental illness or are early in the
    course of illness;

    n Consumers who are experiencing acute
    psychiatric crisis;

    n Consumers who experience frequent
    hospitalizations or prolonged unemployment;

    n Consumers or families who have asked to learn
    more about serious mental illnesses;

    n Families who have previously benefited from
    a family education program and want to learn
    how to better support their relative; or

    n Families who are especially exasperated
    or confused about the illness.

    FPE is particularly effective in working with
    families and consumers who are early in the course
    of illness, because most consumers and families
    report the most extreme distress during this time.
    Often in this early period, major rifts develop
    between consumers and families that may
    exacerbate symptoms and disability. FPE has
    prevented and often healed those rifts, as
    participants stop blaming themselves or one
    another and cooperate to help in the overall
    treatment and rehabilitation process.

    Initially many agencies choose to offer FPE to
    consumers with schizophrenic disorders because
    the evidence for this model is strongest with this
    group. Once you have provided FPE services to
    consumers with schizophrenic disorders and their
    families, it relatively easy to modify your FPE
    program to provide services to families and
    consumers who have other diagnoses.

    The number and types of consumers you identify
    depend on whether you offer FPE in a multifamily
    or single-family group format. If your agency
    intends to offer ongoing FPE services primarily
    in the multifamily format, identify five to eight
    consumers with similar diagnoses and offer
    multifamily group sessions to them. If your agency
    chooses to offer FPE in a single-family format, the
    number of consumers you should identify depends
    on the size of your FPE program.

    During this training, your family intervention
    coordinator will review your agency’s policies and
    procedures for identifying consumers for FPE.

    Introduce the program

    Once your family intervention coordinator assigns
    consumers to your caseload, set up a face-to-face
    meeting to introduce them to the FPE program.
    In the meeting, emphasize that the program is for
    both consumers and their family members. While
    some psychoeducation programs are solely for
    either consumers or family members, FPE services
    are provided to both simultaneously.

    Emphasize that participating in FPE is the
    consumers’ choice. After discussing the benefits
    and structure of the FPE program, ask consumers
    if they would like to identify a family member
    with whom they would participate in the program.
    Remember, the term family includes anyone who
    consumers believe is supportive and would like to

    The Core Processes of Family Psychoeducation 3 Module 2

    participate in FPE. Therefore, consumers may
    identify people who are not blood relatives.

    Most consumers welcome family involvement when
    it is clear that the goal is to help families better
    understand their illness and build support to help
    them achieve their personal recovery goals.
    However, if consumers are not interested in the
    program, respect their decision.

    Confidentiality

    Some states require that consumers sign a Release
    of Information Form before you may contact their
    family member. Your family intervention
    coordinator should review your agency’s
    confidentiality requirements as a part of this
    training. For more information, see Building Your
    Program in this KIT.

    Length of the FPE program

    Although the goal is to offer ongoing FPE services,
    some consumers and families may be initially
    unwilling to make long-term commitments.
    Instead, when you introduce FPE, simply ask
    consumers and families to participate for as long as
    they find it useful. Often once people participate
    for a few sessions, they choose to stay long term,
    especially in multifamily groups.

    Conduct joining sessions

    Once consumers agree to participate in FPE and
    identify a family member, arrange to meet with
    them. These initial introductory sessions are called
    joining sessions.

    Joining sessions are considered the first phase of
    the FPE program. Complete this phase by meeting
    with consumers and families at least three times for
    approximately 1 hour.

    The overall purpose of joining sessions is to
    engage consumers and families in a working
    alliance. This working alliance is essential to
    providing effective FPE.

    Each joining session has distinct goals and
    objectives (see Module 3). Some of the goals
    of joining sessions are as follows:

    n Understand consumers’ and families’ unique
    experiences and view of mental illnesses;

    n Learn about consumer and family strengths
    and resources in coping with mental illnesses;

    n Develop mutual, specific goals; and

    n Instill hope and an orientation toward recovery.

    You may hold joining sessions with consumers and
    their respective family members together or meet
    separately with them. (That means you would
    conduct six or more sessions instead of three
    or more.)

    When deciding whether to meet with consumers
    and families jointly or separately, consider the
    following:

    n Consumer and family preferences;

    n Consumer diagnosis and illness characteristics;
    and

    n The goals of the session.

    Tell consumers and families that it is common to
    meet with them individually and jointly with their
    respective family members in the first phase of the
    FPE program. Ask consumers and families how they
    feel about joint and separate meetings. Logistical
    arrangements such as transportation or work
    schedules sometimes dictate whether consumers
    and families can meet jointly. Discuss preferences
    and logistical factors during your first meeting.

    Decisions for offering joining sessions separately
    or jointly are also based on diagnosis and illness
    characteristics. For example, recent studies show
    that joining sessions for consumers with bipolar
    disorder are more effective when conducted

    Module 1 4 Basic Elements and Practice PrinciplesModule 2 4 The Core Processes of Family Psychoeducation

    separately (Moltz, 1993). Use your professional
    discretion to determine how best to accomplish
    the goals of each session. See Module 3 for more
    information.

    It is important to fully complete this phase before
    you offer ongoing FPE sessions. Practitioners
    who shortchange this process often experience
    difficulties keeping consumers and families
    engaged in FPE services.

    Conduct the educational
    workshop

    Once you meet the goals of the joining sessions,
    you are ready to offer the second phase of the
    FPE program. In this phase, you will ask family
    members to attend a 1-day educational workshop.

    Following a structured educational curriculum,
    the workshop is usually conducted in a formal,
    classroom setting. Two FPE practitioners who have
    completed joining sessions with consumers and
    families facilitate the workshop. The treating
    psychiatrist and other treatment team members
    are often invited to conduct part of the presentation.
    For more information about the structure and
    content of this workshop, see Module 3.

    Typically the workshop is conducted solely with
    families—not with consumers—to give families
    a chance to get acquainted. The opportunity to
    interact with others who are in similar situations
    and to speak freely about their experiences
    allows families to bond and develop supportive
    relationships. It also increases families’
    commitment to participate in FPE.

    Some agencies involve consumers in part of the
    workshop to ensure that they receive the same
    educational information as their families. Others
    offer this information to consumers individually
    or in a separate consumer forum.

    Use professional discretion to decide which
    educational format will be most effective for the
    consumers in your program. Consider the severity
    of consumers’ symptoms and their cognitive ability
    to absorb educational material when it is provided
    in the joint format. For example, recent studies
    show that joint educational sessions are effective
    for consumers with nonepisodic bipolar disorder
    (Moltz, 1993; Miklowitz & Goldstein, 1997).

    If you plan to offer ongoing FPE sessions in a
    multifamily group format, complete at least three
    joining sessions with five to eight consumers and
    their respective family members before conducting
    the 1-day workshop. To ensure that consumers and
    families remain engaged, offer the workshop within
    1 or 2 weeks after you complete the joining sessions.
    You may need to carefully coordinate this.

    Offer ongoing Family
    Psychoeducation services

    After completing three joining sessions and the
    1-day workshop, ask consumers and families to
    attend ongoing FPE sessions. The third phase
    of the FPE program consists of providing ongoing
    FPE sessions for 9 months or more. You may
    provide these sessions in either the single-family
    or multifamily group format.

    Choose a format

    The format that you choose will depend on
    consumer and family preferences and needs.
    In general, single-family formats tend to be used
    for the following:

    n Consumers and families with strong social
    support networks;

    n Consumers and families who exhibit unusual
    resilience or strong coping skills; or

    n Consumers who response positively
    to medications;

    The Core Processes of Family Psychoeducation 5 Module 2

    Multifamily groups tend to be used for the
    following:

    n Consumers who are experiencing their first
    episode with mental illness;

    n Consumers who are not responding well
    to medication and treatment;

    n Consumers who are experiencing other
    complicating issues such as additional
    medical illnesses;

    n Families experiencing high stress;

    n Families who have separated from their
    relative with mental illness; and

    n Families who have been through divorce.

    Although initially consumers and families may
    be reluctant to participate in a group, multifamily
    groups benefit both consumers and their families.
    For example, the social stigma related to mental
    illnesses causes many consumers and families to
    feel socially isolated. FPE in a multifamily group
    format connects consumers and families to others
    with similar experiences. It gives them a forum
    for peer support and mutual aid by allowing
    participants to share solutions that have worked
    for them. For this reason, we recommend offering
    ongoing FPE services in a multifamily group
    format, whenever possible.

    FPE multifamily groups consist of five to eight
    consumers and their respective family members.
    They meet every 2 weeks for 1½ hours. Two FPE
    practitioners co-facilitate the group.

    In the single-family format, one FPE practitioner
    meets with one consumer and his or her family
    members. Meetings are usually every 2 weeks
    for 1 hour.

    FPE practitioners commonly work in both
    multifamily or single-family group formats.
    For example, when multifamily group members
    are unable to attend specific group sessions, you
    may offer single-family sessions to accommodate
    scheduling difficulties.

    Use single-family sessions to re-engage consumers
    and families who no longer participate in FPE
    services. You may also offer single-family sessions
    to consumers and families who have completed
    an FPE multifamily group. Offer these sessions
    as needed to sustain ongoing family support
    and involvement.

    If your agency is only able to offer ongoing FPE in
    a single-family format, refer consumers and families
    to local support groups to ensure that they can
    benefit from peer support and mutual aid.

    Focus on current issues

    The goal of ongoing FPE sessions is to identify the
    current issues that consumers and families face, and
    to partner with them to address these issues. FPE
    practitioners commonly use a structured problem-
    solving approach, provide information, and teach
    communication, coping, and social skills.

    In general, FPE sessions reinforce the information
    learned in the educational workshop and focus
    on consumers’ personal recovery goals, which
    generally fall into the following categories:

    n Issues related to re-entering the community; or

    n Issues related to social and vocational
    rehabilitation.

    Issues related to re-entering the community

    Consumers who are experiencing or recovering
    from acute episodes for which they have been
    hospitalized often have issues related to re-entering
    the community. Personal recovery goals may relate
    to the following:

    n Coping with symptoms;

    n Medication; and

    n Alcohol and substance use.

    At times, the symptoms of mental illnesses may
    interfere with consumers’ ability to process
    information presented either verbally or in writing.

    Module 1 6 Basic Elements and Practice PrinciplesModule 2 6 The Core Processes of Family Psychoeducation

    Consequently, communication issues are common.
    Use communication and coping skills training to
    address these issues.

    Communication skills training helps consumers
    and families learn new methods of interacting
    to address cognitive difficulties. These skills
    are especially useful for consumers who have
    experienced complications or have not responded
    well to treatment. Their families may feel
    exasperated and, consequently, may exacerbate
    their relative’s symptoms.

    In ongoing FPE sessions, model simple and direct
    communication for family members. Reinforce the
    importance of communicating in a low, calm tone
    to counteract sensitivity to stimulation. Other
    techniques include breaking information down into
    small chunks and engaging consumers to ensure
    that they receive information accurately.

    When communicating important ideas, encourage
    consumers and families to set aside a specific time
    to talk. Doing so gives consumers and families an
    opportunity to rehearse the communication skills
    that they learn during FPE sessions.

    Coping skills training helps consumers and families
    learn new or enhance existing strategies to manage
    stress, problems, or persistent psychiatric
    symptoms. Steps used in coping skills training
    include the following:

    1. Identify a problem or persistent symptom.

    2. Conduct a behavioral analysis to determine
    situations in which the symptom is most
    distressing.

    3. Identify coping skills that consumers used
    in the past.

    4. Evaluate the effectiveness of previously
    used coping skills.

    5. Increase the use of effective coping skills.

    6. Identify new coping skills to try.

    7. Model and practice new coping skills in role plays.

    8. Gain feedback on the effectiveness of the new
    coping skills and the increased use of previously
    used ones.

    9. Further tailor or adapt the coping strategies
    to meet consumers’ needs.

    Coping strategies range from relaxation to
    cognitive-behavioral techniques. Practicing new
    coping skills is most effective when consumers
    involve family members and other supporters.
    For more information, see the Illness Management
    and Recovery KIT.

    Issues related to social and vocational
    rehabilitation

    For consumers who are in the rehabilitation phase,
    FPE sessions focus on their unique recovery goals.
    Consumers commonly identify situations that are
    likely to cause stress or barriers to achieving their
    goals. Use problem-solving, social skills training,
    and role plays to address these issues. For more
    information, see Modules 4 and 5.

    Engage consumers and families
    continuously

    Engaging consumers and families in FPE starts the
    moment that they are referred to the program. It is
    difficult, if not impossible, to engage consumers
    and families in any meaningful way unless you
    know their needs and goals. For this reason, we
    suggest conducting three or more joining sessions
    to build a rapport and a working alliance. Once
    consumers and families are involved in ongoing
    FPE sessions, your challenge is to focus FPE
    services on helping them meet their immediate
    needs and goals.

    The engagement process never stops. Whenever
    you meet with consumers and families, you learn
    more about them. If you want consumers and
    families to stay engaged, you must continue to help
    them progress in a way that is meaningful to them.

    The Core Processes of Family Psychoeducation 7 Module 2

    Some consumers and families have had negative
    experiences with specific practitioners or with
    mental health services. Discussing these experiences
    during joining sessions can help to overcome them.
    It may take some consumers and families a while
    to realize that you offer something different from
    what they have received in the past.

    At any point, if consumers and families disengage
    from the FPE program, assertively reach out to
    engage them again. Contact consumers and
    families on an ongoing basis through a variety of
    means (by phone, mail, etc.). When appropriate,
    offer to meet with consumers and families in their
    home or their community. Gently encourage and
    demonstrate tolerance of different levels of
    readiness by offering flexible services to meet
    consumer and family needs.

    Complete Progress Notes

    After every FPE session, fill out an FPE Progress
    Note to document the services that you provided.
    The Progress Notes will help you demonstrate that
    you did the following:

    n Met the goals of each joining session;

    n Provided all components of the educational
    workshop; and

    n Followed the structured problem-solving
    approach.

    Progress Notes also help you track consumer
    and family goals, and the progress that they make
    toward achieving them. Make sure that the goals
    consumers develop in the FPE program are
    reflected in their treatment plan.

    Ask your family intervention coordinator for a copy
    of FPE Progress Notes tailored to each phase of the
    FPE program.

    Participate in supervision

    It is important for new FPE practitioners to
    receive supportive supervision. As part of an FPE
    team, you are expected to meet weekly with your
    family intervention coordinator for individual or
    group supervision. Weekly supervision meetings
    are critical to coordinate the timing of joining
    sessions and the educational workshop, to answer
    questions about the model, and to reinforce FPE
    skills and techniques.

    Talk with your family intervention coordinator and
    fellow FPE practitioners about how to best respond
    to issues that arise in your FPE sessions. Discuss
    consumers’ goals and the progress that they are
    making toward their recovery.

    Every 6 months, your family intervention
    coordinator will also present the results and
    recommendations from your FPE fidelity
    assessment. Discuss this information as a team
    to determine how your FPE program may be
    improved. For more information about the FPE
    fidelity assessments, see Evaluating Your Program
    in this KIT.

    Summary

    In summary, this module introduced the core
    processes of FPE, including joining with
    consumers and families, offering education,
    and understanding the nature of ongoing FPE
    sessions. The next module discusses two of these
    processes—joining sessions and educational
    workshops—in greater detail.

    The Core Processes of Family Psychoeducation 9 Module 2

    Exercise: Identify Consumers and Families

    Answer the following questions to help reinforce your understanding of your agency’s FPE policies
    and procedures.

    1. What are your agency’s policies for identifying and referring consumers to your FPE program?

    n
    n
    n
    n

    2. Under what circumstances will consumers be discharged from FPE?

    The Core Processes of Family Psychoeducation 11 Module 2

    Exercise: Introduce Your Program

    n Role play: Conduct a role play to practice introducing your FPE program. Select three group members
    to play the roles of consumer, family, and practitioner.

    n Group discussion: Discuss how you would engage a family member who is overcoming negative
    experiences with the mental health system.

    Joining Sessions and Educational Workshops 13

    Module 3

    Module 3

    Joining Sessions and Educational Workshops
    Notes to the family intervention coordinator

    Prepare for Module 3:

    n Make copies of Module 3. Your copy
    is in this workbook; print additional
    copies from the CD-ROM in the KIT.

    n Distribute the material to those who are
    participating in your group training. Ask them
    to read it before meeting as a group.
    n  Make copies of these exercises:

    o Review Progress Notes for Joining
    Sessions and Educational Workshops

    o Practice What You’ve Learned About Joining
    Sessions

    Do not distribute them until the group
    training. Your copies are in this workbook;
    print additional copies from the CD-ROM.

    n Make copies of your agency’s
    Progress Notes tailored to joining
    sessions and educational workshops.

    Conduct your third training session:

    n  When you convene your group, view
    the following segments of Practice
    Demonstration Video (approximately
    30 minutes):

    o Introduction

    o Joining with Individuals and Families

    o

    Joining Session 1

    o

    Joining Session 2

    o

    Joining Session 3

    o Educational Workshop

    n Discuss the video and the content of Module 3.

    n Distribute the exercises and Progress Notes and
    complete them as a group

    Joining Sessions and Educational Workshops 1 Module 3

    Training Frontline Staff

    Module 3: Joining Sessions
    and Educational Workshops

    Module 3 provides details on two phases of the Family Psychoeducation program:
    joining sessions and educational workshops. Completing these phases is essential
    to the process of engaging consumers and families both initially and throughout
    the program.

    Joining sessions

    Joining sessions are the first phase in the
    Family Psychoeducation (FPE) program.
    FPE practitioners meet three or more
    times with each FPE consumer and their
    respective family members. Meetings
    typically last for 1 hour.

    The purpose of joining sessions is
    to build rapport, convey hope, and
    engage consumers and families in
    a working alliance.

    Develop a working alliance

    Joining means to connect, bring together,
    or unite. Developing a working alliance
    with consumers and families is essential
    to providing effective FPE. Agencies
    that shortchange this process often have
    difficulties keeping consumers and families
    engaged in FPE services.

    In these alliances, FPE practitioners ask
    consumers and families to partner with
    them in the treatment process. Consumers
    and families help carry out the treatment,
    rather than participate as objects
    of treatment.

    Module 1 2 Basic Elements and Practice PrinciplesModule 3 2 Joining Sessions and Educational Workshops

    The object of treatment is the illness, not
    consumers or families. This may appear to be a
    matter of semantics to some, but the differences
    are a key for providing effective services. FPE
    practitioners work with, not on, consumers
    and families.

    FPE practitioners recognize consumers’ and
    families’ vast knowledge and expertise. The
    working alliance is built on the idea that FPE
    practitioners, consumers, and families join their
    expertise and strengths to support consumers
    in achieving their personal recovery goals. This
    collaborative approach is the foundation for the
    evidence-based model.

    To foster this relationship, FPE practitioners do
    the following:

    n Demonstrate genuine concern for consumers
    and their families;

    n Validate consumers’ and families’ experiences;

    n Avoid treating consumers or families as patients;
    and

    n Avoid blaming consumers or families for causing
    the mental illness.

    To create a relaxed, informal atmosphere, FPE
    practitioners set the stage for forming a working
    alliance by socializing at the beginning and end
    of each joining session. Socializing helps decrease
    anxiety and allows you to get to know consumers
    and family members as people beyond the
    illness. To engage consumers and families, FPE
    practitioners are also open and forthcoming about
    who they are as people.

    From the first meeting, practitioners actively guide
    the conversation. Because each joining session has
    tasks to be completed, you must structure them.
    Following a prescribed structure reassures both
    consumers and families, letting them know what
    to expect and what will be accomplished. The tasks
    for each joining session are described on the
    following pages.

    Joining Sessions and Educational Workshops 3 Module 3

    Joining Session 1

    Purpose: To develop a rapport and build a working
    alliance with consumers and families.

    Developing a rapport and building a working
    alliance is a long process. It is important to build
    the relationship beyond the illness, so keep your
    manner positive, informal, and collegial. Begin the
    joining session by socializing. After socializing,
    review the session’s agenda.

    If your first contact with consumers and their
    families is during an acute psychiatric episode,
    you may have a special opportunity to build a
    strong working alliance. Respond quickly to the
    immediate needs that consumers and families
    present. Demonstrate willingness to help,
    especially in concrete ways.

    Establish yourself as a resource and support.
    If consumers and families seek particular
    assistance, offer it. Prompt attention reassures
    both consumers and families and demonstrates
    your commitment to partnering with them in
    consumers’ recovery process.

    Do not be afraid to step in and take on roles not
    traditionally practiced. You may act as an advocate
    in navigating the mental health system, make a
    referral for more services, or even help consumers
    and families obtain entitlements or benefits.

    If consumers are not currently experiencing an
    acute psychiatric episode, review the last episode
    that they experienced. Identify precipitating events
    and early warning signs with consumers and
    families. To do so, guide them through a review
    of the previous weeks. Emphasize any changes in
    consumers’ symptoms, thoughts, or feelings during
    that time. These changes—which may be either
    quite apparent or barely noticeable—constitute the
    prodromal signs and symptoms for that consumer.
    In most cases, idiosyncratic behaviors come before

    more common prodromal symptoms, for example,
    poor sleep, anorexia, pacing, restless behaviors,
    and irritability. These behaviors become even more
    important in the future to help prevent relapse.

    Next, ask both consumers and their families how
    they coped with symptoms. Explore the types of
    strategies that were helpful and those that were
    not. It is important to understand consumers’ and
    families’ unique experiences with mental illnesses.

    Managing an acute psychiatric episode is always a
    difficult experience. Show that you appreciate this
    fact and validate the feelings that consumers and
    families share. Relate in a humanistic, caring, and
    hopeful manner.

    Some practitioners skip or shorten this phase of the
    FPE program to more rapidly begin clinical work.
    However, shortchanging this step usually backfires
    since consumers and families who do not complete
    joining sessions are more likely to disengage
    prematurely from FPE services.

    Tasks for Joining Session 1

    n Socialize.

    n Review a present (or past) acute psychiatric
    episode.

    n Identify precipitating events.

    n Explore prodromal signs and symptoms.

    n Review family experiences in providing
    support and validate their experience as
    normal human responses.

    n Identify consumer and family strengths and
    coping strategies that have been successful.

    n Identify coping strategies that have not
    been helpful.

    n Socialize.

    Module 1 4 Basic Elements and Practice PrinciplesModule 3 4 Joining Sessions and Educational Workshops

    Joining Session 2

    Purpose: To explore the emotional impact of serious
    mental illnesses.

    In general, you may conduct joining sessions either
    jointly or separately, depending on consumer and
    family preference. However, hearing about
    families’ frustration and anger about the effects
    of consumers’ symptoms is usually best done
    in an individual session. For this reason, FPE
    practitioners often choose to conduct this session
    separately for consumers and their families.

    Begin and end each joining session by socializing
    to reduce anxiety and set the tone for developing
    a working alliance. Encourage consumers and
    families to discuss the impact that serious mental
    illnesses have had on their lives. Support, validate,
    and recognize normal human reactions such as
    feelings of loss, despair, grief, anger, frustration,
    and guilt associated with serious mental illnesses.

    Next, learn about consumers’ social support
    network. You may complete a genogram (a visual
    representation of family relationships simialr
    to a family tree) during the session. Remember
    to define social supports broadly by including
    neighbors, landlords, employers, or any other
    supportive people.

    It is also important to understand the experiences
    that consumers and families have had with the
    mental health system. When those experiences
    are left unexpressed, they can form a barrier
    to developing a strong working alliance, cause
    repetitive complaints, and hinder your ability to
    work on current issues. Acknowledge and validate
    feelings such as anger or frustration to help

    consumers and families overcome past negative
    experiences and allow progress to be made.

    Many consumers and family members feel that
    mental health practitioners blame and criticize
    them. Blaming consumers or families for the
    illness is not constructive or helpful and should
    be avoided.

    Share basic information about consumers’ mental
    illnesses. Demonstrate the resources that you have
    to offer while showing respect for consumers’
    and families’ first-hand experience in managing
    their illnesses.

    Convey optimism that consumers will be able to
    reduce relapses and achieve their personal recovery
    goals by partnering in the treatment process.
    Having answers for every question is less important
    than conveying a commitment to working together
    to find solutions.

    Tasks for Joining Session 2

    n Socialize.

    n Explore feelings and reactions to having
    a mental illness or a relative with a mental
    illness.

    n Identify consumers’ social support network.

    n Construct a genogram or family tree.

    n Review past experiences with the mental
    health system.

    n Convey basic information about the
    consumer’s specific mental illness.

    n Socialize.

    Joining Sessions and Educational Workshops 5 Module 3

    Joining Session 3

    Purpose: To identify consumer and family strengths,
    interests, and goals and to introduce the next
    phases of the FPE program.

    If you schedule consumers and their families to
    meet separately for this session, consider meeting
    with consumers first. After exploring consumers’
    strengths and interests, work with them to identify
    goals they would like to work on during the FPE
    program. Setting and pursuing personal goals is an
    essential part of recovery. In FPE, consumers
    define what recovery means to them and identify
    three short- and long-term goals.

    Explain to consumers that people are often more
    effective in getting what they want when they set
    clear goals. Help consumers identify goals by
    reviewing areas of their lives with which they are
    satisfied and those that they wish to change. Once
    consumers identify one or two areas on which they
    would like to work, help them break the areas down
    into smaller goals or steps that can be achieved
    within the next few months. Start with goals that
    are relatively small.

    Introduce consumers to the last two phases of the
    program—the 1-day educational workshop and
    ongoing FPE services. Describe the benefits of
    giving information to family members and say that
    you would like to invite family members to attend
    the 1-day educational workshop. Tell them about
    the format and components of the standardized
    educational curriculum. If your agency plans to
    involve consumers in part of the workshop or to
    offer a parallel workshop for them, describe those
    details and invite consumers to attend.

    Next, describe the last phase—ongoing FPE
    sessions. Review the goals that consumers identified
    earlier and ascertain their support for working on
    them. Explain that ongoing FPE sessions will focus
    on supporting their efforts to achieve those goals.
    Introduce the structured problem-solving approach
    and explain that this is one tool they can use to

    pursue personal goals. Ask consumers if you may
    share their interests and goals with their family
    members. Tell them that you may offer ongoing
    FPE sessions in a single-family or multifamily
    group format and describe the benefits of
    participating in multifamily groups. Ask if they
    would be willing to participate with their families.
    If consumers are unsure, continue to explore the
    decision during additional single-family sessions.

    Once consumers give their permission to share
    their interests and goals with family members,
    meet with their family member for a third joining
    session. Review consumers’ interests and goals and
    ascertain family support for those goals. If family
    goals differ from the consumer’s goals, probe to
    fully understand the differences. When possible,
    search for common ground.

    Next, introduce family members to the last two
    phases of the FPE program. Review the benefits
    of participating in the workshop and multifamily
    group sessions. Ask about their experiences in
    attending group sessions and what concerns they
    might have, including confidentiality, shyness,
    and feeling pressured to speak in groups or in the
    workshop. Assure them that they may contribute
    only as much as they wish. If families are unsure
    about continuing with the next two phases of the
    FPE program, schedule additional joining sessions
    as needed to continue the engagement process.

    Tasks for Joining Session 3

    n Socialize.

    n Identify personal strengths, hobbies,
    interests.

    n Identify short- and long-term goals.

    n Introduce the next phases of the FPE
    program.

    n Socialize.

    Module 1 6 Basic Elements and Practice PrinciplesModule 3 6 Joining Sessions and Educational Workshops

    Pacing and format

    The pacing of joining sessions and whether you will
    be able to complete these tasks in three sessions
    will depend on individual circumstances. For
    example, if a consumer is in crisis, you might need
    to shorten the initial joining sessions and complete
    these tasks by conducting additional sessions.

    You may choose to conduct joining sessions jointly
    with consumers and families or with consumers
    and families separately. As discussed in Module 2,
    decisions about the format may be influenced by
    consumer and family preferences, diagnosis and
    illness characteristics, and the goals of the session.
    For example, FPE practitioners often schedule
    separate sessions to discuss highly personal matters
    such as romantic entanglements, drug abuse,
    or sexual side effects of medications.

    Others believe that it is easier to engage consumers
    and families if they have at least one individual
    joining session. They believe that doing so allows
    consumers and families to speak more openly.
    Use your professional discretion for these decisions
    and remember to remain flexible and responsive.

    Educational workshops

    Education is one of the essential ingredients
    of FPE. This section introduces you to a
    recommended standardized curriculum that you
    may use to teach families about their relatives’
    mental illnesses. Information about the timing,
    structure, and format of the 1-day educational
    workshop is also outlined below.

    Why offer informational resources?

    When people do not have accurate information
    about mental illnesses, they may adopt mistaken
    beliefs or rely on intuition. Unfortunately, many
    effective interpersonal and rehabilitative
    approaches are often counter-intuitive.
    Consequently, despite having their relative’s best
    interest in mind, their actions may interfere with
    recovery. Therefore, it is important to give families
    the information and guidance they need to promote
    recovery and rehabilitation.

    Information can help create a shared language that
    allows consumers, families, and practitioners to
    work together. The first message is that no one is
    to blame for mental illnesses. Blaming consumers
    or families is not constructive or helpful.

    Next, families must understand basic information
    about their relative’s serious mental illnesses. One
    critical aspect of family education is that it gives
    families hope that they will be able to alter the
    course of illness.

    Joining Sessions and Educational Workshops 7 Module 3

    Timing

    You must respond to the immediate needs of
    consumers and families and answer questions as
    they arise. For this reason, the educational process
    begins during the first joining session and continues
    throughout each phase of the FPE program.

    While education is ongoing, the main focus on
    education occurs in the second phase of the FPE
    program. Once consumers and their respective
    family members have completed three or more
    joining sessions, invite family members to attend
    a 1-day or 8-hour educational workshop. Typically,
    the 1-day workshop is offered to a group of
    family members.

    During the joining sessions, explain the nature
    and purpose of the workshop. Explain that family
    members will be expected to attend this type of
    workshop only once as a part of their participation
    in the FPE program.

    If you offer ongoing FPE sessions in a multifamily
    group format, plan to have the five to eight families
    who will participate in the multifamily group attend
    the same workshop. The workshop gives them an
    opportunity to get acquainted before the
    multifamily group begins.

    Schedule the workshop for a time that meets the
    needs of family members. Typically, workshops
    are held on weekend days.

    Participants

    The workshop is most often conducted solely
    with families—not with consumers—to give
    families a chance to get acquainted. The
    opportunity to interact with others who are in
    similar situations and to speak freely about their
    experiences allows families to bond and develop
    supportive relationships. It also increases families’
    commitment to participate in FPE.

    Some agencies involve consumers in part of the
    workshop to ensure that they receive the same
    educational information as their families. Others
    offer this information to consumers individually
    or in a separate consumer forum. For more
    information about providing information about
    mental illness to consumers, see the Illness
    Management and Recovery KIT.

    Educational curriculum

    We recommend using the following standardized
    curriculum to teach families about mental illnesses.
    To provide enough specific information, we
    recommend that workshops focus on one specific
    mental illness. For example, all family members
    would have relatives with schizophrenic disorders
    and the information presented would relate
    primarily to these disorders.

    The Educational Curriculum

  • Cover
  • s
    Six Topics

    n Psychobiology of the specific mental
    illness including the basics of brain
    function and dysfunction, and the possible
    causes of the mental illness

    n Diagnosis including symptoms and
    prognosis

    n Treatment and rehabilitation including
    an overview of treatment options and how
    they promote effective coping and illness
    management strategies

    n Impact of mental illnesses on the
    family including how mental illnesses
    affect families as a whole

    n Relapse prevention including prodromal
    signs and symptoms, and the role of stress
    in precipitating episodes

    n Family guidelines or recommended
    responses to help families maintain a
    home environment that promotes relapse
    prevention

    Module 1 8 Basic Elements and Practice PrinciplesModule 3 8 Joining Sessions and Educational Workshops

    Presenter selection

    Family members often feel more comfortable if the
    practitioner who knows them and their consumer
    relative facilitates the workshop. For this reason,
    we recommend that the same FPE practitioners
    conduct the joining sessions, educational workshop,
    and ongoing FPE sessions.

    Two FPE practitioners usually facilitate the
    workshop. Facilitators are not expected to be
    experts in all areas of the educational curriculum.
    Instead, they choose to present areas in which
    they are comfortable and invite colleagues with
    particular areas of expertise to present the
    remaining educational components. For example,
    the treating psychiatrist should present the material
    on the psychobiology of the specific mental illness.

    Once you have selected all of the presenters and
    assigned them areas of the educational curriculum,
    schedule a practice presentation to review the
    materials before the workshop. Practicing with
    colleagues helps increase confidence and gives
    an opportunity for feedback on clarity and rate of
    speech. It may help to videotape or audiotape the
    practice presentations and to rehearse responses
    to common questions.

    Educational techniques

    The roles of educator may be new for FPE
    practitioners. When educating consumers and
    families, keep the following techniques in mind:

    Use an interactive, not didactic teaching style

    Teaching in an interactive style makes learning
    an interesting, lively activity. Interactive learning
    involves frequently pausing when presenting
    information to get consumer and family reactions
    and perspectives. Talk about what the information
    means and answer any questions that may arise.
    An interactive teaching style conveys to consumers
    and families that they have important contributions

    to make to the learning process and that you are
    interested in what they say.

    Present the material in a conversational tone by
    summarizing the key points and giving relevant
    examples. Avoid the monotony of having just one
    person speak. At all times, communication should
    be two-way; it must never seem like a lecture.
    People learn information by actively processing
    it in a discussion with someone else.

    Periodically review information that you
    already covered

    Begin and end each segment with a brief summary
    of the key points. Make connections between
    previously learned and new material. To check if
    consumers and families retained the information
    and to reinforce topics that you previously
    discussed, ask them to summarize what
    they remember.

    Adopt common language to facilitate
    communication

    People have their own ways of understanding their
    experiences, thinking about their lives, and looking
    into the future. The more you can speak the same
    language, the easier it will be to make connections
    and avoid unnecessary misunderstandings.

    Break information down into small chunks

    Some mental illnesses cause impairment in
    cognitive functioning, which can result in a slower
    rate of processing and the need to present
    information in very small chunks or in a simplified
    format. When educating consumers, take into
    account individual needs.

    Consumers who are experiencing psychiatric
    symptoms may need information to be presented
    in different formats, individually, or in shorter
    group sessions. By presenting small amounts of
    information at a time, consumers can learn at their
    own pace.

    Joining Sessions and Educational Workshops 9 Module 3

    Check for understanding

    How often you check for understanding of the
    information will vary from person to person.
    Avoid asking yes or no questions. Have consumers
    and families summarize information in their own
    words. Hearing them explain their understanding
    of basic concepts allows you to know which areas
    they understood and which need clarification.

    Multimedia education

    Offer the information in the standardized
    curriculum to families in a variety of formats such
    as videos, slide presentations, lectures, discussion,
    and question-and-answer periods. Give each family
    member a folder with handouts of the information
    that will be presented, as well as resource lists and
    Web sites that they can use to find more information.

    For example, you might want to include a copy
    of the following Family Guidelines. During the
    session, review each guideline in detail, and ask
    family members for their reactions, questions, and
    experiences. Illustrate the guidelines with examples
    based on the kinds of problems that your families
    described during joining sessions.

    Family Guidelines

    1. Go slow. Recovery takes time. Things will
    get better in their own time.

    2. Keep it cool. Enthusiasm is normal. Tone
    it down. Disagreement is normal. Tone it
    down, too.

    3. Give each other space. Time out is
    important for everyone. It’s okay to reach
    out. It’s okay to say, “No.”

    4. Set limits. Everyone needs to know what
    the rules are. A few good rules keep
    things clear.

    5. Ignore what you can’t change. Let
    some things slide. Don’t ignore violence.

    6. Keep it simple. Say what you have to say
    clearly, calmly, and positively.

    7. Partner with your relative’s treatment
    team. Understand your relative’s goals
    and the steps outlined in their treatment
    plan.

    8. Carry on business as usual. Re-establish
    family routines as quickly as possible. Stay
    in touch with family and friends.

    9. Do not use street drugs or alcohol.
    They make symptoms worse, can cause
    relapses, and prevent recovery.

    10. Pick up on early warning signs.
    Note changes. Consult with your
    consumer relative and the treatment
    team, if possible.

    11. Solve problems step by step. Make
    changes incrementally. Work on one thing
    at a time.

    12. Adjust expectations. Use a personal
    yardstick. Compare this month to last
    month rather than to last year or next year.

    Module 1 10 Basic Elements and Practice PrinciplesModule 3 10 Joining Sessions and Educational Workshops

    Tailor your curriculum

    While we recommend that you follow a
    standardized curriculum, your workshop will be
    most effective if you tailor the information as much
    as possible to the participants. Connecting families
    who have relatives with similar diagnoses is only
    the first step. Pay close attention to the educational

    needs that families reveal in joining sessions and
    emphasize this information in the workshop.
    Responding to family needs is the key to keeping
    them engaged in the FPE program.

    To ensure that all components of the standardized
    curriculum are covered, follow the agenda below.

    Sample Agenda of the Educational Workshop

    9:00–9:15 Coffee and socializing

    9:15–9:30 Formal introductions and explanation
    of the format for the day

    9:30–10:30 Psychobiology and diagnosis
    of the specific mental illness

    Basics of brain function and dysfunction

    Possible causes of the specific mental illness

    Diagnosis

    Symptoms

    Prognosis

    10:30–10:45 Coffee break and socializing

    10:45–11:15 Psychiatric medications

    How they work

    Outcomes

    Side effects

    11:15–12:00 Other treatments options Overview of other treatment options

    How they work
    Outcomes

    12:00–1:00 Lunch and socializing

    1:00–3:00 The impact of mental illness
    on the family

    The needs of the consumer

    The needs of the family

    Common family reactions to the illness

    Common problems that consumers and families face

    What the family can do to help

    Family guidelines

    The problem-solving method

    3:30–4:00 Wrap Up Question and answer period

    Scheduling, logistical, and questions about
    multifamily group sessions

    Socializing

    Agenda adapted from Anderson et al., 1986, p. 76.

    Joining Sessions and Educational Workshops 11 Module 3

    To start, offer refreshments in an informal setting to
    prompt spontaneous socializing. Have refreshments
    available throughout the workshop. To develop an
    atmosphere of partnership, during the breaks make
    sure that you spend time with families, not solely
    with colleagues.

    To start the formal program, introduce yourself,
    distribute the educational packets, and explain
    the day’s agenda. For example, say:

    Welcome and thank you for coming on this beautiful
    Saturday morning! My name is Bob Smith and this
    is Peg Rutherford. Some of you already know us
    because we’ve been meeting individually for quite
    some time now.

    We want you to know as much as possible about this
    illness—what’s known, and what’s not known, as of
    now. Schizophrenia is a very complex and confusing
    illness. We have found that the more information
    family members have, the better equipped they are
    to deal with problems as they occur.

    This workshop is only one step of our work together.
    After the workshop, we will regularly meet as a
    group of families and consumers. We will continue
    to give you relevant information and assistance.
    We have found with the FPE program that working
    together with consumers and families results in fewer
    relapses and rehospitalizations.

    We will answer as many questions as possible in this
    workshop today. If we cannot answer something, we
    will find someone who knows the information and
    will get back to you.

    While it is important to cover all components of
    the standardized curriculum, present information
    in an open, collegial manner that encourages
    participation. Create an atmosphere that
    encourages families to comfortably ask questions
    and tailor the curriculum to respond to their needs.
    It is important to continue the engagement process
    and strengthen the working alliance.

    By sharing experiences, families will discover
    that their problems are similar. This realization

    normalizes families’ experience with mental
    illnesses and counters feelings of isolation.
    They often begin to bond during the workshop
    and build a strong social support network through
    their contact in the multifamily group.

    Invite family members to talk about their reactions
    to the information presented. Some common
    reactions are relief at finally knowing some facts,
    anger at being kept in the dark, sadness, despair,
    hopefulness about this approach, and eagerness
    to get on with the work.

    Keep in mind that family members are not
    obligated to speak during the workshop. Respect
    families’ decisions about how much they wish to
    share by encouraging discussion and eliciting
    reactions without demanding them.

    If you have not done so already, outline the format
    for multifamily groups, emphasizing the structured
    problem-solving approach and its usefulness for
    consumers and families. Present the agenda for the
    first two meetings to generate enthusiasm for
    upcoming sessions.

    Give examples of how life has improved for
    consumers and families who have participated
    in FPE. End the workshop on a positive note. If
    possible, families should leave the workshop feeling
    optimistic about being involved in the FPE program.

    If you have not done so already, share contact
    information in case families need to reach you
    between sessions. Make sure that you have
    responded to the questions and concerns that
    families have raised, especially questions about the
    upcoming multifamily group. Thank all participants
    for coming to the workshop.

    This workshop is modeled after the workshop
    described by Anderson and colleagues (1986).
    For more information about conducting
    educational workshops with consumers and
    families, see The Evidence in this KIT.

    Joining Sessions and Educational Workshops 13 Module 3

    Exercise: Review Progress Notes for Joining Sessions and Educational Workshops

    Distribute a copy of your agency’s FPE Progress Notes for joining sessions and educational workshops.
    Review the components of these forms and discuss as a group.

    Joining Sessions and Educational Workshops 15 Module 3

    Exercise: Practice What You’ve Learned About Joining Sessions

    Select three members of your training group to play the roles of practitioner, consumer, and family member.
    Conduct role plays of Joining Sessions 1, 2, and 3.

    Discuss the following:

    n How would you engage a consumer who is reluctant to involve a family member in the FPE
    program?

    n How would you respond if consumers or family members become upset when discussing how
    mental illness has affected their lives?

    n How would you respond to a consumer or family member who shares past negative experiences
    with group sessions?

    Ongoing Family Psychoeducation Sessions 17

    Module 4

    Module 4

    Ongoing Family Psychoeducation Sessions
    Notes to the family intervention coordinator

    Prepare for Module 4:

    n Make copies of Module 4. Your copy
    is in this workbook; print additional
    copies from the CD-ROM in the KIT.

    n Distribute the material to those who are
    participating in your group training. Ask
    them to read it before the group training.

    n Make copies of the following
    exercises:

    o Practice What You’ve Learned About
    Multifamily Groups

    o Review the Progress Note for Ongoing Family
    Psychoeducation Sessions

    Do not distribute them until the group
    training. Your copies are in this workbook;
    print additional copies from the CD-ROM in
    the KIT.

    n Make copies of your agency’s Progress Notes for
    ongoing FPE sessions (if available). For a model
    form, see Building Your Program in this KIT.

    Conduct your fourth training session

    n When you convene your group, view
    the last two segments on the Practice
    Demonstration Video (approximately
    50 minutes):

    n Multifamily Groups

    o Problem-Solving

    o Discuss the video and content of Module 4.

    n Distribute the exercises to the group and
    complete them

    Ongoing Family Psychoeducation Sessions 1 Module 4

    Training Frontline Staff

    Module 4: Ongoing Family Psychoeducation
    Sessions

    Module 4 describes the last phase of the program—ongoing Family Psychoeducation
    sessions. When possible, these sessions should be offered in the multifamily
    group format. For this reason, the module describes the first three sessions of the
    multifamily group sessions in detail and draws applications to the single-family model.

    Conduct ongoing Family
    Psychoeducation sessions

    Once consumers and families have
    completed three or more joining sessions
    and families have participated in the 1-day
    educational workshop, invite consumers
    and families to attend ongoing Family
    Psychoeducation (FPE) sessions.

    You may conduct these sessions in either
    the single-family or multifamily group
    format. Since you discuss and select format
    options with consumers and families during
    joining sessions, information for selecting
    a format is presented in Module 2.

    When possible, offer ongoing FPE sessions
    in a multifamily group format. Multifamily
    groups consist of five to eight consumers
    and their respective family members.

    Two FPE practitioners who have conducted
    the joining sessions and educational
    workshop facilitate the sessions.
    Multifamily groups meet every 2 weeks
    for 1½ hours. For consumers and families
    to gain the full effectiveness of the FPE
    program, offer ongoing FPE sessions
    in either format for 9 months or more.

    While this phase of the FPE program has
    been found to be most effective when
    offered long term, many FPE practitioners

    Module 1 2 Basic Elements and Practice PrinciplesModule 4 2 Ongoing Family Psychoeducation Sessions

    do not emphasize the long-term nature of FPE
    during the engagement process. Asking consumers
    and families to commit long term may provoke
    anxiety. For this reason, tell consumers and families
    that this last phase of the FPE program will
    continue for as long as they find it helpful.

    Structure of multifamily groups

    The structure of the first two multifamily group
    sessions differs from the structure of later sessions.
    In the first two sessions, the goal is to establish
    a partnership among group members. Up to this
    point, the working alliance has been limited to
    the consumer, family, and practitioner. When
    consumers and families begin participating in
    multifamily groups, the goal is to extend the
    working alliance to include all group members.

    Why structure the first two groups
    differently?

    Consumers and families need to get to know one
    another apart from the effects of mental illnesses
    on their lives. The first two sessions are designed
    to help group members learn about one another
    and bond as a group.

    Traditional group therapy models emphasize
    expressing feelings. This often sparks conflict
    between family members, disagreement about the
    group’s purpose, and anger or confrontation with
    facilitators. Consequently, consumers and families
    may become overwhelmed and give up on the
    group. In contrast, FPE focuses on addressing
    current issues that pose barriers to consumers’
    personal recovery goals. Group members work
    together by participating in a structured problem-
    solving approach. For this approach to be effective,
    group members must share ideas and be open to
    accepting them. It is best to proceed slowly and
    take time to develop trust and empathy.

    Through the joining sessions, you developed
    a working alliance with consumers and families
    in the group. In the first two multifamily group
    sessions, you will extend that partnership by giving
    group members an opportunity to bond and build
    their group identity.

    Overview of the first session

    The goal of the first session is for FPE practitioners,
    consumers, and family members to get to know one
    another in the best possible light. The first session
    is not intended to be an opportunity to share deep
    emotions and feelings about the illness or about the
    group itself. Rather, it is a time for group members
    to get to know one another and discover common
    interests, issues, and concerns. For this reason,
    encourage group members to talk about topics that
    are unrelated to the illness, such as their personal
    interests, hobbies, or daily activities.

    Set up the room

    Arrange chairs around a table or in a semi-circle
    so that group members can easily see and hear
    one another. Use the same setup at every session.
    Be aware that once the problem-solving sessions
    begin (after the second group session), groups
    often like to be in a semi-circle so they can see
    the blackboard, flipchart, or chalkboard.

    Have refreshments available to prompt socializing
    before and after the group. At the start of the
    session, tell group members that they are free
    to move around, get a drink, or use the restroom.
    Make sure that consumers know they can leave
    the room whenever necessary.

    Ongoing Family Psychoeducation Sessions 3 Module 4

    Be an effective facilitator

    During the first two group sessions, be a good host.
    Introduce group members, point out common
    interests, and guide conversations to more personal
    subjects such as interests and hobbies.

    Act as a role model. Demonstrate by example that
    you expect people to talk about topics other than
    the illness. This means that you should be prepared
    to share a personal story of your own.

    Pay close attention to group members who speak
    and thank them when they finish. Prompt reluctant
    group members with questions or encourage them
    to talk. Some group members may benefit from
    a slow conversational pace to better absorb
    information that they hear.

    Think of the group in terms of any group of people
    who meet one another for the first time. Guide the
    conversation to topics of general interest such as
    the following:

    n Where people live;

    n Where they were born and grew up;

    n What kind of work they do both inside
    and outside the home;

    n What their hobbies are;

    n How they like to spend their leisure time;

    n Which recent movies they have seen; and

    n What holiday or vacation plans they have.

    Structure the first session

    Welcome group members and review the format
    for the first two sessions and future group sessions.
    Begin with introductions. Group members
    commonly want to talk about the illness during
    their introduction. Guide the discussion by clearly
    setting the agenda for the first group and modeling
    the type of introduction that you expect. For
    example, say:

    Tonight, the goal is to begin to get to know one
    another. Let’s go around the room and each say
    something about ourselves. It is understandable to
    want to talk about the effects of a mental illness, but
    we will get to that during our next meeting.

    Tonight, the goal is to talk about other parts of our
    lives. Let’s start by sharing the things that we are
    proud of. I would like to start by telling you about
    myself.

    If consumers and families have joined thoroughly
    with you, they will feel less need to focus on the
    illness during the first group session. When you
    participate and talk about yourself, it gives the
    group a model and creates a feeling of partnership.

    Some FPE practitioners find it uncomfortable to
    share personal information, since this is a departure
    from the way of conducting traditional therapy
    groups. However, you must create a friendly,
    comfortable atmosphere among group members.
    It may help to rehearse with your co-facilitator
    ahead of time. Think of a few positive, engaging
    stories about family, favorite activities, interests,
    and hobbies.

    Module 1 4 Basic Elements and Practice PrinciplesModule 4 4 Ongoing Family Psychoeducation Sessions

    Be prepared to talk for about 5 minutes. For
    example, say:

    Hi, my name is Margaret Hanson. Some of you
    have already met me, and some are meeting me
    for the first time tonight. I am a social worker and
    have worked in the community mental health center
    for 15 years.

    I grew up in this area and my parents still live in
    the house I grew up in. I have three teenage girls
    who keep my husband and me very busy and
    challenged! Even though the girls are growing up
    and going in different directions, we still like to do
    things together as a family. One thing we like to
    do is go camping.

    Over the years, we’ve acquired a lot of equipment
    so the girls could each invite a friend along on our
    trips. This summer, we’re planning a trip to the White
    Mountains, and we’re bringing two large canoes
    since the girls are inviting friends. I especially enjoy
    these trips since I don’t do much of the cooking—
    my husband does! It’s so peaceful to camp and to
    spend time in a less harried environment.

    We have an old yellow lab that stays home when
    we go camping, but when we’re home, she likes
    to take me for a walk every morning, usually as
    the sun comes up. In my spare time, I garden, scout
    flea markets, spend time with friends, sew, and read.
    Occasionally, my husband and I see a movie, go
    out to eat with friends, or walk the beach when the
    tourists aren’t around. Well, that’s enough about me
    for now. I’m looking forward to getting to know all
    of you better as time goes by.

    Then turn to the next person and have group
    members continue around the circle. Thank group
    members after they contribute. Have your co-
    facilitator sit halfway around the circle and take
    a turn in sequence.

    Redirect group members

    If group members begin to talk about the illness or
    the impact of the illness on their lives, redirect the
    conversation. For example, say:

    We will have time to talk about the illness later on.
    For right now, let’s try to get to know other things
    about one another.

    Prompt group members

    You may have to prompt some group members
    who offer only a minimal amount of information.
    Ask questions to help them give more details. For
    example, if they like to watch television, ask which
    shows they watch or if they say they like to cook,
    ask which recipes they enjoy most. Strive to point
    out similarities or interests that group members
    share. For example, say:

    I notice that several of us like to go to the movies.
    Maybe we can talk about our most recent favorite
    films.

    This helps develop relationships and group
    cohesion.

    Ongoing Family Psychoeducation Sessions 5 Module 4

    Overview of the second session

    The second multifamily group session focuses
    on how mental illnesses have changed the lives
    of members in the group. In this session, the goal
    is to continue building trust among group members
    and help them develop a sense of a common
    experience of having a mental illness or a relative
    with a mental illness. The mood of this session is
    usually less light-hearted than the first session, but
    it is the basis for developing a strong group identity.

    Structure the second session

    Welcome members to the group as they arrive and
    direct them to the refreshments. To start the group,
    outline the agenda for the session by saying:

    Thanks for being here tonight. Last time we spent
    time getting to know one another. Tonight, let’s
    begin by catching up for 15 minutes. Then we will
    discuss how mental illnesses have affected our lives.

    Begin the socializing with a comment or question
    that is unrelated to the illness such as following up
    with a group member about a planned activity or
    event mentioned during the first session. It is
    important to begin groups by socializing. Encourage
    participation by modeling, pointing out connections
    between group members, and asking questions.

    After socializing, say:

    Now it’s time to focus on our topic for the evening.
    Mental illnesses have touched all of our lives in
    some way. Tonight, you will each have a chance to
    share your personal story of how mental illness has
    affected your life. You can share as much or as little
    as you would like, but also feel free to ask questions
    and to support one another.

    Start by sharing your own professional and personal
    experience. For example, share a story about a
    friend or family member with mental illnesses, talk
    about how you became interested in your work, or
    how you have been affected by treating people with
    mental illnesses. When you finish sharing, turn to
    the next group member and ask:

    How has it been for you? How has mental illness
    affected your life?

    After group members have each briefly shared
    a story, thank them. Point out any similarities
    to another group member’s experiences.

    Save 5 minutes to socialize before ending the
    session. Prompt discussions on concrete topics
    such as weekend or holiday plans. The purpose
    of socializing is to stimulate and encourage
    interpersonal connections. Socializing promotes
    developing social support networks. At the end
    of the session also remind group members of the
    time and date of the next session.

    Try some tips for common difficulties

    During this session, it may be difficult for group
    members to confide their problems. Offer plenty
    of support and validation to encourage people to
    talk. Be careful to respect personal boundaries by
    conveying that group members can say as much or
    as little as they wish. Ask questions to keep reluctant
    group members talking and to promote connections
    such as similar problems, worries, or stories.

    This group session may be the first time some group
    members realize that they are not alone. Encourage
    them to express any feelings that surface while
    discussing these difficult experiences. For example,
    feelings that families commonly have but are
    reluctant to talk about include anxiety, confusion,
    fear, guilt, sadness, and grief. Compared to the first
    meeting, the mood of this session may be sad.

    Sometimes group members express their
    unhappiness with the mental health system,
    the agency, or a member of the treatment team.
    Validate these feelings and experiences and ask
    for specific details. But be careful not to let a
    specific problem dominate the session.

    Group members who have had an opportunity to
    discuss their experiences during joining sessions
    will be less likely to focus on these issues during

    Module 1 6 Basic Elements and Practice PrinciplesModule 4 6 Ongoing Family Psychoeducation Sessions

    group sessions. For this reason, we recommend
    that you complete all three joining sessions with
    consumers and families before introducing the next
    phases of the FPE program.

    If group members start to talk about specific
    problems they want to solve immediately, help
    them return to the agenda by saying:

    During the next session, we will begin to look
    at specific problems and work together to find
    solutions. Right now, let’s give [name] a chance
    to share with us how mental illness has affected
    her life.

    Depending on the situation, you may also suggest
    meeting outside the group to discuss the problem.

    Other difficulties that you may encounter during
    group sessions include people having side
    conversations, interrupting, monopolizing, or
    speaking for others. Address these issues with
    positive redirecting remarks, such as:

    That’s interesting; I wonder if Mr. Smith has
    something to say about this.

    Your wife says she thinks you’re over the flu.
    How long were you sick?

    Understand the importance of humor

    Early on, it helps to introduce humor into the
    group dynamic. Let group members know that
    it is acceptable to have fun and laugh. Model
    this behavior as well, when appropriate.

    Ongoing multigroup sessions

    Many consumers and families have expressed
    dissatisfaction with traditional group therapy
    models because of the high degree of emotion and
    low degree of productivity. FPE responds to these
    concerns by offering a clear agenda for each session
    and a structured problem-solving approach to help
    consumers and families make gains in working
    toward personal recovery goals.

    Follow the session agenda

    Beginning with the third session, the agenda
    for multifamily group sessions is as follows:

    Multifamily Group Session Agenda

    Socialize 15 minutes

    Go-around—identify current
    issues

    20 minutes

    Select a single problem 5 minutes

    Use structured problem-solving 45 minutes

    Socialize 5 minutes

    Total 90 minutes

    As in the first two sessions, two FPE practitioners
    continue to co-facilitate the group. One FPE
    practitioner acts as the primary facilitator and
    leads the group through the agenda and structured
    problem-solving. The other serves as co-facilitator
    and ensures group participation, monitors the
    overall process, and records the problem-
    solving process.

    Record the proceedings on a blackboard, flipchart,
    or chalkboard. At the end of the session, document
    the session on a Progress Note that you can put in
    consumers’ charts. Give consumers and families
    a copy to take home.

    Ongoing Family Psychoeducation Sessions 7 Module 4

    Similar to the first and second group sessions,
    socialize at the beginning and end of each
    group session. Give consumers and families the
    opportunity to recapture and practice any social
    skills they may have lost due to isolation or
    exposure to high levels of stress.

    After socializing, begin the go-around to identify
    current issues related to mental illness that
    consumers and families are managing. It is often
    helpful to prompt the go-around discussion by
    writing this question at the top of a blackboard:

    How have you been affected by the illness since
    we last met?

    Prompts such as these help group members focus
    on the purpose of the go-around. This is also the
    time to follow up on consumers’ progress toward
    their goals or on their action plan. As each group
    member checks in, have your co-facilitator list
    the current issues on the blackboard.

    Discuss each issue individually. Do not point out
    similarities between the concerns of group members
    because doing so causes group members to express
    problems in more general terms. Instead, for the
    purposes of problem-solving, encourage group
    members to use their own words to describe their
    current issues in detail. This will provide a clearer
    and more accurate picture of the issues.

    Once you have completed the go-around, review
    each issue. Remember to recognize any progress
    that consumers have made in achieving steps
    toward their goals. If any issues can be readily
    solved, offer direct assistance or advice based
    on the family guidelines.

    Many issues that consumers and families identify
    will be too complex to easily resolve. Instead,
    choose one for the group to work on during the
    session. Ask consumers and families for their
    permission to focus on the issue as the group’s
    topic. If agreed, discuss this problem for the
    remainder of the session.

    Use structured problem-solving

    Structured problem-solving is a six-step approach
    that helps break problems down into a manageable
    form so that solutions can be implemented in small,
    easy-to-follow steps. Experiencing success in small
    steps gives consumers and families hope that
    change is possible. Often a small success will
    motivate consumers to apply the method to other
    aspects of their lives.

    Six Steps of Structured Problem-
    Solving

    n Define the problem.

    n Generate solutions.

    n Discuss advantages and disadvantages
    of each solution.

    n Choose the best solution.

    n Form an action plan.

    n Review the action plan.

    Select the problem

    The first step of the structured problem-solving
    approach is to select one problem from the list of
    current issues and define it in detail. Selecting and
    defining the problem, while sometimes viewed as a
    rather simple process, is often the most difficult
    step. If the problem is not properly defined,
    consumers, families, and practitioners become
    frustrated and convinced that it cannot be solved.

    Some common difficulties that groups experience
    are the following:

    n Choosing a problem that is too large or too
    general (for example, “I want to get a job”);

    n Not reaching consensus on how to define the
    problem; and

    n Phrasing the problem inaccurately.

    Module 1 8 Basic Elements and Practice PrinciplesModule 4 8 Ongoing Family Psychoeducation Sessions

    Tell group members that the problem definition
    stage can be challenging. Acknowledging that
    the process is not simple may alleviate some
    frustration later.

    To select a problem for the group to discuss, review
    the list and consider the scale of the problems
    identified. For initial sessions, select simpler
    problems so that the group members learn the
    structured problem-solving approach, gain trust
    in one another, and achieve a few successes. Only
    address long-standing or previously intractable
    problems if you can break them down into more
    solvable subproblems.

    Share your reasoning for selecting specific problems.
    Thinking aloud while selecting a problem helps

    group members learn how to simplify, clarify,
    and prioritize concerns.

    Once you have selected a problem and the
    consumer and family have agreed that the issue
    can be the focus of the group session, emphasize
    that the goal is to teach the problem-solving
    approach and that, with practice, group members
    may begin to use the approach outside the group.
    It is also important to say:

    Although the problem may not currently be a
    problem in your life, it is likely that many of you
    have faced or will face a similar issue. Hopefully,
    we can share our experiences and together find
    some possible solutions. Remember if your issue
    isn’t the focus for this session, over the course
    of the group, we will address everyone’s issues.

    Ongoing Family Psychoeducation Sessions 9 Module 4

    Evaluate Common Problems

    Safety issues Safety is always of primary importance. As you review the issues, address any potential
    threats to safety.

    Clarify the issue. If the issue is too emotionally charged or is likely to disrupt the group
    process, address the issue apart from the group, and update the group about how it
    was resolved. Discuss your reasons and plans in as much detail as possible so that group
    members have the best possible learning experience.

    If the issue is not too emotionally charged or disruptive and can be broken down into
    manageable parts, ask the consumer if you may select the problem for the group
    to discuss.

    Managing symptoms,
    substance use, and
    medication issues

    Reports of actual or potential exacerbation of symptoms are common problems that
    you may address in the group. Issues about medications and substance use are also
    important. Because these are potentially emotional issues, present or reframe the
    problem in nonblaming terms. Blaming consumers or families is not constructive or
    helpful. Modeling a nonjudgmental, nonblaming approach often can be a good learning
    opportunity for group members.

    Life events Sometimes, major events occur (for example, divorce, death, marriage, graduation,
    a birth), that can be unsettling for the whole family and especially for someone with
    mental illness. It is natural for stress levels to rise at such times, even with positive stress.

    Changes sometimes occur within mental health agencies, such as a move to another
    building or a practitioner’s resignation that may be as distressing to consumers and
    families as other major life events. You may be able to address these issues in the group.

    Disagreement
    among consumers
    and family members

    It is natural for consumers and family members to disagree at times. When exploring
    issues such as these, consider the following:

    The intensity of the disagreement

    Sometimes an issue surrounded by intense disagreement is better resolved in single-
    family sessions. In such a case, suggest an outside meeting to help with the problem.
    If the disagreement does not seem extreme and is selected for problem-solving, keep
    criticism and emotions to a minimum. Consider reviewing the Family Guidelines
    outlined in Module 3.

    Whether the disagreement is a consequence of the mental illness

    If the disagreement is a consequence of the mental illness, problem-solving in the
    group can be helpful and elicit solutions that are pragmatic and stress-reducing.
    However, when a consumer and family member are disagreeing, it may be difficult to
    agree on the definition of the problem. One approach is to define the problem broadly,
    such as: How can the Smith family manage their disagreement so that John will not be
    overwhelmed and relapse?

    Module 1 10 Basic Elements and Practice PrinciplesModule 4 10 Ongoing Family Psychoeducation Sessions

    Define the problem

    The next step is to ask consumers and families
    for more information to help the group clearly
    understand and define the problem. Ask detailed
    questions such as the following:

    n What is the current issue?

    n When did you first notice the problem?

    n When does it occur? How often?
    In what situations?

    n Has the problem changed in any way recently?

    n Whom does the problem affect? How?

    n With what activities does the problem interfere?

    n What have you tried to alleviate the problem?
    What were the results?

    n Who seems to have the most impact on the
    problem?

    Seek consensus on the definition of the problem
    by summarizing it in a single sentence or phrase
    and asking consumers and families if the definition
    makes sense to them. Make sure that you accurately
    define the problem. Incorrectly phrasing the
    problem can cause the group to generate
    ineffective solutions. For example, consumers
    or family members may indicate that the person
    is the problem. Remember, the problem is the
    problem; the person is never the problem.

    Once a problem has been defined in a way that is
    acceptable to each member of the family, write it
    on the blackboard.

    Generate solutions

    Once you define the problem, ask group members
    to offer whatever solution they think may help.
    Do not evaluate solutions now since doing so
    dramatically reduces the number of solutions
    people present. It is often helpful to say:

    We know it is difficult to resist discussing suggestions
    as people generate them. However, we have found
    that by discussing them as we go, some solutions
    are left unspoken. Therefore, let’s delay evaluating
    solutions until after all suggestions have been made.

    The goal is to generate as many ideas as possible
    about solving the problem. The more solutions
    generated, the more likely one will adequately
    address the problem. For this reason, ask all
    group members to contribute at least one solution.
    Take all ideas seriously and write them on the
    blackboard, even if a suggestion seems wild or silly.
    It is important that group members feel their ideas
    are respected and no idea is discounted.

    Discuss advantages and disadvantages
    of each solution

    After people have presented all their solutions,
    invite group members to weigh the advantages
    and disadvantages of each. On the blackboard,
    simply write a plus [+] next to the solution when
    someone identifies an advantage and a minus [-]
    after the solution when someone identifies a
    disadvantage. When possible, take time to evaluate
    the solutions as a group. When time is short, some
    facilitators streamline the evaluation process by
    presenting the solutions to the group to review
    and select. Unfortunately, when this process is
    shortchanged, consumers do not fully benefit from
    the others’ experiences.

    Choose the best solution

    When you evaluate all solutions, review the list
    emphasizing solutions that have the most advantages
    and fewest disadvantages. Then ask consumers
    which solutions they would like to test for
    themselves over the next 2 weeks. Stress that testing
    solutions is for the benefit of everyone in the group
    because everyone is looking for solutions that work.

    Ongoing Family Psychoeducation Sessions 11 Module 4

    Form an action plan

    Once you select a solution, develop a detailed
    action plan. Typically, you will break the solution
    down into small steps or tasks. Specify each step
    by asking:

    n What needs to happen first?

    n Who will do that step?

    n When will that step happen?

    n Where will people meet for that step?

    Discuss each step or task and assign someone
    responsibility for completing it by a specific date.
    Some plans include tasks that all group members
    may try. Others are designed specifically for the
    consumer and family who presented the problem.

    Once you develop the action plan, have your co-
    facilitator record the steps on a Progress Note form.
    Make copies for the consumer’s chart and for the
    consumer and family.

    Review the action plan

    When appropriate, tell the consumer and family
    that you may check on their progress during the
    coming week and that you are available for help.
    Remind them that the group will look forward
    to an update during the next session.

    At the beginning of the next session (during the go-
    around), review the action plan and followup on the
    consumer’s progress. Ask:

    n What steps were completed?

    n What went well?

    n What did not go so well?

    Praise all efforts and point out any progress.
    If steps were not completed, explore obstacles
    and alternatives. If consumers encountered
    significant challenges that cannot be resolved
    quickly, suggest meeting individually with the
    consumer and family outside the group to explore
    the issue in greater detail. When possible, update
    the group about the outcome to ensure that others
    can learn from the experience.

    Module 1 12 Basic Elements and Practice PrinciplesModule 4 12 Ongoing Family Psychoeducation Sessions

    Difficulties encountered

    At any point during the group, if consumers or
    families who have identified the problem begin
    to struggle with the process, make sure you have
    accurately defined the problem and that the group
    is addressing the true problem. It is better to stop
    the process and clarify the problem definition than
    to generate solutions that are irrelevant to the current
    issues that consumers and families are facing.

    Many issues that the group presents are perceived
    as unsolvable. These are often long-standing
    problems that have resisted all attempts to make
    them better. Group members seldom have much
    hope that things will change. With this in mind,
    collect as much information as possible when you
    select and define problems so that you may break
    large problems down into smaller parts and work
    on them incrementally. When things do change,
    acknowledge the efforts of those involved in
    the change.

    In some instances, stray from the
    structured problem-solving approach

    Use the problem-solving approach for most
    multifamily group sessions. However, occasionally
    group members may identify issues that are best
    addressed with a different approach. In this case,
    alter the approach by bringing in guest speakers
    or by offering specific skills training. For example,
    research shows that interspersing skills training
    targeted to the symptoms of obsessive-compulsive
    disorder is an effective adaptation of FPE for
    families and consumers with this illness (Van
    Noppen, 1999).

    Throughout the FPE program, continue to share
    educational materials targeted to specific mental
    illnesses in different formats (for example, video,
    print, and website resources). Remaining responsive
    to the needs of consumers and families will keep
    them engaged in FPE services.

    When needed, offer ongoing
    Family Psychoeducation services
    in a single-family format

    You can easily adapt the goals of ongoing
    multifamily sessions to the single-family format.
    Introduce consumers and families to the structured
    problem-solving approach and work with them
    to identify current issues that may be addressed
    collaboratively. Follow the guidelines described
    in the multifamily group format.

    While consumers and families will not have the
    benefit of other group members’ experiences, it
    is still possible to identify strengths, resources,
    and strategies that have worked in the past. With
    consumers and families, generate solutions and
    evaluate each one to select the best choice. Next,
    collaborate with the consumer and family to
    develop a detailed action plan.

    Tailor single-family sessions to the needs of the
    consumer and family. Keep your work with
    consumers and families task oriented and focused
    on consumers’ personal recovery goals. For more
    resources on the single-family format, see The
    Evidence in this KIT.

    Ongoing Family Psychoeducation Sessions 13 Module 4

    Exercise: Practice What You’ve Learned About Multifamily Groups

    n  Role play: Conduct a role play to practice introducing the format of the first two multifamily group
    sessions. Practice how you may introduce yourself during the first group session.

    n  Group discussion: Discuss as a group how you would redirect a consumer or family member who becomes
    upset during the second multifamily group session.

    Ongoing Family Psychoeducation Sessions 15 Module 4

    Exercise: Review the Progress Note for Ongoing Family Psychoeducation Sessions

    Distribute a copy of your agency’s Progress Note for ongoing FPE sessions. Review the components of this
    form and discuss as a group.

    Problem Solutions from Actual Practice 17

    Module 5

    Module 5

    Problem Solutions from Actual Practice
    Notes to the family intervention coordinator

    Prepare for Module 5:

    n Make copies of Module 5. Your copy
    is in this workbook; print additional
    copies from the CD-ROM in the KIT.

    n Distribute the material to those who are
    participating in your group training. Ask
    them to read it before the group training.

    n  Make copies of the following
    exercise:

    o Practice What You’ve Learned
    About Problem-Solving

    Do not distribute them until the group
    training. Your copies are in this workbook;
    print additional copies from the CD-ROM
    in the KIT.

    Conduct your fifth training session:

    n Discuss the content of Module 5.

    n Distribute the exercise and complete
    it as a group.

    Note: This module has no corresponding Practice
    Demonstration Video component.

    Problem Solutions from Actual Practice 1 Module 5

    Training Frontline Staff

    Module 5: Problem Solutions from Actual Practice

    Module 5 presents case studies of actual multifamily groups and catalogues a
    variety of responses to two commonly presented issues: finding or keeping a job
    and using medications. Although these examples capture problems and solutions
    that have emerged from real groups, they also apply to single-family sessions.

    Overview of the module

    Every group is unique. One approach will
    not solve all difficulties that consumers and
    families face. To be successful, solutions
    must be relevant and acceptable to
    consumers and families. This module
    presents the experiences of those who have
    participated in FPE programs. We selected
    two areas—employment-related and
    medication-related issues—because
    they are commonly raised and especially
    challenging. Also, they are a frequent
    source of tension and conflict for
    consumers, families, and practitioners.

    Disagreements can be destabilizing or,
    at least, can prevent rehabilitation if left
    unresolved. Rather than trying to resolve
    disagreements directly, the structured
    problem-solving approach allows
    practitioners, consumers, and families
    to alleviate the effects of conflicts by
    finding alternative paths or identifying
    common ground.

    Module 5 2 Problem Solutions from Actual Practice

    Employment issues

    This section begins with two case studies that show
    you how the problem-solving approach has been
    used to define and address employment-related
    issues. It also presents a log of similar problems
    and solutions identified through FPE multifamily
    groups. In some cases, staff from evidence-based
    practice Supported Employment programs have
    co-facilitated these groups.

    Pedro’s story

    Pedro, a man in his mid-30s, has struggled with
    serious mental illnesses since his late teens. He has
    been able to maintain an apartment and stay on
    medication for years with minimal support, but
    until recently had been unemployed. He is working
    closely with an employment specialist to make his
    part-time job successful, but shares some concerns
    with the multifamily group.

    Step 1 Define the problem

    In Step 1, the goal is to narrow the definition of the
    problem so that the group can generate practical,
    concrete solutions. To better understand Pedro’s
    concerns, the facilitator asked him to talk about his
    typical workday. Next, the facilitator asked Pedro’s
    sister more questions to understand her perspective.
    This process revealed that, since Pedro had not had
    much work experience, he was uncomfortable with
    co-workers.

    The facilitator defined the problem as:

    How can Pedro become more comfortable with his
    co-workers?

    Pedro and his sister agreed with the definition of
    the problem and the co-facilitator wrote it on the
    blackboard.

    Step 2 Generate solutions

    All members of the group brainstormed and
    generated the following list:

    n Tell yourself there’s no pressure to be friends
    with everyone.

    n Ask for support.

    n Connect with people who do the same job.

    n Do the best job you can.

    n Plan activities outside of work.

    n Make small talk.

    n Compliment people.

    n Give yourself credit.

    n Use humor.

    n Join work-related activities such as lunch.

    n Bring in food to share.

    n Ask questions to get to know others.

    Step 3 Discuss advantages and disadvantages

    The facilitator read each solution aloud and asked
    group members:

    What are the main advantages of this solution?

    After the co-facilitator recorded the advantages,
    the facilitator asked, “What are the disadvantages
    of this solution?” The co-facilitator wrote all
    responses on the blackboard.

    Step 4 Choose the best solution

    The facilitator reviewed the solutions for which the
    disadvantages outweighed the advantages. In these
    cases, the group agreed to cross out these solutions.
    Of the remaining solutions, the facilitator asked
    Pedro which he would like to try. Pedro chose the
    following solutions; his sister agreed that they are
    good ones to try:

    n Join a work-related activity; and

    n Bring in food to share.

    Problem Solutions from Actual Practice 3 Module 5

    Step 5 Form an action plan

    The group helped Pedro break the solutions
    that he chose down into manageable, concrete,
    specific steps.

    Pedro’s Action Plan

    n Set aside grocery money.

    n Make a shopping list.

    n Shop for apricot bread ingredients during
    the week.

    n Bake bread on Saturday afternoon.

    n Bring bread to work on Sunday.

    n Join co-workers for lunch on Sunday.

    Step 6 Review the action plan

    In the go-round of the next group meeting, the
    facilitator asked Pedro about his experience in
    working on his action plan. The group learned that
    Pedro set aside the grocery money, made a shopping
    list, and bought the ingredients for apricot bread.
    Unfortunately, he burned the bread and was unable
    to bake a second loaf before work on Sunday.

    Although he didn’t have any bread to share, he
    did join his co-workers for lunch. He shared his
    breadmaking story and his co-workers laughed.
    He reported that it helped break the ice and he felt
    more comfortable with his co-workers. Facilitators
    and group members praised his courage and efforts.

    Module 5 4 Problem Solutions from Actual Practice

    Sharon’s story

    Sharon is a 38-year-old woman with a schizoaffective
    disorder. She lives alone with her cat and works
    part-time (every morning for 4 hours) in the
    mailroom of a large insurance company. The bus
    stop to work is within easy walking distance of her
    apartment. She likes the routine of working every
    day and has become quite efficient at her job, which
    does not vary too much from day to day. Recently,
    however, some of her work duties have changed.

    Step 1 Define the problem

    The facilitator asked Sharon to explain how her
    work has changed. Sharon explained that the
    company is handling bulk mailings that must go out
    quickly, increasing tension at the worksite. Sharon
    told the group that she found the fast pace difficult
    and stressful. The facilitator defined the problem as:

    What can Sharon do to feel less overwhelmed at
    work when bulk mailings must go out quickly?

    Sharon and her parents agreed with the problem
    definition and the co-facilitator wrote it on the
    blackboard.

    Step 2 Generate solutions

    The facilitator asked group members for possible
    solutions. They generated the following list:

    n Quit.

    n Talk to the supervisor.

    n Set limits for yourself.

    n Take more frequent breaks.

    n Go to the gym to relieve tension.

    n Get a massage.

    n Reduce your hours at those times.

    n Scream into a pillow.

    n Practice stress reduction techniques.

    n Seek peer support.

    Step 3 Discuss advantages and disadvantages

    The group discussed the advantages of each
    suggestion first, then the disadvantages. The co-
    facilitator wrote all responses on the blackboard.

    Step 4 Choose the best solution

    After reviewing the advantages and disadvantages,
    the group eliminated several solutions. Sharon
    chose the following solutions; her parents agreed
    they are good ones to try:

    n Talk to your supervisor.

    n Practice stress reduction techniques.
    Step 5 Form an action plan

    With the group’s help, Sharon and her parents
    developed the following action plan:

    n Approach the supervisor first thing in the
    morning to ask for a meeting time.

    n Meet with the supervisor.

    n Use stress reduction techniques before and after
    work for 1 week.

    Then they conducted a role play in the group so
    Sharon could practice what she wants to say to her
    supervisor. Next, the facilitator introduced a stress
    reduction technique. All group members practiced
    the technique once together.

    Step 6 Review the action plan

    At the next group session, Sharon reported that
    she had not approached her supervisor during
    the previous 2 weeks. She practiced her stress
    reduction technique, which she liked. Although
    work was still tense sometimes, she reported that
    she feels better about it.

    Problem Solutions from Actual Practice 5 Module 5

    The following log outlines other employment-related problems and solutions that FPE multifamily
    groups identified.

    Log of Other Employment-Related Problems and Solutions

    Problem Possible solutions

    Finding work n Look through want ads.

    n Walk or drive around the community in search of job openings.

    n Talk with members of your social support network.

    n Use the yellow pages to identify jobs of interest.

    n Visit jobs of interest.

    n Enroll in a Supported Employment program.

    Adjusting to a new job n Prepare for your first day (set an alarm clock, pack lunch, practice a bus route).

    n Ask questions, as needed, about the job.

    n Review your written job description.

    n Arrive early to get comfortable with the place.

    n Take one day at a time.

    n Work with an employment specialist.

    Managing symptoms
    and stress at work

    n If symptoms affect your concentration, make notes to remember tasks or instructions.

    n Ask for an accommodation such as a quiet workspace or regular breaks.

    n Use stress reduction strategies.

    n Identify a buddy at work with whom you can talk.

    n Carry PRN medication.

    n Work with an employment specialist.

    Module 5 6 Problem Solutions from Actual Practice

    Medication issues

    The following case study shows you how the
    problem-solving approach has been used to define
    and address medication issues. This section also
    presents a log of other medication-related problems
    and solutions identified through FPE multifamily
    groups. In some cases, a psychiatrist or nurse co-
    facilitated these groups.

    Darcy’s story

    Darcy is a 29-year-old woman who has
    schizoaffective disorder. She is the mother of two
    young children. It is important to her to function
    well enough to care for her family, as well as to
    take one course each semester as she works toward
    her undergraduate degree. Following the advice
    of her doctor, Darcy recently started taking a new
    medication.

    Step 1 Define the problem

    The facilitator asked Darcy to explain the concerns
    that she had about the new medication she is taking.
    Darcy explained that the medication makes her feel
    tired. She was unable to concentrate in class and
    frequently nodded off.

    The facilitator defined the problem as:

    What can Darcy do if she’s experiencing side effects
    from her medication?

    Darcy and her family agreed with the problem
    definition and the co-facilitator wrote it on
    the blackboard.

    Step 2 Generate solutions

    The facilitator asked all group members to
    contribute possible solutions. The group generated
    the following solutions:

    n Call the doctor.

    n Cut down on the medication.

    n Ask someone to take notes in class.

    n Bring a tape recorder to class.

    n Drink coffee.

    n Ask a classmate to wake her.

    Step 3 Discuss advantages and disadvantages
    The group discussed the advantages of each
    suggestion first, then the disadvantages. The co-
    facilitator wrote all responses on the blackboard.
    Step 4 Choose the best solution

    After reviewing the advantages and disadvantages,
    the group eliminated several solutions. Darcy chose
    the following solutions; her family members agreed
    they are good ones to try:

    n Bring a tape recorder to class.
    n Call the doctor.
    Step 5 Form an action plan

    With the group’s help, Darcy and her family
    developed the following action plan:

    n After class on Wednesday, Darcy will set up an
    appointment with her professor. She will tell her
    professor that she is sleepy in class because of the
    side effects of a medication and she will ask if she
    can record the class until her dose is corrected.

    n Tomorrow morning, Darcy will call to set up
    an appointment with her doctor. Her family
    member agrees to go with her to the appointment
    for support.

    Problem Solutions from Actual Practice 7 Module 5

    Step 6 Review the action plan

    One week later, the facilitator called Darcy to see
    how she is doing and if she needed any help with
    the action plan. Darcy reported that she had set up
    her appointments. They reviewed what she wished
    to say during each meeting.

    At the next group session, Darcy reported that she
    received permission to tape record her class. She

    still fell asleep twice last week but her doctor
    suggested taking her medication at night and that
    seems to help. Her doctor agreed that she should
    lower the dose of her medication if the side effects
    continue for another 2 weeks.

    The following log outlines other medication-related
    problems and solutions that FPE multifamily
    groups identified.

    Log of Other Medication-Related Problems and Solutions

    Problem Possible solutions

    Forgetting to take
    medications

    n Take medications at the same time every day.

    n Set a timer.

    n Combine taking medications with another daily activity such as brushing your teeth.

    n Ask a buddy to call and remind you.

    n Leave yourself a note.

    Difficult medication
    regimes

    n Talk with your doctor to see if your medication schedule can be simplified.

    n Write a schedule on your calendar.

    n Keep a medication record.

    n Use a pill container. Ask a buddy for help.

    Communicating
    medication issues
    to your doctor

    n Ask for a longer appointment time.

    n Role-play how you would present your concerns to your doctor.

    n Ask other treatment team members to speak to your doctor with you.

    n Ask a family member to join you for your appointment.

    n Write down your concerns or keep a medication record and share it with your doctor.

    Many concerns that consumers raise about
    medications may be viewed as decisional conflicts.
    In other words, consumers may feel conflicted
    about their decision to take medication as
    prescribed. The structured problem-solving
    approach is an effective way to address such
    concerns as long as consumers agree with the way

    that the problem is defined and actively participate
    in weighing the advantages and disadvantages of
    the solutions generated. It is important to create
    an environment in which all group members feel
    comfortable voicing their ideas and consumers feel
    supported in weighing the options and choosing the
    best solution.

    Problem Solutions from Actual Practice 9 Module 5

    Exercise: Practice What You’ve Learned About Problem Solving

    Select three members of your training group to play the roles of practitioner, consumer, and family member.
    Conduct role plays to practice using the structured problem-solving approach in either a single-family or
    multifamily group format.

    n  Conduct a role play to address an issue related to employment.

    n  Conduct a role play to address an issue related to medication.

    HHS Publication No. SMA-09-4422
    Printed 2009

    26171.0709.7765020404

      Cover

    • Title Page
    • Acknowledgments
      Training Frontline Staff

    • What’s in Training Frontline Staff
    • Training Frontline Staff How Family Intervention Coordinators Should Use This Workbook
    • Prepare program-specific information
      Prepare agency-specific information
      Visit an existing team
      Arrange for didactic training
      Recruit a consultant
      Cross-train
      For more information

    • Module 1: Basic Elements and Practice Principals
    • What is Family Psychoeducation?
      The phases of Family Psychoeducation
      Practice principles
      The family experience
      Core values in Family Psychoeducation
      Program standards
      How we know that Family Psychoeducation is effective
      Adapting the evidence-based model
      Summary
      Exercise: Explore the Benefits of Family Psychoeducation
      Exercise: Examine Program Standards

    • Module 2: The Core Processes of Family Psychoeducation
    • Identify consumers
      Introduce the program
      Conduct joining sessions
      Conduct the educational workshop
      Offer ongoing Family Psychoeducation services
      Engage consumers and families continuously
      Complete Progress Notes
      Participate in supervision
      Summary
      Exercise: Identify Consumers and Families
      Exercise: Introduce Your Program

    • Module 3: Joining Sessions and Educational Workshops
    • Joining sessions
      Educational workshops
      Exercise: Review Progress Notes for Joining Sessions and Educational Workshops
      Exercise: Practice What You’ve Learned About Joining Sessions
      Module 4: Ongoing Family Psychoeducation Sessions
      Conduct ongoing Family Psychoeducation sessions
      Structure of multifamily groups
      Overview of the first session
      Overview of the second session
      Ongoing multigroup sessions
      Exercise: Practice What You’ve Learned About Multifamily Groups
      Exercise: Review the Progress Note for Ongoing Family Psychoeducation Sessions
      Module 5: Problem Solutions from Actual Practice
      Overview of the module
      Employment issues
      Medication issues
      Exercise: Practice What You’ve Learned About Problem Solving

    TheEvidence

    Family

    Psychoeducation

    U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES
    Substance Abuse and Mental Health Services Administration

    Center for Mental Health Services

    www.samhsa.gov

    http://www.samhsa.gov

    Family
    Psychoeducation

    The
    Evidence

    U.S. Department of Health and Human Services

    Substance Abuse and Mental Health Services Administration

    Center for Mental Health Services

  • Acknowledgments
  • This document was prepared for the Substance Abuse and Mental Health Services Administration
    (SAMHSA), U.S. Department of Health and Human Services (HHS) under contract numbers
    280-00-8049 with the New Hampshire-Dartmouth Psychiatric Research Center and 270-03-6005
    with Westat. Neal Brown, M.P.A., and Crystal Blyler, Ph.D., served as SAMHSA Government
    Project Officers.

    Disclaimer

    The views, opinions, and content of this publication are those of the authors and contributors and
    do not necessarily reflect the views, opinions, or policies of the Center for Mental Health Services
    (CMHS), SAMHSA, or HHS.

    Public Domain Notice

    All material appearing in this document is in the public domain and may be reproduced
    or copied without permission from SAMHSA. Citation of the source is appreciated. However,
    this publication may not be reproduced or distributed for a fee without the specific, written
    authorization from the Office of Communications, SAMHSA, HHS.

    Electronic Access and Copies of Publication

    This publication may be downloaded or ordered at http://www.samhsa.gov/shin. Or, please
    call SAMHSA’s Health Information Network at 1-877-SAMHSA-7 (1-877-726-4727) (English
    and Español).

    Recommended Citation

    Substance Abuse and Mental Health Services Administration. Family Psychoeducation: The
    Evidence. HHS Pub. No. SMA-09-4422, Rockville, MD: Center for Mental Health Services,
    Substance Abuse and Mental Health Services Administration, U.S. Department of Health
    and Human Services, 2009.

    Originating Office

    Center for Mental Health Services
    Substance Abuse and Mental Health Services Administration
    1 Choke Cherry Road
    Rockville, MD 20857

    HHS Publication No. SMA-09-4422
    Printed 2009

    http://www.samhsa.gov/shin

    Family
    Psychoeducation

  • The Evidence
  • The Evidence introduces all stakeholders to the research literature
    and other resources on Family Psychoeducation (FPE). This booklet
    includes the following:

      A review of the FPE research literature;

      A selected bibliography for further reading;

     

  • References
  • for the citations presented throughout the KIT; and

      Acknowledgements of KIT developers and contributors.

    This KIT is part of a series of Evidence-Based Practices KITs created
    by the Center for Mental Health Services, Substance Abuse and
    Mental Health Services Administration, U.S. Department of Health
    and Human Services.

    This booklet is part of the Family Psychoeducation KIT that includes
    a DVD, CD-ROM, and seven booklets:

    How to Use the Evidence-Based Practices KITs

    Getting Started with Evidence-Based Practices

    Building Your Program

    Training Frontline Staff

    Evaluating Your Program

    The Evidence

    Using Multimedia to Introduce Your EBP

    Family
    Psychoeducation

    What’s in The Evidence

  • Review of Research Literature
  • . . . . . . . . . . . . . . . . . . . . 1

  • Selected Bibliography
  • . . . . . . . . . . . . . . . . . . . . . . . . 11

    References . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 17

    Acknowledgments . . . . . . . . . . . . . . . . . . . . . . . . . . . 23

    The Evidence 1 Review of Research Literature

    The Evidence

    Review of the Research Literature

    A number of research articles summarize
    the effectiveness of Family
    Psychoeducation (FPE). This KIT includes
    a full text copy of one of them:

    Dixon, L., McFarlane, W. R., Lefley, H.,
    Lucksted, A., Cohen, M., Falloon, I.,
    et al. (2001). Evidence-based practices
    for services to families of people with
    psychiatric disabilities. Psychiatric
    Services, 52, 903-910.

    This article describes the critical
    components of the evidence-based model
    and its effectiveness. Barriers to
    implementation and strategies for
    overcoming them are also discussed, based
    on experiences in several states.

    This article may be viewed or printed from
    the CD-ROM in your KIT. For a printed
    copy, see page 3.

    The Evidence 3 Review of Research Literature

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    Evidence-Based Practices for
    Services to Families of People
    With Psychiatric Disabilities

    2001
    Dedicated to

    Evidence

    Based

    Psychiatry

    Lisa Dixon, M.D., M.P.H.
    William R. McFarlane, M.D.
    Harriet Lefley, Ph.D.
    Alicia Lucksted, Ph.D.
    Michael Cohen, M.A.
    Ian Falloon, M.D.
    Kim Mueser, Ph.D.
    David Miklowitz, Ph.D.
    Phyllis Solomon, Ph.D.
    Diane Sondheimer, M.S., M.P.H.

    Family psychoeducation is an evidence-based practice that has been
    shown to reduce relapse rates and facilitate recovery of persons who
    have mental illness. A core set of characteristics of effective family
    psychoeducation programs has been developed, including the provi-
    sion of emotional support, education, resources during periods of cri-
    sis, and problem-solving skills. Unfortunately, the use of family psy-
    choeducation in routine practice has been limited. Barriers at the lev-
    el of the consumer and his or her family members, the clinician and
    the administrator, and the mental health authority reflect the exis-
    tence of attitudinal, knowledge-based, practical, and systemic obsta-
    cles to implementation. Family psychoeducation dissemination efforts
    that have been successful to date have built consensus at all levels, in-
    cluding among consumers and their family members; have provided
    ample training, technical assistance, and supervision to clinical staff;
    and have maintained a long-term perspective. (Psychiatric Services
    52:903–910, 2001)

    Dr. Dixon and Dr. Lucksted are affiliated with the Center for Mental Health Services
    Research at the University of Maryland School of Medicine in Baltimore and with the De-
    partment of Veterans Affairs Capitol Health Care Network Mental Illness Research, Ed-
    ucation, and Clinical Center, 701 West Pratt Street, Room 476, Baltimore, Maryland
    21201 (e-mail, ldixon@umaryland.edu). Dr. McFarlane is affiliated with the Maine
    Medical Center in Portland. Dr. Lefley is with the University of Miami School of Medi-
    cine. Mr. Cohen is with the New Hampshire chapter of the National Alliance for the
    Mentally Ill in Concord. Dr. Falloon is with the University of Auckland in Auckland,
    New Zealand. Dr. Mueser is with Dartmouth Medical School in Hanover, New Hamp-
    shire. Dr. Miklowitz is with the University of Colorado. Dr. Solomon is with the Uni-
    versity of Pennsylvania School of Social Work in Philadelphia. Ms. Sondheimer is with
    the Child, Adolescent, and Family Branch of the Center for Mental Health Services in
    Rockville, Maryland.

    Family members and other persons involved in the lives and care of adults who have
    serious mental illnesses often pro-
    vide emotional support, case man-
    agement, financial assistance, advo-
    cacy, and housing to their mentally ill
    loved ones. Although serving in this
    capacity can be rewarding, it impos-
    es considerable burdens (1–4). Fam-
    ily members often have limited ac-
    cess to the resources and informa-
    tion they need (5–7). Research con-
    ducted over the past decade has
    shown that patients’ outcomes im-
    prove when the needs of family
    members for information, clinical
    guidance, and support are met. This
    research supports the development
    of evidence-based practice guide-
    lines for addressing the needs of
    family members.

    Several models have evolved to ad-
    dress the needs of families of per-
    sons with mental illness: individual
    consultation and family psychoedu-
    cation conducted by a mental health
    professional (8,9), various forms of
    more traditional family therapy (10),
    and a range of professionally led
    short-term family education pro-
    grams (11,12), sometimes referred
    to as therapeutic education. Also
    available are family-led information

    PSYCHIATRIC SERVICES ♦ July 2001 Vol. 52 No. 7

    903

    mailto:ldixon@umaryland.edu

    Review of Research Literature 4 The Evidence

    and support classes or groups, such
    as those provided by the National Al-
    liance for the Mentally Ill (NAMI)
    (13,14). Family psychoeducation has
    a deep enough research and dissem-
    ination base to be considered an evi-
    denced-based practice. However,
    the term “psychoeducation” can be
    misleading: family

    psychoeducation

    includes many therapeutic elements,
    often uses a consultative framework,
    and shares characteristics with other
    types of family interventions.

    In general, evidence-based prac-
    tices are clinical practices for which
    scientific evidence of improvement
    in consumer outcomes has been con-
    sistent (15). The scientific evidence
    of the highest standard is the ran-
    domized clinical trial. Often, several
    clinical trials are pooled by use of a
    technique such as meta-analysis to
    identify evidence-based practices.
    Quasi-experimental studies, and to a
    lesser extent open clinical trials, can
    also be used. However, the research
    evidence for an evidence-based
    practice must be consistent and suf-
    ficiently specific for the quality and
    outcome of the intervention to be
    assessed.

    The purpose of this article, as part
    of a larger series on evidenced-based
    practices for persons with severe
    mental illnesses (15), is to describe
    family psychoeducation, the basis for
    its identification as an evidence-based
    practice, and barriers to its imple-
    mentation. We also propose strategies
    for overcoming these barriers.

    What is family psychoeducation?
    A variety of family psychoeducation
    programs have been developed by
    mental health care professionals
    over the past two decades (8,9).
    These programs have been offered
    as part of an overall clinical treat-
    ment plan for individuals who have
    mental illness. They last nine months
    to five years, are usually diagnosis
    specific, and focus primarily on con-
    sumer outcomes, although the well-
    being of the family is an essential in-
    termediate outcome. Family psy-
    choeducation models differ in their
    format—for example, multiple-fami-
    ly, single-family, or mixed sessions—
    the duration of treatment, consumer
    participation, location—for example,

    clinic based, home, family practice,
    or other community settings—and
    the degree of emphasis on didactic,
    cognitive-behavioral, and systemic
    techniques.

    Although the existing models of
    family intervention appear to differ
    from one another, a strong consen-
    sus about the critical elements of
    family intervention emerged in 1999
    under the encouragement of the
    leaders of the World Schizophrenia
    Fellowship (16).

    Goals and principles
    for working with families
    The main goals in working with the
    family of a person who has a mental
    illness are to achieve the best possible
    outcome for the patient through col-
    laborative treatment and manage-
    ment and to alleviate the suffering of
    the family members by supporting
    them in their efforts to aid the recov-
    ery of their loved one.

    Treatment models that have been
    supported by evidence of effective-
    ness have required clinicians to ad-
    here to 15 principles in working with
    families of persons who have mental
    illness:

    ♦ Coordinate all elements of treat
    ment and rehabilitation to ensure that
    everyone is working toward the same
    goals in a collaborative, supportive re-
    lationship.

    ♦ Pay attention to both the social
    and the clinical needs of the consumer.

    ♦ Provide optimum medication
    management.

    ♦ Listen to families’ concerns and
    involve them as equal partners in the
    planning and delivery of treatment.

    ♦ Explore family members’ expec-
    tations of the treatment program and
    expectations for the consumer.
    ♦ Assess the strengths and limita-

    tions of the family’s ability to support
    the consumer.

    ♦ Help resolve family conflict by
    responding sensitively to emotional
    distress.

    ♦ Address feelings of loss.
    ♦ Provide relevant information for

    the consumer and his or her family at
    appropriate times.

    ♦ Provide an explicit crisis plan
    and professional response.

    ♦ Help improve communication
    among family members.

    ♦ Provide training for the family in
    structured problem-solving techniques.

    ♦ Encourage family members to
    expand their social support net-
    works—for example, to participate in
    family support organizations such as
    NAMI.

    ♦ Be flexible in meeting the needs
    of the family.

    ♦ Provide the family with easy ac
    cess to another professional in the
    event that the current work with the
    family ceases.

    Overview of the research
    Studies have shown markedly higher
    reductions in relapse and rehospital-
    ization rates among consumers whose
    families received psychoeducation
    than among those who received stan-
    dard individual services (17–20), with
    differences ranging from 20 to 50
    percent over two years. For programs
    of more than three months’ duration,
    the reductions in relapse rates were at
    the higher end of this range. In addi-
    tion, the well-being of family mem-
    bers improved (21), patients’ partici-
    pation in vocational rehabilitation in-
    creased (22), and the costs of care de-
    creased (4,20,23,24).

    As a result of this compelling evi-
    dence, the Schizophrenia Patient
    Outcomes Research Team (PORT)
    included family psychoeducation
    among its treatment recommenda-
    tions. The PORT recommended that
    all families who have contact with a
    relative who has mental illness be of-
    fered a family psychosocial interven-
    tion that spans at least nine months
    and that includes education about
    mental illness, family support, crisis
    intervention, and problem solving
    (25). Other best-practice standards
    (26–28) have recommended that fam-
    ilies participate in education and sup-
    port programs. In addition, an expert
    panel that included clinicians from
    various disciplines as well as families,
    consumers, and researchers empha-
    sized the importance of engaging
    family members in the treatment and
    rehabilitation of persons who are
    mentally ill (29,30).

    Delivering the appropriate compo-
    nents of family psychoeducation for
    patients and their families appears to
    be an important determinant of out-
    comes for both consumers and their

    PSYCHIATRIC SERVICES ♦ July 2001 Vol. 52 No. 7 904

    The Evidence 5 Review of Research Literature

    families. It has been demonstrated
    that programs do not reduce relapse
    rates if the information presented is
    not accompanied by skills training,
    ongoing guidance about management
    of mental illness, and emotional sup-
    port for family members (31).

    In addition, these interventions
    that present information in isolation
    tend to be brief: a meta-analysis of 16
    studies found that family interven-
    tions of fewer than ten sessions had
    no substantial effects on the burden
    of family members (32). However,
    the number of sessions could not
    completely explain the differences in
    outcomes. The outcomes may have
    been influenced by the total duration
    of treatment rather than the number
    of sessions, or by the individual ther-
    apist’s approach to dealing with the
    emotional reactions of patients and
    their families. The behaviors and dis-
    ruptions associated with schizophre-
    nia, in particular, may require more
    than education to ameliorate the bur-
    den on the family and enhance con-
    sumer outcomes.

    Most studies have evaluated family
    psychoeducation for schizophrenia or
    schizoaffective disorder only. Howev-
    er, the results of several controlled
    studies support the benefits of both
    single- and multiple-family interven-
    tions for other psychiatric disorders,
    including bipolar disorder (33–38),
    major depression (39–41), obsessive-
    compulsive disorder (42), anorexia
    nervosa (43), and borderline person-
    ality disorder (44). Gonzalez and col-
    leagues (45) have extended this re-
    search to deal with the secondary ef-
    fects of chronic physical illness.

    Family psychoeducation thus has a
    solid research base, and leaders in the
    field have reached consensus on the
    essential components and techniques
    of family psychoeducation. This form
    of treatment should continue to be
    recommended for use in routine
    practice. However, several important
    gaps remain in the knowledge re-
    quired to make comprehensive evi-
    dence-based practice recommenda-
    tions and to implement them with a
    wide variety of families.

    First, although the members of the
    World Schizophrenia Fellowship and
    others have delineated the core com-
    ponents of a successful family inter-

    PSYCHIATRIC SERVICES ♦ July 2001 Vol. 52 No. 7 905

    vention, the minimum ingredients
    are still not clear. This gap was high-
    lighted by a study of treatment strate-
    gies for schizophrenia, which found
    no significant difference in relapse
    rates between families who received a
    relatively intensive program—a sim-
    plified version of cognitive-behavioral
    family intervention plus a multiple
    family group—and those who re-
    ceived a less intensive psychoeduca-
    tional, or supportive, multiple-family
    group program (46). However, both
    programs provided levels of support
    and education to families that far sur-
    passed those provided by usual serv-
    ices. It will be necessary to conduct
    studies designed to identify the least
    intensive and smallest effective
    “dose” of family psychoeducation.

    Family
    psychoeducation

    has a solid research base,

    and leaders in the field have

    reached consensus on its

    essential components

    and techniques.

    Second, increasing the sophistica-
    tion, variety, and scope of indicators
    that are used to measure “benefit” is
    essential. Commonly used bench-
    marks are subject to complicated in-
    tervening variables and need to be
    correlated with other results. For ex-
    ample, a greater number of hospital-
    izations for a mentally ill person dur-
    ing the year after family psychoedu-
    cation could be a positive sign if it in-
    dicates that a previously neglected
    consumer is getting care and that the
    family is getting better at identifying
    prodromal symptoms that indicate an
    impending relapse (4). The well-be-
    ing and health of the family should be
    routinely measured as well.

    A third knowledge gap involves the
    relationship between family psychoe-
    ducation and other programs. Since
    the conception of family psychoedu-
    cation, other psychosocial programs
    have developed a substantial eviden-
    tiary base, including supported em-
    ployment and assertive community
    treatment (47,48). For example, as-
    sertive community treatment com-
    bined with family psychoeducation
    has been associated with better non-
    competitive employment outcomes
    than assertive community treatment
    alone (22). The combination of as-
    sertive community treatment, family
    psychoeducation, and supported em-
    ployment has been associated with
    better competitive employment out-
    comes than conventional vocational
    rehabilitation, although the contribu-
    tions of each component could not be
    assessed in that study (49). The op-
    portunities for family psychoeduca-
    tion to be combined with or com-
    pared with these new psychosocial
    models have not been fully explored.

    Fourth, research is needed to re-
    fine the interventions so that they
    better address different types of fam-
    ilies, different situations, and differ-
    ent time points throughout the course
    of illness. For example, there is some
    evidence that individualized consulta-
    tion may be more beneficial than
    group psychoeducation for families
    who have existing sources of support
    or who already belong to a support
    group (50–52).

    Fifth, although family psychoedu-
    cation has been tested in a wide range
    of national and global settings, there
    is still a need to assess modifications
    in content and outcome among par-
    ticular U.S. subcultures and in other
    countries. In the United States the
    one study involving Latino families
    had mixed results (53,54). However,
    studies in China (55–57) as well as
    studies that are under way among
    Vietnamese refugees living in Aus
    tralia have had results comparable to
    those of studies conducted in Cau-
    casian populations.

    Finally, what happens after a family
    has completed a psychoeducation
    program? Families of consumers with
    long-term problems and disability
    may need ongoing support and en-
    hanced problem-solving skills to deal

    Review of Research Literature 6 The Evidence

    with the vicissitudes of illness. Lefley
    (58) has described ad hoc psychoedu-
    cation in informal settings, such as an
    ongoing family support group con-
    ducted through a medical center. Mc-
    Farlane (4,59) has used a usually
    open-ended multiple-family group
    structure. NAMI’s Family-to-Family
    program is limited to 12 sessions of
    formal education but offers continu-
    ity in the NAMI support and educa-
    tional group structure (14).

    Barriers to implementation
    Despite the gaps in the research, the
    extensive documentation of the basic
    benefits of family psychoeducation
    prompts the question of why this
    service is rarely offered. In general,
    low levels of contact between clinical
    staff and family members in public
    and community-based settings may
    preclude the more substantial educa-
    tional or support interventions. Also,
    the availability of any intervention is
    limited by the availability of people to
    provide it and the training necessary
    to equip those people. The requisite
    clinicians, resources, time, and reim-
    bursement have not been forthcom-
    ing. These deficits imply the exis-
    tence of larger obstacles related to at-
    titudes, knowledge, practicality, and
    systems.

    Consumers and family members
    Implementation of family psychoedu-
    cation may be hindered by realities in
    the lives of potential participants.
    Practical impediments such as trans-
    portation problems and competing
    demands for time and energy are
    common (50). If family members per-
    ceive that the training provided
    through family psychoeducation in-
    volves expectations of additional care-
    giving responsibilities, they may stay
    away (16). Sessions must be sched-
    uled during periods when facilitators
    are available, but these times may not
    suit the clients and their families.
    Family members face significant bur-
    dens that may pose barriers to attend-
    ing family psychoeducation sessions,
    even though attendance could lighten
    these burdens (60,61).

    In addition, stigma is common—
    family members may not want to be
    identified with psychiatric facilities.
    They may feel uncomfortable reveal-

    ing that there is psychiatric illness in
    their family and airing their problems
    in a public setting. They may have
    had negative experiences in the past
    and be hesitant to expose themselves
    to the possibility of further negative
    experiences. Most people have not
    had access to information about the
    value of family psychoeducation and
    so may not appreciate the potential
    utility of these programs (16). They
    may believe that nothing will help.
    Consumers may have similar appre-
    hensions and may worry about losing
    the confidential relationship with
    their treatment teams or about losing
    autonomy.

    Clinicians and
    program administrators
    The lack of availability of family psy-
    choeducation may reflect an under-
    appreciation on the part of mental
    health care providers of the utility
    and importance of this treatment ap-
    proach (16,18,31,50). Providers may
    choose medication over psychosocial
    interventions, and family involve-
    ment may seem superfluous. In addi-
    tion, some providers may still adhere
    to theories that blame family dynam-
    ics for schizophrenia. Bergmark (62)
    noted the persistence of psychody-
    namic theories as a potential barrier,
    because many families perceive these
    theories as blaming. The findings on
    expression of emotion—the original
    basis for family psychoeducation—
    are often perceived similarly despite
    researchers’ attempts to avoid imply-
    ing blame (16,50).

    Although the knowledge and un-
    derlying assumptions of individuals
    are important, they are only part of
    the picture. Wright (63) found that
    job and organizational factors were
    much better predictors of the fre-
    quency of mental health profession-
    als’ involvement with families than
    were professionals’ attitudes. The
    clinician’s work schedule and profes-
    sional discipline were the strongest
    predictors, but other organizational
    factors posed barriers as well. Dis-
    semination of the multiple-family
    psychoeducation group model devel-
    oped by McFarlane and colleagues
    (64,59) has been hindered by a pauci-
    ty of programmatic leadership, con-
    flicts between the model’s philosophy

    and typical agency practices, insuffi-
    cient resources, and inadequate at-
    tention to human dynamics at the
    system level. For example, reason-
    able concerns about confidentiality
    may be seen as roadblocks to family
    involvement rather than as opportu-
    nities to create useful innovations
    (65). Similar barriers to implementa-
    tion of family treatment approaches
    have been identified in studies in
    Italy (66).

    Mental health professionals have
    also expressed concern about the cost
    and duration of structured family
    psychoeducation programs (67), even
    though medication and case manage-
    ment services for clients usually have
    to be continued for much longer pe-
    riods than family programs. The lack
    of reimbursement for sessions with
    families that do not involve the men-
    tally ill relative—a characteristic of
    many family psychoeducation pro-
    grams—is a significant disincentive
    to providing such services. Caseloads
    are universally high, and staff’s time
    is stretched thin. Therefore devoting
    substantial human resources to train-
    ing, organizing, leading, and sustain-
    ing family psychoeducation is seen as
    a luxury (16). In such an atmosphere,
    horizons tend to be short. The long-
    term payoff of fewer crises and hos-
    pitalizations and lower total costs of
    treatment is overshadowed by imme-
    diate organizational crises or short-
    term goals (16).

    Mental health authorities
    At the health-system level, pressures
    to focus on outcomes, cost-effective-
    ness, and customer satisfaction seem
    in principle to favor the widespread
    adoption of family information and
    support interventions. However, oth-
    er tenets of the current health care
    environment—such as the emphasis
    on short-term cost savings, technical
    rather than human-process-oriented
    remedies, and individual patholo-
    gy—discourage clinicians from pro-
    viding such services, which may be
    viewed as ancillary. At this level, it
    seems that the evidence for family
    psychoeducation has not been ac-
    cepted. Many of the consumer- and
    program-level impediments we have
    mentioned are paralleled in the larg-
    er administrative systems: lack of

    PSYCHIATRIC SERVICES ♦ July 2001 Vol. 52 No. 7 906

    The Evidence 7 Review of Research Literature

    awareness of evidence, ingrained as-
    sumptions about how care should be
    structured, and inadequate re-
    sources.

    Overcoming barriers
    to implementation
    Research on technology transfer has
    identified four fundamental condi-
    tions that must be met for change to
    occur at the individual or system lev-
    el: dissemination of knowledge, eval-
    uation of programmatic impact,
    availability of resources, and efforts
    to address the human dynamics of re-
    sisting change (68). Implementation
    strategies must include clear, wide-
    spread communication of the models
    and of their benefits to all stakehold-
    ers. This communication must occur
    through channels that are accessible
    and acceptable to the various stake
    holders (16), including families, con-
    sumers, providers, administrators,
    and policy makers. It must be accom-
    panied by advocacy, training, and su-
    pervision or consultation initiatives to
    raise awareness and support at all or-
    ganizational levels (69).

    The consumer and family members
    At the level of the individual con-
    sumer and members of his or her
    family, effective treatment models
    include strategies for overcoming
    barriers to participation, such as
    stigma and a sense of hopelessness.
    Such strategies include offering to
    hold sessions in the home of the
    client or family member; helping
    family members understand that the
    intervention is designed to improve
    the lives of everyone in the family,
    not just the patient; being flexible
    about scheduling family meetings;
    and providing education during the
    engagement process to destigmatize
    mental illness and engender hope
    (70,71).

    Recent efforts to disseminate fam-
    ily psychoeducation in New York
    State, Los Angeles, Maine, and Illi-
    nois have illustrated clearly the im-
    portance of including clients and
    their families in the planning, adapta-
    tion, and eventual implementation of
    family psychoeducation (72). In New
    York, dissemination was initiated and
    sponsored by the state NAMI chap-
    ter (73). Dissemination in Maine and

    PSYCHIATRIC SERVICES ♦ July 2001 Vol. 52 No. 7 907

    Illinois had dramatically different
    outcomes, partly because NAMI’s
    Maine chapter provided strong for-
    mal support for the effort in that
    state, whereas the effort in Illinois
    did not involve NAMI’s Illinois chap-
    ters (73).

    Experience and now some empiri-
    cal data illustrate the need to include
    consumers and their families in ef-
    forts to disseminate family psychoed-
    ucation. The tension often encoun-
    tered between some consumer advo-
    cacy groups and family advocacy or-
    ganizations can be bridged by em-
    phasizing the complementarity of the
    outcomes in family work: as con-
    sumers’ symptoms are alleviated and
    their functioning improves, their
    families become more engaged in
    and satisfied with community life,
    and both the family burden and med
    ical illness decrease (22,74,75).

    Clinicians and
    program administrators
    Among professionals working in
    community mental health services,
    awareness and evidence, although
    necessary, are often not sufficient for
    adoption of new programs. Although
    interventions must adhere to param-
    eters of the family psychoeducation
    model if good client and family out-
    comes are to be achieved, they also
    have to be responsive to local organi-
    zational and community cultures.
    Engagement and implementation
    strategies, as well as the interventions
    themselves, must be tailored to local
    and cultural characteristics, workload
    and other stresses faced by clinicians
    and agencies, particular diagnoses,
    relationships, the duration of illness
    and disability, and whether the client
    is currently receiving medical treat-
    ment (50,76,77).

    Perhaps even more critical to the
    adoption of family psychoeducation
    is the need to match both administra-
    tive support and expectations for evi-
    dence-based practice with a rationale
    and explication of the advantages of
    this treatment approach that are
    meaningful to clinicians. Advantages
    can include avoidance of crises, more
    efficient case management, gratitude
    from families and consumers, and a
    more interesting, invigorating work
    environment for clinicians. Recent

    studies have shown that on the
    whole, knowledge about empirical
    advantages of family psychoeduca-
    tion, such as reductions in relapse
    and rehospitalization rates, carry al-
    most no weight in convincing work-
    ing clinicians to change their atti-
    tudes toward families and adopt new
    clinical practices (73).

    Consensus building among agency
    staff and directors—including a wide
    range of concerned parties—in a
    process of planning from the bottom
    up is critical but must be tailored to
    address local operational barriers and
    contrary beliefs. In addition, success-
    ful implementation of family psy-
    choeducation has required ongoing
    supervision, operational consulta-
    tion, and general support. In a sense,
    these characteristics help to build
    consensus on an ongoing basis. For
    example, the PORT found that it was
    possible to change current practice
    by providing a high level of technical
    assistance and a supportive environ
    ment that reflected staff agreement
    with the principles and philosophy of
    the new program (67). The recent
    dissemination of a family psychoedu-
    cation program in Los Angeles Coun-
    ty succeeded because of the persist-
    ent advocacy of the local NAMI
    group, the support of top manage-
    ment, a nine-month training period,
    the high aptitude and strong commit-
    ment of the trainees, and the skill of
    the trainer (72).

    Mental health authorities
    and government
    Although it is tempting to assume
    that implementation of family psy-
    choeducation could be mandated
    centrally by state mental health au-
    thorities, experience suggests that a
    more complex approach is required.
    Dissemination of a family psychoed-
    ucation program in New York State
    succeeded partly because of a part-
    nership between the state, the NAMI
    affiliate, and an academic center. Un-
    fortunately, the state’s mental health
    authority abruptly terminated this
    large dissemination program before a
    widespread impact could be made.
    Maine’s recent success was initiated
    by a state trade association of mental
    health centers and services, with sup-
    port from but little involvement by

    Review of Research Literature 8 The Evidence

    the state mental health authority,
    which recently began exploring a for-
    mal partnership to continue and
    deepen this largely successful effort.
    A simultaneous effort in Illinois, ini-
    tiated by the state authority but dis-
    tinctly lacking consensus among cen-
    ter directors or the state NAMI chap-
    ter, has been less successful (73).
    One state that has had some success
    is New Jersey, which was able to dis-
    seminate family psychoeducation by
    setting expectations and require-
    ments at the state level.

    With the exception of the New Jer-
    sey effort, experience suggests that
    the most promising strategy is one in
    which provider organizations take
    the initiative with support from con-
    sumer and family organizations, the
    state mental health authority, and the
    key insurance payers. Appropriate
    reimbursement for family psychoed-
    ucation will follow. Experience also
    suggests that several years of consis-
    tent effort and ongoing monitoring
    are required for success. Fortunately,
    this process is not necessarily an ex-
    pensive one: Maine implemented its
    family psychoeducation program in
    more than 90 percent of agencies for
    about 25 cents per capita over four
    years, including evaluation costs. The
    principal costs are in human effort,
    especially the effort required to over-
    come resistance to change.

    Delivery of services to families
    must be subject to accountability and
    tracking. Although many states en-
    courage the delivery of services to
    families, few monitor such services or
    make funding contingent on the serv-
    ices being delivered (78). One sys-
    tem-level option is for mental health
    centers to create a position for an
    adult family intervention coordinator,
    who would serve as the contact per-
    son for interventions, facilitate com-
    munication between staff and fami-
    lies, supervise clinicians, and monitor
    fidelity (79).

    Family-to-Family
    Education Program
    In the absence of family psychoedu-
    cation programs, voluntary peer-led
    family education programs have de-
    veloped, epitomized by NAMI’s
    Family-to-Family Education Pro
    gram (FFEP) (14,80–82). FFEP is

    currently available in 41 states, many
    of which have waiting lists. FFEP
    and other mutual-assistance family
    programs are organized and led by
    trained volunteers from families of
    persons who have mental illness.

    These community programs are of-
    fered regardless of the mentally ill
    person’s treatment status. They tend
    to be brief—for example, 12 weeks
    for FFEP—and mix families of per-
    sons with various diagnoses, although
    they focus on persons with schizo-
    phrenia or bipolar disorder. On the
    basis of a trauma-and-recovery mod-
    el of a family’s experience in coping
    with mental illness, FFEP merges
    education with specific support
    mechanisms to help families through
    the various stages of comprehending
    and coping with a family member’s
    mental illness (14). The program fo-
    cuses first on outcomes of family
    members and their well-being, al-
    though benefits to the patient are
    also considered to be important (50).

    Uncontrolled research on FFEP
    and its predecessor, Journey of Hope,
    suggests that the program increases
    the participants’ knowledge about
    the causes and treatment of mental
    illness, their understanding of the
    mental health system, and their well-
    being (13). In a prospective, natura-
    listic study, FFEP participants re-
    ported that they had significantly less
    displeasure and concern about mem-
    bers of their family who had mental
    illness and significantly more em-
    powerment at the family, community,
    and service-system levels after they
    had completed the program (83).
    Benefits observed at the end of the
    program had been sustained six
    months after the intervention. Pre-
    liminary results from a second ongo-
    ing study with a waiting-list control
    design have revealed similar findings.

    Although FFEP currently lacks
    rigorous scientific evidence of effica-
    cy in improving clinical or functional
    outcomes of persons who have men-
    tal illness, it shows considerable
    promise for improving the well-being
    of family members. In recent re-
    search and practice, attempts have
    been made to optimize the clinical
    opportunities provided by family psy-
    choeducation and peer-based pro-
    grams such as FFEP by developing

    partnerships between the two strate-
    gies. For example, family psychoedu-
    cation programs have used FFEP
    teachers as leaders, and participation
    in FFEP has facilitated eventual par-
    ticipation in family psychoeducation.

    Conclusions
    The efficacy and effectiveness of
    family psychoeducation as an evi-
    dence-based practice have been es-
    tablished. To date, the use of family
    psychoeducation in routine clinical
    practice is alarmingly limited. Re-
    search has recently begun to develop
    dissemination interventions targeted
    at the programmatic and organiza-
    tional levels, with some success. On
    going research must continue to de-
    velop practical and low-cost strate-
    gies to introduce and sustain family
    psychoeducation in typical practice
    settings. Basic research that identi-
    fies the barriers to implementing
    family psychoeducation in various
    clinical settings is also needed—for
    example, the impact of clinicians’ at-
    titudes, geographic factors, funding,
    disconnection of patients from family
    members, and stigma—as well as the
    extent to which variations in these
    factors mediate the outcomes of edu-
    cational interventions.

    Dissemination could also be facili-
    tated by further exploring the inte-
    gration of family psychoeducation
    with psychosocial interventions—
    such as assertive community treat-
    ment, supported employment, and
    social skills training—and other evi-
    dence-based cognitive-behavioral strat-
    egies for improving the treatment
    outcomes of persons with mental ill-
    ness. Promising efforts have com-
    bined the energy, enthusiasm, and
    expertise of grassroots family organi-
    zations such as NAMI with profes-
    sional and clinical programs. ♦

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    73. McFarlane WR, McNary S, Dixon L, et al:
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    74. Falloon IRH, Falloon NCH, Lussetti M:
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    75. Dyck DG, Short RA, Hendry M, et al:

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    76. Guarnaccia P, Parra P: Ethnicity, social sta-
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    77. Jordan C, Lewellen A, Vandiver V: Psy-
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    78. Dixon L, Goldman HH, Hirad A: State pol-
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    PSYCHIATRIC SERVICES ♦ July 2001 Vol. 52 No. 7

    The Evidence 11

    Selected Bibliography

    The Evidence
    Selected Bibliography

    Literature reviews

    Drake, R. E., Merrens, M. R., &
    Lynde, D. W. (2005). Evidence-based
    mental health practice: A textbook, New
    York: WW Norton.

     Introduces readers to the concepts
    and approaches of evidence-
    based practices for treating severe
    mental illnesses.

     Describes the importance of research
    in intervention science and the
    evolution of evidence-based practices.

     Contains a chapter for each of five
    evidence-based practices and provides
    historical background, practice
    principles, and an introduction
    to implementation. Vignettes
    highlight the experiences of staff and
    consumers.

     Is an excellent, readable primer for
    the Evidence-Based Practices KITs.

    Selected Bibliography 12 The Evidence

    Resources for family intervention
    coordinators and mental health
    authorities

    Anderson, C. M., Griffin, S., Ross, I. A.,
    Pagonis, I., Holder, D. P., & Treiber, R. (1986).
    A comparative study of the impact of education
    vs. process groups for families of patients with
    affective disorders. Family Process, 25, 185-205.

    Batalden, P. B., & Stoltz, P. K. (1993). A framework
    for the continual improvement of healthcare:
    Building and applying professional and
    improvement knowledge to test changes in daily
    work. The Joint Commission Journal on Quality
    Improvement, 19, 424-445.

    Falloon, I. R. H., McGill, C. W., & Boyd, J. L.
    (1992). Family management in the prevention
    of morbidity in schizophrenia: Social outcome
    of a two-year longitudinal study. Psychological
    Medicine, 17, 59-66.

    McFarlane, W. R., Dushay, R. A., Deakins, S. M.,
    Stastny, P., Lukens, E. P., Toran, J., et al. (2000).
    Employment outcomes in family-aided Assertive
    Community Treatment. American Journal of
    Orthopsychiatry, 70, 203-214.

    Essential reading for practitioners

    The following four books are recommended for
    those who want to master this approach. The first is
    especially helpful for practitioners offering FPE in
    the single-family format. The third reference is
    recommended for practitioners facilitating
    multifamily groups.

    Anderson, C., Hogarty, G., & Reiss, D. (1986).
    Schizophrenia and the family. New York:
    Guilford Press.

    Falloon, I., Boyd, J., & McGill, C. (1984). Family
    care of schizophrenia. New York: Guilford Press.

    McFarlane, W. R. (2002). Multifamily groups in
    the treatment of severe psychiatric disorders.
    New York: Guilford.

    Miklowitz, D. J., & Goldstein, M. (1997). Bipolar
    disorder: A family-focused treatment approach.
    New York: Guilford Press.

    Additional resources for
    practitioners

    Amenson, C. (1998). Schizophrenia: A family
    education curriculum. Pasadena, CA: Pacific
    Clinics Institute.

    Provides 150 slides with lecture notes for
    conducting educational workshops for families
    who have a relative with schizophrenia. Includes
    information about the illness, medication,
    psychosocial treatments, and the role of the
    family in promoting recovery.

    Amenson, C. (1998). Schizophrenia: Family
    education methods. Pasadena, CA: Pacific
    Clinics Institute.

    A companion handbook to Schizophrenia: A
    Family Education Curriculum. Provides guidance
    on forming a class, optimizing learning for
    families, and dealing with typical problems that
    arise in conducting educational workshops.

    Kuipers, E., Leff, J. & Lam, D. (2002). Family
    work for schizophrenia: A practical guide.
    London: Gaskill.

    Linehan, M. (1993). Cognitive-behavioral
    treatment of borderline personality disorder.
    New York: Guilford.

    Mueser, K. T., & Glynn, S. (1999). Behavioral
    family therapy for psychiatric disorders.
    Oakland, CA: New Harbinger Publications.

    The Evidence 13 Selected Bibliography

    Psychopharmacology

    Gorman, J. (1995). The essential guide to
    psychiatric drugs. New York: St. Martin’s Press.

    Profiles individual medications in easy-to-
    understand terms.

    Lickey, M., & Gordon, B. (1991). Medicine and
    mental illness. New York: W. H. Freeman.

    Presents principles of diagnosis, neurophysiology,
    and psychopharmacological treatment of mental
    illnesses. Describes why psychopharmacology
    exists and how it works.

    Special topics

    Manoleas, P. (Ed.) (1996). The cross-cultural
    practice of clinical case management in mental
    health. Binghamton, NY: Haworth Press.

    Presents a collection of articles about the roles
    of gender, ethnicity, and acculturation in seeking
    treatment and response. Gives guidelines for
    engaging and intervening with specific ethnic and
    diagnostic groups in varying treatment contexts.

    Russell, L. M., & Grant, A. E. (1995). Planning for
    the future: Providing a meaningful life for a child
    with a disability after your death. Evanston, IL:
    American Publishing Company.

    Russell, L. M., & Grant, A. E. (1995). The life
    planning workbook: A hands-on guide to
    help parents provide for the future security
    and happiness of their child with a disability
    after their death. Evanston, IL: American
    Publishing Company.

    Offers guidance to parents on providing for the
    future security of adults with mental illnesses.

    Silver, D. (1992). A Parent’s guide to wills and
    trusts. Los Angeles, CA: Adams-Hall.

    Provides financial planning suggestions for
    parents of adults with mental illnesses.

    Solomon, P., Mannion, E., Marshall, T., &
    Farmer, J. (2001). Social workers as consumer
    and family consultants. In K. Bentley (Ed.),
    Social work practice in mental health:
    Contemporary roles, tasks, and techniques
    (pp. 230–253). Pacific Grove, CA: Brooks/Cole
    Publishing Co.

    Provides a model Release of Information form
    for sharing information with families on an
    ongoing basis.

    Wrobleski, A. (1991). Suicide survivors: A
    guide for those left behind. Minneapolis, MN:
    Afterwords Publishing.

    Offers coping strategies to families who have had
    a relative commit suicide.

    Resources for families

    Adamec. C. (1996). How to live with a mentally
    ill person: A handbook of day-to-day strategies.
    New York: John Wiley and Sons.

    This comprehensive, easy-to-read book, written
    by a parent, reviews methods for accepting
    illness, dealing with life issues, developing coping
    strategies, negotiating the mental health system,
    and more.

    Keefe, R., & Harvey, P. (1994). Understanding
    schizophrenia: A guide to the new research
    on causes and treatment. New York: The
    Free Press.

    Describes research and presents the science of
    schizophrenia in understandable terms.

    Selected Bibliography 14 The Evidence

    Marsh, D., & Dickens, R. (1997). Troubled
    journey: Coming to terms with the mental
    illness of a sibling or parent. New York:
    Tarcher/Putnam.

    Written for siblings and adult children of people
    with mental illnesses. Discusses the impact of
    mental illnesses on childhood.

    Mueser, K., & Gingerich, S. (1994). Coping with
    schizophrenia: A guide for families. Oakland,
    CA: New Harbinger Publications.

    Offers a comprehensive guide to living with
    schizophrenia. Provides practical advice on
    topics including medication, preventing relapse,
    communication, family rules, drug use, and
    planning for the future. Includes forms and
    worksheets for solving typical problems.

    Torrey, E. F. (1995). Surviving schizophrenia:
    A family manual (3rd ed.) New York: Harper
    & Row.

    First-person accounts

    Devesch, A. (1992). Tell me I’m here: One
    family’s experience with schizophrenia. New
    York: Penguin.

    A United Nation’s Media Peace Prize winner and
    founder of Schizophrenia Australia describes her
    family’s experience.

    Dickens, R., & Marsh, D. (1994). Anguished
    voices: Siblings and adult children of persons
    with psychiatric disabilities. Boston, MA:
    Center for Psychiatric Rehabilitation.

    Collection of eight stories describing the impact
    of mental illnesses on siblings and children. Deals
    with the issues across the life span that must be
    addressed when someone grows up with mental
    illness in the family.

    Duke, P., & Hochman, G. (1992). A brilliant
    madness: Living with manic depressive illness.
    New York: Bantam Books.

    Combines personal experience with clinical
    information to describe manic depression in
    understandable terms and gives guidelines for
    coping with it.

    Hyland, B. (1986). The girl with the crazy
    brother. London: Franklin Watts.

    Written for adolescents.

    Jamison, K. R. (1995). An Unquiet Mind. New
    York: Alfred A. Knopf, Inc.

    A compelling and emotional account of author’s
    awareness, denial, and acceptance of her bipolar
    disorder. It offers readers hope for recovery.

    Riley, J. (1984). Crazy quilt. New York:
    William Morrow.

    Fictional account of a 13-year-old girl whose
    mother has schizophrenia. Written for children
    and adolescents.

    Sheehan, S. (1982). Is there no place on earth for
    me? New York: Houghton-Mifflin.

    Describes the experience of living with
    schizophrenia. Provides information about
    legal, funding, and treatment issues. Won the
    Pulitzer Prize.

    Schiller, L., & Bennett, A. (1994). The quiet room:
    A journey out of the torment of madness. New
    York: Warner Books.

    Wasow, M. (1995). The skipping stone: Ripple
    effects of mental illness on the family. Palo Alto,
    CA: Science and Behavior Books.

    The Evidence 15 Selected Bibliography

    Self-help

    Burns, D. (1989). The feeling good handbook.
    New York: Penguin.

    Self-help book presents a rationale for cognitive
    therapy for depression with specific ideas and
    exercises to help change thought patterns
    associated with depression and other problems.

    Copeland, M. E. (1992). The depression
    workbook. Oakland, CA: New Harbinger
    Publications.

    Helps consumers take responsibility for wellness
    by using charts and techniques to track and
    control moods.

    Lewinsohn, P., Munoz, R., Youngren, M. A.,
    & Zeiss, A. (1979). Control your depression.
    Englewood Cliffs, New Jersey: Prentice Hall.

    Self-help book assesses what contributes to
    depression. Includes techniques and activities
    such as relaxation, social skill-enhancement, and
    modification of self-defeating thinking patterns.

    Papolos, D., & Papolos, J. (1997). Overcoming
    depression. (3rd ed.). New York: Harper & Row.

    A comprehensive book written for consumers
    and families.

    Videotapes

    Amenson, C. S. Exploring schizophrenia.
    Produced by the California Alliance for the
    Mentally Ill. (Available from the California
    Alliance for the Mentally Ill, 1111 Howe
    Avenue, Suite 475, Sacramento, CA 95825.
    Phone: (916) 567-0163.)

    Uses everyday language to describe
    schizophrenia. Provides coping guidelines to
    consumers and their families.

    American Psychiatric Association (Producer).
    (1997). Critical connections: A schizophrenia
    awareness video. (Available from American
    Psychiatric Association, 1000 Wilson Boulevard,
    Suite 1825, Arlington, VA 22209. Phone:
    (703) 907-7300.)

    This 30-minute video provides a hopeful,
    reassuring message about new medications and
    psychosocial treatments for schizophrenia.

    McFarlane, W. R. (Producer). (1999).
    Schizophrenia explained. (Available from W.
    R. McFarlane, Maine Medical Center, 22
    Bramhall Street, Portland, ME 04102. Phone:
    (207) 871-2091. mcfarw@mmc.org.)

    Provides a full review in lay language of the
    psychobiology of schizophrenia, emphasizing
    stress reduction, optimal environments, and
    interactions for recovery, and family support. May
    be used in FPE 1-day educational workshops.

    Vaccaro, J. V. (1996). Exploring bipolar disorder.
    Produced by the California Alliance for the
    Mentally Ill. (Available from the California
    Alliance for the Mentally Ill, 1111 Howe
    Avenue, Suite 475, Sacramento, CA 95825.
    Phone: (916) 567-0163.)

    This 1-hour video describes the bipolar disorder,
    recovery, and the role of the family. Consumers
    contribute valuable insights.

    http://mcfarw@mmc.org

    The Evidence 17 References

    Anderson, C. M., Griffin, S., Ross, I. A.,
    Pagonis, I., Holder, D. P., & Treiber,
    R. (1986). A comparative study of the
    impact of education vs. process groups
    for families of patients with affective
    disorders. Family Process, 25, 185–205.

    American Psychiatric Association. (1997).
    Practice guidelines for the treatment
    of patients with schizophrenia. The
    American Journal of Psychiatry. 154(4)
    Suppl., 1–63.

    Becker, D. R., Bond, G. R., McCarthy, D.,
    Thompson, D., Xie, H., McHugo, G. J.,
    et al. (2001). Converting day treatment
    centers to supported employment
    programs in Rhode Island. Psychiatric
    Services, 52, 351–357.

    Becker, D. R., Smith, J., Tanzman, B.,
    Drake, R. E., & Tremblay, T. (2001).
    Fidelity of supported employment
    programs and employment outcomes.
    Psychiatric Services, 52, 834–836.

    The Evidence

    References
    The following list includes the references for all citations in the KIT.

    References 18 The Evidence

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    Bond, G. R., & Salyers, M. P. (2004). Prediction
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    Clarkin, J. F., Carpenter, D., Hull, J.,
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    Cuijpers, P. (1999). The effects of family
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    Dixon, L., McFarlane, W. R., Lefley, H.,
    Lucksted, A., Cohen, M., Falloon, I., et al.
    (2001). Evidence-based practices for services to
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    Dyck, D., Hendryx, M. S., Short, R. A.,
    Voss, W. D., and McFarlane, W. R. (2002).
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    Emanuels-Zuurveen, L. (1997). Spouse-aided
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    Falloon, I. R. H., Held, T., Cloverdale, R.,
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    Falloon, I. R. H., & Pederson, J. (1985). Family
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    Ganju, V. (2004, June). Evidence-based practices:
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    Gunderson, J., Berkowitz, C., & Ruizsancho,
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    Lam, D. H., Knipers, L., & Leff, J. P. (1993).
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    The Evidence 19 References

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    http://www.nimh.nih.gov

    http://www.mentalhealthcommission.gov.

    The Evidence 21 References

    Van Noppen, B. (1999). Multifamily behavioral
    treatment (MFBT) for OCD. Crisis
    Intervention and Time-Limited Treatment, 5,
    3–24.

    Weiden, P. J., Scheifler, P. L., McEvoy, J. P.,
    Allen, F., and Ross, R. (1999). Expert consensus
    treatment guidelines for schizophrenia: A guide
    for patients and families. Journal of Clinical
    Psychiatry 60 (Suppl. 11), 73–80.

    Wiedemann, G., Hahlweg, K., Muller, U.,
    Feinstein, E., Hank, G., & Dose, M. (2001).
    Effectiveness of targeted intervention and
    maintenance pharmacotherapy in conjunction
    with family intervention in schizophrenia.
    European Archives of Psychiatry & Clinical
    Neuroscience, 251, 72–84.

    Xiong, W., Phillips, M. R., Hu, X., Wang, R.,
    Dai, Q., Kleinman, J., et al. (1994). Family-
    based intervention for schizophrenic patients
    in China: A randomised controlled trial. British
    Journal of Psychiatry, 165, 239–247.

    Zhang, M., Wang, M., Li, J., & Phillips, M.
    R. (1994). Randomised-control trial of
    family intervention for 78 first-episode male
    schizophrenic patients: An 18-month study in
    Suzhou, Jiangsu. British Journal of Psychiatry
    Suppl. 24, 96–102.

    Zipple, A. M., Langle, S., Spaniol, L., and Fisher,
    H. (1997). Client confidentiality and the family’s
    need to know. In D. Marsh and R. Magee
    (Eds.), Ethical and legal issues in professional
    practice with families (pp. 238–253). New York:
    John Wiley & Sons, Inc.

    The Evidence 23 Acknowledgments

    The materials included in the Family Psychoeducation (FPE) KIT were
    developed through the National Implementing Evidence-Based Practices
    Project. The Project’s Coordinating Center—the New Hampshire-Dartmouth
    Psychiatric Research Center—in partnership with many other collaborators,
    including clinicians, researchers, consumers, family members, and
    administrators, and operating under the direction of the Substance Abuse
    and Mental Health Services Administration, Center for Mental Health Services,
    developed, evaluated, and revised these materials.

    We wish to acknowledge the many people who contributed to all aspects
    of this project. In particular, we wish to acknowledge the contributors and
    consultants on the following pages.

    The Evidence
    Acknowledgments

    Acknowledgments 24 The Evidence

    Michael English
    Division of Service and Systems Improvement
    Rockville, Maryland

    Neal B. Brown
    Community Support Programs Branch
    Division of Service and Systems Improvement
    Rockville, Maryland

    Sandra Black
    Community Support Programs Branch
    Division of Service and Systems Improvement
    Rockville, Maryland

    Crystal R. Blyler
    Community Support Programs Branch
    Division of Service and Systems Improvement
    Rockville, Maryland

    Pamela J. Fischer
    Homeless Programs Branch
    Division of Service and Systems Improvement
    Rockville, Maryland

    Lisa Dixon
    University of Maryland School of Medicine
    Baltimore, Maryland

    Donna Downing
    Maine Medical Center
    Portland, Maine

    Sushmita Shoma Ghose
    Community Support Programs Branch
    Division of Service and Systems Improvement
    Rockville, Maryland

    Patricia Gratton
    Division of Service and Systems Improvement
    Rockville, Maryland

    Betsy McDonel Herr
    Community Support Programs Branch
    Division of Service and Systems Improvement
    Rockville, Maryland

    Larry D. Rickards
    Homeless Programs Branch
    Division of Service and Systems Improvement
    Rockville, Maryland

    SAMHSA Center for Mental Health Services, Oversight Committee

    Co-Leaders

    William R. McFarlane
    Maine Medical Center
    Portland, Maine

    The Evidence 25 Acknowledgments

    Contributors

    Curtis Adams
    University of Maryland School of Medicine
    Baltimore, Maryland

    Christopher S. Amenson
    Pacific Clinics Institute
    Pasadena, California

    Carol Anderson
    University of Pittsburgh Medical Center
    Pittsburgh, Pennsylvania

    Charity Appell
    Ascutney, Vermont

    Cynthia Bisbee
    Montgomery, Alabama

    Gary Bond
    Indiana University–Purdue University
    Indianapolis, Indiana

    Judy Burk
    Bangor, Maine

    Jose Canive
    University of New Mexico Health Sciences Center
    Albuquerque, New Mexico

    Diane Chambers
    Vermont Department of Health
    Agency of Human Services
    Burlington, Vermont

    Michael J. Cohen
    National Alliance on Mental Illness (NAMI)
    Concord, New Hampshire

    Cathy Donahue
    Calais, Vermont

    Dennis Dyck
    Washington State University
    Spokane, Washington

    Kana Enomoto
    Substance Abuse and Mental Health Services
    Administration
    Rockville, Maryland

    Ian Falloon
    University of Auckland
    Auckland, New Zealand

    Laurie Flynn
    Alexandria, Virginia

    Risa Fox
    Community Support Programs Branch
    Division of Service and Systems Improvement
    Rockville, Maryland

    Shirley M. Glynn
    U.S. Department of Veteran Affairs
    Greater Los Angeles Healthcare System
    Los Angeles, California

    Linda H. Jacobson
    Maine Medical Center
    Portland, Maine

    Dale Johnson
    University of Houston
    Houston, Texas

    Gabor Keitner
    Brown University
    Providence, Rhode Island

    Alex Kopelowicz
    University of California
    Los Angeles School of Medicine
    Los Angeles, California

    Mary Beth Lapin
    Portland, Maine

    Julian Leff
    Kings College, Institute of Psychiatry
    London, United Kingdom

    Acknowledgments 26 The Evidence

    Charles A. Rapp
    The University of Kansas
    Lawrence, Kansas

    Dennis Ross
    Marshfield, Vermont

    Nina R. Schooler
    Georgetown University
    School of Medicine
    Washington, D.C.

    Jacqueline Shannon
    San Angelo, Texas

    Mary Kay Smith
    University of Toledo
    College of Medicine
    Toledo, Ohio

    Phyllis Solomon
    University of Pennsylvania,
    School of Social Policy and Practice Philadelphia,
    Pennsylvania

    Diane Sondheimer
    SAMHSA Center for Mental Health Services
    Rockville, Maryland

    Bette Stewart
    University of Maryland School of Medicine
    Baltimore, Maryland

    Karin Swain
    Dartmouth Psychiatric Research Center
    Lebanon, New Hampshire

    William Torrey
    Dartmouth Medical School
    Hanover, New Hampshire

    Suzanne Vogel-Scibilia
    Western Psychiatric Institute and Clinic
    Pittsburgh, Pennsylvania

    Harriet P. Lefley
    University of Miami
    School of Medicine
    Miami, Florida

    Steven R. Lopez
    University of California
    Los Angeles Department of Psychology
    Los Angeles, California

    Ken Lutterman
    National Institutes of Health
    Bethesda, Maryland

    David W. Lynde
    Dartmouth Psychiatric Research Center
    Concord, New Hampshire

    Doug Marty
    The University of Kansas
    Lawrence, Kansas

    Gregory J. McHugo
    Dartmouth Psychiatric Research Center
    Lebanon, New Hampshire

    Matthew Merrens
    Dartmouth Psychiatric Research Center
    Lebanon, New Hampshire

    David J. Miklowitz
    University of Colorado
    Department of Psychology and Psychiatry
    Boulder, Colorado

    Kim T. Mueser
    Dartmouth Psychiatric Research Center
    Concord, New Hampshire

    Ernest Quimby
    Howard University
    Washington, D.C.

    The Evidence 27 Acknowledgments

    Consultants to the National Implementing Evidence-Based Practices Project

    Dan Adams
    St. Johnsbury, Vermont

    Diane C. Alden
    New York State Office of Mental Health
    New York, New York

    Lindy Fox Amadio
    Dartmouth Psychiatric Research Center
    Concord, New Hampshire

    Diane Asher
    The University of Kansas
    Lawrence, Kansas

    Stephen R. Baker
    University of Maryland School of Medicine
    Baltimore, Maryland

    Stephen T. Baron
    Department of Mental Health
    Washington, D.C.

    Deborah R. Becker
    Dartmouth Psychiatric Research Center
    Lebanon, New Hampshire

    Nancy L. Bolton
    Cambridge, Massachusetts

    Patrick E. Boyle
    Case Western Reserve University
    Cleveland, Ohio

    Mike Brady
    Adult and Child Mental Health Center
    Indianapolis, Indiana

    Ken Braiterman
    National Alliance on Mental Illness (NAMI)
    Concord, New Hampshire

    Janice Braithwaite
    Snow Hill, Maryland

    Michael Brody
    Southwest Connecticut Mental Health Center
    Bridgeport, Connecticut

    Mary Brunette
    Dartmouth Psychiatric Research Center
    Concord, New Hampshire

    Sharon Bryson
    Ashland, Oregon

    Barbara J. Burns
    Duke University School of Medicine
    Durham, North Carolina

    Jennifer Callaghan
    The University of Kansas
    School of Social Welfare
    Lawrence, Kansas

    Kikuko Campbell
    Indiana University–Purdue University
    Indianapolis, Indiana

    Linda Carlson
    University of Kansas
    Lawrence, Kansas

    Diana Chambers
    Department of Health Services
    Burlington, Vermont

    Alice Claggett
    University of Toledo College of Medicine
    Toledo, Ohio

    Marilyn Cloud
    Department of Health and Human Services
    Concord, New Hampshire

    Melinda Coffman
    The University of Kansas
    Lawrence, Kansas

    Acknowledgments 28 The Evidence

    Jon Collins
    Office of Mental Health and Addiction Services
    Salem, Oregon

    Laurie Coots
    Dartmouth Psychiatric Research Center
    Lebanon, New Hampshire

    Judy Cox
    New York State Office of Mental Health
    New York, New York

    Harry Cunningham
    Dartmouth Psychiatric Research Center
    Concord, New Hampshire

    Gene Deegan
    University of Kansas
    Lawrence, Kansas

    Natalie DeLuca
    Indiana University–Purdue University
    Indianapolis, Indiana

    Robert E. Drake
    Dartmouth Psychiatric Research Center
    Lebanon, New Hampshire

    Molly Finnerty
    New York State Office of Mental Health
    New York, New York

    Laura Flint
    Dartmouth Evidence-Based Practices Center
    Burlington, Vermont

    Vijay Ganju
    National Association of State Mental Health
    Program Directors Research Institute
    Alexandria, Virginia

    Susan Gingerich
    Narberth, Pennsylvania

    Phillip Glasgow
    Wichita, Kansas

    Howard H. Goldman
    University of Maryland School of Medicine
    Baltimore, Maryland

    Paul G. Gorman
    Dartmouth Psychiatric Research Center
    Lebanon, New Hampshire

    Gretchen Grappone
    Concord, New Hampshire

    Eileen B. Hansen
    University of Maryland School of Medicine
    University of Maryland, Baltimore

    Kathy Hardy
    Strafford, Vermont

    Joyce Hedstrom
    Courtland, Kansas

    Lon Herman
    Department of Mental Health
    Columbus, Ohio

    Lia Hicks
    Adult and Child Mental Health Center
    Indianapolis, Indiana

    Debra Hrouda
    Case Western Reserve University
    Cleveland, Ohio

    Bruce Jensen
    Indiana University–Purdue University
    Indianapolis, Indiana

    Clark Johnson
    Salem, New Hampshire

    Amanda M. Jones
    Indiana University–Purdue University
    Indianapolis, Indiana

    Joyce Jorgensen
    Department of Health and Human Services
    Concord, New Hampshire

    Hea-Won Kim
    Indiana University–Purdue University
    Indianapolis, Indiana

    The Evidence 29 Acknowledgments

    David A. Kime
    Transcendent Visions and Crazed Nation Zines
    Fairless Hills, Pennsylvania

    Dale Klatzker
    The Providence Center
    Providence, Rhode Island

    Kristine Knoll
    Dartmouth Psychiatric Research Center
    Lebanon, New Hampshire

    Bill Krenek
    Department of Mental Health
    Columbus, Ohio

    Rick Kruszynski
    Case Western Reserve University
    Cleveland, Ohio

    H. Stephen Leff
    The Evaluation Center at the Human Services
    Research Institute
    Cambridge, Massachusetts

    Treva E. Lichti
    National Alliance on Mental Illness (NAMI)
    Wichita, Kansas

    Wilma J. Lutz
    Ohio Department of Mental Health
    Columbus, Ohio

    Anthony D. Mancini
    New York State Office of Mental Health
    New York, New York

    Paul Margolies
    Hudson River Psychiatric Center
    Poughkeepsie, New York

    Tina Marshall
    University of Maryland School of Medicine
    Baltimore, Maryland

    Ann McBride
    Oklahoma City, Oklahoma

    William R. McFarlane
    Maine Medical Center
    Portland, Maine

    Mike McKasson
    Adult and Child Mental Health Center
    Indianapolis, Indiana

    Alan C. McNabb
    Ascutney, Vermont

    Meka McNeal
    University of Maryland School of Medicine
    Baltimore, Maryland

    Ken Minkoff
    ZiaLogic
    Albuquerque, New Mexico

    Michael W. Moore
    Office of Mental Health and Addiction Services
    Salem, Oregon

    Roger Morin
    The Center for Health Care Services
    San Antonio, Texas

    Lorna Moser
    Indiana University–Purdue University
    Indianapolis, Indiana

    Kim T. Mueser
    Dartmouth Psychiatric Research Center
    Concord, New Hampshire

    Britt J. Myrhol
    New York State Office of Mental Health
    New York, New York

    Bill Naughton
    Southeastern Mental Health Authority
    Norwich, Connecticut

    Nick Nichols
    Department of Health
    Burlington, Vermont

    Selected Bibliography 30 The Evidence

    Bernard F. Norman
    Northeast Kingdom Human Services
    Newport, Vermont

    Linda O’Malia
    Oregon Health and Science University
    Portland, Oregon

    Ruth O. Ralph
    University of Southern Maine
    Portland, Maine

    Angela L. Rollins
    Indian University–Purdue University
    Indianapolis, Indiana

    Tony Salerno
    New York State Office of Mental Health
    New York, New York

    Diana C. Seybolt
    University of Maryland School of Medicine
    Baltimore, Maryland

    Patricia W. Singer
    Santa Fe, New Mexico

    Mary Kay Smith
    University of Toledo
    Toledo, Ohio

    Diane Sterenbuch
    Bethesda, Maryland

    Bette Stewart
    University of Maryland School of Medicine
    Baltimore, Maryland

    Steve Stone
    Mental Health and Recovery Board
    Ashland, Ohio

    Maureen Sullivan
    Department of Health and Human Services
    Concord, New Hampshire

    Beth Tanzman
    Vermont Department of Health
    Burlington, Vermont

    Greg Teague
    University of Southern Florida
    Tampa, Florida

    Boyd J. Tracy
    Dartmouth Psychiatric Research Center
    Lebanon, New Hampshire

    Laura Van Tosh
    Olympia, Washington

    Joseph A. Vero
    National Alliance on Mental Illness (NAMI)
    Aurora, Ohio

    Barbara L. Wieder
    Case Western Reserve University
    Cleveland, Ohio

    Mary Woods
    Westbridge Community Services
    Manchester, New Hampshire

    The Evidence 31 Acknowledgments

    The following organizations for their generous contributions:

     The John D. & Catherine T. MacArthur Foundation

     West Family Foundation

    Carolyn Boccella Bagin
    Center for Clear Communication, Inc.
    Rockville, Maryland

    Sushmita Shoma Ghose
    Westat
    Rockville, Maryland

    Julien Hofberg
    Westat
    Rockville, Maryland

    Glynis Jones
    Westat
    Rockville, Maryland

    Special thanks to

    Production, editorial, and graphics support

    Chandria Jones
    Westat
    Rockville, Maryland

    Tina Marshall
    Gaithersburg, Maryland

    Mary Anne Myers
    Westat
    Rockville, Maryland

    Robin Ritter
    Westat
    Rockville, Maryland

    26174.0609.7765020404

    HHS Publication No. SMA-09-4422
    Printed 2009

    • The Evidence-Cover
    • Title Page
    • Acknowledgments
      The Evidence

    • What’s in The Evidence
    • Review of Research Literature

    • Evidence-Based Practices forServices to Families of People With Psychiatric Disabilities
    • Selected Bibliography
      Literature reviews
      Resources for family intervention coordinators and mental health authorities
      Essential reading for practitioners
      Additional resources for practitioners
      Psychopharmacology
      Special topics
      Resources for families
      First-person accounts
      Self-help
      Videotapes
      References
      Acknowledgments
      SAMHSA Center for Mental Health Services, Oversight Committee
      Co-Leaders
      Contributors
      Consultants to the National Implementing Evidence-Based Practices Project
      Special thanks to
      Production, editorial, and graphics support

    Evaluating

    Your Program

    Family

    Psychoeducation

    U.S. DEPARTMENT OF HEALTH AND HUMAN SERVICES
    Substance Abuse and Mental Health Services Administration

    Center for Mental Health Services

    www.samhsa.gov

    http://www.samhsa.gov

    Family
    Psychoeducation
    Evaluating
    Your Program

    U.S. Department of Health and Human Services

    Substance Abuse and Mental Health Services Administration

    Center for Mental Health Services

  • Acknowledgments
  • This document was prepared for the Substance Abuse and Mental Health Services
    Administration (SAMHSA) by the New Hampshire-Dartmouth Psychiatric Research Center
    under contract number 28

    0

    -00-8049 and Westat under contract number 270-03-6005,
    with SAMHSA, U.S. Department of Health and Human Services (HHS). Neal Brown, M.P.A.,
    and Crystal Blyler, Ph.D., served as SAMHSA Government Project Officers.

    Disclaimer

    The views, opinions, and content of this publication are those of the authors and contributors
    and do not necessarily reflect the views, opinions, or policies of the Center for Mental Health
    Services (CMHS), SAMHSA, or HHS.

    Public Domain Notice

    All material appearing in this document is in the public domain and may be reproduced
    or copied without permission from SAMHSA. Citation of the source is appreciated. However,
    this publication may not be reproduced or distributed for a fee without the specific, written
    authorization from the Office of Communications, SAMHSA, HHS.

    Electronic Access and Copies of Publication

    This publication may be downloaded or ordered at http://www.samhsa.gov/shin. Or, please
    call SAMHSA’s Health Information Network at 1-877-SAMHSA-7 (1-877-726-4727) (English
    and Español).

    Recommended Citation

    Substance Abuse and Mental Health Services Administration. Family Psychoeducation: Evaluating
    Your Program. HHS Pub. No. SMA-09-4422, Rockville, MD: Center for Mental Health Services,
    Substance Abuse and Mental Health Services Administration, U.S. Department of Health and
    Human Services, 2009.

    Originating Office

    Center for Mental Health Services
    Substance Abuse and Mental Health Services Administration
    1 Choke Cherry Road
    Rockville, MD 20857

    HHS Publication No. SMA-09-4422
    Printed 2009

    http://www.samhsa.gov/shin

    Family
    Psychoeducation

    Evaluating Your Program

  • Evaluating Your Program
  • shows quality assurance team members
    how to evaluate the effectiveness of your Family Psychoeducation
    program. It includes the following:

    n A readiness assessment;

    n The Family Psychoeducation Fidelity Scale;

    n The General Organizational Index; and

    n Outcome measures that are specific to your program.

    You will also find instructions for conducting assessments and tips
    on how to use the data to improve your program.

    For references see the booklet, The Evidence.

    This KIT is part of a series of Evidence-Based Practices KITs created
    by the Center for Mental Health Services, Substance Abuse and
    Mental Health Services Administration, U.S. Department of Health
    and Human Services.

    This booklet is part of the Family Psychoeducation KIT that includes
    a DVD, CD-ROM, and seven booklets:

    How to Use the Evidence-Based Practices KITs

    Getting Started with Evidence-Based Practices

    Building Your Program

    Training Frontline Staff

    Evaluating Your Program

    The Evidence

    Using Multimedia to Introduce Your EBP

    What’s in Evaluating Your Program

  • Why Evaluate Your Family Psychoeducation Program?
  • . . . . . 1

  • Conduct a Readiness Assessment
  • . . . . . . . . . . . . . . . . . . . . 3

  • Conduct Process Assessments
  • . . . . . . . . . . . . . . . . . . . . . . . 5

  • Monitor Outcomes
  • . . . . . . . . . . . . . . . . . . . . . . . . . . . . . 13

  • Use Data to Improve Your Program
  • . . . . . . . . . . . . . . . . . . 17

    Appendix A:

  • Cover
  • Sheet—Family Psychoeducation Fidelity
    Scale and General Organizational Index . . . . . 23

    Appendix B: Checklist—Observation of Multifamily
    Group Sessions . . . . . . . . . . . . . . . . . . . . . . . 27

    Appendix C: Family Psychoeducation Fidelity
    Scale and Scoresheet . . . . . . . . . . . . . . . . . . 31

    Appendix D: Family Psychoeducation Fidelity
    Scale Protocol . . . . . . . . . . . . . . . . . . . . . . . 37

    Appendix E: General Organizational
    Index and Scoresheet . . . . . . . . . . . . . . . . . . 49

    Appendix F: General Organizational Index Protocol . . . . . . 55

    Appendix G: Outcomes Report Form . . . . . . . . . . . . . . . . . 69

    Appendix H: Instructions for the Outcomes Report Form . . 73

    Appendix I: Assessor Training and Work
    Performance Checklist . . . . . . . . . . . . . . . . . 79

    Family
    Psychoeducation

    Evaluating Your Program 1 Why Evaluate Your Family Psychoeducation Program

    Evaluating Your Program

    Why Evaluate Your Family Psychoeducation Program?

    Key stakeholders who are implementing
    Family Psychoeducation (FPE) programs
    may find themselves asking two questions:

    n Has the program been implemented
    as planned?

    n Has the program resulted in the
    expected outcomes?

    Asking these two questions and using the
    answers to help improve your program are
    critical for ensuring the success of your
    FPE program.

    To answer the first question, collect
    process measures (by using the FPE

    Fidelity Scale and General Organizational
    Index). Process measures capture how
    services are provided. To answer the second
    question, collect outcome measures.
    Outcome measures capture the results
    or achievements of your program.

    As you prepare to implement your
    program, we strongly recommend that you
    develop a quality assurance system using
    both process and outcome measures to
    monitor and improve the quality of the
    program from the startup phase and
    continuing through the life of the program.

    Why Evaluate Your Family Psychoeducation Program 2 Evaluating Your Program

    Why you should collect
    process measures

    Process measures give you an objective, structured
    way to determine if you are delivering services in
    the way that research has shown will result in
    desired outcomes. Process measures allow agencies
    to understand whether they are providing services
    that are faithful to the evidence-based model.
    Programs that adhere closely to the FPE model
    are more effective than those that do not follow
    the model. Adhering to the model is called fidelity.

    Collecting process measures is an excellent method
    to diagnose program weaknesses while helping
    to clarify program strengths. Once FPE programs
    reach high fidelity, ongoing monitoring allows
    you to test local innovations while ensuring that
    programs do not drift from the core principles
    of the evidence-based practice.

    Process measures also give mental health
    authorities a comparative framework to evaluate
    the quality of FPE programs across the state.
    They allow mental health authorities to identify
    statewide trends and exceptions to those trends.

    Why you should collect
    outcome measures

    While process measures capture how services are
    provided, outcome measures capture the program’s
    results. Every service intervention has both
    immediate and long-term consumer goals. In
    addition, consumers have goals for themselves,
    which they hope to attain with the help of mental
    health services. These goals translate into outcomes
    and the outcomes translate into specific measures.

    Consumer outcomes are the bottom line for
    mental health agencies, like profit is in business.
    No successful businessperson would assume that
    the business was profitable just because employees
    work hard.

    Why develop a quality
    assurance system

    In your mental health system, you should develop
    a quality assurance system that collects not only
    process measures such as those on the FPE Fidelity
    Scale and General Organizational Index, but also
    outcome measures such as those specified above
    to show the effect of FPE. Developing a quality
    assurance system will help you do the following:

    n Diagnose your program’s strengths and
    weaknesses;

    n Formulate action plans for improving your
    program;

    n Help consumers achieve their goals for recovery;
    and

    n Deliver mental health services both efficiently
    and effectively.

    Research Has Shown That You Can
    Expect These Outcomes from Your
    FPE Program

    n Reduced relapse and hospitalization

    n Improved family well-being

    n Increased participation in vocational
    rehabilitation

    n Higher rates of employment, when
    combined with Supported Employment

    n Decreased costs of care

    Evaluating Your Program 3

    Conduct a

    Readiness Assessment

    Evaluating Your Program
    Conduct a Readiness Assessment

    Let’s assume that administrators and
    family intervention coordinators have read
    Building Your Program. Your new FPE
    practitioners have completed Training
    Frontline Staff. How do you know if you
    are ready to begin providing FPE services
    to consumers?

    The Readiness Assessment on the next
    page will help quality assurance team
    members, advisory group leaders, and
    family intervention coordinators track

    the processes and administrative tasks
    required to develop an FPE program.

    Answering these questions will help
    you generate an ongoing to-do list (or
    implementation plan) to guide your steps
    in implementing your FPE program. Your
    answers will also help you understand the
    components of the FPE model that are
    already in place in your agency and the
    work that still remains.

    Conduct a Readiness Assessment 4 Evaluating Your Program

    Readiness Assessment

    Check any areas that you feel you do NOT completely understand.

    q Which practitioners will be designated as staff for your
    FPE program?

    q Who will supervise and direct the FPE program
    (who will be the family intervention coordinator)?

    q What are the roles of the family intervention
    coordinator and practitioners?

    q What is the size of the FPE practitioners’ caseloads?

    q What is the supervisory structure (how often does
    the family intervention coordinator meet with FPE
    practitioners and the agency director)?

    q How will you identify and refer consumers to your
    FPE program?

    q How will you inform consumers, families, and others
    of your FPE program?

    q What are your assessment procedures for consumers
    in your FPE program?

    q How will you document the provision of FPE services?

    q How often will FPE sessions be offered?

    q How long will consumers and families receive FPE?

    q What is your planning process for arranging the
    FPE one-day educational workshop?

    q How will FPE consumers and families have access
    to multimedia educational materials?

    q When will you offer FPE multifamily groups?

    q How will you measure your program’s fidelity to
    the evidence-based model and use this information
    to improve your program?

    q How will you collect and use consumer outcomes
    data?

    q How does your FPE staff relate to advisory groups?

    Note areas where you still are unclear or have questions. Arrange to speak to an expert consultant or experienced family

    intervention coordinator.

    Evaluating Your Program 5

    Conduct Process Assessments

    Evaluating Your Program
    Conduct Process Assessments

    In addition to the Readiness Assessment,
    you should conduct your first process
    assessment before you begin providing
    any FPE services. By doing so you will
    determine whether your agency has core
    components of the evidence-based practice
    in place. During the first 2 years of
    implementing your FPE program, plan
    to assess your program every 6 months.

    After your program has matured and
    achieved high fidelity, you may choose to
    conduct assessments once a year. Agencies
    that have successfully implemented FPE
    programs indicate that you must continue

    to evaluate the process to ensure that you
    do not revert to previous practice patterns.

    Once your program has achieved high
    fidelity to the evidence-based model,
    FPE practitioners may tailor the program
    to meet individual needs of the community.
    If you continue to use process assessments
    along with outcomes monitoring, you
    will be able to understand the extent
    to which your changes result in your
    program’s departure from model fidelity
    and whether the changes positively or
    negatively affect consumers.

    Conduct Process Assessments 6 Evaluating Your Program

    How to use process measures

    Two tools have been developed to monitor how
    FPE is provided:

    n The FPE Fidelity Scale; and

    n General Organizational Index.

    You may administer both tools at the same time.

    The FPE Fidelity Scale has 14 program-specific
    items. Each item is rated on a 5-point scale, ranging
    from 1 (not implemented) to 5 (fully implemented).
    The items assess whether the program is provided
    as the evidence-based model prescribes.

    The General Organizational Index is a second set
    of process measures that has been developed.
    In contrast to fidelity scales, which are practice-
    specific, this assessment can be used when
    implementing any evidence-based practice.
    It measures agency-wide operating procedures
    that have been found to affect agencies’ overall
    capacity to implement and sustain any evidence-
    based practice.

    For the FPE Fidelity Scale and General
    Organizational Index, see Appendices C and E.
    You can also print these forms from the CD-ROM
    in the KIT.

    About the Process Measures that Are Included in the KIT

    Quality assurance measures have been developed
    and are included in all Evidence-Based Practices KITs.

    The FPE Fidelity Scale was developed by a
    group of researchers at Indiana University-Purdue
    University, Indianapolis, and the developers of
    the KIT. The standards used for establishing the
    anchors for the “fully implemented” ratings were
    determined through a variety of expert sources
    as well as through empirical research. The scale
    has undergone numerous drafts and review by

    many groups. Revisions were also made based
    on feedback from a variety of sources during
    the 3-year pilot testing of the KIT materials.

    The General Organizational Index, developed
    by Robert Drake and Charlie Rapp, is a newly
    developed scale. This scale has undergone multiple
    revisions based on feedback gathered during the
    3-year pilot testing of the KIT materials.

    Evaluating Your Program 7 Conduct Process Assessments

    Who can conduct process assessments?

    We recommend enlisting two assessors to conduct
    your process assessment. Data collected by two
    assessors simultaneously increase the likelihood
    that information will be reliable and valid.

    Agencies that have successfully implemented FPE
    programs have taken different approaches to
    identify assessors. Some agencies train FPE
    Advisory Committee members as assessors and
    rotate the responsibility of completing assessments.
    Others have pre-existing quality assurance teams
    and simply designate members of the team to
    complete assessments of their FPE program. In
    other cases, the mental health authorities have
    designated staff to conduct assessments.

    Assessments can be conducted either internally by
    your agency or program or externally by a review
    group. External review groups have a distinct
    advantage because they use assessors who are
    familiar with FPE but, at the same time, are
    independent. The goal is to select objective and
    competent assessors.

    Although we recommend using external assessors,
    agencies can also use internal staff to rate their
    own programs. The validity of these ratings (or any
    ratings, for that matter) depends on the following:

    n The knowledge of the person making the ratings;

    n Access to accurate information pertaining to the
    ratings; and

    n The objectivity of the ratings.

    If you do conduct your assessments using internal
    staff, beware of potential biases of raters who are
    invested in seeing the program look good or who
    do not fully understand FPE. It is important for
    ratings to be made objectively and that they be
    based on hard evidence.

    Circumstances will dictate decisions in this area,
    but we encourage agencies to choose a review
    process that fosters objectivity in ratings, for
    example, by involving a practitioner who is not
    centrally involved in providing FPE. Only people
    who have experience and training in interviewing
    and data collection procedures (including chart
    reviews) should conduct assessments. Additionally,
    assessors need to understand the nature and
    critical ingredients of the evidence-based model.

    If your agency chooses to use a consultant or
    trainer to help implement your FPE program,
    involving that person in the assessment process
    will enhance the technical assistance you receive.
    Whichever approach you choose, we encourage
    you to make these decisions early in the planning
    process. For a checklist to help evaluate assessors’
    training and work performance, see Appendix I.

    How to conduct process assessments

    A number of activities take place before, during,
    and after a process assessment. In general,
    assessments include the following:

    n Interviewing administrators, the family
    intervention coordinator, FPE practitioners,
    consumers, and families;

    n Interviewing other agency staff (psychiatrists,
    therapists, or case managers);

    n Observing one or more group or individual
    sessions;

    n Observing a planning and supervisory meeting;
    and

    n Conducting a chart review.

    Collecting information from multiples sources
    helps assessors more accurately capture how
    services are provided. A day-long site visit
    is the best way to learn this information.

    Conduct Process Assessments 8 Evaluating Your Program

    To save time, you may interview FPE practitioners
    in a group. If the FPE program has three or fewer
    FPE practitioners, you should interview all of
    them. If the program has more than three FPE
    practitioners, you should try to interview at least
    three of them.

    For the items that require interviews with
    consumers and family members, we suggest that
    you interview at least three (from unique families).
    Try to interview families who are at different stages
    of the educational process. Contact the family
    intervention coordinator to help identify and set up
    these interviews. The following suggestions outline
    steps in the assessment process.

    Before the process assessment

    n n n Prepare your assessment questions

    A detailed protocol has been developed to
    help you understand each item on the FPE
    Fidelity Scale and General Organizational
    Index, the rationale for why it was included,
    guidelines for the types of information to
    collect, and instructions for completing
    your ratings. Use the protocols to help
    prepare the questions that you will ask
    during your assessment visit. For the FPE
    Fidelity Scale and General Organizational
    Index protocols, see Appendices D and F.

    While we expect that quality assurance
    teams will select which outcome measures
    meet your agency’s needs, you should use
    the FPE Fidelity Scale and General
    Organizational Index in full. Collecting data
    for all the items on these scales will allow
    your agency to gain a comprehensive
    understanding of how closely your program
    resembles the evidence-based model.

    n n n Create a timeline for the assessment

    List all the necessary activities leading
    up to and during the visit and create a
    timeline for completing each task. Carefully
    coordinating efforts, particularly if you have
    multiple assessors, will help you complete
    your assessment in a timely fashion.

    n n n Establish a contact person

    Have one key person in the FPE program
    arrange your visit and communicate
    beforehand the purpose and scope of your
    assessment to people who will participate
    in interviews. Typically, this contact person
    will be the family intervention coordinator.

    Exercise common courtesy and show
    respect for competing time demands by
    scheduling well in advance and making
    reminder calls to confirm interview dates
    and times.

    n n n Establish a shared understanding
    with the staff of the FPE program

    The most successful assessments are those
    in which assessors and the FPE staff share
    the goal of understanding how the program
    is progressing according to evidence-based
    principles. If administrators or FPE
    practitioners fear that they will lose funding
    or look bad if they don’t score well, then the
    accuracy of the data may be compromised.
    The best assessment is one in which all
    parties are interested in learning the truth.

    n n n Indicate what you will need from
    respondents during your visit

    In addition to the purpose of the
    assessment, briefly describe what
    information you need, with whom you
    must speak, and how long each interview
    will take to complete.

    Evaluating Your Program 9 Conduct Process Assessments

    The visit will be most efficient if the family
    intervention coordinator gathers
    beforehand as much of the following
    information as possible:

    n Roster of FPE staff (roles and full-time
    equivalents [FTEs]);

    n Number of consumers the agency serves;

    n Number of consumers actively receiving
    FPE;

    n Number of consumers and families
    who have attended:

    Three or more joining sessions;

    Educational workshop; and

    Each multifamily group;

    n Number of consumers served through
    the FPE program in the past 6 months;

    n Number of consumers who have
    dropped out of the FPE program in the
    past 6 months;

    n A copy of the agency’s brochure or
    mission statement for the FPE program;

    n A copy of the policies, procedures, and
    forms used to identify consumers for
    FPE;

    n A copy of the policies, procedures, and
    forms used with consumers in the FPE
    program for assessment and treatment
    planning;

    n A copy of the curriculum used in the
    educational workshop;

    n A copy of the curriculum used to train
    agency staff on the evidence-based
    model; and

    n A copy of the agency’s quality assurance
    procedures, specifically a list of process
    and outcome measures used to evaluate
    the FPE program.

    Reassure the family intervention
    coordinator that you will be able to
    conduct the assessment, even if all of the
    requested information is unavailable.
    Indicate that some information is more
    critical (for example, number of FPE
    practitioners and number of consumers in
    the FPE program) than other information.

    Tell the contact person that you must
    observe a planning meeting, a group
    supervision meeting, and a multifamily
    group session during your visit. These are
    important factors in determining when you
    should schedule your visit.

    Observing an FPE multifamily group
    is integral to the assessment process.
    If observing a multifamily group session
    is impossible during your visit, arrange to
    have the sessions videotaped before your
    site visit.

    n n n Alert your contact person that you will
    need to sample 10 charts

    From an efficiency standpoint, it is
    preferable that the charts be drawn
    beforehand, using a random selection
    procedure. There may be a concern that
    the evaluation may be invalidated if FPE
    practitioners handpick charts or update
    them before the visit. If you both
    understand that the goal is to learn how
    the program is implementing services,
    this is less likely to occur.

    Additionally, you can further ensure
    random selection by asking for 20 charts
    and randomly selecting 10 to review.
    Other options include asking for a de-
    identified list (i.e., with names removed)
    of consumers who receive FPE and using
    the list to choose 10 charts to review.

    Conduct Process Assessments 10 Evaluating Your Program

    If the program only has one FPE
    practitioner with fewer than 10 consumers
    on its caseload, then review the charts for
    all consumers in the program.

    n n n Clarify reporting procedures

    With the appropriate people (agency
    administrators, the mental health authority,
    or the family intervention coordinator),
    clarify who should receive a report of the
    assessment results. Recipients may include
    the following:

    n Agency administrators;

    n Members of the agency’s quality
    assurance team;

    n Members of the FPE Advisory
    Committee;

    n The family intervention coordinator;

    n FPE practitioners; and

    n Consumers and families.

    Assessors should also clarify how the
    agency would like the report to be
    distributed. For example, assessors may
    mail or fax the report and follow up to
    discuss the results in a meeting or by
    conference call.

    n n n Organize your assessment materials

    Four forms have been created to help you
    conduct your assessment:

    n The first form is a cover sheet for
    the FPE Fidelity Scale and General
    Organizational Index, which is
    intended to help you organize your
    process assessment. It captures general
    descriptive information about the
    agency, data collection, and community
    characteristics.

    n The second form is a designed to help
    you collect data on two FPE fidelity
    items (Items 11 and 12). Complete this
    form to record information collected

    during your observation of FPE
    multifamily group sessions.

    n The third and fourth forms are
    scoresheets for the two scales. They
    help you compare assessment ratings
    from one time period to the next. They
    may also be useful if you are interested
    in graphing results to examine your
    progress over time.

    For the FPE Fidelity Scale and General
    Organizational Index instruments, cover
    sheet, checklist, and scoresheets, see
    Appendices A, B, C and E. You can also
    print these forms from the CD-ROM in
    the KIT.

    During your assessment visit

    n n n Tailor your terminology

    To avoid confusion during your interviews,
    tailor your terminology. For example, an
    FPE program may use client instead of
    consumer or it may use clinician instead of
    practitioner. Every agency has specific job
    titles for particular staff roles. By adopting
    the local terminology, you will
    improve communication.

    n n n Conduct your chart review

    It is important that you conduct your chart
    review from a representative sample of
    charts. When you begin your chart review,
    note whether your sample reflects families
    of consumers in different stages of the
    educational process. You should also note
    whether your sample includes consumer
    charts from each FPE practitioners’
    caseload. Selecting charts of consumers
    who have received at least five FPE
    sessions is preferred. If your random
    sample is not representative in this
    manner, consider supplementing your
    sample with selected charts that will
    increase its representativeness.

    Evaluating Your Program 11 Conduct Process Assessments

    Within each chart, examine the screening,
    referral, assessment, and treatment
    planning forms. Review recent Progress
    Notes to understand the amount and type
    of contact that FPE practitioners have with
    the consumers on their caseloads and with
    their treatment team members. If Progress
    Notes are not integrated into consumer
    charts, then ask if FPE practitioners have
    any additional files that you may review.

    In some cases, a lag may exist between
    when a service is given and when it is
    documented in the consumer’s chart.
    To get the most accurate representation
    of services rendered when you sample
    chart data, try to gather data from the
    most recent time period in which
    documentation is completed in full.

    To ascertain the most up-to-date time
    period, ask the family intervention
    coordinator, FPE practitioners, or
    administrative staff. Avoid getting an
    inaccurate sampling of data where office-
    based services might be charted more
    quickly than services given in the field.

    n n n If discrepancies between sources occur,
    query the family intervention coordinator

    The general strategy in conducting fidelity
    assessments is to obtain data from as many
    sources as possible. When all these data
    sources converge, you can be more
    confident in the validity of the ratings.
    However, sometimes sources disagree.

    The most common discrepancy is likely
    to occur when the family intervention
    coordinator’s interview gives a more
    idealistic picture of the team’s functioning
    than the chart and observational data do.
    For example, on the FPE Fidelity Scale,
    Assertive engagement and outreach (Item
    14) assesses whether FPE practitioners
    assertively engage all potential consumers
    and family members in the FPE program.

    The chart review may show that consumers
    who drop out of the program are not
    contacted, while the family intervention
    coordinator may indicate that FPE
    practitioners expend considerable time
    reaching out to consumers who have
    disengaged from the program.

    To understand and resolve this
    discrepancy, the assessor should ask
    the family intervention coordinator
    the following:

    Our chart review shows 10 percent of
    consumers who disengage are contacted,
    but your estimate is much higher. Would
    you help us understand the difference?

    Often the family intervention coordinator
    can provide information that will resolve
    the discrepancy.

    n n n Before you leave, check for missing data

    Fidelity scales should be completed in full,
    with no missing data on any items. Check
    in with the family intervention coordinator
    at the end of the visit to collect any
    additional information you may need.

    Conduct Process Assessments 12 Evaluating Your Program

    After your assessment visit

    n n n Followup

    It is important to collect any missing data
    before completing your rating. If necessary,
    follow up on any missing data (for example,
    by calling or sending an e-mail). This
    would include discussing with the family
    intervention coordinator any discrepancies
    between data sources that you notice after
    you’ve completed the visit.

    n n n Score the scales

    The purpose of the scale is to assess fidelity
    to the evidence-based practice at the
    program level, rather than at the level of
    a specific practitioner. Ratings are based
    on current behavior and activities, not
    on planned or intended behavior. For
    example, to get full credit (to code the
    item as “5”) for Family intervention
    coordinator (Item 1), the program must
    have a designated staff member fulfilling
    the tasks of this position. If the agency
    plans to hire personnel to fill the position,
    it would not receive credit. If you assess
    an agency for the first time to determine
    which components of the evidence-based
    model the agency already has in place,
    some items may not apply.

    Many agencies that are developing a new
    FPE program will receive low fidelity
    ratings on items for which the agency
    has not yet formulated its policies and
    procedures. For example, several items
    are based on evaluating services that are

    provided by designated trained FPE
    practitioners. Agencies that have not yet
    hired or assigned and trained FPE
    practitioners, identified consumers and
    families, offered an FPE 1-day educational
    workshop, or started an FPE multifamily
    group cannot be rated for these items.
    If an item cannot be rated, code the item
    as “1.”

    To receive full credit, many items require
    that the family intervention coordinator
    and practitioners both understand and
    apply the evidence-based practice principle.
    If FPE practitioners generally do not
    understand the concepts, then code that
    item as “1.” If they understand parts of
    the concept and apply the understanding
    consistently, code the item as “3.” To
    receive full credit, there must be evidence
    that the concepts are applied consistently.

    For a complete explanation of how to rate
    each item, see the FPE Fidelity Scale
    Protocol and General Organizational Index
    Protocols in Appendices D and F.

    n n n Complete scales independently

    If you have two assessors, both should
    independently review the data collected and
    rate the scales. They should then compare
    their ratings, resolve any disagreements,
    and devise a consensus rating.

    n n n Complete the scoresheets

    Tally the item scores and determine
    the level of implementation achieved.

    Evaluating Your Program 13 Monitor Outcomes

    Evaluating Your Program

    Monitor Outcomes

    Unlike process measures, which must be
    used in full to comprehensively understand
    how services are provided, you must
    decide which outcome measures will be
    most informative for your program.
    Initially, your outcomes monitoring system
    should be simple to use and maintain.
    Complexity has doomed many well-
    intended attempts to collect and use
    outcomes data.

    One way to simplify is to limit the number
    of outcome measures. Select your outcome
    measures based on the

    type of information that will be most useful
    to your agency. Based on the research
    literature, we suggest that you monitor a
    core set of outcomes such as the following:

    n Relapse and hospitalization;

    n Family well-being;

    n Participation in

    Supported Employment

    or vocational rehabilitation;

    n Employment rates; and

    n Cost of care.

    Monitor Outcomes 14 Evaluating Your Program

    These few outcomes reflect the primary goals
    of FPE. Specifically, the goal of FPE is to help
    consumers move forward in the process of
    recovering from mental illnesses and pursuing
    meaningful life goals. For this reason, it is
    important for you to capture outcomes for recovery
    in a way that is most useful for your program.

    For data to be useful, they must be valid. That is,
    the data must measure what they are supposed
    to measure. Thus, the outcomes must be few and
    concrete for FPE practitioners to focus on key
    outcomes, to understand them in a similar way,
    and to make their ratings in a consistent and error-
    free fashion.

    To enhance validity, we recommend using simple
    ratings initially. Limiting your outcome measures
    to concrete measures will also allow you to collect
    data from FPE practitioners.

    Develop procedures

    Agencies may choose either to develop the outcomes
    portion of their quality assurance system from
    scratch or to use existing outcomes monitoring
    systems. A number of electronic evaluation
    programs are available to help you develop
    comprehensive, integrated, user-friendly outcome
    monitoring systems. Examples include the following:

    n Publicly available tools such as the Consumer
    Outcomes Monitoring Package (see box
    below), the Decision Support 2000+ Online
    (http://www.ds2kplus.org); or

    n Various commercially available products.

  • What Is the Consumer Outcomes Monitoring Package?
  • Sponsored in part by the Substance Abuse and
    Mental Health Services Administration (SAMHSA),
    the Consumer Outcomes Monitoring Package
    (COMP) was designed by a team at the School of
    Social Welfare, University of Kansas. This computer
    application allows agencies to choose from a pre-
    established list of outcomes developed for each
    evidence-based practice. Data may be entered
    for the chosen outcomes, and reports can be
    generated quarterly or monthly. The COMP also
    allows agencies to view their outcomes data using
    a variety of tables and graphs.

    The designers of COMP tried to make the
    computer application as easy and as flexible

    to use as possible. You may access COMP through
    the Web. Agencies can download the computer
    application and print out Installation Instructions
    and a User Manual, which provides definitions
    and forms.

    To download COMP

    n Go to http://research.socwel.ku.edu/ebp.

    n Click on the link to the download page.

    n Click on the links to download the Installation
    Instructions and User Manual.

    n Follow the instructions to install the application.

    http://www.ds2kplus.org

    http://research.socwel.ku.edu/ebp

    Evaluating Your Program 15 Monitor Outcomes

    When deciding whether to use an existing
    outcomes monitoring package or to design your
    own, it is important to keep your agency’s
    capabilities in mind. The system must not create
    undue burden for FPE practitioners, and it must
    give them information that is useful in their jobs.

    The system should fit into the workflow of the
    agency, whether that means making ratings on
    paper, using the COMP computer application, or
    developing your own outcomes monitoring package.

    Start with whatever means are available and expand
    the system from there. In the beginning, you may
    collect data with a simple report form and you can
    report hand-tallied summaries to FPE practitioners.

    Computer software that allows for data entry
    and manipulation (for example, Microsoft Access,
    Excel, and Lotus) makes tabulating data and
    graphing easier than doing them by hand. A
    computerized system for data entry and report
    generation presents a clear advantage and it may
    be the goal, but do not wait for it. Feedback does
    not have to come from a sophisticated computer
    system to be useful. It is more important that it is
    meaningful and frequent. For a sample Outcomes
    Report Form, see Appendix G, which is an
    example of a simple, paper-based way to collect
    participation and outcomes data regularly. For
    instructions for using the Outcomes Report Form,
    see Appendix H.

  • Expanding Your Outcome Measures
  • Once you have established your core outcomes
    monitoring system, have learned how to routinely
    collect data, and are accustomed to using it to
    improve your FPE program, you will be ready
    to expand your outcomes measures.

    Consider asking consumers and families for input
    about how to improve your FPE program, both
    practically and clinically. Consumers and families are
    important informants for agencies that are seeking
    to improve outcomes. Agencies may want to know
    the following:

    n If consumers and families are satisfied with their
    services;

    n How services have affected their quality of life;
    and

    n Whether consumers believe the services are
    helping them achieve their recovery goals.

    While collecting data from consumers and families
    requires more staff time than the information that
    may be reported quickly by FPE practitioners,
    consumers and families can give valuable feedback.

    We recommend the following surveys for collecting
    information from consumers and families:

    n The Mental Health Statistics Improvement
    Program (MHSIP) Consumer Satisfaction Survey
    at http://www.mhsip.org

    n Recovery measurement instruments such as
    those described in Measuring the Promise: A
    Compendium of Recovery Measures, Volume II,
    available through http://www.tecathsri.org

    It is difficult to get a representative sample
    of consumer and family respondents since
    mailed surveys are often not returned and
    interviews may only be done with people who
    are cooperative and easy to reach. Samples that
    are not representative may be biased.

    Avoid bias in your consumer and family data by
    using a variety of mechanisms to conduct your
    assessments. For example, consider combining
    feedback collected through surveys with that
    obtained from focus groups. Another option is to
    hire a consultant to conduct qualitative interviews
    with a small group of consumers or families.

    http://www.mhsip.org

    http://www.tecathsri.org

    Monitor Outcomes 16 Evaluating Your Program

    How often should you collect
    outcomes data?

    Plan to monitor the outcomes for consumers in
    your FPE program every 3 months and share the
    data with program staff. Collecting data at regular
    and short intervals will enhance the reliability of
    your outcomes data.

    While we recommend that you design a system for
    collecting outcomes early in the implementation
    process, FPE programs should not expect to see
    the desired results until the program is fully
    operational. Depending on resources available to
    your program, this may take anywhere from 6 to 18
    months to accomplish.

    How should you identify data collectors?

    Agency administrators or mental health authorities
    may assign the responsibility for collecting
    outcomes data to the following:

    n The family intervention coordinator;

    n Members of the FPE Advisory Committee;

    n The quality assurance team;

    n Independent consultants, including consumers
    and family members; and

    n Other staff.

    Unlike collecting process measures, collecting
    outcome measures does not require a day-long
    assessment process. Many standard outcome
    measures will be information that FPE
    practitioners can report from their daily work
    with consumers.

    It is important to develop a quick, easy, standardized
    approach to collect outcomes data. For example,
    create a simple form or computer database that
    FPE practitioners can routinely update.

    Evaluating Your Program 17 Use Data to Improve Your Program

    Evaluating Your Program

    Use Data to Improve Your Program

    As you develop a quality assurance system,
    family intervention coordinators and FPE
    practitioners will weave it into the fabric
    of their daily routines. Process assessments
    will give you a window into the demanding
    work done every day. Outcome reports will
    give you tangible evidence of the use and
    value of services, and they will become a
    basis for decisionmaking and supervision.

    At some point, your program staff may
    wonder how they did their jobs without
    an information system. They will come to
    view it as an essential ingredient of well-
    implemented evidence-based practices.

    Use Data to Improve Your Program 18 Evaluating Your Program

    n n n Create reports from your assessments

    For your process data, in addition to
    completing the FPE Fidelity Scale,
    General Organizational Index, and
    scoresheets, assessors should write a report
    explaining their scores. The report should
    include the following:

    n An interpretation of the results of the
    assessment;

    n Strengths and weaknesses of the FPE
    program; and

    n Clear recommendations to help the
    program improve.

    The report should be informative, factual,
    and constructive. Since some process
    measures assess adherence to the
    evidence-based model at both the agency
    and program staff levels, remember
    to target recommendations to
    administrators, the family intervention
    coordinator, and FPE practitioners.

    When summarizing outcomes data, start
    with simple, easy-to-read reports. Then let
    experience determine what additional
    reports you need. You can design your
    reports to give information about individual
    consumers, a single FPE practitioner’s
    caseload, or the program as a whole. For
    example, reports generated for individual
    consumers may track the consumer’s
    participation in specific stages of treatment
    and outcomes over time. You could enter
    these reports in consumers’ charts, and they
    could be the basis for discussions about
    consumers’ progress.

    n n n Use tables and graphs to understand
    your outcomes data

    After the first process and outcomes
    assessments, it is often useful to provide
    a visual representation of a program’s
    progress over time. We recommend that
    you use tables and graphs to help
    understand and report the results.

    By graphing your fidelity score, you have a
    visual representation of how your program
    has changed over time. For an example, see
    Figure 1. For your process data, you may
    simply graph the results using a spreadsheet
    and include this in your report.

    When your program shows greater fidelity
    over time, the graph will display it and
    reinforce your efforts. Additionally, as you
    can see in Figure 1, the graph allows you
    to quickly compare one team to another.
    In this example, Team A struggled in the
    first 6 months. Understanding Team A’s
    progress compared to Team B’s allowed
    the teams to partner and share strategies.
    Consequently, Team A improved
    dramatically over the next 6-month period.

    Another feature of graphing assessment
    scores is to examine the cut-off scores for
    fair (52) or good (62) implementation. Your
    program can use these scores as targets.

    Evaluating Your Program 19 Use Data to Improve Your Program

    Figure 1. Fidelity Over Time

    70

    80

    90

    100

    1

    10

    120

    130

    140






    ■▲

    Team A

    Team B

    Date of Assessment

    Feb Apr Jun Aug Oct Dec Feb Apr Jun Aug Oct
    2006

    2007

    Note: 62 – 70 = good implementation

    52 – 61 = fair implementation

    51 and below = not evidence-based practice

    Here are three examples of tables and graphs
    that can help you understand and use your
    outcomes data.

    Example 1: Periodic summary tables

    Periodic summary tables summarize your
    outcomes data each quarter and address these
    kinds of questions:

    n How many consumers participated in our FPE
    program during the last quarter?

    n What proportion of consumers in our FPE
    program were hospitalized last quarter?

    n How did the hospitalization rate for those
    participating in FPE compare to the rate for
    consumers in standard treatment?

    Agencies often use this type of table to understand
    consumer participation or to compare actual
    results with agency targets or goals. These tables
    are also frequently used to describe agencies’

    services in annual reports or for external
    community presentations.

    Table 1: Sample Periodic Summary Table of Enrollment
    in Evidence-Based Practices

    Not
    eligible

    Eligible but
    NOT in EBP
    service

    Enrolled Percent
    of eligible
    consumers
    enrolled

    Family
    Psychoeducation

    0 30 60 67%

    Assertive
    Community
    Treatment

    30 25 90 78%

    This agency provided both Family Psychoeducation
    (FPE) and Assertive Community Treatment (ACT).
    The FPE staff identified 90 consumers for the
    program. Of those, 60 received FPE, while 30
    consumers were eligible but received another
    service. Consequently, 67 percent of consumers
    who were eligible for the FPE program participated
    in the program.

    Use Data to Improve Your Program 20 Evaluating Your Program

    Example 2: Movement tables

    Tables that track changes in consumer
    characteristics (called movement tables) can give
    you a quick reference for determining service
    effectiveness. For example, Table 2 compares
    consumers’ residential status between two quarters.

    Table 2: Sample Movement Table

    To FY ’06 Qtr 3

    From:
    FY ‘06
    Qtr:

    2

    Institutional Substantial
    care

    Semi-
    independant

    Independant Total

    Institutional 2 1 1 3 7

    Substantial care 3 8 1 3 15

    Semi-
    independant 1 0 2 4 7

    Independant 1 3 2 100 10

    6

    Total 7 12 6 110 135

    To create this table, the data were collapsed into
    the four broad categories. The vertical data cells
    reflect the residential status for consumers for
    the beginning quarter. The horizontal data cells
    reflect the most recent quarterly information.
    The residential status categories are then ordered
    from the most restrictive setting (institutional)
    to the least restrictive (independent).

    The data in this table are presented in three colors.
    The purple cells are those above the diagonal, the
    blue cells are those below the diagonal, and the
    white cells are those within the diagonal. The data
    cells above the diagonal represent consumers who
    moved into a less restrictive environment between
    quarters. As you can see, one consumer moved
    from institutional to substantial care, one to semi-
    independent care, and three to independent living.
    Furthermore, one consumer moved from

    Above the diagonal

    Below the diagonal

    Within the diagonal

    substantial care to semi-independent care, three
    consumers moved from substantial care to
    independent care and four consumers moved
    from semi-independent care to independent care.
    These 13 consumers (10 percent of the 135
    consumers in the program) moved to a more
    desirable stage of treatment between quarters.

    The data reported in the diagonal cells ranging
    from the upper left quadrant to the lower right
    reflect consumers who remained in the same
    residential status between quarters. Two
    consumers were in an institution for both quarters
    of this report; eight remained in substantial care,
    two in semi-independent and 100 in independent
    living. These 112 consumers (83 percent of the 135
    consumers in the program) remained stable
    between quarters.

    Evaluating Your Program 21 Use Data to Improve Your Program

    The cells below the diagonal line represent
    consumers who moved into a more restrictive
    setting between quarters. Three consumers moved
    from substantial to institutional care, one consumer
    moved from semi-independent care to institutional
    care, one consumer moved from independent
    living to institutional care, three moved from
    independent living to substantial care, and
    two moved from independent living to semi-
    independent care. These 10 consumers (7 percent
    of the 135 consumers in the program) experienced
    some setbacks between quarters. The column
    totals show the number of consumers in a given
    residential status for the current quarter, and the
    row totals show the prior quarter.

    You can use movement tables to portray changes
    in outcomes that are important to consumers,
    supervisors, and policymakers. The data may
    stimulate discussion about the progress that
    consumers are making or the challenges with
    which they are presented.

    Example 3: Longitudinal plots

    A longitudinal plot is an efficient and informative
    way to display participation or outcomes data for
    more than two successive periods. The goal is to
    view performance in the long term. You can use
    a longitudinal plot for a consumer, a caseload,
    a specific evidence-based practice, or an entire
    program. A single plot can also contain longitudinal
    data for multiple consumers, caseloads, or programs
    for comparison. Figure 2 presents an example of a
    longitudinal plot comparing critical incidents for one
    FPE program over an 11-month period.

    This plot reveals that with the exception of private
    psychiatric hospitalizations, all other critical
    incidents appear to be going in a positive direction
    (that is, there is a reduction in incidence).

    Longitudinal plots are powerful feedback tools
    because they permit a longer range perspective
    on participation and outcome, whether for a single

    consumer or a group of consumers. They enable a
    meaningful evaluation of the success of a program,
    and they provide a basis for setting goals for future
    performance.

    n n n Share your results

    The single factor that will most likely
    determine the success of a quality
    assurance system is its ability to give useful
    and timely feedback to key stakeholders.
    It is fine to worry about what to enter into
    a system, but ultimately its worth is in
    converting data into meaningful
    information. For example, data may show
    that 20 consumers were homeless during
    the past quarter, but it is more informative
    to know that this represents 10 percent
    of the consumers in the FPE program.

    For information to influence practice, it
    must be understandable and meaningful,
    and it must be delivered in a timely way.

    Figure 2. Sample Longitudinal Plot for Monthly Frequency
    of Negative Incidents for Consumers









    ▲ ▲










    ◆◆





    ■■






    ■◆ ◆

    Homeless

    Incarcerated

    In-Patient substance abuse

    Priv. Psych. Hosp.


    Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov

    2007

    16

    1

    4

    12

    10

    8

    6
    4
    2
    0

    Use Data to Improve Your Program 22 Evaluating Your Program

    In addition, the quality assurance system
    must tailor the information to suit the
    needs of various users and to answer
    their questions.

    Sharing results with FPE practitioners

    After each assessment, dedicate time
    during a supervisory meeting to discuss
    the results. Numbers that reflect above
    average or exceptional performance should
    trigger recognition, compliments, or other
    rewards. Data that reflect below average
    performance should evoke a search for
    underlying reasons and should generate
    strategies that offer the promise of
    improvement. By doing this regularly, the
    family intervention coordinator will create
    a learning organization characterized by
    adaptive responses to information that aim
    to improve consumer outcomes.

    Sharing results with your FPE Advisory
    Committee or quality assurance team

    You may also use this information to keep
    external stakeholders engaged. Sharing
    information with vested members of the
    community, staff from your mental health
    authority, and consumers and family
    advocates can be valuable. Through these
    channels, you may develop support for
    the FPE program, increase consumer
    participation, and raise private funds
    for your agency.

    Sharing results internally

    Agencies may distribute reports during
    all staff and manager-level meetings to
    keep staff across the agency informed and
    engaged in the process of implementing
    your FPE program. Agencies with
    successful FPE programs highlight the
    importance of developing an
    understanding and support for the
    evidence-based model across the agency.

    Additionally, integrating consumer-specific
    reports into clinical charts may help you
    monitor consumers’ progress over time.
    Reporting consumer-specific outcomes
    information at the treatment team meetings
    also helps keep the team focused on
    consumers’ goals.

    Sharing results with consumers
    and families

    Agencies may highlight assessment results
    in consumer and family meetings.
    Increasing consumers’ and families’
    understanding of the FPE program may
    motivate them to participate in the
    treatment process and build trust in the
    consumer-provider relationship.

    Also, sharing results may create hope
    and enthusiasm for your FPE program.
    Sharing information motivates people and
    stimulates changes in behavior. Sharing the
    results of your assessments with a variety
    of stakeholders is the key to improving
    your program.

    Evaluating Your Program 23 Appendix A: Cover Sheet

    Evaluating Your Program

    Appendix A: Cover Sheet—

    Family Psychoeducation Fidelity Scale

    and General Organizational Index

    Evaluating Your Program 25 Appendix A: Cover Sheet

    Cover Sheet: Family Psychoeducation Fidelity Scale
    and General Organizational Index

    Today’s date

    Assessors’ names

    Program name (or Program code)

    Agency name

    Agency address
    Street

    City State ZIP code

    Family intervention coordinator or contact person

    Names of FPE practitioners

    Telephone E-mail

    Sources used for assessments: q Chart review: Number reviewed
    q FPE multifamily group observation

    q Planning and supervisory meeting observation
    q Family intervention coordinator interview
    q FPE practitioner interviews Number interviewed
    q Consumer interviews Number interviewed
    q Family member interviews Number interviewed
    q Other staff interviews Number interviewed
    q Brochure review
    q Other

    Number of FPE practitioners

    Number of consumers/families in the program

    Number of consumers/families who left the program in the past 6 months

    Number of consumers/families served in the past 6 months

    Funding source

    Agency location: q Urban
    q Rural

    Date program was started

    ( ) –

    / /

    / /

    Evaluating Your Program 27 Appendix B: Checklist

    Evaluating Your Program

    Appendix B: Checklist—
    Observation of Multifamily Group Sessions

    Evaluating Your Program 29 Appendix B: Checklist

    Checklist—Observation of Multifamily Group Sessions

    Today’s date
    Assessors’ names

    Program name (or Program code)
    Agency name
    Agency address
    Street

    City State ZIP code

    Names of FPE practitioners

    Number of consumer participants

    Number of family participants

    Frequency of sessions

    Item 11. Structured Group Sessions

    Yes No

    1. Beginning socialization q q
    2. Review progress from last session’s action plan q q
    3. Go-round q q
    4. Selection of a single problem q q
    5. Structured problem-solving q q
    6. End with socialization q q

    Rating

    Item 12. Structured Problem-Solving Technique

    Yes No

    1. Define the problem

    2. Generate solutions

    q q
    q q

    3. Discuss advantages and disadvantages of each solution

    4. Choose the best solution

    q q
    q q

    5. Form an action plan

    6. Review the action plan

    q q
    q q

    Rating
    / /

    Evaluating Your Program 31 Appendix C: Fidelity Scale and Score Sheet

    Evaluating Your Program

    Appendix C: Family Psychoeducation Fidelity Scale
    and Score Sheet

    Evaluating Your Program 33 Appendix C: Fidelity Scale and Score Sheet

    Family Psychoeducation Fidelity Scale

    Criteria

    Ratings / Anchors

    1 2 3 4 5

    1. Family intervention coordinator:

    Designated clinical administrator
    who performs the following tasks:

    n Establishes, monitors, and
    automates family intake and
    engagement procedures

    n Assigns potential FPE
    consumers to FPE practitioners

    n Monitors and adjusts FPE
    practitioner caseloads

    n Arranges for training new FPE
    practitioners and continuing
    education of existing FPE staff

    n Supervises FPE staff

    Agency does not
    have a designated
    staff member

    OR

    Cannot rate due
    to no fit.

    Agency has a
    designated staff
    member who
    performs 1 or 2
    of the tasks.

    Agency has a
    designated staff
    member who
    performs 3 of
    the tasks.

    Agency has a
    designated staff
    member who
    performs 4 of
    the tasks.

    Agency has a
    designated staff
    member who
    performs all tasks.

    2. Session frequency:

    Families and consumers
    participate biweekly in FPE
    sessions.

    < Every 3 months

    OR
    Cannot rate due
    to no fit.

    Every 3 months Every 2 months Monthly At least twice
    a month

    3. Long-term FPE:

    Families and consumers are
    provided with long-term
    FPE; specifically, at least one
    family member per consumer
    participates in FPE sessions for
    at least 9 months.

    Most families and
    consumers receive
    less than 6 months
    of FPE sessions

    OR
    Cannot rate due
    to no fit.

    Most families and
    consumers receive
    6–7 months of FPE
    sessions.

    Most families and
    consumers receive
    7–8 months of FPE
    sessions.

    Most families and
    consumers receive
    8–9 months of FPE
    sessions.

    More than 90%
    of families and
    consumers receive
    at least 9 months
    of FPE sessions.

    4. Quality of practitioner-
    consumer-family alliance

    FPE practitioners engage family
    members and consumers with
    warmth, empathy, acceptance,
    and attention to each individual’s
    needs and desires.

    High dropout rate

    OR

    Cannot rate due
    to no fit.

    Sources indicate
    that alliance is often
    poor, leading to high
    dropout rate.

    MSources indicate
    alliance is
    inconsistent or barely
    adequate, leading to
    moderate dropout
    rate,

    OR

    Information is
    inconsistent

    Sources indicate a
    fairly strong alliance.

    Sources consistently
    indicate a strong
    alliance.

    5. Detailed family reaction:

    FPE practitioners identify and
    specify the family’s reaction to
    their relative’s mental illnesses.

    There is consistent
    evidence for less
    than 33% of
    involved families.

    There is consistent
    evidence for
    33–49% of involved
    families.

    There is consistent
    evidence for
    50–64% of involved
    families.

    There is consistent
    evidence for
    65–79% of involved
    families.

    There is consistent
    evidence for 80%
    or more of involved
    families.

    6. Precipitating factors:

    FPE practitioners, consumers,
    and families identify and specify
    precipitating factors for the
    consumers’ mental illnesses.

    There is consistent
    evidence for less
    than 33% of
    involved families
    and consumers.

    There is consistent
    evidence for 33-49%
    of involved families
    and consumers.

    There is consistent
    evidence for
    50–64% of involved
    families and
    consumers.

    There is consistent
    evidence for
    65–79% of involved
    families and
    consumers.

    There is consistent
    evidence for 80%
    or more of involved
    families and
    consumers.

    7. Prodromal signs
    and symptoms:

    FPE practitioners, consumers,
    and families identify and specify
    prodromal signs and symptoms
    of the consumer’s mental illnesses.

    There is consistent
    evidence for less
    than 33% of
    involved families and
    consumers.

    There is consistent
    evidence for
    33–49% of involved
    families and
    consumers.

    There is consistent
    evidence for
    50–64% of involved
    families and
    consumers.
    There is consistent
    evidence for
    65–79% of involved
    families and
    consumers.

    There is consistent
    evidence for 80%
    or more of involved
    families and
    consumers.

    Appendix C: Fidelity Scale and Score Sheet 34 Evaluating Your Program

    Family Psychoeducation Fidelity Scale

    Criteria
    Ratings / Anchors
    1 2 3 4 5

    8. Coping strategies:

    FPE practitioners identify,
    describe, clarify, and teach coping
    strategies.

    There is consistent
    evidence for less
    than 33% of
    involved families and
    consumers.

    There is consistent
    evidence for
    33–49% of involved
    families and
    consumers.

    There is consistent
    evidence for
    50–64% of involved
    families and
    consumers.
    There is consistent
    evidence for
    65–79% of involved
    families and
    consumers.
    There is consistent
    evidence for 80%
    or more of involved
    families and
    consumers.

    9. Educational curriculum:

    FPE practitioners use a
    standardized curriculum to teach
    families about mental illnesses.
    The curriculum covers six topics:

    n Psychobiology of the specific
    mental illness;

    n Diagnosis;

    n Treatment and rehabilitation;

    n Impact of mental illness
    on the family;

    n Relapse prevention; and

    n Family guidelines.

    Less than 33%
    of involved
    families receive
    a standardized
    educational
    curriculum, no
    standardized
    educational
    curriculum exists,

    OR

    Only 1–2 topics
    are covered

    33–49% of involved
    families receive
    a standardized
    educational
    curriculum covering
    all 6 topics

    OR

    Only 3 topics
    are covered.

    50–64% of involved
    families receive
    a standardized
    educational
    curriculum covering
    all 6 topics

    OR

    Only 4–5 topics
    are covered.

    65–79% of involved
    families receive
    a standardized
    educational
    curriculum covering
    all 6 topics.

    80% or more
    of involved
    families receive
    a standardized
    educational
    curriculum covering
    all 6 topics.

    10. Multimedia education:

    Consumers and family members
    are given educational materials
    about mental illnesses in several
    formats (for example, paper,
    video, and Web sites).

    Less than 33%
    of families and
    consumers receive
    educational materials

    OR
    Cannot rate due
    to no fit.

    33–49% of families
    and consumers
    receive educational
    materials

    OR

    Materials are given
    in only 1 format.

    50–64% of families
    and consumers
    receive educational
    materials

    OR

    Materials are given
    in only 2 formats.

    65–79% of families
    and consumers
    receive educational
    materials in all 3
    formats.

    80% or more
    of families and
    consumers receive
    educational materials
    in all 3 formats.

    11 Structured group sessions:

    FPE practitioners follow a
    structured procedure that includes
    the following:

    n Beginning socialization;

    n Review progress from last
    session’s action plan;

    n Go-round;

    n Selection of a single problem;

    n Structured problem solving;
    and

    n Ending with socialization.

    Groups include 2 or
    fewer components.

    Groups include 3 of
    the 6 components.

    Groups include 4 of
    the 6 components.

    Groups include 5 of
    the 6 components.

    Groups include all
    6 components.

    Evaluating Your Program 35 Appendix C: Fidelity Scale and Score Sheet

    Family Psychoeducation Fidelity Scale

    Criteria
    Ratings / Anchors
    1 2 3 4 5

    12. Structured problem–solving:

    FPE practitioners use a
    standardized approach to help
    consumers and families with
    problem solving, which includes
    the following:

    n Define the problem;

    n Generate solutions;

    n Discuss the advantages and
    disadvantages of each solution;

    n Choose the best solution;

    n Form an action plan; and

    n Review the action plan.

    No more than 2 of
    6 components of the
    structured problem-
    solving are used.

    3 of 6 components
    of the structured
    problem-solving
    are used.

    4 of 6 components
    of the structured
    problem-solving
    are used.

    5 of 6 components
    of the structured
    problem-solving
    are used.

    All 6 components
    of the structured
    problem-solving
    are used.

    13. Stage-wise provision
    of services:

    FPE services are provided
    in the following:

    n Engagement;

    n 3 or more joining sessions;

    n Educational workshop; and

    n Multifamily group.

    Families and
    consumers begin
    multifamily groups
    with minimal or
    no engagement,
    no joining sessions,
    or no education.

    Engagement is
    minimal and only
    1 joining session is
    completed before
    entry into the
    multifamily group.
    Education is delayed
    or absent.

    Engagement and
    2 joining sessions
    are completed
    before entry into the
    multifamily group.
    Education is delayed
    or absent.

    Most steps are
    done in order;
    however, families
    enter multifamily
    groups before 3
    joining sessions
    are completed
    or education is
    provided.

    Engagement, all
    3 joining sessions,
    and education are
    completed before
    entry into the
    multifamily group.

    14. Assertive engagement
    and outreach:

    FPE practitioners assertively
    engage all potential consumers
    and family members by phone,
    by mail, or in person (in the
    agency or in the community)
    on an ongoing basis.

    FPE practitioners do
    not engage potential
    consumers and
    family members.

    FPE practitioners
    engage potential
    consumers and
    family members
    only once as part of
    initial engagement.

    FPE practitioners
    engage potential
    consumers and
    family members
    2 times as part of
    initial engagement.

    FPE practitioners
    assertively engage
    some potential
    consumers and
    family members
    using all necessary
    means on a time-
    limited basis.

    FPE practitioners
    assertively engage all
    potential consumers
    and family members
    using all necessary
    contact means on an
    ongoing basis.

    FPE practitioners
    demonstrate
    tolerance of different
    levels of readiness
    using gentle
    encouragement.

    Appendix C: Fidelity Scale and Score Sheet 36 Evaluating Your Program

    Score Sheet: Family Psychoeducation Fidelity Scale

    Date of visit

    Agency name

    Assessors’ names

    Assessor 1 Assessor 2 Consensus

    1 Family intervention coordinator

    2 Session frequency

    3 Long-term FPE

    4 Quality of practitioner-consumer-family alliance

    5 Detailed family reaction

    6 Precipitating factors

    7 Prodromal signs and symptoms

    8 Coping strategies

    9 Educational curriculum

    10 Multimedia education

    11 Structured group sessions

    12 Structured problem-solving

    13 Stage-wise provision of services

    14 Assertive engagement and outreach

    Total score

    Items not rated

    62-70 = Good implementation

    52-61 = Fair implementation
    51 and below = Not evidence-based practice

    / /

    Evaluating Your Program 37 Appendix D: Fidelity Scale Protocol

    Evaluating Your Program

    Appendix D: Family Psychoeducation
    Fidelity Scale Protocol

    Evaluating Your Program 39 Appendix D: Fidelity Scale Protocol

    Family Psychoeducation Fidelity
    Scale Protocol

    This protocol explains how to rate each item on
    the FPE Fidelity Scale. In particular, it provides
    the following:

    n A definition and rationale for each fidelity
    item. These items have been derived from
    comprehensive, evidence-based literature.

    n A list of data sources most appropriate for
    each fidelity item (for example, chart review,
    family intervention coordinator interview, FPE
    practitioners, consumers, or families). When
    appropriate, a set of probe questions is provided
    to help you elicit the critical information
    needed to code the item. These questions
    were specifically generated to help you collect
    information from respondents that is free from
    bias such as social desirability.

    n Decision rules that will help score each item
    correctly. As you collect information from various
    sources, these rules will help you determine the
    specific rating to give for each item.

    1. Family intervention coordinator

    Definition: One clinical administrator is designated to
    oversee the FPE program for a substantial
    portion of the job (time depends on size of
    program). This person’s role includes
    activities such as the following:

    n Establishing, monitoring, and automating
    family intake and engagement
    procedures;

    n Assigning potential FPE consumers
    to FPE practitioners;

    n Monitoring and adjusting FPE
    practitioners’ caseloads;

    n Arranging for training of new staff
    and continuing education of existing
    FPE staff;

    n Supervising FPE practitioners.

    Rationale: Delivery of services to families must be
    subject to accountability and tracking. One
    effective way for agencies to monitor the
    delivery of family services is to create a
    position of family intervention coordinator,
    who would also serve as the contact person
    for FPE services, facilitate communication
    between staff and families, and supervise
    FPE practitioners.

    Sources of information: Before the site visit, determine
    whether the organization has someone who
    has a title of family intervention coordinator
    or its equivalent. During the fidelity visit,
    interview the agency director, family
    intervention coordinator, practitioners,
    consumers, and family members.

    Item response coding: The agency director and family
    intervention coordinator are the primary sources of
    information for this item. If other sources do not report
    these responsibilities performed by the coordinator, then
    fidelity assessors should follow up with the agency
    director and family intervention coordinator with
    clarifying questions and documentation (at end of the
    fidelity visit day or in follow-up call). If the program does
    not have a designated position of family intervention
    coordinator (or an equivalent), code the item as “1.”
    If the program has a designated staff member who
    performs all five tasks, code the item as “5.”

    Probe questions

    For family intervention coordinators:

    n “What is your role in the FPE program? How
    much time do you devote to this? What kinds
    of responsibilities do you have?” [Check who
    performs the tasks specified above.]

    n “Can you explain intake procedures, monitoring,
    training schedule, and supervision schedule?”

    For FPE

    practitioners:

    n “What functions does the family intervention
    coordinator perform?”

    n [Read list of five tasks listed above.] “Is anyone
    responsible for these tasks?”

    For consumers and family members: “What
    functions does [family intervention coordinator’s
    name] perform?”

    Appendix D: Fidelity Scale Protocol 40 Evaluating Your Program

    2. Session frequency

    Definition: Families and consumers participate at least
    in biweekly FPE sessions.

    Rationale: It is presumed that families benefit more if
    sessions are offered regularly and predictably.

    Sources of information: Chart review, roster of sessions,
    and interviews with family intervention
    coordinator, FPE practitioners, consumers,
    and family members.

    Item response coding: The primary evidence for coding
    this item would be attendance rosters or a calendar of
    scheduled events, if such documents exist. The
    program should have some way of documenting the
    frequency of FPE sessions. If the documentation
    suggests that the organization provides at least
    biweekly FPE sessions, code the item as “5.”

    Probe questions
    For family intervention coordinators:

    n “How often are FPE sessions held for family
    members?”

    n “Do you have attendance rosters, a calendar of
    events, or other documentation to verify this?”

    For FPE practitioners:
    n “How often are FPE sessions held for family
    members?”
    n “Do you have attendance rosters, a calendar of
    events, or other documentation to verify this?”

    For consumers and family members: “How often
    are FPE sessions held for family members?”

    3. Long-term FPE

    Definition: Families and consumers are provided with
    long-term FPE; specifically, at least one
    family member per consumer participates
    in FPE sessions for at least 9 months.

    Rationale: In general, 9 months of biweekly equivalent
    FPE sessions are required for families
    and consumers to learn the necessary
    information and problem-solving skills.
    After completing the program, families and
    consumers may also benefit from booster
    sessions or support groups.

    Sources of information: Chart review, roster of sessions,
    and interviews with the family intervention
    coordinator, FPE practitioners, consumers,
    and family members.

    Item response coding: The primary evidence for coding
    this item would be a report containing the number of
    families and consumers completing FPE and how long
    they attended, records of duration of FPE groups, or
    attendance sheets. In the absence of written records,
    the assessment will depend on interviews. Excluding
    dropouts, if there is evidence that 90 percent or less of
    families receive at least 9 months of FPE sessions,
    code the item as “5.”

    Probe questions

    For family intervention coordinators or FPE practitioners:

    n “How long do family members attend FPE
    before they graduate?”

    n “Do you have attendance rosters, a calendar of
    events, or other documentation to verify this?”

    For consumers and family members:

    n “How long have you attended FPE sessions?”

    n “How long do you intend to attend?”

    Evaluating Your Program 41 Appendix D: Fidelity Scale Protocol

    4. Quality of Practitioner-Consumer-
    Family Alliance

    Definition: FPE practitioners engage family members
    and consumers with warmth, empathy,
    acceptance, and attention to each
    individual’s needs and desires.

    Rationale: When the alliance between practitioners,
    consumers, and families is poor, family
    members and consumers are less likely to
    participate fully or at all in FPE programs
    and, as a result, are less likely to benefit
    from FPE services.

    Sources of information: Interviews with FPE
    practitioners, family members, and
    consumers. Observations of FPE sessions.

    Item response coding: The primary source for rating this
    item is direct observation. This item requires clinical
    judgment and is based on the fidelity assessor’s
    experience. Negative indicators would include
    comments in interviews, FPE sessions, or charts
    expressing judgmental or blaming attitudes. If sources
    consistently indicate a strong alliance for all FPE
    practitioners, code the item as “5.”

    Probe questions
    For FPE practitioners:

    n “How do you establish rapport or develop an
    alliance with family members and consumers?”

    n “How would you rate or describe your alliance
    with [family and consumer’s name]?” [Select one
    family and consumer with whom the practitioner
    works.]

    n “Are there any family members or consumers
    with whom you feel your relationship is
    counterproductive or poor?”

    For family members and consumers:

    n “How would you describe your relationship with
    [FPE practitioner’s name]?”

    n “Do you feel that [FPE practitioner’s name] has
    worked to establish a good relationship with you?
    What has he or she done to connect with you?
    What has he or she done that makes it more
    difficult for you to work with him or her?”

    n “What would you change about your working
    relationship with [FPE practitioner’s name] to
    make it better?”

    Appendix D: Fidelity Scale Protocol 42 Evaluating Your Program

    5. Detailed Family Reaction

    Definition: FPE practitioners identify and specify the
    family’s reaction to their relative’s mental
    illnesses. Reactions are emotional and
    behavioral responses (note the distinction
    from coping strategies in Item 8).

    Rationale: A core principle of FPE is to help family
    members achieve a basic understanding of
    serious mental illnesses as well as to resolve
    family conflict by listening and responding
    sensitively to each family’s emotional
    distress related to having a relative with
    serious mental illnesses.

    Sources of information: Chart review (especially
    treatment plan) and interviews with FPE
    practitioners, consumers, and families.

    Item response coding: If documentation in the treatment
    plan and reports by FPE practitioners, consumers, and
    families corroborate that family reactions are identified
    and specified in joining sessions for 80 percent or more
    of involved families, code the item as “5.”

    Probe questions

    For practitioners:

    n “What sorts of issues do you discuss in joining
    sessions?”

    n “Do you address how families react emotionally
    or behaviorally to their relatives’ mental illnesses?”

    n “What sorts of activities do you engage in to help
    them deal with their reactions?”

    n Using a chart for a family member seen by the
    practitioner, ask the practitioner to explain the
    specifics.

    For consumers and family members:

    n “What sorts of issues did you discuss during the
    first couple of FPE sessions?”

    n “Earlier in the FPE sessions, did you spend time
    discussing how you felt and reacted about the
    illness?”

    n “Did the practitioner lead you in activities to
    help you deal with your feelings and reactions?”

    6. Precipitating Factors

    Definition: FPE practitioners, consumers, and families
    identify and specify precipitating factors for
    consumers’ mental illnesses.

    Rationale: Exploring factors that have precipitated
    relapse in the past is a crucial step to
    developing individualized relapse
    prevention and illness management
    strategies. Involving consumers and families
    as equal partners in planning and delivering
    treatment is a core principle of FPE.

    Sources of information: Chart review (especially
    treatment plan) and interviews with FPE
    practitioners, consumers, and families.

    Item response coding: If documentation in the treatment
    plan and reports by FPE practitioners, consumers,
    and families corroborate that precipitating factors
    are identified and specified in joining sessions for 80
    percent or more of involved families and consumers,
    code the item as “5.”

    Probe questions

    For FPE practitioners:

    n “In joining sessions, do you discuss the
    precipitating factors of the illness with families
    and consumers?” [If yes, “Can you describe the
    process you use to discuss them? Can you show
    me examples?”]

    n Using a chart, ask the FPE practitioner
    to explain the specifics.

    For consumers and family members:

    n “Earlier in the FPE sessions, did the FPE
    practitioner identify precipitating factors for
    [your or your relative’s] illness?” [If yes, “Please
    give examples.”]

    n “Did you discuss how to respond to them once
    you notice these factors? Have you reviewed
    these strategies in later sessions?”

    Evaluating Your Program 43 Appendix D: Fidelity Scale Protocol

    7. Prodromal Signs and Symptoms

    Definition: FPE practitioners, consumers, and families
    identify and specify prodromal signs and
    symptoms of consumers’ mental illnesses.

    Rationale: Exploring consumers’ prodromal signs
    and symptoms is another crucial step
    to developing individualized relapse
    prevention and illness management
    strategies. Involving consumers and families
    as equal partners in planning and delivering
    treatment is a core principle of FPE.

    Sources of information: Chart review (especially
    treatment plan) and interviews with FPE
    practitioners, consumers, and families.

    Item response coding: If documentation in the treatment
    plan and reports by FPE practitioners, consumers,
    and families corroborate that prodromal signs and
    symptoms are identified and specified in joining
    sessions for 80 percent or more of involved families,
    code the item as “5.”

    Probe questions
    For FPE practitioners:

    n “In joining sessions, do you identify prodromal
    symptoms with consumers and families?”
    [If yes, “Can you describe the process you use
    to identify them? Can you give an example?”]

    n Using a chart, ask the practitioner to explain
    the specifics.

    For consumers and family members:

    n “Earlier in the FPE sessions, did the FPE
    practitioner discuss the signs that you (or your
    family member) may be becoming symptomatic?”

    n “What sorts of things were suggested in your
    sessions for recognizing the early signs and
    symptoms of the illness? Please give examples.
    Have you reviewed these suggestions in later
    sessions?”

    8. Coping Strategies

    Definition: FPE practitioners identify, describe, clarify,
    and teach coping strategies. Coping
    strategies are intentional and thoughtful
    attempts to change behavior or symptoms
    related to mental illnesses (note the
    distinction from family reactions in Item 5).

    Rationale: Exploring coping strategies that have
    and have not worked is a crucial step
    to developing individualized relapse
    prevention and illness management
    strategies. Insight into patterns of
    ineffective interactions and behaviors is
    likely to motivate consumers and families
    toward desired change.

    Sources of information: Chart review (especially
    treatment plan) and interviews with FPE
    practitioners, consumers, and families.

    Item response coding: If documentation in the treatment
    plan and reports by FPE practitioners, consumers, and
    families corroborate that practitioners help 80 percent
    or more of involved families and consumers to identify,
    describe, clarify, and learn coping strategies in joining
    sessions, code the item as “5.”

    Probe questions
    For FPE practitioners:

    n “Do you identify coping strategies with
    consumers and families?” [If yes, “Can
    you describe the process you use?”]

    n Using a chart, ask the FPE practitioner
    to explain the specifics.
    For consumers and family members:

    n “Have you discussed coping strategies?
    What sorts of things did you talk about?”

    n “Did you discuss alternative ways of coping
    with [your or your relative’s] illness?”

    Appendix D: Fidelity Scale Protocol 44 Evaluating Your Program

    9. Educational Curriculum

    Definition: FPE practitioners use a standardized
    curriculum to teach families about mental
    illnesses. The curriculum covers six topics:

    n Psychobiology of the specific
    mental illness;

    n Diagnosis;

    n Treatment and rehabilitation;

    n Impact of mental illness on the family;

    n Relapse prevention; and

    n Family guidelines.

    Rationale: Effectively teaching families new
    information and skills requires structure
    and systematically using specific evidence-
    based techniques and strategies. Therefore,
    it is critical that an FPE program has a
    standardized educational curriculum that
    specifies what is taught and how it is taught.

    Sources of information: Curriculum review, schedule
    of completed session, and interviews with
    family intervention coordinator, FPE
    practitioners, and families.

    Item response coding: If 80 percent or more of involved
    families receive a standardized educational curriculum
    covering all six topics, code the item as “5.”

    Probe questions

    For family intervention coordinators:

    n “Does your program have a standardized
    educational curriculum?” [If yes, “May I have
    a copy for review? How was it developed?”]

    n “How do you ensure that the curriculum is
    followed? Do you periodically evaluate and
    update the curriculum? Do you have a schedule
    of completed sessions and their content?”

    n Ask about each area listed above and whether
    they are included.

    For FPE practitioners:

    n “Do you use a standardized educational
    curriculum?” [If yes, “Are there any areas you
    teach differently from the curriculum?”]

    n “Do you have a schedule of completed sessions
    and their content?”

    n Ask about each area listed above and whether
    they are included.

    For family members:

    n Have you attended a 1-day educational
    workshop? [If yes, “What topics were covered?”]

    n Ask about each area listed above.

    n “Did the FPE practitioners review these
    educational topic areas with you individually or
    in a group session?”

    Evaluating Your Program 45 Appendix D: Fidelity Scale Protocol

    10. Multimedia Education

    Definition: Consumers and family members are given
    educational materials about mental illnesses
    in several formats (for example, paper,
    video, and Web sites).

    Rationale: Consumers and families benefit from
    receiving educational materials in a variety
    of formats. Some people may be more likely
    to watch a video or search a website than to
    read the same information in a document.

    Sources of information: Review of educational materials
    and interviews with the family intervention
    coordinator, FPE practitioners, and families.

    Item response coding: If educational materials are
    provided to families and consumers in all three
    formats, code the item as “5.”

    Probe questions

    For family intervention coordinators and FPE

    practitioners:

    n Ask to see the materials.

    n “Do you provide educational materials to
    families and consumers? How many families
    and consumers on your caseload or in your FPE
    program have received educational materials?”

    n “Can you give or show me examples or the
    types of materials that you give to families
    and consumers?”

    For family members and consumers:

    n What types of educational materials have
    you received through the FPE program?”
    [If they suggest only written materials have
    been provided, “Have you ever been offered
    or given videos, Web site addresses, or material
    in other formats?”

    11. Structured Group Sessions

    Definition: FPE practitioners adhere to a structured
    procedure that includes:

    n Beginning socialization;

    n Review the last session’s action plan;

    n Go-round;

    n Selection of a single problem;

    n Structured problem-solving; and

    n Ending with socialization.

    Rationale: Families and consumers benefit from
    structured sessions that follow a predictable
    pattern. FPE practitioners should establish
    a clear agenda, goals, and expectations for
    each FPE session.

    Sources of information: Observation of FPE multifamily
    group sessions and interviews with family
    intervention coordinator, FPE practitioners,
    consumers, and families.

    Item response coding: If FPE multifamily group sessions
    include all six components listed above, code the item
    as “5.”

    Probe questions

    For family intervention coordinators

    and FPE practitioners:

    n Can you describe the typical FPE multifamily
    group session?”

    For consumers and family members:

    n “Can you describe what you do at the beginning
    of each multifamily group session? In the
    middle? At the end?”

    n “Does the FPE practitioner seem to have
    a structured approach to each session?”

    n “Is it clear to you what will be accomplished
    in each session?”

    Appendix D: Fidelity Scale Protocol 46 Evaluating Your Program

    12. Structured Problem-Solving

    Definition: FPE practitioners use a standardized
    approach to help consumers and families
    with problem-solving, which includes:

    n Define the problem;

    n Generate solutions;

    n Discuss the advantages and disadvantages
    of each solution;

    n Choose the best solutions;

    n Form an action plan; and

    n Review the action plan.

    Rationale: Studies show that collaborative and
    structured problem-solving techniques
    involving setting realistic goals and priorities
    and breaking goals into small behavioral
    steps are effective in improving consumers’
    functioning and families’ coping.

    Sources of information: Observation of FPE multifamily
    group sessions and interviews with family
    intervention coordinator, FPE practitioners,
    consumers, and families.

    Item response coding: If all six components of structured
    problem-solving were used, code the item as “5.”

    Probe questions
    For family intervention coordinators and FPE
    practitioners:

    n “Do you focus on problem-solving in multifamily
    groups?” [If yes, “What strategies do you use?
    Do you follow the same process during every
    session?”]

    n Listen for the list of six components given above.
    If a component is omitted, probe for whether it
    is included.

    For the family members and consumers:

    n In the multifamily groups, do you discuss how to
    address problems that may arise?” [If yes, “What
    sorts of activities do you do in the sessions to
    work on problems you may be having? Do you
    ever generate plans of action? Is it a step-by-step
    procedure? Can you describe the steps?”]

    Evaluating Your Program 47 Appendix D: Fidelity Scale Protocol

    13. Stage-Wise Provision of Services

    Definition: FPE services are provided in the following
    order:

    1. Engagement;

    2. Three or more joining sessions;

    3. Educational workshop; and

    4. Multifamily group.

    Rationale: FPE is most effective if all components of
    the evidence-based model are followed in
    order. Effective FPE programs ensure that
    consumers and families are well informed
    about the practice, establish a strong
    working alliance, receive a standardized
    educational curriculum, and develop clear
    treatment goals before entering into the
    multifamily group.

    Sources of information: Chart review and interviews
    with family intervention coordinator, FPE
    practitioners, consumers, and families.

    Item response coding: If sources corroborate that
    engagement, joining sessions, and the educational
    workshop are completed in a step-wise manner before
    entering into the multifamily group, code the item
    as “5.”

    Probe questions
    For family intervention coordinators and FPE
    practitioners:

    n “How do you engage consumers and families
    who would benefit from FPE?”

    n “Do you provide joining sessions for consumers
    and families?” [If yes, “How many joining
    sessions has each consumer and family on your
    caseload had? What kind of topics do you cover
    in your joining sessions?”]

    n “Did you offer a 1-day educational workshop?
    When was it offered? How many consumers
    and families attended? Did all the attendees
    complete three or more joining sessions before
    participating in the workshop?”

    n “When did the multifamily group begin? Did
    all group participants complete three or more
    joining sessions and participate in the workshop
    before the group began?”

    For consumers and family members:

    n Ask if he or she has received each of the four
    services. Probe further about the timeframe
    and content of each service.

    n “Did you feel that you had a good understanding
    of FPE before the multifamily group began?”

    Appendix D: Fidelity Scale Protocol 48 Evaluating Your Program

    14. Assertive Engagement and Outreach

    Definition: FPE practitioners assertively engage all
    potential consumers and family members by
    phone, by mail, or in person (in the agency
    or in the community) on an ongoing basis.

    Rationale: All consumers and families who may benefit
    from FPE should be educated about the
    practice so that they can make informed
    decisions about participation. Effective FPE
    programs are flexible in meeting the needs
    of individual families and consumers and
    use a variety of means for reaching out to
    them. Assertive engagement and outreach
    is also crucial in overcoming barriers to
    participation such as stigma and
    hopelessness.

    Sources of information: Chart review and interviews
    with family intervention coordinator, FPE
    practitioners, consumers, and families.

    Item response coding: If FPE practitioners actively
    engage all potential consumers and family members
    through all necessary means on an ongoing basis, code
    the item as “5.”

    Probe questions
    For family intervention coordinators and FPE
    practitioners:

    n “How do you engage consumers and families
    who would benefit from FPE?”

    n “How do you engage hard-to-reach consumers
    and family members? For example, some
    consumers may not have a phone number to
    contact. Or, you may not be able to reach some
    family members during your office hours
    because they work.”

    n “What would you do if a consumer or a family
    member told you he or she was not ready
    for FPE?”

    n “What do you do with families who don’t show
    up for treatment? What about families who
    drop out of treatment? How do you engage
    or re-engage these families?”

    For consumers and family members:

    n “How did you come to participate in this FPE
    program? Did the program do a good job in
    helping you understand FPE, explore your
    expectations about the program, and make
    an informed decision about participating?”

    n “Have you ever felt discouraged or ambivalent
    about participating in FPE or stopped showing
    up for sessions?” [If yes, “What did the FPE
    practitioner do to re-engage you in FPE?”]

    n “How do you feel about the availability of
    your FPE practitioner? Do you feel that your
    practitioner actively reaches out to you?”
    [If yes, “How does he or she do so?”]

    Evaluating Your Program 49 Appendix E:

    General Organizational Index

    Evaluating Your Program

    Appendix E: General Organizational Index
    and Score Sheet

    Evaluating Your Program 51 Appendix E: General Organizational Index

    General Organizational Index
    1 2 3 4 5

    G1. Program philosophy

    Committed to clearly articulated
    philosophy consistent with specific
    evidence-based practice (EBP) model,
    based on these five sources:

    n Program leader

    n Senior staff (for example, executive
    director, psychiatrist)

    n Practitioners providing the EBP

    n Consumers and families receiving EBP

    n Written materials (for example,
    brochures)

    No more than
    1 of 5 sources
    shows clear
    understanding
    of program
    philosophy.

    OR

    All sources
    have numerous
    major areas of
    discrepancy.

    2 of 5 sources
    show clear
    understanding
    of program
    philosophy.

    OR

    All sources
    have several
    major areas of
    discrepancy.

    3 of 5 sources
    show clear
    understanding
    of program
    philosophy.

    OR

    Sources mostly
    aligned to
    program
    philosophy, but
    have 1 major area
    of discrepancy.

    4 of 5 sources
    show clear
    understanding
    of program
    philosophy.

    OR

    Sources mostly
    aligned to
    program
    philosophy,
    but have 1 or 2
    minor areas of
    discrepancy.

    All 5 sources
    show clear
    understanding
    and commitment
    to program
    philosophy for
    specific EBP.

    *G2. Eligibility or consumer

    identification

    All consumers with serious mental
    illnesses in the community support
    program, crisis consumers, and
    institutionalized consumers are screened
    to determine if they qualify for EBP
    using standardized tools or admission
    criteria consistent with EBP. Also, agency
    systematically tracks number of eligible
    consumers.

    20% of
    consumers receive
    standardized
    screening and/
    or agency
    DOES NOT
    systematically
    track eligibility.

    21–40% of
    consumers receive
    standardized
    screening
    and agency
    systematically
    tracks eligibility.

    41–60% of
    consumers receive
    standardized
    screening
    and agency
    systematically
    tracks eligibility.

    61–80% of
    consumers receive
    standardized
    screening
    and agency
    systematically
    tracks eligibility.

    >80% of
    consumers receive
    standardized
    screening
    and agency
    systematically
    tracks eligibility.

    *

    G3. Penetration

    Maximum number of eligible consumers
    served by EBP, as defined by the ratio:

    Number of consumers receiving EBP
    Number of consumers eligible for EBP

    Ratio .20 Ratio .21 – .40 Ratio .41 – .60 Ratio .61 – .80 Ratio > .80

    * These two items coded based on all consumers with serious mental illnesses at the site or sites where EBP is being implemented; all other
    items refer specifically to those receiving the EBP.

    Total number of consumers in target population

    Total number of consumers eligible for EBP % % eligible:

    Total number of consumers receiving EBP Penetration rate

    Appendix E: General Organizational Index 52 Evaluating Your Program

    1 2 3 4 5

    G4. Assessment Assessments are
    completely absent
    or completely
    non-standardized.

    Pervasive
    deficiencies in 2
    of the following:

    n Standar di zation;

    n Quality of
    assessments;

    n Timeliness; and

    n Comprehen-
    siveness.

    Pervasive
    deficiencies in 1
    of the following:

    n Standar di zation;
    n Quality of
    assessments;
    n Timeliness; and
    n Comprehen-
    siveness.

    61%-80% of
    consumers receive
    standardized,
    high-quality
    assessments at
    least annually.

    OR

    Information is
    deficient for 1
    or 2 assessment
    domains.

    More than 80%
    of consumers
    receive
    standardized,
    high-quality
    assessments, the
    information is
    comprehensive
    across all
    assessment
    domains, and it
    is updated at least
    annually.

    Full standardized assessment of all
    consumers who receive EBP services.
    Assessment includes the following:

    n History and treatment of medical,
    psychiatric, substance use disorders

    n Current stages of all existing disorders

    n Vocational history

    n Any existing support network

    n Evaluation of biopsychosocial
    risk factors

    G5. Individualized treatment plan 20% of
    consumers
    EBP serves
    have explicit
    individualized
    treatment plan,
    related to EBP,
    updated every
    3 months.

    21–40%
    of consumers
    EBP serves
    have explicit
    individualized
    treatment plan,
    related to EBP,
    updated every
    3 months.

    41–60% of
    consumers
    EBP serves
    have explicit
    individualized
    treatment plan,
    related to EBP,
    updated every
    3 months.

    OR

    Individualized
    treatment plan
    updated every
    6 months for all
    consumers.

    61–80% of
    consumers
    EBP serves
    have explicit
    individualized
    treatment plan,
    related to EBP,
    updated every
    3 months.

    More than 80%
    of consumers
    EBP serves
    have explicit
    individualized
    treatment plan
    related to EBP,
    updated every
    3 months.

    For all EBP consumers, an explicit,
    individualized treatment plan exists
    related to the EBP that is consistent with
    assessment and updated every 3 months

    G6. Individualized treatment 20% of
    consumers EBP
    serves receive
    individualized
    services meeting
    goals of EBP.

    21–40% of
    consumers EBP
    serves receive
    individualized
    services meeting
    goals of EBP.

    41–60% of
    consumers EBP
    serves receive
    individualized
    services meeting
    goals of EBP.

    61–80% of
    consumers EBP
    serves receive
    individualized
    services meeting
    goals of EBP.

    More than 80%
    of consumers EBP
    serves receive
    individualized
    services meeting
    goals of EBP.

    All EBP consumers receive individualized
    treatment meeting goals of EBP

    G7. Training 20% of program
    staff receive
    standardized
    training annually.

    21–40%
    of program
    staff receive
    standardized
    training annually.

    41–60%
    of program
    staff receive
    standardized
    training annually.

    61–80%
    of program
    staff receive
    standardized
    training annually.

    More than 80%
    of program
    staff receive
    standardized
    training annually.

    All new program staff receive
    standardized training in EBP (at least
    a 2-day workshop or equivalent) within
    2 months after hiring. Existing program
    staff receive annual refresher training
    (at least 1-day workshop or equivalent).

    G8. Supervision 20% of EBP
    practitioners
    receive
    supervision.

    21–40% of EBP
    practitioners
    receive weekly
    structured,
    consumer-
    centered
    supervision.

    OR

    All EBP
    practitioners
    receive informal
    supervision.

    41–60% of EBP
    practitioners
    receive weekly
    structured,
    consumer-
    centered
    supervision.

    OR

    All EBP
    practitioners
    receive monthly
    supervision.

    61–80% of EBP
    practitioners
    receive weekly
    structured,
    consumer-
    centered
    supervision.

    OR

    All EBP
    practitioners
    receive
    supervision 2
    times a month.

    More than
    80% of EBP
    practitioners
    receive
    structured weekly
    supervision,
    focusing
    on specific
    consumers,
    in sessions that
    explicitly address
    EBP model and
    its application.

    EBP practitioners receive structured,
    weekly supervision (group or individual
    format) from a supervisor experienced
    in particular EBP. Supervision should
    be consumer-centered and explicitly
    address EBP model and its application
    to specific consumer situations.

    Evaluating Your Program 53 Appendix E: General Organizational Index

    1 2 3 4 5

    G9. Process monitoring No attempt
    at process
    monitoring
    is made.

    Informal process
    monitoring is
    used at least
    annually.

    Process monitor-
    ing is deficient
    on 2 of these 3
    criteria:

    n Comprehen-
    sive and

    standardized;

    n Completed
    every 6
    months; and

    n Used to guide
    program
    improvements.

    OR

    Standardized
    monitoring done
    annually only.

    Process
    monitoring is
    deficient on 1 of
    these 3 criteria:

    n Comprehen-
    sive and
    standardized;
    n Completed
    every 6
    months; and
    n Used to guide
    program
    improvements.

    Standardized
    comprehensive
    process
    monitoring
    occurs at least
    every 6 months
    and is used to
    guide program
    improvements.

    Program leaders and administrators
    monitor process of implementing EBP
    every 6 months and use the data to
    improve the program. Monitoring
    involves a standardized approach, for
    example, using fidelity scale or other
    comprehensive set of process indicators.

    G10. Outcome monitoring No outcome
    monitoring
    occurs.

    Outcome
    monitoring
    occurs at least 1
    time a year, but
    results are not
    shared with EBP
    practitioners.

    Standardized
    outcome moni-
    toring occurs at
    least 1 time a
    year. Results are
    shared with EBP
    practitioners.

    Standardized
    outcome
    monitoring occurs
    at least 2 times a
    year. Results are
    shared with EBP
    practitioners.

    Standardized
    outcome
    monitoring
    occurs quarterly.
    Results are
    shared with EBP
    practitioners.

    Program leaders and administrators
    monitor outcomes for EBP consumers
    every 3 months and share data with
    EBP practitioners. Monitoring involves
    standardized approach to assessing a key
    outcome related to EBP, for example,
    psychiatric admissions, substance abuse
    treatment scale, or employment rate.

    G11. Quality Assurance (QA) No review or
    no committee.

    QA committee has
    been formed, but
    no reviews have
    been completed.

    Explicit QA review
    occurs less than
    annually.

    OR

    QA review
    is superficial.

    Explicit QA review
    occurs annually

    Explicit review
    occurs every 6
    months by QA
    group or steering
    committee for
    EBP

    Agency has QA committee or
    implementation steering committee
    with an explicit plan to review EBP
    or components of the program every
    6 months.

    G12. Consumer choice about
    service provision

    Consumer-
    centered services
    are absent
    (or practitioners
    make all EBP
    decisions).

    Few sources agree
    that type and
    frequency of EBP
    services reflect
    consumer choice

    Half of the
    sources agree
    that type and
    frequency of EBP
    services reflect
    consumer choice.

    Most sources
    agree that type
    and frequency
    of EBP services
    reflect consumer
    choice.

    OR

    Agency fully
    embraces
    consumer choice
    with 1 exception.

    All sources agree
    that type and
    frequency of EBP
    services reflect
    consumer choice.

    All consumers receiving EBP services
    are offered choices; EBP practitioners
    consider and abide by consumer
    preferences for treatment when offering
    and providing services. Score Sheet:
    General Organizational Index

    Appendix E: General Organizational Index 54 Evaluating Your Program

    Score Sheet: General Organizational Index

    Date of visit
    Agency name

    Assessors’ names

    Assessor 1 Assessor 2 Consensus

    G1 Program philosophy

    G2 Eligibility or consumer identification

    G3 Penetration

    G4 Assessment

    G5 Individualized treatment plan

    G6 Individualized treatment

    G7 Training

    G8 Supervision

    G9 Process monitoring

    G10 Outcome monitoring

    G11 Quality Assurance (QA)

    G12 Consumer choice regarding service provision

    Total mean score

    / /

    Evaluating Your Program 55 Appendix F: GOI Protocol

    Evaluating Your Program

  • Appendix F: General Organizational Index Protocol
  • Evaluating Your Program 57 Appendix F: GOI Protocol

    General Organizational
    Index Protocol

    The General Organizational Index Protocol
    explains how to rate each item of the index.
    In particular, it provides the following:

    n A definition and rationale for each item; and

    n A list of data sources most appropriate for each
    fidelity item (for example, chart review, program
    leader, practitioners, consumers, and family
    interviews).

    When appropriate, a set of probe questions is
    provided to help you elicit the critical information
    needed to code the fidelity item. These probe
    questions were specifically generated to help you
    collect information from respondents that is
    relatively free from bias, such as social desirability.

    Decision rules will help you code each item
    correctly. As you collect information from various
    sources, these rules will help you determine the
    specific rating to give for each item.

    G1. Program Philosophy

    Definition: The program is committed to a clearly
    articulated philosophy consistent with the
    specific evidence-based practice (EBP),
    based on the following five sources:

    n Family intervention coordinator;

    n Senior staff (for example, executive
    director, psychiatrists);

    n FPE practitioners;

    n Consumers and family members; and

    n Written materials (for example,
    brochures).

    Rationale: In agencies that truly endorse EBPs, staff
    members at all levels embrace the program
    philosophy and practice it in their daily work.

    Sources of information:

    Overview: During the site visit, be alert to indicators of
    program philosophy consistent or inconsistent with the
    EBP, including observations from casual conversations,
    staff and consumer activities, etc. Statements that
    suggest misconceptions or reservations about the
    practice are negative indicators, while statements that
    show enthusiasm for and understanding of the practice
    are positive indicators.

    The intent of this item is to gauge the understanding of
    and commitment toward the practice. It is not
    necessary that every element of the practice is
    currently in place (this is gauged by the EBP-specific
    fidelity scale), but rather whether all those involved are
    committed to implementing a high-fidelity EBP.

    The practitioners rated for this item are limited
    to those implementing this practice. Similarly, the
    consumers rated are those receiving the practice.

    1. Family intervention coordinator, senior staff,

    and

    practitioner interviews

    At the beginning of the interview, have
    practitioners briefly describe the program.

    n “What are the critical ingredients or principles of
    your services?”

    n “What is the goal of your program?”

    n “How do you define [EBP area]?”

    2. Consumer interview

    n “What kind of services do you receive from this
    program?”

    n Using a layperson’s language, describe to the
    consumer or family the principles of the specific
    EBP area. [Probe if the program offers services
    that reflect each principle.]

    n “Do you feel the practitioners of this program
    are competent and help you address your
    problems?”

    3. Written material review (for example, brochure)

    n Does the site have written materials on the
    EBP? If not, then rate item down one scale point
    (i.e., lower fidelity).

    n Does the written material articulate a program
    philosophy that is consistent with the EBP?

    Appendix F: GOI Protocol 58 Evaluating Your Program

    Item response coding: The goal of this item is not to quiz
    every practitioner to determine if each can recite every
    critical ingredient. Rather, the goal is to gauge whether
    the understanding is generally accurate and not contrary
    to the EBP. For example, if a senior staff member says,
    “We are having trouble identifying consumers for our
    FPE program since most families are unsupportive,”
    then that would be a red flag for the practice of FPE.

    If all sources show evidence that they clearly understand
    the program philosophy, code the item as “5.” For a
    source type that is based on more than one person (for
    example, practitioner interviews) determine the majority
    opinion when rating whether that source endorses a
    clear program philosophy. Note: If no written material
    exists, then count that source as unsatisfactory.

    G2. Eligibility/Consumer Identification

    Definition: For EBPs implemented in a mental health
    center: All consumers in the community
    support program, consumers in crisis, and
    those in the hospital are screened using
    standardized tools or admission criteria that
    are consistent with the EBP.

    For EBPs implemented in a service area:
    All consumers within the jurisdiction of the
    service area are screened using standardized
    tools or admission criteria that are consistent
    with the EBP. For example, in New York,
    county mental health administrations are
    responsible for identifying consumers who
    will be served by Assertive Community
    Treatment (ACT) programs.

    The target population refers to all adults
    with serious mental illness (SMI) served by
    the provider agency or service area. If the
    agency serves consumers at multiple sites,
    then assessment is limited to the site or sites
    that are targeted for the EBP. If the target
    population is served in discrete programs
    (for example, case management, residential,
    day treatment), then ordinarily all adults
    with serious mental illnesses are included
    in this definition.

    Screening will vary according to the EBP.
    The intent is to identify all who could
    benefit from the EBP. In every case, the
    program should have an explicit, systematic
    method for identifying the eligibility of
    every consumer. Screening typically occurs
    at program admission; programs that are
    newly adopting an EBP should have a plan
    for systematically reviewing consumers who
    are already active in the agency.

    Rationale: Accurately identifying consumers who
    would benefit most from the EBP requires
    routinely reviewing eligibility, based on
    criteria that are consistent with the EBP.

    Sources of information:

    1. Family intervention coordinator, senior staff,

    and practitioner interviews

    n “Describe the eligibility criteria for your
    program.”

    n “How are consumers referred to your program?
    How does the agency identify consumers who
    would benefit from your program? Do all new
    consumers receive screening for substance abuse
    or severe mental illness (SMI) diagnosis?”

    n “What about consumers who are in crisis
    (or institutionalized)?”

    n Ask for a copy of the screening instrument that
    the agency uses.

    2. Chart review

    Review documentation of the screening process
    and results.

    3. County mental health administrators (where applicable)

    If eligibility is determined at the service-area level
    (such as the New York example), then interview the
    people who are responsible for this screening.

    Item response coding: This item refers to all consumers
    with SMI in the community support program or its
    equivalent at the sites where the EBP is being
    implemented; it is not limited to consumers who
    receive EBP services only. Calculate this percentage
    and record it on the fidelity scale in the space
    provided. If 80 percent or more of these consumers
    receive standardized screening, code the item as “5.”

    Evaluating Your Program 59 Appendix F: GOI Protocol

    G3. Penetration

    Definition: Penetration is defined as the percentage
    of consumers who have access to an EBP
    as measured against the total number of
    consumers who could benefit from the EBP.
    Numerically, this proportion is defined by––

    Number of consumers receiving an EBP

    Number of consumers eligible for the EBP

    As in the preceding item, the numbers used
    in this calculation are specific to the site or
    sites where the EBP is being implemented.

    Rationale: Surveys have repeatedly shown that people
    with SMI often have a limited access to
    EBPs. The goal of EBP dissemination is not
    simply to create small exclusive programs,
    but to make these practices easily accessible
    within the public mental health system.

    Sources of information:

    The calculation of the penetration rate depends on the
    availability of the two statistics defining this rate.

    Numerator: The number receiving the service is based
    on a roster of names that the family intervention
    coordinator maintains. Ideally, this total should be
    corroborated with service contact sheets and other
    supporting evidence that the identified consumers are

    actively receiving treatment. As a practical matter,
    agencies have many conventions for defining active
    consumers and dropouts, so that it may be difficult to
    standardize the definition for this item. Use the best
    estimate of the number actively receiving treatment.

    Denominator: If the agency systematically tracks
    eligibility, then use this number in the denominator.
    (See the rules listed in G2 to determine the target
    population before using estimates below.) If the agency
    doesn’t track eligibility, then estimate the denominator
    by multiplying the total target population by the
    corresponding percentage based on the literature for
    each EBP.

    According to the literature, the estimates for EBP
    KITs available at this writing should be as follows:

    n Integrated Treatment for Co-Occurring

    Disorders––40 percent

    n Supported Employment––60 percent

    n Illness Management and Recovery––100 percent

    n Family Psychoeducation––100 percent (some
    kind of significant other)

    n Assertive Community Treatment––20 percent

    Item response coding: Calculate this ratio and record it
    on the fidelity scale. If the program serves more than
    80 percent of eligible consumers, code the item as “5.”

    Appendix F: GOI Protocol 60 Evaluating Your Program

    G4. Assessment

    Definition: All EBP consumers receive standardized,
    high-quality, comprehensive, and timely
    assessments.

    Standardization refers to a reporting format
    that is easily interpreted and consistent
    across consumers.

    High quality refers to assessments that
    provide concrete, specific information that
    differentiates among consumers. If most
    consumers are assessed using identical
    words or if the assessment consists of broad,
    noninformative checklists, then consider
    this to be low quality.

    Comprehensive assessments include the
    following:

    n History and treatment of medical,
    psychiatric, and substance use disorders;

    n Current stages of all existing disorders;

    n Vocational history;

    n Any existing support network; and

    n Evaluation of biopsychosocial risk factors.

    Timely assessments are those updated
    at least annually.

    Rationale: Comprehensive assessment or re-
    assessment is indispensable in identifying
    target domains of functioning that may need
    intervention, in addition to consumers’
    progress toward recovery.

    Sources of information:

    1. Family intervention coordinator, senior staff, and

    practitioner interviews

    n “Do you give a comprehensive assessment
    to new consumers? What are the components
    thatxyou assess?”

    n Ask for a copy of the standardized assessment
    form, if available, and have practitioners go
    through the form.

    n “How often do you re-assess consumers?”

    2. Chart review

    n Look for comprehensiveness of assessment
    by looking at multiple completed assessments
    to see if they address each component of the
    comprehensive assessment every time an
    assessment is performed.

    n “Is the assessment updated at least yearly?”

    Item response coding: If more than 80 percent
    of consumers receive standardized, high-quality,
    comprehensive, and timely assessments, code the
    item as “5.”

    Evaluating Your Program 61 Appendix F: GOI Protocol

    G5. Individualized Treatment Plan

    Definition: For all EBP consumers, an explicit,
    individualized treatment plan exists (even if
    it is not called this) related to the EBP that
    is consistent with assessment and updated
    every 3 months.

    Individualized means that goals, steps
    to reaching the goals, services and
    interventions, and intensity of involvement
    are unique to this consumer. Plans that
    are the same or similar across consumers
    are not individualized. One test is to place
    a treatment plan without identifying
    information in front of supervisors to
    see if they can identify the consumer.

    Rationale: Core values of EBP include individualizing
    services and supporting consumers’ pursuit
    of their goals and progress in their recovery
    at their own pace. Therefore, treatment
    plans need ongoing evaluation
    and modification.

    Sources of information:

    Note: Assess this item and the next together; that is,
    ask questions about specific treatment plans along
    with questions about the treatment.

    1. Chart review (treatment plan)

    Using the same charts as examined during
    the EBP-specific fidelity assessment, look for
    documentation of specific goals and consumer-
    based, goal-setting process.

    n “Are the treatment recommendations consistent
    with assessment?”

    n “What evidence is used for a quarterly review?”

    2. Family intervention coordinator interview

    “Describe the process of developing a treatment
    plan. What are the critical components of a typical
    treatment plan and how are they documented?”

    3. Practitioner interview

    When feasible, use the specific charts selected
    above. Ask practitioners to go over a sample
    treatment plan.

    n “How do you come up with consumer goals?”
    [Listen for consumer involvement and
    individualization of goals.]

    n “How often do you review (or follow up on)
    the treatment plan?”

    4. Consumer interview

    n “What are your goals in this program? How did
    you set these goals?”

    n “Do you and your practitioners together review
    your progress toward achieving your goals?”
    [If yes, “How often? Please describe the
    review process.”]

    5. Team meeting and supervision observation,

    if available

    Observe how the treatment plan is developed.
    Listen especially for discussion of assessment,
    consumer preferences, and individualization
    of treatment. Do they review treatment plans?

    Item response coding: If more than 80 percent of EBP
    consumers have an explicit, individualized treatment
    plan that is updated every 3 months, code the item
    as “5.”

    If the treatment plan is individualized but updated
    only every 6 months, code the item as “3.”

    Appendix F: GOI Protocol 62 Evaluating Your Program

    G6. Individualized Treatment

    Definition: All EBP consumers receive individualized
    treatment meeting the goals of the EBP.

    Individualized treatment means that steps,
    strategies, services, interventions, and
    intensity of involvement are focused on
    specific consumer goals and are unique
    for each consumer. Progress Notes are
    often a good source of what really goes on.
    Treatment could be highly individualized,
    despite the presence of generic
    treatment plans.

    An example of a low score on this item
    for Integrated Treatment of Co-Occurring
    Disorders is the following:

    If consumers in the engagement phase of recovery
    are assigned to a relapse prevention group and are
    constantly told they need to quit using, rather than
    using motivational interventions.

    Rationale: The key to the success of an EBP is
    implementing a plan that is individualized
    and meets the goals for the EBP for
    each consumer.

    Sources of information:

    1. Chart review (treatment plan)

    Using the same charts as examined during the
    EBP-specific fidelity assessment, examine the
    treatment provided. Limit the focus to a recent
    treatment plan related to the EBP. Judge whether
    an appropriate treatment occurred during the time
    frame indicated by the treatment plan.

    2. Practitioner interview

    When feasible, use the specific charts selected
    above. Ask practitioners to go over a sample
    treatment plan and treatment.

    3. Consumer interview

    “Tell me about how this program is helping
    you meet your goals.”

    Item response coding: If more than 80 percent of EBP
    consumers receive treatment that is consistent with
    the goals of the EBP, code the item as “5.”

    G7. Training

    Definition: All new practitioners receive standardized
    training in the EBP (at least a 2-day
    workshop or its equivalent) within 2 months
    after they are hired. Existing practitioners
    receive annual refresher training (at least
    a 1-day workshop or its equivalent).

    Rationale: Practitioner training and retraining are
    warranted to ensure that evidence-based
    services are provided in a standardized
    manner, across practitioners and over time.

    Sources of information:
    1. Family intervention coordinator, senior staff,
    and practitioner interviews

    n “Do you provide new practitioners with
    systematic training for [EBP area]?” [If yes,
    probe for specifics: Mandatory or optional?
    Length? Frequency? Content? Group or
    individual format? Who trains? In-house
    or outside training?]

    n “Do practitioners receive refresher trainings?”
    [If yes, probe for specifics.]

    2. Review training curriculum and schedule, if available

    Does the curriculum appropriately cover
    the critical ingredients for [EBP area]?

    3. Practitioners interview

    n “When you first started in this program, did
    you receive a systematic and formal training
    for [EBP area]?” [If yes, probe for specifics:
    Mandatory or optional? Length? Frequency?
    Content? Group or individual format?
    Who trains? In-house or outside training?]

    n “Do you receive refresher trainings?” [If yes,
    probe for specifics.]

    Item response coding: If more than 80 percent of
    practitioners receive at least yearly, standardized
    training for [EBP area], code the item as “5.”

    Evaluating Your Program 63 Appendix F: GOI Protocol

    G8. Supervision

    Definition: FPE practitioners receive structured,
    weekly supervision from a supervisor
    experienced in the particular EBP.
    The supervision can be either group or
    individual, but CANNOT be peers-only
    supervision without a supervisor. The
    supervision should be consumer-centered
    and explicitly address the EBP model and
    how it applies to specific consumer
    situations. Administrative meetings and
    meetings that are not specifically devoted to
    the EBP do not fit the criteria for this item.
    The consumer-specific EBP supervision
    should be at least 1 hour each week.

    Rationale: Regular supervision is critical not only
    for individualizing treatment, but also
    for ensuring the standardized provision
    of evidence-based services.

    Sources of information:
    1. Family intervention coordinator, senior staff,
    and practitioner interviews

    Probe for logistics of supervision: length, frequency,
    group size, etc.

    n “Describe what a typical supervision session
    looks like.”

    n “How does the supervision help your work?”

    2. Team meeting and supervision observation, if available

    Listen for discussion of [EBP area] in each
    case reviewed.

    3. Supervision logs documenting frequency of meetings

    Item response coding: If more than 80 percent of FPE
    practitioners receive weekly supervision, code the item
    as “5.”

    G9. Process Monitoring

    Definition: Family intervention coordinators and
    administrators monitor the process of
    implementing the EBP every 6 months and
    use the data to improve the program. Process
    monitoring involves a standardized approach,
    for example, using a fidelity scale or other
    comprehensive set of process indicators.

    An example of a process indicator would
    be a systematic measurement of how much
    time case managers spend in the community
    instead of in the office. Process indicators
    could include items related to training or
    supervision. The underlying principle is that
    whatever is being measured is related to
    implementing the EBP and is not being
    measured to track billing or productivity.

    Rationale: Systematically and regularly collecting
    process data is imperative in evaluating
    program fidelity to EBP.

    Sources of information:
    1. Family intervention coordinator, senior staff,

    and practitioners interviews

    n “Does your program collect process data
    regularly?” [If yes, probe for specifics.
    Frequency? Who? How (using [EBP area]
    fidelity scale vs. other scales)? etc.]

    n “Does your program collect data on consumer
    service use and treatment attendance?”

    n “Have the process data affected how your
    services are provided?

    2. Review of internal reports and documentation,

    if available

    Item response coding: If evidence exists that
    standardized process monitoring occurs at least
    every 6 months, code the item as “5.”

    Appendix F: GOI Protocol 64 Evaluating Your Program

    G10. Outcome Monitoring

    Definition: Family intervention coordinators and
    administrators monitor the outcomes of
    EBP consumers every 3 months and share
    the data with FPE practitioners in an effort
    to improve services. Outcome monitoring
    involves a standardized approach to
    assessing consumers.

    Rationale: Systematically and regularly collecting
    outcomes data is imperative in evaluating
    program effectiveness. Effective programs
    also analyze such data to ascertain what is
    working and what is not working and use
    the results to improve the quality of services
    they provide.

    Key outcome indicators for each EBP are
    discussed in the EBP KITs. A provisional
    list is as follows:

    n Integrated Treatment for Co-Occurring

    Disorders—substance use (such as
    the Stages of Treatment Scale);

    n Supported Employment—competitive
    employment rate;

    n Illness Management and Recovery—
    hospitalization rates, relapse prevention
    plans, medication compliance rates;

    n Family Psychoeducation—hospitalization
    and family well-being; and

    n Assertive Community Treatment—
    hospitalization and housing.

    Sources of information:
    1. Family intervention coordinator, senior staff,
    and practitioner interviews

    n “Does your program have a systematic method
    for tracking outcomes data?” [If yes, probe for
    specifics: How (computerized vs. chart only)?
    How often? Type of outcome variables?
    Who collects data?]

    n “Do you use any checklist or scale to monitor
    consumer outcome (for example, Substance
    Abuse Treatment Scale)?”

    n “What do you do with the outcomes data?
    Do your practitioners review the data regularly?”
    [If yes, “How is the review done (for example,
    cumulative graph)?”]

    n “Have the outcomes data affected how your
    services are provided?” [If yes, “How?”]

    2. Review of internal reports and documentation,
    if available

    Item response coding: If standardized outcome
    monitoring occurs quarterly and results are shared
    with FPE practitioners, code the item as “5.”

    Evaluating Your Program 65 Appendix F: GOI Protocol

    G11. Quality Assurance

    Definition: The agency’s quality assurance (QA)
    committee has an explicit plan to review the
    EBP or components of the program every 6
    months. The steering committee for the
    EBP can serve this function.

    Good QA committees help the agency in
    important decisions, such as penetration
    goals, placement of the EBP within the
    agency, and hiring and staffing needs. QA
    committees also help guide and sustain the
    implementation by doing the following:

    n Reviewing fidelity to the EBP model;

    n Making recommendations for
    improvement;

    n Advocating and promoting the EBP
    within the agency and in the community;
    and

    n Deciding on and keeping track of key
    outcomes relevant to the EBP.

    Rationale: Research has shown that programs that
    most successfully implement EBPs have
    better outcomes. Again, systematically and
    regularly collecting process and outcomes
    data is imperative in evaluating program
    effectiveness.

    Sources of information:

    1. Family intervention coordinator interview

    “Does your agency have an established team or
    committee that is in charge of reviewing the
    components of your [EBP area] program?” [If yes,
    probe for specifics. “Who? How? When?”]

    2. QA committee member interview

    n “Please describe the tasks and responsibilities
    of the QA committee.” [Probe for specifics.
    “What is the purpose? Who? How? When?”]

    n “How do you use your reviews to improve the
    program’s services?”

    Item response coding: If the agency has an established
    QA or steering committee that reviews the EBP or
    components of the program every 6 months, code the
    item as “5.”

    Appendix F: GOI Protocol 66 Evaluating Your Program

    G12. Consumer Choice About Service
    Provision

    Definition: All consumers who receive EBP services are
    offered a reasonable range of choices
    consistent with the EBP; practitioners
    consider and abide by consumer
    preferences for treatment when they offer
    and provide services.

    Choice is defined narrowly in this item to
    refer to services provided. This item does
    not address broader issues of consumer
    choice such as choosing to engage in self-
    destructive behaviors.

    To score high on this item, it is not sufficient
    that a program offers choices. The choices
    must be consonant with the EBP. So, for
    example, an agency implementing
    Integrated Treatment for Co-Occurring
    Disorders would score low if it only worked
    with consumers who were abstinent.

    A reasonable range of choices means that
    FPE practitioners offer realistic options to
    consumers rather than prescribing only one
    or a couple of choices or dictating a fixed
    sequence or prescribing conditions that
    consumers must complete before becoming
    eligible for a service.

    Examples of Relevant Choices
    by EBPs

    Current at this writing

    Integrated Treatment for Co-Occurring
    Disorders

    n Group or individual counseling sessions

    n Frequency of treatment

    n Specific self-management goals

    n Selection of other supporters to be involved

    Supported Employment

    n Type of occupation

    n Type of work setting

    n Schedules of work and number of hours

    n Whether to disclose

    n Nature of accommodations

    n Type and frequency of followup supports

    Family Psychoeducation

    n Consumer readiness for involving family

    n Who to involve

    n Choice of problems and issues to work on

    Illness Management and Recovery

    n Selection of other supporters to be involved
    n Specific self-management goals

    n Nature of behavioral tailoring

    n Skills to be taught

    Assertive Community Treatment

    n Type and location of housing

    n Nature of health promotion

    n Nature of assistance with financial
    management

    n Specific goals

    n Daily living skills to be taught

    n Nature of medication support

    n Nature of substance abuse treatment

    Evaluating Your Program 67 Appendix F: GOI Protocol

    Rationale: A major premise of EBP is that consumers
    are capable of playing a vital role in
    managing their illnesses and in making
    progress towards achieving their goals.
    Providers accept the responsibility for getting
    information to consumers so that they can
    more effectively participate in treatment.

    Sources of information:
    1. Family intervention coordinator interview

    n “Tell us what your program philosophy
    is about consumer choice. How do you
    incorporate consumers’ preferences in
    the services you provide?”

    n “What options exist for your services?
    Give examples.”

    2. Practitioner interview

    n “What do you do when a disagreement occurs
    between what you think is the best treatment
    for consumers and what they want?”

    n “Describe a time when you were unable to abide
    by a consumer’s preferences.”

    3. Consumer interview:

    n “Does the program give you options
    for the services you receive?”

    n Are you receiving the services you want?”

    4. Team meeting and supervision observation

    Look for discussion of service options
    and consumer preferences.

    5. Chart review (especially treatment plan)

    Look for documentation of consumer preferences
    and choices.

    Item response coding: If all sources support that type
    and frequency of EBP services always reflect consumer
    choice, code the item as “5.”

    If the agency embraces consumer choice fully except
    in one area (for example, requiring the agency to
    assume representative payeeships for all consumers),
    then code the item as “4.”

    Note: Ratings for both scales are based on current
    behavior and activities, not planned or intended
    behavior.

    The standards used for establishing the anchors for the
    fully implemented ratings were determined through a
    variety of expert sources as well as empirical research.

    Evaluating Your Program 69 Appendix G:

    Outcomes Report Form

    Evaluating Your Program

  • Appendix G: Outcomes Report Form
  • Evaluating Your Program 71 Appendix G: Outcomes Report Form

    Outcomes Report Form

    Quarter q January, February, March Year
    q April, May, June
    q July, August, September
    q October, November, December
    Reported by
    Agency Team

    About the consumer

    Consumer ID Discharge date Date of birth

    q Male Ethnicity
    q Female Primary diagnosis

    What was the consumer’s evidence-based service status on the last day of the quarter?

    Unknown Not Eligible Eligible Enrolled

    Integrated Treatment for Co-Occurring Disorders q q q q

    Supported Employment q q q q

    Assertive Community Treatment q q q q

    Illness Management and Recovery q q q q

    Family Psychoeducation q q q q

    In the past 3 months, how often has the consumer… Number of days
    Number of
    incidents

    Been homeless?

    Been incarcerated?

    Been in a State psychiatric hospital?

    Been in a private psychiatric hospital?

    Been hospitalized for substance abuse reasons?

    / / / /

    Appendix G: Outcomes Report Form 72 Evaluating Your Program

    In the past 3 months, how many days was the consumer

    competitively employed? (Use 0 if the consumer has not been
    competitively employed.)

    _____________ Days

    Was the consumer competitively employed on the last day

    of the reporting period?

    q

    Yes

    q No

    What was the consumer’s stage of substance abuse treatment

    on the last day

    of the quarter? Check one.

    q Not applicable

    q Pre-engagement

    q Engagement

    q Early persuasion

    q Late persuasion

    q Early active treatment

    q Late active treatment

    q Relapse prevention

    q In remission or recovery

    What was the consumer’s living arrangement on the last day

    of the quarter? Check one.

    q Not applicable or unknown

    q Psychiatric hospital

    q Substance abuse hospitalization

    q General hospital psychiatric ward

    q Nursing home

    q Family care home

    q Living with relatives (heavily dependent for personal care)

    q Group home

    q Boarding house

    q Supervised apartment program

    q Living with relatives (but is largely independent)

    q Living independently

    q Homeless

    q Emergency shelter

    q Other (specify): ____________________________

    What was the consumer’s educational status on the last day

    of the quarter? Check one.

    q Not applicable or unknown

    q No educational participation

    q Avocational/Educational involvement

    q Pre-educational explorations

    q Working on General Educational Development (GED) diploma

    q Working on English as Second Language

    q Basic educational skills

    q Attending vocational school, vocational program,
    apprenticeship, or high school

    q Attending college: 1 to 6 hours

    q Attending college: 7 or more hours

    q Other (specify): ____________________________

    What is the consumer’s highest level of education? Check one.

    q No high school

    q High school diploma or General Educational Development
    (GED) diploma

    q Some college

    q Associate degree

    q Vocational training certificate

    q Bachelor of Arts or Bachelor of Science

    q Master’s degree or Ph.D.

    Evaluating Your Program 73 Appendix H:

    Instructions for the Outcomes Report Form

    Evaluating Your Program

  • Appendix H: Instructions for the Outcomes Report Form
  • Evaluating Your Program 75 Appendix H: Instructions for the Outcomes Report Form

    Instructions for the Outcomes Report Form

    Before you fill out the Outcomes Report Form, become familiar with the definitions of the data elements to
    provide consistency among reporters.

    Evidence-based service status

    What was the consumer’s evidence-based service

    status on the last day of the quarter? Check the
    appropriate boxes according to these definitions:

    Eligible: Does the consumer meet the participation
    criteria for a specific EBP? Each EBP has
    criteria for program participation that
    should be used to determine eligibility.

    Enrolled: Is the consumer participating in a particular
    EBP service or has the consumer
    participated in the EBP in the past period?
    Note: Aggregate data about eligibility and
    enrollment can be used to determine the
    percent of eligible consumers who
    received services.

    Incident reporting

    For the following outcomes, record the number of
    days and number of incidents that the consumer spent
    in each category during the reporting period.

    Categories:

    n Been homeless: Number of days that the
    consumer was homeless and how many times
    the consumer was homeless during the reporting
    period. Homeless refers to consumers who lack a
    fixed, regular, and adequate nighttime residence.

    n Been incarcerated: Number of days and incidents
    that the consumer spent incarcerated in jails or
    in other criminal justice lockups.

    n Been in a state psychiatric hospital: Number of
    days and incidents that the consumer spent
    hospitalized primarily for treatment of psychiatric
    disorders in a state psychiatric hospital.

    General data

    Quarter: Check the time frame for the reporting
    period.

    Year: Fill in the current year.

    Reported by: Fill in the name and title of the person
    who completed the form.

    Agency: Identify the agency name.

    Team: Write the team name or number.

    About the consumer

    Consumer ID: Write the consumer ID that is used
    at your agency, usually a name or an
    identifying number. This information will
    be accessible only to the agency providing
    the service.

    Discharge date: If the consumer has been discharged
    during this report period, fill in the
    discharge date.

    Date of birth: Fill in the consumer’s date of birth
    (Example: 09/22/1950).

    Gender: Check the appropriate box.

    Ethnicity: Fill in the consumer’s ethnicity.

    Primary diagnosis: Write the DSM diagnosis.

    Appendix H: Instructions for the Outcomes Report Form 76 Evaluating Your Program

    n Been in a private psychiatric hospital: Number
    of days and incidents that the consumer spent
    hospitalized primarily for treatment of
    psychiatric disorders in a private
    psychiatric hospital.

    n Been hospitalized for substance abuse reasons:

    Number of days and incidents that the consumer
    spent hospitalized primarily for treatment of
    substance use disorders, including both public
    and private hospitals whose primary function
    is treating substance use disorders.

    Competitive employment

    In the past 3 months, how many days was the consumer

    competitively employed? Competitive employment
    means working in a paid position (almost always
    outside the mental health center) that would be open
    to all community members to apply. Competitive
    employment excludes consumers working in sheltered
    workshops, transitional employment positions, or
    volunteering. It may include consumers who are self-
    employed but only if the consumer works regularly and
    is paid for the work.

    Stage of substance abuse treatment

    What was the consumer’s stage of substance abuse

    treatment on the last day of the quarter? Record the
    consumer’s stage of substance abuse recovery,
    according to the following nine categories:

    n Not applicable: No history of substance abuse
    disorder.

    n Pre-engagement: No contacts with a case
    manager, mental health counselor, or integrated
    treatment specialist.

    n Engagement: Contact with an assigned case
    manager or counselor, but does not have regular
    contacts. The lack of regular contact implies lack
    of a working alliance.

    n Early persuasion: Regular contacts with a case
    manager or counselor, but has not reduced
    substance use for more than a month. Regular
    contacts imply having a working alliance and a
    relationship in which substance abuse can be
    discussed.

    n Late persuasion: Engaged in a relationship with a
    case manager or counselor, is discussing
    substance use or attending a group, and shows
    evidence of reducing use for at least 1 month
    (fewer drugs, smaller quantities, or both).
    External controls (for example, Antabuse) may
    be involved in reduction.

    n Early active treatment: Engaged in treatment, is
    discussing substance use or attending a group,
    has reduced use for at least 1 month, and is
    working toward abstinence (or controlled use
    without associated problems) as a goal, even
    though consumer may still be abusing.

    n Late active treatment: Engaged in treatment, has
    acknowledged that substance abuse is a problem,
    and has achieved abstinence (or controlled use
    without associated problems) but for less than 6
    months.

    n Relapse prevention: Engaged in treatment, has
    acknowledged that substance abuse is a problem,
    and has achieved abstinence (or controlled use
    without associated problems) for at least 6
    months. Occasional lapses, not days of
    problematic use, are allowed.

    n In remission or recovery: No problems related to
    substance use for more than 1 year and is no
    longer in any type of substance abuse treatment.

    Living arrangement

    What was the consumer’s living arrangement on the last

    day of the quarter? These data give your agency an
    ongoing record of the consumer’s residential status.

    n Not applicable or unknown

    n Psychiatric hospital: Those hospitals, both public
    and private, whose primary function is treating
    mental disorders. This includes state hospitals
    and other freestanding psychiatric hospitals.

    n Substance use hospitalization: Those hospitals,
    both public and private, whose primary function
    is treating substance use disorders.

    n General hospital psychiatric ward: Psychiatric wards
    located in general medical centers that provide
    short-term, acute crisis care.

    Evaluating Your Program 77 Appendix H: Instructions for the Outcomes Report Form

    n Nursing home: Facilities that are responsible for
    the medical and physical care of consumers and
    have been licensed as such by the state.

    n Family care home: Consumers live in single-family
    dwellings with non-relatives who provide
    substantial care. Substantial care is determined
    by the degree to which non-relatives are
    responsible for the daily care of consumers. Such
    things as medication management,
    transportation, cooking, cleaning, restrictions on
    leaving the home, and money management are
    considered. Non-relatives may have guardianship
    responsibilities. If consumers are unable to do
    most daily living tasks without the aid of
    caretakers, consider caretakers to be providing
    substantial care.

    n Lives with relatives (heavily dependent for personal
    care): Consult consumers and relatives about how
    much family members are responsible for
    consumers’ daily care. An important distinction
    between this status and supervised apartment
    program is to ask, “If the family were not
    involved, would the consumer be living in a
    more restrictive setting?” In assessing the extent
    to which family members provide substantial
    care, consider such things as taking medication,
    using transportation, cooking, cleaning, having
    control of leaving the home, and managing
    money. If consumers are unable to
    independently perform most daily living
    functions, consider family members to be
    providing substantial care.

    n Group home: A residence that is run by staff who
    provide many functions (shopping, meal
    preparation, laundry, etc.) that are essential to
    living independently.

    n Boarding house: A facility that provides a place to
    sleep and meals but it is not seen as an extension
    of a mental health agency nor is it staffed with
    mental health personnel. These facilities are
    largely privately run and consumers have a high
    degree of autonomy.

    n Supervised apartment program: Consumers live
    (fairly independently) in an apartment sponsored
    by a mental health agency. In determining
    whether someone fits this category, look at the
    extent to which mental health staff have control
    over key aspects of the living arrangements.

    Example characteristics of control include
    the following:

    The mental health agency signs the lease.

    The mental health agency has keys to the
    house or apartment.

    Mental health agency staff provides onsite day
    or evening coverage.

    The mental health agency mandates that
    consumers participate in certain mental health
    services—medication clinic, day program,
    etc., to live in the house or apartment.

    Note: Consumers who receive only case
    management support or financial aid are NOT
    included in this category; they are considered to
    be living independently.

    n Lives with relatives (but is largely independent): An
    assignment to this category requires having
    information from consumers and families. The
    key consideration relates to the degree to which
    consumers can perform most tasks essential to
    daily living without being supervised by family
    members.

    n Living independently: Consumers who live
    independently and are capable of self-care,
    including those who live independently with case
    management support. This category also
    includes consumers who are largely independent
    and choose to live with others for reasons
    unrelated to mental illness. They may live with
    friends, a spouse, or other family members. The
    reasons for shared housing could include
    personal choice related to culture or financial
    considerations.

    n Homeless: Consumers who lack a fixed, regular,
    and adequate nighttime residence.

    n Emergency shelter: Temporary arrangements due
    to a crisis or misfortune that are not specifically
    related to a recurrence of the consumer’s illness.
    While many emergency shelters provide
    emotional support, the need for emergency
    shelter is due to an immediate crisis unrelated to
    the consumer’s mental illness.

    n Other: Those who complete the form should
    clearly define this status in the space provided.

    Appendix H: Instructions for the Outcomes Report Form 78 Evaluating Your Program

    Educational status

    What was the consumer’s educational status on the last day

    of the quarter? These data give your agency an ongoing
    record of the consumer’s educational status.

    n Not applicable or unknown

    n No educational participation: Consumer is not
    participating in educational activities.

    n Avocational/educational involvement: Organized
    classes in which consumers enroll consistently
    and expect to take part for the purpose of life
    enrichment, hobbies, recreation, etc. These
    classes must be community-based, not run by
    the mental health center. Classes are those in
    which anyone could participate, not just
    consumers. If any of these activities involve
    college enrollment, use the categories below.

    n Pre-educational explorations: Consumers in this
    status are engaged in educational activities with
    the specific purpose of working toward an
    educational goal. This includes consumers who
    attend a college orientation class with the goal of
    enrolling, meet with the financial aid office to
    apply for scholarships, or apply for admission to
    enroll. This status also includes consumers who
    attend a mental health center-sponsored activity
    focusing on an educational goal (for example,
    campus visits with a case manager to survey the
    location of classrooms; meetings with the case
    manager and college staff to secure
    entitlements).

    n Working on General Educational Development (GED)

    diploma: Consumers who are taking classes to
    earn their GED diploma.

    n Working on English as Second Language:
    Consumers who are taking classes in English as a
    Second Language in a community setting.

    n Basic educational skills: Consumers who are taking
    adult educational classes focused on basic skills,
    such as math and reading.

    n Attending vocational school or apprenticeship,

    vocational program, or attending high school:

    Consumers who are––

    Participating in community-based vocational
    schools;

    Learning skills through an apprenticeship,
    internship, or in a practicum setting;

    Involved in on-the-job training to acquire
    more advanced skills;

    Participating in correspondence courses
    which lead to job certification; and

    Young adults attending high school.

    n Attending college: 1 to 6 hours: Consumers who
    attend college for 6 hours or fewer per term.
    This status continues over breaks, etc., if
    consumers plan to continue enrollment. This
    status suggests that consumers regularly attend
    college and includes correspondence, TV, or
    video courses for college credit.

    n Attending college: 7 or more hours: Consumers
    attend college for 7 or more hours per term.
    This status continues over breaks, etc., if
    consumers plan to continue enrollment.

    Regular attendance with expectations of
    completing course work is essential for
    assignment to this status.

    n Other: Those who complete the form should
    clearly define this status in the space provided.

    Evaluating Your Program 79 Appendix I: Assessor Training

    Evaluating Your Program

    Appendix I: Assessor Training
    and Work Performance Checklist

    Evaluating Your Program 81 Appendix I: Assessor Training

    Assessor Training and Work Performance Checklist

    Assessment date

    Assessor’s name ____________________________________________________________________ _________________________________
    First Middle Initial Last Title

    Agency visited _______________________________________________________________________________________________________

    Agency address _______________________________________________________________________________________________________
    Street

    _______________________________________________________________________________________________________
    City State ZIP code

    EBP assessed _______________________________________________________________________________________________________

    Assessor qualifications

    Yes

    q 1a. Data collection and skills: Assessor’s skills are evidenced by his or her prior work experience, credentials,
    or supervisor’s observations.

    q 1b. EBP knowledge: Assessor’s knowledge is evidenced by his or her prior work experience, credentials,
    or passing a knowledge test on a specific EBP.

    q 1c. Training: Assessors receive at least 8 hours of systematic training on chart review, interviewing techniques,
    and process assessment.

    q 1d. Shadowing: Assessors complete at least 1 assessment with an experienced assessor before the first official
    process assessment.

    q 1e. Practice rating: Assessors co-rate as practice before being official assessors and agree exactly
    with an experienced assessor on ratings for at least 80% of items.

    /5 Subtotal

    Data Collection

    / /

    Appendix I: Assessor Training 82 Evaluating Your Program

    q 2a. Contact and scheduling: With contact person, assessors identify a date convenient to site, explain
    purpose of the assessment, identify information to be assembled ahead of time, and develop specific
    schedule of interviews and assessment activities.

    q 2b. Number of assessors: Two or more assessors are present during the assessment visit and independently
    rate all items. If agency is working with a consultant, assessor may join with consultant to conduct
    assessments.

    q 2c. Time management: Sufficient time is allotted and all necessary materials reviewed (2 days for 2
    assessors).

    q 2d. Interviewing: Interview all the sources stipulated in the protocol (e.g., for IMR, interviews with the
    program director, 3 ACT team members, and 3 consumers).

    q 2e. Completion of documents: Complete score sheet, cover sheet, and any other supplemental documents
    relating to the agency.

    q 2f. Documentation supporting rating: Each assessor provides written documentation for evidence
    supporting the rating for each item (e.g., marginal notes).

    q 2g. Chart selection and documentation: Chart selection follows guidelines provided in the protocol
    (e.g., randomized, appropriate type and number of charts). Assessors note discrepancies (e.g., chart
    unavailability).

    q 2h. Chart review: Both assessors review all charts and rate them independently.

    q 2i. Resolution of discrepancies: When a discrepancy exists between sources (e.g., charts and ACT team
    members), assessors make followup probes with an appropriate informant (typically the ACT leader
    or relevant staff members).

    q 2j. Independent ratings: No later than 1 day after the assessment, assessors independently complete scales
    before discussing ratings.

    /10 Subtotal

    Post-assessment visit

    q 3a. Timely consensus: Within 5 working days after the assessment, assessors discuss their ratings
    to determine consensus ratings, identifying any followup information needed. A third assessor
    (e.g., supervisor) may be consulted to resolve difficult ratings.

    q 3b. Inter-rater reliability: Raters agree exactly on ratings for at least 80% of the items. Sources of
    unreliability are discussed with supervisor and strategies developed to reduce future unreliability.

    q 3c. Follow up on missing data: If followup calls are needed to complete an item, information obtained
    within 3 working days.

    /3 Subtotal

    Comprehensive report writing

    Evaluating Your Program 83 Appendix I: Assessor Training

    q 4a. Documentation of background information:

    n List recipients of report in the header (usually the agency director and ACT leader;
    add others by mutual agreement).

    n Summarize time, place, and method.

    n Provide background about scale.

    q 4b. Site and normative fidelity data: Provide a table with item-level (consensus) scores, along with
    normative data (if available). Normative data include both national and State norms. In this table, provide
    comparative site data from prior assessments. On second and later assessments, provide a graph of global
    fidelity ratings over time for the site (trend line).

    q 4c. Quantitative summary: Provide narrative summary of quantitative data. List strengths and weaknesses.

    q 4d. Score interpretations:

    n Interpret overall score.

    n Include other pertinent observations.

    n Provide overall summary.

    n Provide opportunity for site to comment and clarify.

    q 4e. Report editing: If agency is working with a consultant, consultant may write report. Assessor and
    supervisor review draft of the report before it is submitted to the agency.

    /5 Subtotal

    Report submission and followup

    q 5a. Timely report: Report sent to agency director within 2 weeks of visit.

    q 5b. Follow up on report: If agency is working with a consultant, consultant discusses report with designated
    agency staff within 1 month of assessment.

    /2 Subtotal

    Quality control

    q 6. Quality control: Supervisor reviews assessments and gives feedback, as necessary, to assessors.
    Depending on skill level of assessors, supervisor periodically accompanies assessors on assessment
    for quality assurance purposes.

    /1 Subtotal

    /27 Total — Add the subtotals.

    HHS Publication No. SMA-09-4422
    Printed 2009

    26173.0709.7765020404

      Cover

    • Title Page
    • Acknowledgments
      Evaluating Your Program

    • What’s in Evaluating Your Program
    • Why Evaluate Your Family Psychoeducation Program?
      Why you should collect process measures
      Why you should collect outcome measures
      Why develop a quality assurance system
      Conduct a Readiness Assessment
      Readiness Assessment
      Conduct Process Assessments
      How to use process measures
      Monitor Outcomes
      Develop procedures
      What Is the Consumer Outcomes Monitoring Package?
      Expanding Your Outcome Measures
      Use Data to Improve Your Program

    • Appendix A: Cover Sheet- Family Psychoeducation Fidelity Scale and General Organizational Index
    • Appendix B: Checklist- Observation of Multifamily Group Sessions
    • Appendix C: Family Psychoeducation Fidelity Scale and Score Sheet
    • Appendix D: Family Psychoeducation Fidelity Scale Protocol
    • Appendix E: General Organizational Index and Score Sheet
    • Appendix F: General Organizational Index Protocol
      Appendix G: Outcomes Report Form
      Appendix H: Instructions for the Outcomes Report Form

    • Appendix I: Assessor Training and Work Performance Checklist

    A Road Map to Implementing
    Evidence-Based Programs

    June 2012

    Table of Contents

    Course Overview ………………………………………………………………………….. 3

    About this Course …………………………………………………………………….. 3

    Intended Audience ……………………………………………………………………. 3

    What to Expect………………………………………………………………………… 3

    Course Topics …………………………………………………………………………. 4

    Course Learning Objectives …………………………………………………………. 4

    Implementation Language ……………………………………………………………..5

    The Five Stages of Implementation ………………………………………………….7

    Exploration: Getting Started……………………………………………………………8

    Identifying Community Needs………………………………………………………. 8

    Assessing Organizational Capacity…………………………………………………. 9

    Searching Program Registries to Select the Right Program ………………….. 11

    Understanding Program Fidelity and Adaptation ………………………………. 12

    Installation: Launching Your Program……………………………………………. 13

    Initial Implementation: Expect the Unexpected ………………………………. 15

    Full Implementation: The Program is in Place …………………………………. 16

    Program Sustainability: Maintaining Your Program’s Success……………. 18

    Contact Us …………………………………………………………………………………. 19

    Appendix A – Resources ………………………………………………………………. 20

    Appendix B – References ……………………………………………………………… 24

    Appendix C – Supplemental Documents …………………………………………. 25

    Course Overview

    About this Course

    This course provides guidance to facilitate selection and implementation of one of

    the many evidence-based programs related to prevention and treatment that are

    publicly available today. You will learn how to (1) select the program that best

    matches your organization’s needs and (2) carry out the steps necessary to

    implement the program you choose

    .

    Intended Audience

    Individuals who may benefit from this course include members of an organization

    working collaboratively to identify and implement an evidence-based

    program.

    Whether you’re looking for a program that addresses bullying, underage drinking,

    drug abuse, or treatment of a specific mental health disorder, the information here

    can help you in the selection and implementation of a suitable program. Those who

    may find the course useful are:

     Administrators, program directors, or clinicians charged with identifying,

    selecting, and implementing a program to meet the needs of their target

    population, funders, community, etc.

     Individuals interested in learning more about best practices and strategies for
    successful program selection and

    implementation

    What to Expect

    This course provides overall guidance for appropriately selecting and implementing

    the program of your choice. The focus is not on individuals choosing a program, but

    rather on an organization working collaboratively to select and implement a

    program to fit its needs. Experience has shown that organizational commitment,

    readiness, and flexibility are all critical to successful selection and implementation

    of an evidence-based program or practice.

    This course includes several components. A section on terminology will introduce

    you to some of the language you may encounter during your program selection and

    implementation tasks. A glossary is also available if you need it. Each page is

    supplemented with links to other resources that may prove helpful to your learning

    experience. The information presented here has been distilled from professional

    publications, and full references appear at the end.

    A Road Map to Implementing Evidence-Based Programs | 3
    http://nrepp.samhsa.gov/AboutLearn.aspx

    Course Topics

    The following topics are covered in this course:

    1. Course Overview

    2.

    Implementation Language

    3. Five Stages of Implementation

    4.

    Exploration: Getting Started

    5.

    Installation: Launching Your Program

    6.

    Initial Implementation: Expect the Unexpected

    7.

    Full Implementation: The Program is in Place

    8. Program Sustainability: Maintaining Your Program’s Success

    Course Learning Objectives

    This course will help you learn:

     Basic terms related to program selection and implementation

     How to identify your organization’s needs

     Where to find available programs

     How to select the best program for your organization’s needs, with a focus on

    implementation

     The five basic stages of program implementation

    A Road Map to Implementing Evidence-Based Programs | 4
    http://nrepp.samhsa.gov/AboutLearn.aspx

    Implementation Language

    This section will introduce you to some of the terms used in the field of

    implementation science and research.

    To begin, the general term program, as used in this course, refers to an

    intervention designed to bring about specific outcomes for specific purposes or

    populations. An example would be a program based on scientific principles designed

    to prevent drug abuse by children.

    Implementation refers to putting the program — and the scientific principles — to

    work in a real setting, such as a school or community to bring benefits to a

    particular target audience.

    Dissemination of programs refers to the targeted distribution of information and

    program materials to a specific public health or clinical practice audience. The intent

    is to spread knowledge about the programs and encourage their use.

    Increasingly, the approach to prevention and treatment includes the use of

    evidence-based programs and practices. Evidence-based signifies that the

    approach is based in theory and has undergone scientific evaluation. This contrasts

    with approaches based on tradition, convention, belief, or anecdotal evidence. The

    shift to evidence-based programs seeks to enhance the potential for positive

    results. Today, many foundations, government agencies, and state legislatures

    encourage or require the use of evidence-based programs in service delivery plans.

    Evidence-based programs are designed by program developers such as researchers

    at universities, practitioners in the field, and businesses engaged in promoting and

    distributing social services

    programs.

    Many evidence-based programs contain a defined set of core components, which

    are the essential parts of a program. Some sample core components might be:

     There are five lessons of 30 minutes each that cover five specific themes.

     Sessions are conducted with a group of four to six elementary school

    students.

     The intervention is delivered in the home during home visits.
     The intervention is delivered in a specific sequence of stages.

    In the above example, if you decide to change the length or frequency of the

    lessons, or you use the program with a group of 12 middle school students, or you

    conduct the program in a classroom instead of at home, or you change the order in

    which the core components are introduced to the target population, you have

    changed the core components, and you are no longer implementing the program

    with fidelity. As a result, you cannot expect the same outcomes the developer

    predicted.

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    So, the term fidelity refers to including all the core components of a program

    during implementation to help ensure successful outcomes. The term adaptation

    refers to the process of changing a program to meet specific needs. If you adapt a

    program for any reason, you must maintain the core components to ensure

    success. Adaptation will be discussed in more detail later.

    Selecting a program for implementation in your setting involves careful planning,

    community and organizational involvement, and a comprehensive assessment of

    resources. Once this process is completed, you are ready to determine program fit.

    Program fit can be described as the (potential) match between your community’s

    needs, resources, and capacity to implement a program—with the requirements of

    the program.

    A critical piece of implementing any program or practice is the ability to measure

    the effect of the program on the population you are serving. In an outcome

    evaluation, it is important to use outcome measures: How is the system

    performing? What is the impact or result on what you are trying to change? In a

    process evaluation, use process measures: Are the parts/steps in the system

    performing as planned?

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    The Five Stages of Implementation

    Successfully implementing a program that fits your organization’s needs is a

    process – not a single event – that occurs in multiple stages of planning, purposeful

    action, and evaluating.

    It is not enough to simply select a proven evidence-based program and assume

    success will automatically follow. Good implementation strategies are essential.

    The National Implementation Research Network (NIRN)
    1

    reviewed more than 2,000

    articles on the

    implementation of

    programs and identified

    five main stages of

    successful

    implementation (Fixsen,

    Naoom, Blase, Friedman,

    & Wallace, 2005), which

    are all interrelated:

    1
    National Implementation Research Network (NIRN) – http://nirn.fpg.unc.edu

     Exploration

     Installation

     Initial Implementation

     Full Implementation
     Program

    Sustainability

    Since the stages are connected, issues addressed (or not addressed) in one stage

    can affect another stage. Moreover, changes in your organization or community

    may require you to revisit a stage and address activities again to maintain the

    program.

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    Exploration: Getting Started

    The goal of the Exploration Stage is to select the right evidence-based program.

    Your organization will strive to identify the best program fit, which is the match

    between needs and resources and the characteristics of the program (this is

    discussed in greater detail later). Four main activities are involved in this stage:

     Identify your community’s needs to determine the type of program that

    will be most appropriate.

     Assess your organizational capacity including financial resources,

    organizational commitment, and community buy-in to determine your ability

    to implement a program with fidelity.

     Search program registries to select a program that matches your

    community needs, your organization’s available resources, and available

    programs.

     Understand program fidelity and program adaptation.

    Focusing on these activities to identify a good program fit is part of ensuring

    successful implementation.

    Identifying Community Needs

    Much has been written about the importance of the community needs assessment.

    Identifying your target population and understanding its needs, challenges, and

    assets is critical to your success in choosing an appropriate program. Articulating

    the outcomes you want to achieve (such as reducing underage alcohol use or

    improving parental bonding) will provide the framework for exploring the range of

    evidence-based programs and practices and selecting the best fit for your

    organization.

    See Community Needs Assessment Resources and Tools
    2

    for more information on

    community needs assessments.

    2
    See Appendix A

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    Assessing

    Organizational Capacity

    Financial and Personnel Costs

    Programs cost money. You will likely need program-specific materials to implement

    the program (manuals, materials, etc.). However, implementing a new program

    may also require additional funds to hire new staff or purchase needed equipment

    or space. Contact the developer to discuss the program you are considering. The

    developer can clarify basic information such as costs, time needed, what to expect,

    etc. You also need to clearly identify your financial and staff and community

    resources. Do you have space available? Do you have the funding you need to fully

    implement the program? How much will the program itself cost? The program

    developer often indicates in the program materials how much it will cost for staff

    training, materials, additional equipment, technical assistance support, and all other

    costs directly associated with the program. Ask the program developer about these

    implementation costs and the cost of service delivery (how a program bills for the

    services it provides), if appropriate.

    There may also be other less obvious costs to consider related to infrastructure. For

    example, if the program indicates the need for staff with specific skills (such as

    someone with a master’s degree in social work), you will need to consider the skills

    of your current staff members and determine if you need to hire someone new or

    train a current staff person. If the program requires that all staff members have

    access to a computer program or an Internet connection, additional funds may be

    required to make such resources available. It is also important to pay attention to

    caseload standards as many evidence-based programs require a specific caseload

    that may be dramatically different from usual care. The overall size and scope of

    the chosen program will influence the potential associated costs of implementing it.

     Questions To Ask: Financial and Personnel Resources3

     See Organizational Capacity Resources and Tools4 for more information on
    organizational capacity.

    3
    See Appendix C

    4
    See Appendix A

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    Commitment and Buy-In

    Your organization’s staff at all levels will need to be committed to the

    implementation process for the long term. It may take one to four years to

    implement a program and achieve positive outcomes, and the process will continue

    throughout the life of the program. Discussions — and commitments — are
    extremely important.

    It is also important to understand that achieving buy-in is not a one-time event.

    Those in positions of leadership, who often make program decisions, and also the

    practitioners, support staff, and human resources staff will need to stay committed

    to facilitating delivery of the program and eliminating barriers to success.

     Questions To Ask: Commitment and Buy-In5

     See Organizational Capacity Resources and Tools6 for more information on
    organizational capacity.

    5
    See Appendix C

    6
    See Appendix A

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    Searching Program Registries to Select the Right Program

    Once you have a clear idea of your program needs and your organizational

    resources, you may search registries of programs to select a program that matches

    your needs. It is important to read and understand the criteria used to rate or

    classify programs as these will differ by source. Registries and other resources may

    also be specific to certain topics or service areas such as education, mental health,

    juvenile justice, etc.

    The Center for Substance Abuse Prevention (CSAP) provides a checklist of

    questions (CSAP, 2009) you may ask to see how well your potential selection might

    fit your needs:

     Questions To Ask: Center for Substance Abuse Prevention (CSAP)’s Checklist

    for Program Fit
    7

     See Program Registries Resources and Tools8 for more information on
    program registries.

    7
    See Appendix C

    8
    See Appendix A

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    Understanding Program

    Fidelity and Adaptation

    Two especially important concepts introduced earlier in the section on

    implementation language are program fidelity and program adaptation. It is

    common for an organization to decide to “adapt” a program at the time of selection

    (that is, change it to fit its needs) rather than plan to implement the program with

    fidelity (that is, as it was designed by the program developer). Typically,

    organizations want to change either (1) the program’s content or (2) the mode of

    delivery.

    You may choose to adapt a program for a variety of reasons, such as

     Differences in the target population: for example, your organization may be

    looking for a program suitable for a Latino population and find a good

    program that is not specifically targeted to Latinos; you might consider

    adjusting the program to serve that community

     Issues with complexity or ease of use: for example, a teacher may want to

    deliver a certain classroom-based program, but class time is not long enough

     Potential barriers to implementation such as time, money, resources, or

    accessing the target population

     Lack of perceived efficacy, relevance, or acceptance of the program

     Lack of understanding of what makes the program work

    Please be cautioned that your adaptations may have implications that will affect the

    program’s results. Many believe adapting a program is the easier route for

    achieving desired outcomes, but the opposite is often true. Adapting an intervention

    so that it meets the needs of a certain target population requires a thorough

    understanding of the program theory and the components mentioned earlier.

    Adapting a component of a program without understanding the underlying rationale

    may result in undesired or unintended program outcomes. Once adaptations have

    been made (without input from the program developer), you cannot expect to see

    the outcomes produced by the original.

    Adapting a program may also require additional resources (personnel, time, and

    funds) to monitor the adaptation and evaluate the outcomes. Program adaptations

    may be necessary, but they will require additional planning and evaluation above

    and beyond implementation with fidelity.

    See Fidelity and Adaptation Resources and Tools
    9

    for more information on fidelity

    and adaptation.

    9
    See Appendix A

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    Installation: Launching Your Program

    Once a program has been selected and materials purchased, the process of

    installing a program begins. Installation refers to making the structural and

    instrumental changes necessary to implement the program within an organization.

    Establishing an Implementation Team within your organization will be critical at this

    stage. The Implementation Team is a core set of individuals charged with

    providing guidance through full implementation of the program. This team helps

    ensure engagement of the stakeholders, creates readiness for implementation,

    ensures fidelity to the program, monitors outcomes, aligns systems, and removes

    barriers to implementation. An organization can choose to develop the

    Implementation Team during the Exploration Stage; however, the participants may

    change as you move into the Installation Stage.

    The following are typical tasks to be conducted during this stage:

     Establish space in the organization for the program, including both physical

    space and process space.

     Develop easily accessible data systems to collect and measure the effects of

    the program and the

    process.

     Install and debug any needed equipment (e.g., software).

     Interview current staff to ensure a match with needed qualifications.

     Recruit, select, and hire additional staff as needed.

     Train staff to use the program and any new systems or equipment needed to
    implement the program.

    Best Practices

    The following are best practices for the Installation Stage:

     Establish an Implementation Team.
    o A strong understanding of the program to be implemented
    o Knowledge of how to successfully implement the program with fidelity
    o An ability to become more effective and efficient over time through

    experience

     Identify and engage an individual or group of individuals to
    “champion” or promote your chosen program.

    o Look for people within the organization and the community who are
    influential, respected, and committed to the program. These people
    must have the ability to identify problems that arise and to propose

    solutions to support and ensure the success of the program. These

    individuals should be active participants in the implementation process

    and involved with or be members of the Implementation Team.

     Budget for startup costs.

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    o Since installation occurs prior to the provision of the new service,
    funds will be expended that are not reimbursable or covered through

    other funding mechanisms.
     Recognize and address issues regarding readiness.

    o Individuals do not adapt to change in the same way or along the same
    time line. Preparing for change and recognizing change occurs in

    stages leads to a supportive climate for implementation.

    Potential Challenges

    The following are potential challenges during the Installation Stage:

     The organization will be spending money before new services are being
    provided.

     The “status quo” or “business as usual” attitudes and behaviors will be
    challenged and can cause discomfort and disruption.

     A deeper understanding of the challenges of implementing the new program
    may surface as practitioners, staff, and leadership individuals are asked to

    change behaviors and processes.

    The new program may cause disequilibrium in the system. For example, many

    agencies and partners will be affected as new services are provided, particularly

    with respect to referral procedures.

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    Initial Implementation: Expect the Unexpected

    During the initial implementation stage, individuals begin to put into practice all

    that has been planned for during exploration and installation. Practitioners and staff

    will be changing their behavior, using new skills for the first time, and incorporating

    new practices into their everyday routine.

    This stage is often awkward because people are now expected to perform new skills

    and engage in new processes, which may lead them to perform in an uncoordinated

    or hesitant fashion. Practicing and implementing new skills with fidelity will take

    time.

    Best Practices

    The following are best practices for the Initial Implementation Stage:

    1. Manage the Change Process. One role for the Implementation Team will

    be to guide and manage the change process and help mitigate fear and

    resistance. As the team works to remove barriers, it can address issues that

    surface and help maintain the momentum of the initiative. The

    Implementation Team can help to set realistic goals and expectations

    regarding implementation progress, time lines, and the collection and use of

    the right data at the right time.

    2. Accept Abundant Coaching. Ongoing consistent coaching for line staff and

    practitioners is critical to implementation success. A coach can be trained by

    the program developer or have extensive experience implementing the

    program in a similar organizational environment. A coach can provide

    immediate feedback and support to practitioners and staff. Coaching

    minimizes resistance, increases positive perceptions of the program and

    implementation, and enhances skills development. Coaching also helps

    manage expectations and normalize the implementation. Coaches may be

    employed by the organization to support staff and assist with monitoring

    outcomes with ongoing technical assistance.

    Potential Challenges

    The following are potential challenges during the Initial Implementation Stage:

     Resistance to change: Putting new and unfamiliar skills and processes to
    use can be uncomfortable.

     Inertia: Program implementation may get stalled on bumps and snags along
    the way, causing the initiative to lose momentum.

     Program adaptations: Discomfort and uncertainty can lead to changes to
    core intervention components.

     Unrealistic expectations: Organizational leaders and funders may have
    unrealistic expectations regarding implementation progress or consumer

    outcomes during this stage.

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    Full Implementation: The Program is in Place

    Full implementation occurs when the program is integrated into the service,

    organization, and system settings. The processes and procedures to provide the

    selected program are now in place. For example, staffing is complete, caseloads are

    full, services are being more skillfully provided by staff, and funding streams are in

    place. It now becomes important to maintain and improve the program through

    excellent monitoring and purposeful improvement to avoid entering program drift

    (that is, edging toward a lack of fidelity). Your program or service is ready to be

    evaluated, with a focus on assessing program fidelity. Fidelity measures, which can

    be provided by the program developer, are commonly used at this point to

    determine if the program is being delivered as intended.

    After a program has been implemented with fidelity, program modifications may be

    considered to help produce better outcomes. For example, if fidelity is high but

    outcomes are not as expected, this may require program adaptation, an adjustment

    to the program to fit the specific needs of the organization or its recipients.

    All adaptations should be carried out carefully and systematically with the help of

    the program developer and with attention to both process and outcome

    evaluations. Process evaluation determines if the program has been implemented

    as intended; for example, if you accomplished what you intended. Outcome

    evaluation refers to reviewing the results to determine if the program is working for

    the intended population and how this is measured. Outcome evaluation refers to

    reviewing the results to determine if the program is working for the intended

    population and how this is measured.

    Best Practices

    The following are best practices for the Full Implementation Stage:

    1. Maintain and improve service, linkages, support, and infrastructure.

    2. Maintain integrated, fully functioning core program components. If

    adaptations must be made, engage the program developer in the adaptation

    process.

    3. Monitor and evaluate fidelity to ensure the program is being skillfully

    delivered, using fidelity measures and indicators developed specifically for

    this purpose.

    Potential Challenges

    The following are potential challenges during the Full Implementation Stage:

     Lack of training or failure to receive the full dosage of training intended

     Lack of required materials

     Use of some but not all of the required lessons and delivery strategies

     Failure to offer the program in the required sequence of stages

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     Failure to plan for and manage staff turnover

     Lack of adequate referrals

     Lack of time to implement the entire program

     Miscellaneous difficulties or inconveniences, such as technology or equipment

    failures

     Day-to-day crises

     Failure to maintain the buy-in and support of staff, administrators, or others

    Organizational issues may also contribute to this failure, such as:

     Lack of funding

     Inadequate infrastructure

     Lack of data-driven decisionmaking or autonomous decisionmaking, where

    frontline staff are not communicating decisions to leadership or management

     Lack of administrative support

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    Program Sustainability: Maintaining Your Program’s Success

    Sustainability is only possible when full implementation has been achieved.

    Sustaining change can be difficult. Your program is not frozen in time and must

    adapt continually to changes in the community, funding streams, and organizational

    priorities. Organizational culture, leadership, and staff need to be nurtured and

    maintained. The involvement of high-level administrators in a continuous feedback

    loop with the Implementation Team, providers, and recipients is critical. At this

    stage, an organization should institutionalize a quality assurance mechanism to

    evaluate use of data. This will facilitate assessing the effectiveness and quality of

    the program.

    Most importantly, sustainability can and should be planned for early in the

    implementation process and examined at each stage.

    “The bridge from science to service must be built, repaired, maintained, and

    improved.” – NIRN Brief, January 2009

    Best Practices

    The following are best practices for the Program Sustainability Stage:

    1. Ensure continued funding for the program and the supporting infrastructure

    is built into organization’s budget.

    2. Ensure fidelity to core program components.

    3. Develop and implement plans for quality improvement, including regular

    review of process and outcome measures and using results to improve the

    program.

    4. Evaluate data systems that support decisionmaking regarding the

    implementation of your program’s outcomes.

    5. Develop new community partnerships while maintaining existing

    relationships.

    6. Share positive results with staff, community and others to maintain buy-in

    and support.

    Celebrate success with program recipients, staff, and community.

    Potential Challenges

    The following are potential challenges during the Program Sustainability Stage:

     Obstacles and challenges to ongoing success can be many and varied. The

    best approach is to continue to monitor results and be alert to changes that

    might affect your program.

     Changes that might occur include:

    o Funding levels or sources of funding

    o Staff turnover

    o Organizational priorities
    o Organizational leadership

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    Contact Us

    Thank you for completing our learning module on implementation. We wish you

    success in selecting and implementing the right program for your community. If

    you have feedback, comments, or further questions, please Contact Us
    10

    .

    10
    Contact Us page of the NREPP website – http://nrepp.samhsa.gov/

  • ContactUs
  • .aspx

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    Appendix A – Resources

    Community Needs Assessment

    Tools

     CDC Evaluation Working Group: Framework for Program Evaluation
    http://www.cdc.gov/eval/framework/index.htm

     Child Welfare Information Builder: Evaluation Toolkit and Logic Model Builder
    http://www.childwelfare.gov/preventing/developing/toolkit/

     Community Toolbox: Implementing Best Process for Community Change and
    Improvement

    http://ctb.ku.edu/en/promisingapproach/

     FRIENDS National Resource Center for Community-Based Child Abuse
    Prevention: Evaluation Toolkit

    http://www.friendsnrc.org/evaluation-toolkit

     RE-AIM: Reach, Effectiveness, Adoption, Implementation and Maintenance
    Framework

    http://www.re-aim.org/
     W.K. Kellogg Foundation: Evaluation Handbook

    http://www.wkkf.org/knowledge-center/resources/2010/W-K-Kellogg-

    Foundation-Evaluation-Handbook.aspx

     W.K. Kellogg Foundation: Logic Model Development Guide
    http://www.wkkf.org/knowledge-center/resources/2006/02/WK-Kellogg-

    Foundation-Logic-Model-Development-Guide.aspx

    Further Reading

     Aarons, G. A., Wells, R. S., Zagursky, K., Fettes, D. L., & Palinkas, L. A.
    (2009). Implementing evidence-based practice in community mental health

    agencies: A multiple stakeholder analysis. American Journal of Public Health

    99(11):2087-95.

     Understanding Evaluation: The way to better Prevention Programs
    http://ed.gov/PDFDocs/handbook (PDF, 207KB)

    Organizational Capacity
    Tools

     NREPP’s Questions to Ask Program Developers
    http://www.nrepp.samhsa.gov/pdfs/questions_to_ask_developers (PDF,

    54KB)
     FRIENDS National Resource Center for Community-Based Child Abuse

    Prevention: Integrating Evidence-Based Practices into CBCAP Programs: A

    Tool for Critical Discussions–Appendix D-Implementation Plan Worksheet

    http://friendsnrc.org/direct-download-menuitem/doc_download/46-

    introduction-and-getting-started (PDF, 156KB)

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    http://friendsnrc.org/direct-download-menuitem/doc_download/47-

    appendices (PDF, 99KB)

    Further Reading

     Chinman, M., Imm, P., & Wandersman, A. (2004). Getting to Outcomes ™

    2004: Promoting accountability through methods and tools for planning,

    implementation, and evaluation. No. TR-TR101. Santa Monica, CA: RAND

    Corporation. Available at http://www.rand.org/publications/TR/TR101/ .

     Hall, G. E., Dirksen, D. J., & George, A. A. (2006). Measuring implementation
    in schools: Levels of use. Southwest Educational Development Laboratory.

     Wiseman, S., Chinman, M., Ebener, P., Hunter, S., Imm, P., & Wandersman,

    A. (2007). Getting to outcomes: 10 steps for achieving results-based

    accountability. No. TR-TR101/2. Santa Monica, CA: RAND Corporation.

    Available at http://www.rand.org/pubs/technical_reports/TR101.2/.

    Fidelity and Adaptation
    Tools

     California Healthy Kids Resource Center: Fidelity Guidelines and Checklists
    for Research-Validated Programs

    http://www.californiahealthykids.org/c/@sDGcv3s0nPHWQ/Pages/fidelity.ht

    ml

     FRIENDS National Resource Center for Community-Based Child Abuse
    Prevention: Integrating Evidence-Based Practices into CBCAP Programs: A

    Tool for Critical Discussions

    http://www.friendsnrc.org/cbcap-priority-areas/evidence-base-practice-in-

    cbcap/integratingevidence-based-practice-resources

     The Chadwick Center for Children and Families: – Adaptation Guidelines for
    Serving Latino Children and Families Affected by Trauma
    http://www.chadwickcenter.org/WALS/wals.htm

     The Hogg Foundation for Mental Health at the University of Texas at Austin –
    http://www.hogg.utexas.edu/programs_cai_bib.html#poc_ca

    Program Registries

    Tools

     Blueprints for Violence Prevention: Center for the Study and Prevention of
    Violence

    o Model Programs:
    http://www.colorado.edu/cspv/blueprints/modelprograms.html

    o Promising Programs:
    http://www.colorado.edu/cspv/blueprints/promisingprograms.html

     California Evidence Based Clearinghouse for Child Welfare
    http://www.cebc4cw.org

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     California Healthy Kids Resource Center
    http://www.californiahealthykids.org/rvalidated

     Campbell Collaboration (C2)
    http://www.campbellcollaboration.org/

     Center for the Study of Social Policy: Exemplary Early Childhood Programs
    http://www.strengtheningfamilies.net/index.php/program_tools/change/cate

    gory/learning_from_exemplary_programs/

     Coalition for Evidence-Based Policy, Social Programs that Work
    http://evidencebasedprograms.org/wordpress/

     Cochrane Collaboration
    http://www.cochrane.org/

     National Association of County and City Health Officials: The Model Practice
    Database

    http://www.naccho.org/topics/modelpractices/database/index.cfm
     National Registry of Evidence Based Programs

    and Practices (NREPP)

    http://

    www.nrepp.samhsa.gov

     Office of Juvenile Justice and Delinquency: Model Programs Guide
    http://www.dsgonline.com/mpg_non_flash/search.htm

     Promising Practices Network: Programs that Work
    http://www.promisingpractices.net/programs.asp

     Public Health Agency of Canada: The Canadian Best Practices Portal
    http://cbpp-pcpe.phac-aspc.gc.ca/intervention/list

     Sociometrics: Effective Programs
    http://www.socio.com/effectiveprograms.php

    Additional Resources

     CASEL, Safe and Sound: An Education Leader’s Guide to Evidence-Based
    Social and Emotional Learning (SEL) Programs

    http://www.edutopia.org/safe-and-sound-education-leaders-guide-evidence-

    based-social-and-emotional-learning-sel-p

     Child Trends: Research to Improve Children’s Lives
    http://www.childtrends.org/_portalcat.cfm?LID=C6CEDAFE-34FF-4DFD-

    9CD745899CE5D128

     Children’s Services Council, Palm Beach County. Evidence-Based Programs
    http://www.evidencebasedassociates.com/reports/research_review (PDF,

    360KB)
     Department of Education’s Expert Panel on Safe, Disciplined and Drug-Free

    Schools Programs

    http://www.ed.gov/admins/lead/safety/exemplary01/index.html

     Evidence for Policy and Practice Information and Co-ordinating Centre (EPPI-
    Centre), University of London

    http://eppi.ioe.ac.uk/cms/
     FRIENDS: National Resource Center for Community-Based Child Abuse

    Prevention (CBCAP): Integrating Evidence-Based Resources

    http://friendsnrc.org/cbcap-priority-areas/evidence-base-practice-in-

    cbcap/integrating-evidence-based-practice-resources

    A Road Map to Implementing Evidence-Based Programs | 22
    http://nrepp.samhsa.gov/AboutLearn.aspx

     Guide to Community Preventive Services (U.S. Centers for Disease Control
    and Prevention)

    http://www.thecommunityguide.org/index.html
     NASMHPD Research Institute (NRI): Center for Mental Health Quality and

    Accountability: Synthesis of Reviews of Children’s Evidence-Based Practices.

    Prepared by Jacqueline Yannacci, M.P.P., and Jeanne C. Rivard, Ph.D., June

    2005.

    http://ebp.networkofcare.org/uploads/Synthesis_of_Reviews_of_the_Researc
    h_on_Evidence_Based_and_Promising_Practices_9592994 (PDF, 1.6MB)

     Pew Partnership for Civic Change: Solutions for America (The Guide for Civic
    Problem Solving)

    http://www.solutionsforamerica.org/

    A Road Map to Implementing Evidence-Based Programs | 23
    http://nrepp.samhsa.gov/AboutLearn.aspx

    Appendix B – References

     Backer, T. E. (2001). Finding the balance: Program fidelity and adaptation in

    substance abuse prevention. Rockville, MD: Center for Substance Abuse

    Prevention, SAMHSA Model Programs (www.samhsa.gov).

     California Department of Education, California Department of Public Health:

    California Healthy Kids Resource Center. (2010). Fidelity guidelines and

    checklists for research-validated programs. Available at

    http://www.californiahealthykids.org/fidelity.

     CSAP (Center for Substance Abuse Prevention). (2009). Identifying and

    selecting evidence-based interventions. HHS Pub. No. (SMA) 09-4205.

    Rockville, MD: U.S. Department of Health and Human Services, Substance

    Abuse and Mental Health Services Administration.

     Domitrovich, C. E., & Greenberg, M. T. (2000). The study of implementation:

    Current findings from effective programs that prevent mental disorders in

    school-aged children. Journal of Educational and Psychological Consultation,

    11(2), 193–221.

     Dusenbury, L., Brannigan, R., Falco, M., & Hansen, W. B. (2003). A review of

    research on fidelity of implementation: Implications for drug abuse

    prevention in school settings. Health Education Research, 18(2), 237–256.

     Elliott, D. S., & Mihalic, S. (2004). Issues in disseminating and replicating

    effective prevention programs. Prevention Science, 5(1), 47–53.

     Fixsen, D. L., Blase K. A., Duda, M. A., Naoom, S. F., Van Dyke, M. (2010).

    Implementation of evidence-based treatments for children and adolescents:

    Research findings and their implications for the future. In J. R. Wiez and A. E.

    Kazdin (Eds.), Evidence-based psychotherapies for children and adolescents.

    New York: Guidford Press.

     Fixsen, D. L., Naoom, S. F., Blase, K. B, & Wallace, F. (2007).

    Implementation: The missing link between research and practice. APSAC

    Advisor, 19 (1 & 2), pp. 4–11.

     Fixsen, D. L., Naoom, S. F., Blase, K. A., Friedman, R. M., & Wallace, F.

    (2005). Implementation research: A synthesis of the literature. The National

    Implementation Research Network. FMHI Publication #231. Tampa, FL:

    University of South Florida, Louis de la Parte Florida Mental Health Institute.

    o Available at http://nirn.fpg.unc.edu/

     Mowbray, C. T., Bybee, D., Holter, M., & Lewandowski, L. (2006). Validation

    of a fidelity rating instrument for consumer-operated services. American

    Journal of Evaluation, 27(1), 9–27.

     NCI (National Cancer Institute). (n.d.). Using what works: Adapting

    evidence-based programs to fit your needs. Module 4, Making the evidence-

    based program fit your needs: Adaptation and your program summary.

    Glossary

    http://nrepp.samhsa.gov/AboutGlossary.aspx

    A Road Map to Implementing Evidence-Based Programs | 24
    http://nrepp.samhsa.gov/AboutLearn.aspx

    Appendix C – Supplemental Documents

    Questions to Ask:

     Financial and Personnel Resources

     Commitment and Buy-In

     CSAP’s Checklist for Program Fit

    Questions to Ask: Financial and Personnel Resources

    Recruitment/Hiring

     If you need to hire new staff, how much will it cost to recruit and fund

    additional staff?

     Will you need to increase from part-time to full-time staff?

    Staff Training

     How much will it cost to train staff on the new evidence-based program?

     How much will it cost to train staff on the necessary skills to support the new
    evidence-based program?

    Equipment and Maintenance

     What additional equipment will you need to purchase such as computers, cell

    phones, furniture, telecommunication equipment, or other resources?

     What technical support will be required to maintain any new equipment?

     How much will it cost to maintain the equipment?

    Facilities

     What are the space requirements to implement the new program?

     Will you need to increase your office and meeting space to accommodate

    new staff or program recipients?

     Do you have the funds available to acquire any new space required?

    Sustainability

     What are the long-term costs associated with maintaining the program?

     What are the long-term costs associated with maintaining the organizational
    infrastructure required for implementation?

    A Road Map to Implementing Evidence-Based Programs | 25
    http://nrepp.samhsa.gov/AboutLearn.aspx

    Questions to Ask: Commitment and Buy-In

    Leadership

     What is the leadership’s plan to ensure and sustain community commitment
    and buy‐in?

     What barriers are anticipated that might influence program implementation

    and how will these barriers be addressed, both inside and outside the

    organization?

     How will leadership address possible resistance to systems change both
    inside and outside the organization?

    Staff/Providers

     How will all staff be engaged to work to create a hospitable environment for

    a new program?

     How will staff be trained and supported to ensure and sustain commitment
    and buy‐in.

    Support Staff

     How will current recruitment and hiring policies be changed or addressed if

    found to inhibit or delay of program implementation?

     How will the new program affect billing for new services and what systems

    will be required to accommodate these changes?

    A Road Map to Implementing Evidence-Based Programs | 26
    http://nrepp.samhsa.gov/AboutLearn.aspx

    Questions to Ask: Center for Substance Abuse Prevention (CSAP)’s

    Checklist for Program Fit

     Is the program appropriate for the population identified in the community

    needs assessment and community logic model? Has the program been

    implemented successfully with the same or a similar population? Are the

    population differences likely to compromise the results?

     Is the program delivered in a setting similar to the one planned by your

    community? In what ways is the context different? Are the differences likely

    to compromise the program’s effectiveness?

     Is the program culturally appropriate? Did members of the culturally

    identified group participate in developing it? Were program materials adapted

    to the culturally identified group?

     Are program materials (e.g., manuals, procedures) available to guide

    implementation? Are training and technical assistance available to support

    implementation? Are monitoring or evaluation tools available to help track

    implementation quality?

     Is the program culturally feasible, given the values of the community?

     Is the program politically feasible, given the local power structure and

    priorities of the implementing organization? Does the program match the

    mission, vision, and culture of the implementing organization?

     Is the program administratively feasible, given the policies and

    procedures of the implementing organization?

     Is the program technically feasible, given staff capabilities, time

    commitments, and program resources?

     Is the program financially feasible, given the estimated costs of

    implementation (including costs for purchase of implementation materials

    and specialized training or technical assistance)?

    Thoughtful consideration and discussion of the above questions will be helpful in

    identifying the right program.

    A Road Map to Implementing Evidence-Based Programs | 27
    http://nrepp.samhsa.gov/AboutLearn.aspx

    SAMHSA’s National Registry of Evidence-based Programs

    and Practices (NREPP)
    www.nrepp.samhsa.gov

    A Road Map to Implementing Evidence-Based Programs | 28
    http://nrepp.samhsa.gov/AboutLearn.aspx

    • TOC
    • CourseOverview
    • CourseTopics
    • CourseLearningObjectives
    • ImplementationLanguage
    • TheFiveStagesofImplementation
    • ExplorationGettingStarted
    • IdentifyingCommunityNeeds
    • AssessingOrganizationCapacity
    • Searching
    • ProgramRegistries
    • UnderstandingProgramFidelity
    • InstallationLaunchingYourProgram
    • InitialImplementation
    • FullImplementation
    • ProgramSustainability
    • ContactUs

    • AppendixA
    • CommunityNeedsAssessment
    • OrganizationalCapacity
    • FidelityandAdaptation
    • ProgramRegistries

    • AdditionalResources
    • AppendixB
    • AppendixC
    • FinancialandPersonnelResources
    • CommitmentandBuyIn
    • CSAPChecklist

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